Movement Disorders (revue)

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Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire

Identifieur interne : 002463 ( PascalFrancis/Corpus ); précédent : 002462; suivant : 002464

Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire

Auteurs : Noëlle G. A. Spliethoff-Kamminga ; Aeilko H. Zwinderman ; Machiel P. Springer ; Raymund A. C. Roos

Source :

RBID : Pascal:03-0380058

Descripteurs français

English descriptors

Abstract

Our objective was to evaluate the BELA-P-k, a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) patients. The Belastungs-fragebogen Parkinson kurzversion (BELA-P-k) was translated from German into Dutch. It consists of 19 items distributed over four subscales: achievement capability/physical symptoms, fear/emotional functioning, social functioning and partner-bonding/family, with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-P-k was tested for cultural differences, relevance, and feasibility in a pilot study (n = 10) and compared in a validation study (n = 54) with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire. All questionnaires were administered in person at home, in a prescribed order. The BELA-P-k was completed by 64 patients with PD. The internal-consistency reliability coefficients for the total Bb (0.90) and NfH (0.93) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by partner-bonding/family scale" (0.61). Almost all BELA-P-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality-of-life indices. There was no significant relationship between disease severity (Hoehn and Yahr) and the BELA-P-k. We conclude that the BELA-P-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD patients.

Notice en format standard (ISO 2709)

Pour connaître la documentation sur le format Inist Standard.

pA  
A01 01  1    @0 0885-3185
A03   1    @0 Mov. disord.
A05       @2 18
A06       @2 5
A08 01  1  ENG  @1 Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire
A11 01  1    @1 SPLIETHOFF-KAMMINGA (Noëlle G. A.)
A11 02  1    @1 ZWINDERMAN (Aeilko H.)
A11 03  1    @1 SPRINGER (Machiel P.)
A11 04  1    @1 ROOS (Raymund A. C.)
A14 01      @1 Department of Neurology, Leiden University Medical Centre @2 Leiden @3 NLD @Z 1 aut. @Z 4 aut.
A14 02      @1 Department of Medical Statistics, Leiden University Medical Centre @2 Leiden @3 NLD @Z 2 aut.
A14 03      @1 Department of General Practice, Leiden University Medical Centre @2 Leiden @3 NLD @Z 3 aut.
A20       @1 503-509
A21       @1 2003
A23 01      @0 ENG
A43 01      @1 INIST @2 20953 @5 354000118200090040
A44       @0 0000 @1 © 2003 INIST-CNRS. All rights reserved.
A45       @0 47 ref.
A47 01  1    @0 03-0380058
A60       @1 P
A61       @0 A
A64 01  1    @0 Movement disorders
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C01 01    ENG  @0 Our objective was to evaluate the BELA-P-k, a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) patients. The Belastungs-fragebogen Parkinson kurzversion (BELA-P-k) was translated from German into Dutch. It consists of 19 items distributed over four subscales: achievement capability/physical symptoms, fear/emotional functioning, social functioning and partner-bonding/family, with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-P-k was tested for cultural differences, relevance, and feasibility in a pilot study (n = 10) and compared in a validation study (n = 54) with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire. All questionnaires were administered in person at home, in a prescribed order. The BELA-P-k was completed by 64 patients with PD. The internal-consistency reliability coefficients for the total Bb (0.90) and NfH (0.93) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by partner-bonding/family scale" (0.61). Almost all BELA-P-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality-of-life indices. There was no significant relationship between disease severity (Hoehn and Yahr) and the BELA-P-k. We conclude that the BELA-P-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD patients.
C02 01  X    @0 002B17G
C03 01  X  FRE  @0 Parkinson maladie @5 01
C03 01  X  ENG  @0 Parkinson disease @5 01
C03 01  X  SPA  @0 Parkinson enfermedad @5 01
C03 02  X  FRE  @0 Facteur psychosocial @5 04
C03 02  X  ENG  @0 Psychosocial factor @5 04
C03 02  X  SPA  @0 Factor sicosocial @5 04
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C07 01  X  ENG  @0 Nervous system diseases @5 37
C07 01  X  SPA  @0 Sistema nervioso patología @5 37
C07 02  X  FRE  @0 Système nerveux central pathologie @5 38
C07 02  X  ENG  @0 Central nervous system disease @5 38
C07 02  X  SPA  @0 Sistema nervosio central patología @5 38
C07 03  X  FRE  @0 Encéphale pathologie @5 39
C07 03  X  ENG  @0 Cerebral disorder @5 39
C07 03  X  SPA  @0 Encéfalo patología @5 39
C07 04  X  FRE  @0 Extrapyramidal syndrome @5 40
C07 04  X  ENG  @0 Extrapyramidal syndrome @5 40
C07 04  X  SPA  @0 Extrapiramidal síndrome @5 40
C07 05  X  FRE  @0 Maladie dégénérative @5 41
C07 05  X  ENG  @0 Degenerative disease @5 41
C07 05  X  SPA  @0 Enfermedad degenerativa @5 41
N21       @1 265
N82       @1 PSI

Format Inist (serveur)

NO : PASCAL 03-0380058 INIST
ET : Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire
AU : SPLIETHOFF-KAMMINGA (Noëlle G. A.); ZWINDERMAN (Aeilko H.); SPRINGER (Machiel P.); ROOS (Raymund A. C.)
AF : Department of Neurology, Leiden University Medical Centre/Leiden/Pays-Bas (1 aut., 4 aut.); Department of Medical Statistics, Leiden University Medical Centre/Leiden/Pays-Bas (2 aut.); Department of General Practice, Leiden University Medical Centre/Leiden/Pays-Bas (3 aut.)
DT : Publication en série; Niveau analytique
SO : Movement disorders; ISSN 0885-3185; Etats-Unis; Da. 2003; Vol. 18; No. 5; Pp. 503-509; Bibl. 47 ref.
LA : Anglais
EA : Our objective was to evaluate the BELA-P-k, a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) patients. The Belastungs-fragebogen Parkinson kurzversion (BELA-P-k) was translated from German into Dutch. It consists of 19 items distributed over four subscales: achievement capability/physical symptoms, fear/emotional functioning, social functioning and partner-bonding/family, with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-P-k was tested for cultural differences, relevance, and feasibility in a pilot study (n = 10) and compared in a validation study (n = 54) with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire. All questionnaires were administered in person at home, in a prescribed order. The BELA-P-k was completed by 64 patients with PD. The internal-consistency reliability coefficients for the total Bb (0.90) and NfH (0.93) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by partner-bonding/family scale" (0.61). Almost all BELA-P-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality-of-life indices. There was no significant relationship between disease severity (Hoehn and Yahr) and the BELA-P-k. We conclude that the BELA-P-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD patients.
CC : 002B17G
FD : Parkinson maladie; Facteur psychosocial; Questionnaire; Exploration; Homme
FG : Système nerveux pathologie; Système nerveux central pathologie; Encéphale pathologie; Extrapyramidal syndrome; Maladie dégénérative
ED : Parkinson disease; Psychosocial factor; Questionnaire; Exploration; Human
EG : Nervous system diseases; Central nervous system disease; Cerebral disorder; Extrapyramidal syndrome; Degenerative disease
SD : Parkinson enfermedad; Factor sicosocial; Cuestionario; Exploración; Hombre
LO : INIST-20953.354000118200090040
ID : 03-0380058

Links to Exploration step

Pascal:03-0380058

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<NO>PASCAL 03-0380058 INIST</NO>
<ET>Psychosocial problems in Parkinson's disease: Evaluation of a disease-specific questionnaire</ET>
<AU>SPLIETHOFF-KAMMINGA (Noëlle G. A.); ZWINDERMAN (Aeilko H.); SPRINGER (Machiel P.); ROOS (Raymund A. C.)</AU>
<AF>Department of Neurology, Leiden University Medical Centre/Leiden/Pays-Bas (1 aut., 4 aut.); Department of Medical Statistics, Leiden University Medical Centre/Leiden/Pays-Bas (2 aut.); Department of General Practice, Leiden University Medical Centre/Leiden/Pays-Bas (3 aut.)</AF>
<DT>Publication en série; Niveau analytique</DT>
<SO>Movement disorders; ISSN 0885-3185; Etats-Unis; Da. 2003; Vol. 18; No. 5; Pp. 503-509; Bibl. 47 ref.</SO>
<LA>Anglais</LA>
<EA>Our objective was to evaluate the BELA-P-k, a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) patients. The Belastungs-fragebogen Parkinson kurzversion (BELA-P-k) was translated from German into Dutch. It consists of 19 items distributed over four subscales: achievement capability/physical symptoms, fear/emotional functioning, social functioning and partner-bonding/family, with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-P-k was tested for cultural differences, relevance, and feasibility in a pilot study (n = 10) and compared in a validation study (n = 54) with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire. All questionnaires were administered in person at home, in a prescribed order. The BELA-P-k was completed by 64 patients with PD. The internal-consistency reliability coefficients for the total Bb (0.90) and NfH (0.93) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by partner-bonding/family scale" (0.61). Almost all BELA-P-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality-of-life indices. There was no significant relationship between disease severity (Hoehn and Yahr) and the BELA-P-k. We conclude that the BELA-P-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD patients.</EA>
<CC>002B17G</CC>
<FD>Parkinson maladie; Facteur psychosocial; Questionnaire; Exploration; Homme</FD>
<FG>Système nerveux pathologie; Système nerveux central pathologie; Encéphale pathologie; Extrapyramidal syndrome; Maladie dégénérative</FG>
<ED>Parkinson disease; Psychosocial factor; Questionnaire; Exploration; Human</ED>
<EG>Nervous system diseases; Central nervous system disease; Cerebral disorder; Extrapyramidal syndrome; Degenerative disease</EG>
<SD>Parkinson enfermedad; Factor sicosocial; Cuestionario; Exploración; Hombre</SD>
<LO>INIST-20953.354000118200090040</LO>
<ID>03-0380058</ID>
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