Movement Disorders (revue)

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Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire

Identifieur interne : 000858 ( PascalFrancis/Curation ); précédent : 000857; suivant : 000859

Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire

Auteurs : Noëlle G. A. Spliethoff-Kamminga [Pays-Bas] ; Aeilko H. Zwinderman [Pays-Bas] ; Machiel P. Springer [Pays-Bas] ; Raymund A. C. Roos [Pays-Bas]

Source :

RBID : Pascal:03-0380058

Descripteurs français

English descriptors

Abstract

Our objective was to evaluate the BELA-P-k, a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) patients. The Belastungs-fragebogen Parkinson kurzversion (BELA-P-k) was translated from German into Dutch. It consists of 19 items distributed over four subscales: achievement capability/physical symptoms, fear/emotional functioning, social functioning and partner-bonding/family, with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-P-k was tested for cultural differences, relevance, and feasibility in a pilot study (n = 10) and compared in a validation study (n = 54) with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire. All questionnaires were administered in person at home, in a prescribed order. The BELA-P-k was completed by 64 patients with PD. The internal-consistency reliability coefficients for the total Bb (0.90) and NfH (0.93) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by partner-bonding/family scale" (0.61). Almost all BELA-P-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality-of-life indices. There was no significant relationship between disease severity (Hoehn and Yahr) and the BELA-P-k. We conclude that the BELA-P-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD patients.
pA  
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A08 01  1  ENG  @1 Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire
A11 01  1    @1 SPLIETHOFF-KAMMINGA (Noëlle G. A.)
A11 02  1    @1 ZWINDERMAN (Aeilko H.)
A11 03  1    @1 SPRINGER (Machiel P.)
A11 04  1    @1 ROOS (Raymund A. C.)
A14 01      @1 Department of Neurology, Leiden University Medical Centre @2 Leiden @3 NLD @Z 1 aut. @Z 4 aut.
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A14 03      @1 Department of General Practice, Leiden University Medical Centre @2 Leiden @3 NLD @Z 3 aut.
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A43 01      @1 INIST @2 20953 @5 354000118200090040
A44       @0 0000 @1 © 2003 INIST-CNRS. All rights reserved.
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C01 01    ENG  @0 Our objective was to evaluate the BELA-P-k, a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) patients. The Belastungs-fragebogen Parkinson kurzversion (BELA-P-k) was translated from German into Dutch. It consists of 19 items distributed over four subscales: achievement capability/physical symptoms, fear/emotional functioning, social functioning and partner-bonding/family, with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-P-k was tested for cultural differences, relevance, and feasibility in a pilot study (n = 10) and compared in a validation study (n = 54) with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire. All questionnaires were administered in person at home, in a prescribed order. The BELA-P-k was completed by 64 patients with PD. The internal-consistency reliability coefficients for the total Bb (0.90) and NfH (0.93) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by partner-bonding/family scale" (0.61). Almost all BELA-P-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality-of-life indices. There was no significant relationship between disease severity (Hoehn and Yahr) and the BELA-P-k. We conclude that the BELA-P-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD patients.
C02 01  X    @0 002B17G
C03 01  X  FRE  @0 Parkinson maladie @5 01
C03 01  X  ENG  @0 Parkinson disease @5 01
C03 01  X  SPA  @0 Parkinson enfermedad @5 01
C03 02  X  FRE  @0 Facteur psychosocial @5 04
C03 02  X  ENG  @0 Psychosocial factor @5 04
C03 02  X  SPA  @0 Factor sicosocial @5 04
C03 03  X  FRE  @0 Questionnaire @5 16
C03 03  X  ENG  @0 Questionnaire @5 16
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C03 04  X  ENG  @0 Exploration @5 17
C03 04  X  SPA  @0 Exploración @5 17
C03 05  X  FRE  @0 Homme @5 20
C03 05  X  ENG  @0 Human @5 20
C03 05  X  SPA  @0 Hombre @5 20
C07 01  X  FRE  @0 Système nerveux pathologie @5 37
C07 01  X  ENG  @0 Nervous system diseases @5 37
C07 01  X  SPA  @0 Sistema nervioso patología @5 37
C07 02  X  FRE  @0 Système nerveux central pathologie @5 38
C07 02  X  ENG  @0 Central nervous system disease @5 38
C07 02  X  SPA  @0 Sistema nervosio central patología @5 38
C07 03  X  FRE  @0 Encéphale pathologie @5 39
C07 03  X  ENG  @0 Cerebral disorder @5 39
C07 03  X  SPA  @0 Encéfalo patología @5 39
C07 04  X  FRE  @0 Extrapyramidal syndrome @5 40
C07 04  X  ENG  @0 Extrapyramidal syndrome @5 40
C07 04  X  SPA  @0 Extrapiramidal síndrome @5 40
C07 05  X  FRE  @0 Maladie dégénérative @5 41
C07 05  X  ENG  @0 Degenerative disease @5 41
C07 05  X  SPA  @0 Enfermedad degenerativa @5 41
N21       @1 265
N82       @1 PSI

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Pascal:03-0380058

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