Quality of Life among Ghanaian Adolescents Living with Perinatally Acquired HIV: A Mixed Methods Study
Identifieur interne : 000915 ( Ncbi/Merge ); précédent : 000914; suivant : 000916Quality of Life among Ghanaian Adolescents Living with Perinatally Acquired HIV: A Mixed Methods Study
Auteurs : Anthony Enimil ; Nicole Nugent [États-Unis] ; Christian Amoah ; Betty Norman ; Sampson Antwi ; Joseph Ocran [Ghana] ; Awewura Kwara [États-Unis] ; David H. Barker [États-Unis]Source :
- AIDS care [ 0954-0121 ] ; 2015.
Descripteurs français
- KwdFr :
- Adolescent, Compréhension, Divulgation, Enfant, Enquêtes et questionnaires, Entretiens comme sujet, Femelle, Ghana (épidémiologie), Humains, Infections à VIH (), Infections à VIH (ethnologie), Infections à VIH (psychologie), Mâle, Population d'origine africaine (psychologie), Qualité de vie (psychologie), Recherche qualitative, Soutien social, Stigmate social.
- MESH :
- ethnologie : Infections à VIH.
- psychologie : Infections à VIH, Population d'origine africaine, Qualité de vie.
- épidémiologie : Ghana.
- Adolescent, Compréhension, Divulgation, Enfant, Enquêtes et questionnaires, Entretiens comme sujet, Femelle, Humains, Infections à VIH, Mâle, Recherche qualitative, Soutien social, Stigmate social.
- Wicri :
- geographic : Ghana.
English descriptors
- KwdEn :
- Adolescent, African Continental Ancestry Group (psychology), Child, Comprehension, Disclosure, Female, Ghana (epidemiology), HIV Infections (congenital), HIV Infections (ethnology), HIV Infections (psychology), Humans, Interviews as Topic, Male, Qualitative Research, Quality of Life (psychology), Social Stigma, Social Support, Surveys and Questionnaires.
- MESH :
- geographic , epidemiology : Ghana.
- congenital : HIV Infections.
- ethnology : HIV Infections.
- psychology : African Continental Ancestry Group, HIV Infections, Quality of Life.
- Adolescent, Child, Comprehension, Disclosure, Female, Humans, Interviews as Topic, Male, Qualitative Research, Social Stigma, Social Support, Surveys and Questionnaires.
Abstract
In Sub-Saharan Africa, increasing numbers of children with perinatally acquired HIV (PAHIV) are living into adolescence. These adolescents face numerous unique challenges such as parent illness/death and years of medication use. Optimizing care for these youth requires an understanding of the factors that contribute to physical health, psychological wellbeing, social relationships, and quality of life. This mixed methods study collected quantitative questionnaire data from 40 Ghanaian adolescents with PAHIV (50% female, 12–19 years old) who received care through an adolescent HIV clinic in Kumasi, Ghana. The study also presents results from qualitative interviews conducted with 20 adolescents. Results from quantitative analyses suggested that a significant number of participants were not virally suppressed (67%) and participants reported barriers to treatment adherence, limited social support, concerns about disclosure and HIV-related stigma, limited resources, and lower than expected quality of life (QOL). Salient themes from the qualitative analyses included limited understanding of how HIV is transmitted, the interplay between food insecurity and treatment adherence and the need for developing safe relationships through which adolescents can discuss their illness without fear of accidental disclosure of their HIV status.
Url:
DOI: 10.1080/09540121.2015.1114997
PubMed: 26643735
PubMed Central: 4764441
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Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A6">Department of Behavioural Sciences, School of Medical Sciences, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Norman, Betty" sort="Norman, Betty" uniqKey="Norman B" first="Betty" last="Norman">Betty Norman</name><affiliation><nlm:aff id="A7">Directorate of Medicine, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A8">Department of Medicine, Kwame Nkrumah University of Science and Technology</nlm:aff><wicri:noCountry code="subfield">Kwame Nkrumah University of Science and Technology</wicri:noCountry></affiliation></author><author><name sortKey="Antwi, Sampson" sort="Antwi, Sampson" uniqKey="Antwi S" first="Sampson" last="Antwi">Sampson Antwi</name><affiliation><nlm:aff id="A1">Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A2">Department of Child Health, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Ocran, Joseph" sort="Ocran, Joseph" uniqKey="Ocran J" first="Joseph" last="Ocran">Joseph Ocran</name><affiliation wicri:level="3"><nlm:aff id="A9">Department of Sociology, University of Ghana, Accra</nlm:aff><country>Ghana</country><placeName><settlement type="city">Accra</settlement><region nuts="2">Région du Grand Accra</region></placeName><wicri:orgArea>Department of Sociology, University of Ghana</wicri:orgArea></affiliation></author><author><name sortKey="Kwara, Awewura" sort="Kwara, Awewura" uniqKey="Kwara A" first="Awewura" last="Kwara">Awewura Kwara</name><affiliation wicri:level="2"><nlm:aff id="A10">Department of Medicine, The Miriam Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Medicine, The Miriam Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A11">Department of Medicine, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Medicine, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author><author><name sortKey="Barker, David H" sort="Barker, David H" uniqKey="Barker D" first="David H." last="Barker">David H. Barker</name><affiliation wicri:level="2"><nlm:aff id="A3">Department of Psychiatry, Rhode Island Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry, Rhode Island Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A4">Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author></analytic><series><title level="j">AIDS care</title><idno type="ISSN">0954-0121</idno><idno type="eISSN">1360-0451</idno><imprint><date when="2015">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>African Continental Ancestry Group (psychology)</term><term>Child</term><term>Comprehension</term><term>Disclosure</term><term>Female</term><term>Ghana (epidemiology)</term><term>HIV Infections (congenital)</term><term>HIV Infections (ethnology)</term><term>HIV Infections (psychology)</term><term>Humans</term><term>Interviews as Topic</term><term>Male</term><term>Qualitative Research</term><term>Quality of Life (psychology)</term><term>Social Stigma</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent</term><term>Compréhension</term><term>Divulgation</term><term>Enfant</term><term>Enquêtes et questionnaires</term><term>Entretiens comme sujet</term><term>Femelle</term><term>Ghana (épidémiologie)</term><term>Humains</term><term>Infections à VIH ()</term><term>Infections à VIH (ethnologie)</term><term>Infections à VIH (psychologie)</term><term>Mâle</term><term>Population d'origine africaine (psychologie)</term><term>Qualité de vie (psychologie)</term><term>Recherche qualitative</term><term>Soutien social</term><term>Stigmate social</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Ghana</term></keywords><keywords scheme="MESH" qualifier="congenital" xml:lang="en"><term>HIV Infections</term></keywords><keywords scheme="MESH" qualifier="ethnologie" xml:lang="fr"><term>Infections à VIH</term></keywords><keywords scheme="MESH" qualifier="ethnology" xml:lang="en"><term>HIV Infections</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Infections à VIH</term><term>Population d'origine africaine</term><term>Qualité de vie</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>African Continental Ancestry Group</term><term>HIV Infections</term><term>Quality of Life</term></keywords><keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>Ghana</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Comprehension</term><term>Disclosure</term><term>Female</term><term>Humans</term><term>Interviews as Topic</term><term>Male</term><term>Qualitative Research</term><term>Social Stigma</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Compréhension</term><term>Divulgation</term><term>Enfant</term><term>Enquêtes et questionnaires</term><term>Entretiens comme sujet</term><term>Femelle</term><term>Humains</term><term>Infections à VIH</term><term>Mâle</term><term>Recherche qualitative</term><term>Soutien social</term><term>Stigmate social</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Ghana</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">In Sub-Saharan Africa, increasing numbers of children with perinatally acquired HIV (PAHIV) are living into adolescence. These adolescents face numerous unique challenges such as parent illness/death and years of medication use. Optimizing care for these youth requires an understanding of the factors that contribute to physical health, psychological wellbeing, social relationships, and quality of life. This mixed methods study collected quantitative questionnaire data from 40 Ghanaian adolescents with PAHIV (50% female, 12–19 years old) who received care through an adolescent HIV clinic in Kumasi, Ghana. The study also presents results from qualitative interviews conducted with 20 adolescents. Results from quantitative analyses suggested that a significant number of participants were not virally suppressed (67%) and participants reported barriers to treatment adherence, limited social support, concerns about disclosure and HIV-related stigma, limited resources, and lower than expected quality of life (QOL). Salient themes from the qualitative analyses included limited understanding of how HIV is transmitted, the interplay between food insecurity and treatment adherence and the need for developing safe relationships through which adolescents can discuss their illness without fear of accidental disclosure of their HIV status.</p></div></front></TEI><double pmid="26643735"><pmc><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Quality of Life among Ghanaian Adolescents Living with Perinatally Acquired HIV: A Mixed Methods Study</title><author><name sortKey="Enimil, Anthony" sort="Enimil, Anthony" uniqKey="Enimil A" first="Anthony" last="Enimil">Anthony Enimil</name><affiliation><nlm:aff id="A1">Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A2">Department of Child Health, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Nugent, Nicole" sort="Nugent, Nicole" uniqKey="Nugent N" first="Nicole" last="Nugent">Nicole Nugent</name><affiliation wicri:level="2"><nlm:aff id="A3">Department of Psychiatry, Rhode Island Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry, Rhode Island Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A4">Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author><author><name sortKey="Amoah, Christian" sort="Amoah, Christian" uniqKey="Amoah C" first="Christian" last="Amoah">Christian Amoah</name><affiliation><nlm:aff id="A5">Psychiatry Department, Directorate of Medicine, Komfo Anokye Teaching Hospital. Kumasi</nlm:aff><wicri:noCountry code="subfield">Komfo Anokye Teaching Hospital. Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A6">Department of Behavioural Sciences, School of Medical Sciences, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Norman, Betty" sort="Norman, Betty" uniqKey="Norman B" first="Betty" last="Norman">Betty Norman</name><affiliation><nlm:aff id="A7">Directorate of Medicine, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A8">Department of Medicine, Kwame Nkrumah University of Science and Technology</nlm:aff><wicri:noCountry code="subfield">Kwame Nkrumah University of Science and Technology</wicri:noCountry></affiliation></author><author><name sortKey="Antwi, Sampson" sort="Antwi, Sampson" uniqKey="Antwi S" first="Sampson" last="Antwi">Sampson Antwi</name><affiliation><nlm:aff id="A1">Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A2">Department of Child Health, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Ocran, Joseph" sort="Ocran, Joseph" uniqKey="Ocran J" first="Joseph" last="Ocran">Joseph Ocran</name><affiliation wicri:level="3"><nlm:aff id="A9">Department of Sociology, University of Ghana, Accra</nlm:aff><country>Ghana</country><placeName><settlement type="city">Accra</settlement><region nuts="2">Région du Grand Accra</region></placeName><wicri:orgArea>Department of Sociology, University of Ghana</wicri:orgArea></affiliation></author><author><name sortKey="Kwara, Awewura" sort="Kwara, Awewura" uniqKey="Kwara A" first="Awewura" last="Kwara">Awewura Kwara</name><affiliation wicri:level="2"><nlm:aff id="A10">Department of Medicine, The Miriam Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Medicine, The Miriam Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A11">Department of Medicine, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Medicine, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author><author><name sortKey="Barker, David H" sort="Barker, David H" uniqKey="Barker D" first="David H." last="Barker">David H. Barker</name><affiliation wicri:level="2"><nlm:aff id="A3">Department of Psychiatry, Rhode Island Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry, Rhode Island Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A4">Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">26643735</idno><idno type="pmc">4764441</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4764441</idno><idno type="RBID">PMC:4764441</idno><idno type="doi">10.1080/09540121.2015.1114997</idno><date when="2015">2015</date><idno type="wicri:Area/Pmc/Corpus">000378</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000378</idno><idno type="wicri:Area/Pmc/Curation">000377</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">000377</idno><idno type="wicri:Area/Pmc/Checkpoint">000144</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">000144</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Quality of Life among Ghanaian Adolescents Living with Perinatally Acquired HIV: A Mixed Methods Study</title><author><name sortKey="Enimil, Anthony" sort="Enimil, Anthony" uniqKey="Enimil A" first="Anthony" last="Enimil">Anthony Enimil</name><affiliation><nlm:aff id="A1">Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A2">Department of Child Health, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Nugent, Nicole" sort="Nugent, Nicole" uniqKey="Nugent N" first="Nicole" last="Nugent">Nicole Nugent</name><affiliation wicri:level="2"><nlm:aff id="A3">Department of Psychiatry, Rhode Island Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry, Rhode Island Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A4">Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author><author><name sortKey="Amoah, Christian" sort="Amoah, Christian" uniqKey="Amoah C" first="Christian" last="Amoah">Christian Amoah</name><affiliation><nlm:aff id="A5">Psychiatry Department, Directorate of Medicine, Komfo Anokye Teaching Hospital. Kumasi</nlm:aff><wicri:noCountry code="subfield">Komfo Anokye Teaching Hospital. Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A6">Department of Behavioural Sciences, School of Medical Sciences, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Norman, Betty" sort="Norman, Betty" uniqKey="Norman B" first="Betty" last="Norman">Betty Norman</name><affiliation><nlm:aff id="A7">Directorate of Medicine, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A8">Department of Medicine, Kwame Nkrumah University of Science and Technology</nlm:aff><wicri:noCountry code="subfield">Kwame Nkrumah University of Science and Technology</wicri:noCountry></affiliation></author><author><name sortKey="Antwi, Sampson" sort="Antwi, Sampson" uniqKey="Antwi S" first="Sampson" last="Antwi">Sampson Antwi</name><affiliation><nlm:aff id="A1">Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation><affiliation><nlm:aff id="A2">Department of Child Health, Kwame Nkrumah University of Science and Technology, Kumasi</nlm:aff><wicri:noCountry code="subfield">Kumasi</wicri:noCountry></affiliation></author><author><name sortKey="Ocran, Joseph" sort="Ocran, Joseph" uniqKey="Ocran J" first="Joseph" last="Ocran">Joseph Ocran</name><affiliation wicri:level="3"><nlm:aff id="A9">Department of Sociology, University of Ghana, Accra</nlm:aff><country>Ghana</country><placeName><settlement type="city">Accra</settlement><region nuts="2">Région du Grand Accra</region></placeName><wicri:orgArea>Department of Sociology, University of Ghana</wicri:orgArea></affiliation></author><author><name sortKey="Kwara, Awewura" sort="Kwara, Awewura" uniqKey="Kwara A" first="Awewura" last="Kwara">Awewura Kwara</name><affiliation wicri:level="2"><nlm:aff id="A10">Department of Medicine, The Miriam Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Medicine, The Miriam Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A11">Department of Medicine, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Medicine, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author><author><name sortKey="Barker, David H" sort="Barker, David H" uniqKey="Barker D" first="David H." last="Barker">David H. Barker</name><affiliation wicri:level="2"><nlm:aff id="A3">Department of Psychiatry, Rhode Island Hospital, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry, Rhode Island Hospital, Providence</wicri:cityArea></affiliation><affiliation wicri:level="2"><nlm:aff id="A4">Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, Rhode Island</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Rhode Island</region></placeName><wicri:cityArea>Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence</wicri:cityArea></affiliation></author></analytic><series><title level="j">AIDS care</title><idno type="ISSN">0954-0121</idno><idno type="eISSN">1360-0451</idno><imprint><date when="2015">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">In Sub-Saharan Africa, increasing numbers of children with perinatally acquired HIV (PAHIV) are living into adolescence. These adolescents face numerous unique challenges such as parent illness/death and years of medication use. Optimizing care for these youth requires an understanding of the factors that contribute to physical health, psychological wellbeing, social relationships, and quality of life. This mixed methods study collected quantitative questionnaire data from 40 Ghanaian adolescents with PAHIV (50% female, 12–19 years old) who received care through an adolescent HIV clinic in Kumasi, Ghana. The study also presents results from qualitative interviews conducted with 20 adolescents. Results from quantitative analyses suggested that a significant number of participants were not virally suppressed (67%) and participants reported barriers to treatment adherence, limited social support, concerns about disclosure and HIV-related stigma, limited resources, and lower than expected quality of life (QOL). Salient themes from the qualitative analyses included limited understanding of how HIV is transmitted, the interplay between food insecurity and treatment adherence and the need for developing safe relationships through which adolescents can discuss their illness without fear of accidental disclosure of their HIV status.</p></div></front></TEI></pmc><pubmed><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Quality of life among Ghanaian adolescents living with perinatally acquired HIV: a mixed methods study.</title><author><name sortKey="Enimil, Anthony" sort="Enimil, Anthony" uniqKey="Enimil A" first="Anthony" last="Enimil">Anthony Enimil</name><affiliation wicri:level="1"><nlm:affiliation>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Nugent, Nicole" sort="Nugent, Nicole" uniqKey="Nugent N" first="Nicole" last="Nugent">Nicole Nugent</name><affiliation wicri:level="2"><nlm:affiliation>c Department of Psychiatry , Rhode Island Hospital , Providence , RI , USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>c Department of Psychiatry , Rhode Island Hospital , Providence , RI </wicri:regionArea><placeName><region type="state">Rhode Island</region></placeName></affiliation></author><author><name sortKey="Amoah, Christian" sort="Amoah, Christian" uniqKey="Amoah C" first="Christian" last="Amoah">Christian Amoah</name><affiliation wicri:level="1"><nlm:affiliation>e Psychiatry Department , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>e Psychiatry Department , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Norman, Betty" sort="Norman, Betty" uniqKey="Norman B" first="Betty" last="Norman">Betty Norman</name><affiliation wicri:level="1"><nlm:affiliation>g Directorate of Medicine , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>g Directorate of Medicine , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Antwi, Sampson" sort="Antwi, Sampson" uniqKey="Antwi S" first="Sampson" last="Antwi">Sampson Antwi</name><affiliation wicri:level="1"><nlm:affiliation>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Ocran, Joseph" sort="Ocran, Joseph" uniqKey="Ocran J" first="Joseph" last="Ocran">Joseph Ocran</name><affiliation wicri:level="1"><nlm:affiliation>i Department of Sociology , University of Ghana , Accra , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>i Department of Sociology , University of Ghana , Accra </wicri:regionArea><wicri:noRegion>Accra </wicri:noRegion></affiliation></author><author><name sortKey="Kwara, Awewura" sort="Kwara, Awewura" uniqKey="Kwara A" first="Awewura" last="Kwara">Awewura Kwara</name><affiliation wicri:level="2"><nlm:affiliation>j Department of Medicine , The Miriam Hospital , Providence , RI , USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>j Department of Medicine , The Miriam Hospital , Providence , RI </wicri:regionArea><placeName><region type="state">Rhode Island</region></placeName></affiliation></author><author><name sortKey="Barker, David H" sort="Barker, David H" uniqKey="Barker D" first="David H" last="Barker">David H. Barker</name><affiliation wicri:level="2"><nlm:affiliation>c Department of Psychiatry , Rhode Island Hospital , Providence , RI , USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>c Department of Psychiatry , Rhode Island Hospital , Providence , RI </wicri:regionArea><placeName><region type="state">Rhode Island</region></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2016">2016</date><idno type="RBID">pubmed:26643735</idno><idno type="pmid">26643735</idno><idno type="doi">10.1080/09540121.2015.1114997</idno><idno type="wicri:Area/PubMed/Corpus">000274</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000274</idno><idno type="wicri:Area/PubMed/Curation">000274</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000274</idno><idno type="wicri:Area/PubMed/Checkpoint">000274</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000274</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Quality of life among Ghanaian adolescents living with perinatally acquired HIV: a mixed methods study.</title><author><name sortKey="Enimil, Anthony" sort="Enimil, Anthony" uniqKey="Enimil A" first="Anthony" last="Enimil">Anthony Enimil</name><affiliation wicri:level="1"><nlm:affiliation>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Nugent, Nicole" sort="Nugent, Nicole" uniqKey="Nugent N" first="Nicole" last="Nugent">Nicole Nugent</name><affiliation wicri:level="2"><nlm:affiliation>c Department of Psychiatry , Rhode Island Hospital , Providence , RI , USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>c Department of Psychiatry , Rhode Island Hospital , Providence , RI </wicri:regionArea><placeName><region type="state">Rhode Island</region></placeName></affiliation></author><author><name sortKey="Amoah, Christian" sort="Amoah, Christian" uniqKey="Amoah C" first="Christian" last="Amoah">Christian Amoah</name><affiliation wicri:level="1"><nlm:affiliation>e Psychiatry Department , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>e Psychiatry Department , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Norman, Betty" sort="Norman, Betty" uniqKey="Norman B" first="Betty" last="Norman">Betty Norman</name><affiliation wicri:level="1"><nlm:affiliation>g Directorate of Medicine , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>g Directorate of Medicine , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Antwi, Sampson" sort="Antwi, Sampson" uniqKey="Antwi S" first="Sampson" last="Antwi">Sampson Antwi</name><affiliation wicri:level="1"><nlm:affiliation>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>a Directorate of Child Health , Komfo Anokye Teaching Hospital , Kumasi </wicri:regionArea><wicri:noRegion>Kumasi </wicri:noRegion></affiliation></author><author><name sortKey="Ocran, Joseph" sort="Ocran, Joseph" uniqKey="Ocran J" first="Joseph" last="Ocran">Joseph Ocran</name><affiliation wicri:level="1"><nlm:affiliation>i Department of Sociology , University of Ghana , Accra , Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>i Department of Sociology , University of Ghana , Accra </wicri:regionArea><wicri:noRegion>Accra </wicri:noRegion></affiliation></author><author><name sortKey="Kwara, Awewura" sort="Kwara, Awewura" uniqKey="Kwara A" first="Awewura" last="Kwara">Awewura Kwara</name><affiliation wicri:level="2"><nlm:affiliation>j Department of Medicine , The Miriam Hospital , Providence , RI , USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>j Department of Medicine , The Miriam Hospital , Providence , RI </wicri:regionArea><placeName><region type="state">Rhode Island</region></placeName></affiliation></author><author><name sortKey="Barker, David H" sort="Barker, David H" uniqKey="Barker D" first="David H" last="Barker">David H. Barker</name><affiliation wicri:level="2"><nlm:affiliation>c Department of Psychiatry , Rhode Island Hospital , Providence , RI , USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>c Department of Psychiatry , Rhode Island Hospital , Providence , RI </wicri:regionArea><placeName><region type="state">Rhode Island</region></placeName></affiliation></author></analytic><series><title level="j">AIDS care</title><idno type="eISSN">1360-0451</idno><imprint><date when="2016" type="published">2016</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>African Continental Ancestry Group (psychology)</term><term>Child</term><term>Comprehension</term><term>Disclosure</term><term>Female</term><term>Ghana (epidemiology)</term><term>HIV Infections (congenital)</term><term>HIV Infections (ethnology)</term><term>HIV Infections (psychology)</term><term>Humans</term><term>Interviews as Topic</term><term>Male</term><term>Qualitative Research</term><term>Quality of Life (psychology)</term><term>Social Stigma</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent</term><term>Compréhension</term><term>Divulgation</term><term>Enfant</term><term>Enquêtes et questionnaires</term><term>Entretiens comme sujet</term><term>Femelle</term><term>Ghana (épidémiologie)</term><term>Humains</term><term>Infections à VIH ()</term><term>Infections à VIH (ethnologie)</term><term>Infections à VIH (psychologie)</term><term>Mâle</term><term>Population d'origine africaine (psychologie)</term><term>Qualité de vie (psychologie)</term><term>Recherche qualitative</term><term>Soutien social</term><term>Stigmate social</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Ghana</term></keywords><keywords scheme="MESH" qualifier="congenital" xml:lang="en"><term>HIV Infections</term></keywords><keywords scheme="MESH" qualifier="ethnologie" xml:lang="fr"><term>Infections à VIH</term></keywords><keywords scheme="MESH" qualifier="ethnology" xml:lang="en"><term>HIV Infections</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Infections à VIH</term><term>Population d'origine africaine</term><term>Qualité de vie</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>African Continental Ancestry Group</term><term>HIV Infections</term><term>Quality of Life</term></keywords><keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>Ghana</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Comprehension</term><term>Disclosure</term><term>Female</term><term>Humans</term><term>Interviews as Topic</term><term>Male</term><term>Qualitative Research</term><term>Social Stigma</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Compréhension</term><term>Divulgation</term><term>Enfant</term><term>Enquêtes et questionnaires</term><term>Entretiens comme sujet</term><term>Femelle</term><term>Humains</term><term>Infections à VIH</term><term>Mâle</term><term>Recherche qualitative</term><term>Soutien social</term><term>Stigmate social</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Ghana</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">In Sub-Saharan Africa, increasing numbers of children with perinatally acquired HIV (PAHIV) are living into adolescence. These adolescents face numerous unique challenges such as parent illness/death and years of medication use. Optimizing care for these youth requires an understanding of the factors that contribute to physical health, psychological well-being, social relationships, and quality of life (QOL). This mixed methods study collected quantitative questionnaire data from 40 Ghanaian adolescents with PAHIV (50% female, 12-19 years old) who received care through an adolescent HIV clinic in Kumasi, Ghana. The study also presents results from qualitative interviews conducted with 20 adolescents. Results from quantitative analyses suggested that a significant number of participants were not virally suppressed (67%) and participants reported barriers to treatment adherence, limited social support, concerns about disclosure and HIV-related stigma, limited resources, and lower than expected QOL. Salient themes from the qualitative analyses included limited understanding of how HIV is transmitted, the interplay between food insecurity and treatment adherence and the need for developing safe relationships through which adolescents can discuss their illness without fear of accidental disclosure of their HIV status.</div></front></TEI></pubmed></double></record>Pour manipuler ce document sous Unix (Dilib)
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