Movement Disorders (revue)

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Health Related Quality of Life in patients with dystonia and their caregivers in New Zealand and Australia

Identifieur interne : 001654 ( PascalFrancis/Curation ); précédent : 001653; suivant : 001655

Health Related Quality of Life in patients with dystonia and their caregivers in New Zealand and Australia

Auteurs : Vanessa K. Lim [Nouvelle-Zélande]

Source :

RBID : Pascal:07-0314956

Descripteurs français

English descriptors

Abstract

Health Related Quality of Life (HRQL) was assessed by the SF-36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF-36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF-36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis.
pA  
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A06       @2 7
A08 01  1  ENG  @1 Health Related Quality of Life in patients with dystonia and their caregivers in New Zealand and Australia
A11 01  1    @1 LIM (Vanessa K.)
A14 01      @1 Department of Psychology, The University of Auckland @2 Auckland @3 NZL @Z 1 aut.
A20       @1 998-1003
A21       @1 2007
A23 01      @0 ENG
A43 01      @1 INIST @2 20953 @5 354000149881420140
A44       @0 0000 @1 © 2007 INIST-CNRS. All rights reserved.
A45       @0 24 ref.
A47 01  1    @0 07-0314956
A60       @1 P
A61       @0 A
A64 01  1    @0 Movement disorders
A66 01      @0 USA
C01 01    ENG  @0 Health Related Quality of Life (HRQL) was assessed by the SF-36 in a group of patients with dystonia in New Zealand and Australia. The caregivers of these people were also asked to participate. Low scores from the SF-36 indicate a disability or limitation in HRQL. Compared with the national norms of the respective countries, the participants with dystonia for both countries were significantly lower in the eight dimensions of the SF-36, suggesting that patients with dystonia have lower HRQL compared with their respective national norms without dystonia. In contrast to the patients with dystonia, caregivers did not show lower HRQL scores than their national norms, suggesting that while dystonia affects the HRQL of those with the disorder, their caregivers may be less affected. Descriptive and demographic information were also gathered and are discussed. An important factor that may affect the HRQL of patients with dystonia is the length of time required to be diagnosed in this sample and the number of medical practitioners the patients consulted prior to a confirmed diagnosis.
C02 01  X    @0 002B17
C02 02  X    @0 002B17H
C02 03  X    @0 002B17F
C03 01  X  FRE  @0 Système nerveux pathologie @5 01
C03 01  X  ENG  @0 Nervous system diseases @5 01
C03 01  X  SPA  @0 Sistema nervioso patología @5 01
C03 02  X  FRE  @0 Dystonie @5 02
C03 02  X  ENG  @0 Dystonia @5 02
C03 02  X  SPA  @0 Distonía @5 02
C03 03  X  FRE  @0 Qualité vie @5 09
C03 03  X  ENG  @0 Quality of life @5 09
C03 03  X  SPA  @0 Calidad vida @5 09
C03 04  X  FRE  @0 Homme @5 10
C03 04  X  ENG  @0 Human @5 10
C03 04  X  SPA  @0 Hombre @5 10
C03 05  X  FRE  @0 Aidant @5 11
C03 05  X  ENG  @0 Caregiver @5 11
C03 05  X  SPA  @0 Ayudante a domicilio @5 11
C03 06  X  FRE  @0 Australie @2 NG @5 12
C03 06  X  ENG  @0 Australia @2 NG @5 12
C03 06  X  SPA  @0 Australia @2 NG @5 12
C07 01  X  FRE  @0 Océanie @2 NG
C07 01  X  ENG  @0 Oceania @2 NG
C07 01  X  SPA  @0 Oceania @2 NG
C07 02  X  FRE  @0 Extrapyramidal syndrome @5 37
C07 02  X  ENG  @0 Extrapyramidal syndrome @5 37
C07 02  X  SPA  @0 Extrapiramidal síndrome @5 37
C07 03  X  FRE  @0 Mouvement involontaire @5 38
C07 03  X  ENG  @0 Involuntary movement @5 38
C07 03  X  SPA  @0 Movimiento involuntario @5 38
C07 04  X  FRE  @0 Muscle strié pathologie @5 39
C07 04  X  ENG  @0 Striated muscle disease @5 39
C07 04  X  SPA  @0 Músculo estriado patología @5 39
C07 05  X  FRE  @0 Trouble neurologique @5 40
C07 05  X  ENG  @0 Neurological disorder @5 40
C07 05  X  SPA  @0 Trastorno neurológico @5 40
C07 06  X  FRE  @0 Encéphale pathologie @5 41
C07 06  X  ENG  @0 Cerebral disorder @5 41
C07 06  X  SPA  @0 Encéfalo patología @5 41
C07 07  X  FRE  @0 Système nerveux central pathologie @5 42
C07 07  X  ENG  @0 Central nervous system disease @5 42
C07 07  X  SPA  @0 Sistema nervosio central patología @5 42
N21       @1 204
N44 01      @1 OTO
N82       @1 OTO

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Pascal:07-0314956

Le document en format XML

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