MovDisordV3, PubMed, Corpus, bibRecord, 002766

Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia.

Identifieur interne : 002766 ( PubMed/Corpus ); précédent : 002765; suivant : 002767

Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia.

Auteurs : Vanessa K. Lim

Source :

Movement disorders : official journal of the Movement Disorder Society [ 0885-3185 ] ; 2007.

RBID : pubmed:17443699

English descriptors

KwdEn :
- Age Factors, Aged, Australia (epidemiology), Caregivers (statistics & numerical data), Dystonia (epidemiology), Dystonia (nursing), Dystonia (psychology), Female, Humans, Male, Middle Aged, New Zealand (epidemiology), Quality of Life (psychology), Questionnaires, Sex Factors, Sickness Impact Profile.
MESH :
- geographic , epidemiology : Australia, New Zealand.
- epidemiology : Dystonia.
- nursing : Dystonia.
- psychology : Dystonia, Quality of Life.
- statistics & numerical data : Caregivers.
- Age Factors, Aged, Female, Humans, Male, Middle Aged, Questionnaires, Sex Factors, Sickness Impact Profile.

Abstract

Health Related Quality of Life (HRQL) was assessed by the SF-36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF-36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF-36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis.

DOI: 10.1002/mds.21486
PubMed: 17443699

Links to Exploration step

pubmed:17443699

Le document en format XML

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<author><name sortKey="Lim, Vanessa K" sort="Lim, Vanessa K" uniqKey="Lim V" first="Vanessa K" last="Lim">Vanessa K. Lim</name>
<affiliation><nlm:affiliation>Department of Psychology, The University of Auckland, Auckland, New Zealand. v.lim@auckland.ac.nz</nlm:affiliation>
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<author><name sortKey="Lim, Vanessa K" sort="Lim, Vanessa K" uniqKey="Lim V" first="Vanessa K" last="Lim">Vanessa K. Lim</name>
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<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Age Factors</term>
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<term>Dystonia (epidemiology)</term>
<term>Dystonia (nursing)</term>
<term>Dystonia (psychology)</term>
<term>Female</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
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<term>Quality of Life (psychology)</term>
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<term>Female</term>
<term>Humans</term>
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<term>Middle Aged</term>
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<front><div type="abstract" xml:lang="en">Health Related Quality of Life (HRQL) was assessed by the SF-36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF-36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF-36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis.</div>
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<Month>08</Month>
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<Issue>7</Issue>
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<Month>May</Month>
<Day>15</Day>
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<Title>Movement disorders : official journal of the Movement Disorder Society</Title>
<ISOAbbreviation>Mov. Disord.</ISOAbbreviation>
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<ArticleTitle>Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia.</ArticleTitle>
<Pagination><MedlinePgn>998-1003</MedlinePgn>
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<Abstract><AbstractText>Health Related Quality of Life (HRQL) was assessed by the SF-36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF-36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF-36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis.</AbstractText>
<CopyrightInformation>(c) 2007 Movement Disorder Society.</CopyrightInformation>
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<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Lim</LastName>
<ForeName>Vanessa K</ForeName>
<Initials>VK</Initials>
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<MeshHeading><DescriptorName MajorTopicYN="N" UI="D008875">Middle Aged</DescriptorName>
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<MeshHeading><DescriptorName MajorTopicYN="N" Type="Geographic" UI="D009520">New Zealand</DescriptorName>
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<MeshHeading><DescriptorName MajorTopicYN="N" UI="D011788">Quality of Life</DescriptorName>
<QualifierName MajorTopicYN="Y" UI="Q000523">psychology</QualifierName>
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<MeshHeading><DescriptorName MajorTopicYN="N" UI="D011795">Questionnaires</DescriptorName>
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<MeshHeading><DescriptorName MajorTopicYN="N" UI="D012737">Sex Factors</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName MajorTopicYN="Y" UI="D018434">Sickness Impact Profile</DescriptorName>
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	Movement Disorders (revue)
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Movement Disorders (revue)

Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia.

Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia.

Source :

English descriptors

Abstract

Links to Exploration step

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri

Pour générer des pages wiki