Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia
Identifieur interne : 002E23 ( Main/Exploration ); précédent : 002E22; suivant : 002E24Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia
Auteurs : Vanessa K. Lim [Nouvelle-Zélande]Source :
- Movement Disorders [ 0885-3185 ] ; 2007-05-15.
Descripteurs français
- Pascal (Inist)
- Wicri :
- geographic : Australie, Nouvelle-Zélande.
- topic : Homme.
English descriptors
- KwdEn :
- Age Factors, Aged, Australia, Australia (epidemiology), Caregiver, Caregivers (statistics & numerical data), Dystonia, Dystonia (epidemiology), Dystonia (nursing), Dystonia (psychology), Female, Human, Humans, Male, Middle Aged, Nervous system diseases, New Zealand (epidemiology), Quality of Life (psychology), Quality of life, Questionnaires, SF‐36, Sex Factors, Sickness Impact Profile, caregivers, dystonia, health related quality of life.
- MESH :
- geographic , epidemiology : Australia, New Zealand.
- epidemiology : Dystonia.
- nursing : Dystonia.
- psychology : Dystonia, Quality of Life.
- statistics & numerical data : Caregivers.
- Age Factors, Aged, Female, Humans, Male, Middle Aged, Questionnaires, Sex Factors, Sickness Impact Profile.
Abstract
Health Related Quality of Life (HRQL) was assessed by the SF‐36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF‐36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF‐36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis. © 2007 Movement Disorder Society
Url:
DOI: 10.1002/mds.21486
Affiliations:
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Le document en format XML
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Disord.</title><idno type="ISSN">0885-3185</idno><idno type="eISSN">1531-8257</idno><imprint><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><pubPlace>Hoboken</pubPlace><date type="published" when="2007-05-15">2007-05-15</date><biblScope unit="vol">22</biblScope><biblScope unit="issue">7</biblScope><biblScope unit="page" from="998">998</biblScope><biblScope unit="page" to="1003">1003</biblScope></imprint><idno type="ISSN">0885-3185</idno></series><idno type="istex">080998765AFC87582B991F024F9CA566240D0DB3</idno><idno type="DOI">10.1002/mds.21486</idno><idno type="ArticleID">MDS21486</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0885-3185</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Age Factors</term><term>Aged</term><term>Australia</term><term>Australia (epidemiology)</term><term>Caregiver</term><term>Caregivers (statistics & numerical data)</term><term>Dystonia</term><term>Dystonia (epidemiology)</term><term>Dystonia (nursing)</term><term>Dystonia (psychology)</term><term>Female</term><term>Human</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Nervous system diseases</term><term>New Zealand (epidemiology)</term><term>Quality of Life (psychology)</term><term>Quality of life</term><term>Questionnaires</term><term>SF‐36</term><term>Sex Factors</term><term>Sickness Impact Profile</term><term>caregivers</term><term>dystonia</term><term>health related quality of life</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Australia</term><term>New Zealand</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Dystonia</term></keywords><keywords scheme="MESH" qualifier="nursing" xml:lang="en"><term>Dystonia</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Dystonia</term><term>Quality of Life</term></keywords><keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>Caregivers</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Age Factors</term><term>Aged</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Questionnaires</term><term>Sex Factors</term><term>Sickness Impact Profile</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Aidant</term><term>Australie</term><term>Dystonie</term><term>Homme</term><term>Qualité vie</term><term>Système nerveux pathologie</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Australie</term><term>Nouvelle-Zélande</term></keywords><keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Homme</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Health Related Quality of Life (HRQL) was assessed by the SF‐36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF‐36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF‐36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis. © 2007 Movement Disorder Society</div></front></TEI><affiliations><list><country><li>Nouvelle-Zélande</li></country></list><tree><country name="Nouvelle-Zélande"><noRegion><name sortKey="Lim, Vanessa K" sort="Lim, Vanessa K" uniqKey="Lim V" first="Vanessa K." last="Lim">Vanessa K. Lim</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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