QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury
Identifieur interne : 005530 ( Main/Exploration ); précédent : 005529; suivant : 005531QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury
Auteurs : Nicole Von Steinbuechel [Allemagne] ; Lindsay Wilson [Royaume-Uni] ; Henning Gibbons [Allemagne] ; Holger Muehlan [Allemagne] ; Holger Schmidt [Allemagne] ; Silke Schmidt [Allemagne] ; Nadine Sasse [Allemagne] ; Sanna Koskinen [Finlande] ; Jaana Sarajuuri [Finlande] ; Stefan Höfer [Autriche] ; Monika Bullinger [Allemagne] ; Andrew Maas [Belgique] ; Edmund Neugebauer [Allemagne] ; Jane Powell [Royaume-Uni] ; Klaus Von Wild [Allemagne] ; George Zitnay [États-Unis] ; Wilbert Bakx [Pays-Bas] ; Anne-Lise Christensen [Danemark] ; Rita Formisano [Italie] ; Graeme Hawthorne [Australie] ; Jean-Luc Truelle [France]Source :
- Journal of Neurology, Neurosurgery & Psychiatry [ 0022-3050 ] ; 2012-11.
Descripteurs français
- Pascal (Inist)
- Wicri :
- topic : Santé mentale, Neurologie.
English descriptors
- KwdEn :
- Analogue scale, Arch phys, Brain injury, Brief hrqol scale, Brief index, Brief measures, Case notes, Ceiling effects, Centre, Clinical information, Cognition, Cognitive, Cognitive impairment, Cognitive neurology, Cognitive status, Conventional criteria, Current study, Daily life, Depression scale, Different aspects, Factor analysis, Full qolibri, Functional status, Generic measures, German language sample, Glasgow, Glasgow coma scale, Glasgow outcome scale, Global assessment, Good testeretest reliability, Gose, Hads, Hads depression, Head trauma, Health status, Health survey, Hospital anxiety, Hrqol, Impairment, Injury severity, Internal consistency, International sample, Intraclass correlation, Language versions, Last item, Life scale, Major head injury, Medical psychology, Mental component score, Mental health, Mmse, Nervous system diseases, Neurol, Neurol neurosurg psychiatry, Neurology, Neurosurg, Other measures, Other outcome assessments, Outcome assessments, Outcome measures, Participant, Performance tics, Person separation index, Physical component score, Psychometric, Qolibri, Quality of life, Rasch, Rasch analyses, Rasch analysis, Rasch model, Rehabil, Reliability, Satisfactory psychometric properties, Scale reliability, Scale scores, Scale validity, Short scale, Similar relationships, Spearman correlations, Square error, State examination, Strong relationships, Subsample, Swls, Telephone interview, Testeretest, Testeretest reliability, Tic, Total sample, Total score, Traumatic, Traumatic brain injury.
- Teeft :
- Analogue scale, Arch phys, Brain injury, Brief hrqol scale, Brief index, Brief measures, Case notes, Ceiling effects, Centre, Clinical information, Cognition, Cognitive, Cognitive impairment, Cognitive neurology, Cognitive status, Conventional criteria, Current study, Daily life, Depression scale, Different aspects, Factor analysis, Full qolibri, Functional status, Generic measures, German language sample, Glasgow, Glasgow coma scale, Glasgow outcome scale, Global assessment, Good testeretest reliability, Gose, Hads, Hads depression, Health status, Health survey, Hospital anxiety, Hrqol, Impairment, Injury severity, Internal consistency, International sample, Intraclass correlation, Language versions, Last item, Life scale, Major head injury, Medical psychology, Mental component score, Mental health, Mmse, Neurol, Neurol neurosurg psychiatry, Neurology, Neurosurg, Other measures, Other outcome assessments, Outcome assessments, Outcome measures, Participant, Performance tics, Person separation index, Physical component score, Psychometric, Qolibri, Rasch, Rasch analyses, Rasch analysis, Rasch model, Rehabil, Reliability, Satisfactory psychometric properties, Scale reliability, Scale scores, Scale validity, Short scale, Similar relationships, Spearman correlations, Square error, State examination, Strong relationships, Subsample, Swls, Telephone interview, Testeretest, Testeretest reliability, Tic, Total sample, Total score, Traumatic, Traumatic brain injury.
Abstract
Background The Quality of Life after Brain Injury (QOLIBRI) scale is a recently developed instrument that provides a profile of health-related quality of life (HRQoL) in domains typically affected by brain injury. However, for global assessment it is desirable to have a brief summary measure. This study examined a 6-item QOLIBRI Overall Scale (QOLIBRI-OS), and considered whether it could provide an index of HRQoL after traumatic brain injury (TBI). Methods The properties of the QOLIBRI-OS were studied in a sample of 792 participants with TBI recruited from centres in nine countries covering six languages. An examination of construct validity was undertaken on a subsample of 153 participants recruited in Germany who had been assessed on two relevant brief quality of life measures, the Satisfaction With Life Scale and the Quality of Life Visual Analogue Scale. Results The reliability of the QOLIBRI-OS was good (Cronbach's α=0.86, test–retest reliability =0.81) and similar in participants with higher and lower cognitive performance. Factor analysis indicated that the scale is unidimensional. Rasch analysis also showed a satisfactory fit with this model. The QOLIBRI-OS correlates highly with the total score from the full QOLIBRI scale (r=0.87). Moderate to strong relationships were found among the QOLIBRI-OS and the Extended Glasgow Outcome Scale, Short-Form-36, and Hospital Anxiety and Depression scale (r=0.54 to -0.76). The QOLIBRI-OS showed good construct validity in the TBI group. Conclusions The QOLIBRI-OS assesses a similar construct to the QOLIBRI total score and can be used as a brief index of HRQoL for TBI.
Url:
DOI: 10.1136/jnnp-2012-302361
Affiliations:
- Allemagne, Australie, Autriche, Belgique, Danemark, Finlande, France, Italie, Pays-Bas, Royaume-Uni, États-Unis
- Angleterre, Basse-Saxe, District de Münster, Grand Londres, Hambourg, Hovedstaden, Latium, Pennsylvanie, Rhénanie-du-Nord-Westphalie, Victoria (État)
- Copenhague, Göttingen, Hambourg, Londres, Melbourne, Münster, Rome
- Université de Londres, Université de Melbourne
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last="Höfer">Stefan Höfer</name><affiliation wicri:level="1"><country xml:lang="fr">Autriche</country><wicri:regionArea>Department of Medical Psychology, Innsbruck Medical University, Innsbruck</wicri:regionArea><wicri:noRegion>Innsbruck</wicri:noRegion></affiliation></author><author><name sortKey="Bullinger, Monika" sort="Bullinger, Monika" uniqKey="Bullinger M" first="Monika" last="Bullinger">Monika Bullinger</name><affiliation wicri:level="3"><country xml:lang="fr">Allemagne</country><wicri:regionArea>Institut und Poliklinik für Medizinische Psychologie, University of Hamburg, Hamburg</wicri:regionArea><placeName><settlement type="city">Hambourg</settlement><region type="land" nuts="2">Hambourg</region></placeName></affiliation></author><author><name sortKey="Maas, Andrew" sort="Maas, Andrew" uniqKey="Maas A" first="Andrew" last="Maas">Andrew Maas</name><affiliation wicri:level="1"><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Neurosurgery, University Hospital Antwerp, Antwerp</wicri:regionArea><wicri:noRegion>Antwerp</wicri:noRegion></affiliation></author><author><name sortKey="Neugebauer, Edmund" sort="Neugebauer, Edmund" uniqKey="Neugebauer E" first="Edmund" last="Neugebauer">Edmund Neugebauer</name><affiliation wicri:level="1"><country xml:lang="fr">Allemagne</country><wicri:regionArea>Institute for Research in Operative Medicine, University of Witten/Herdecke, Cologne</wicri:regionArea><wicri:noRegion>Cologne</wicri:noRegion><wicri:noRegion>Cologne</wicri:noRegion></affiliation></author><author><name sortKey="Powell, Jane" sort="Powell, Jane" uniqKey="Powell J" first="Jane" last="Powell">Jane Powell</name><affiliation wicri:level="4"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Psychology, Goldsmiths, University of London, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region><settlement type="city">Londres</settlement></placeName><orgName type="university">Université de Londres</orgName></affiliation></author><author><name sortKey="Von Wild, Klaus" sort="Von Wild, Klaus" uniqKey="Von Wild K" first="Klaus" last="Von Wild">Klaus Von Wild</name><affiliation wicri:level="3"><country xml:lang="fr">Allemagne</country><wicri:regionArea>Westfälische Wilhelms-University, Münster</wicri:regionArea><placeName><region type="land" nuts="1">Rhénanie-du-Nord-Westphalie</region><region type="district" nuts="2">District de Münster</region><settlement type="city">Münster</settlement></placeName></affiliation></author><author><name sortKey="Zitnay, George" sort="Zitnay, George" uniqKey="Zitnay G" first="George" last="Zitnay">George Zitnay</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania</wicri:regionArea><placeName><region type="state">Pennsylvanie</region></placeName></affiliation></author><author><name sortKey="Bakx, Wilbert" sort="Bakx, Wilbert" uniqKey="Bakx W" first="Wilbert" last="Bakx">Wilbert Bakx</name><affiliation wicri:level="1"><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Adelante Adult Rehabilitation Centre, Maastricht University, Maastricht</wicri:regionArea><wicri:noRegion>Maastricht</wicri:noRegion></affiliation></author><author><name sortKey="Christensen, Anne Lise" sort="Christensen, Anne Lise" uniqKey="Christensen A" first="Anne-Lise" last="Christensen">Anne-Lise Christensen</name><affiliation wicri:level="3"><country xml:lang="fr">Danemark</country><wicri:regionArea>Centre for Rehabilitation of Brain Injury and Centre for Cognition and Memory, University of Copenhagen, Copenhagen</wicri:regionArea><placeName><settlement type="city">Copenhague</settlement><region type="région" nuts="2">Hovedstaden</region></placeName></affiliation></author><author><name sortKey="Formisano, Rita" sort="Formisano, Rita" uniqKey="Formisano R" first="Rita" last="Formisano">Rita Formisano</name><affiliation wicri:level="3"><country xml:lang="fr">Italie</country><wicri:regionArea>IRCCS Fondazione ‘Santa Lucia’, Rome</wicri:regionArea><placeName><settlement type="city">Rome</settlement><region nuts="2">Latium</region></placeName></affiliation></author><author><name sortKey="Hawthorne, Graeme" sort="Hawthorne, Graeme" uniqKey="Hawthorne G" first="Graeme" last="Hawthorne">Graeme Hawthorne</name><affiliation wicri:level="4"><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Psychiatry, University of Melbourne, Victoria</wicri:regionArea><orgName type="university">Université de Melbourne</orgName><placeName><settlement type="city">Melbourne</settlement><region type="état">Victoria (État)</region></placeName></affiliation></author><author><name sortKey="Truelle, Jean Luc" sort="Truelle, Jean Luc" uniqKey="Truelle J" first="Jean-Luc" last="Truelle">Jean-Luc Truelle</name><affiliation wicri:level="1"><country xml:lang="fr">France</country><wicri:regionArea>Rehabilitation Department, University Hospital Garches, Garches</wicri:regionArea><wicri:noRegion>Garches</wicri:noRegion><wicri:noRegion>Garches</wicri:noRegion></affiliation></author></analytic><monogr></monogr><series><title level="j">Journal of Neurology, Neurosurgery & Psychiatry</title><title level="j" type="abbrev">J Neurol Neurosurg Psychiatry</title><idno type="ISSN">0022-3050</idno><idno type="eISSN">1468-330X</idno><imprint><publisher>BMJ Publishing Group Ltd</publisher><date type="published" when="2012-11">2012-11</date><biblScope unit="volume">83</biblScope><biblScope unit="issue">11</biblScope><biblScope unit="page" from="1041">1041</biblScope></imprint><idno type="ISSN">0022-3050</idno></series></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0022-3050</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Analogue scale</term><term>Arch phys</term><term>Brain injury</term><term>Brief hrqol scale</term><term>Brief index</term><term>Brief measures</term><term>Case notes</term><term>Ceiling effects</term><term>Centre</term><term>Clinical information</term><term>Cognition</term><term>Cognitive</term><term>Cognitive impairment</term><term>Cognitive neurology</term><term>Cognitive status</term><term>Conventional criteria</term><term>Current study</term><term>Daily life</term><term>Depression scale</term><term>Different aspects</term><term>Factor analysis</term><term>Full qolibri</term><term>Functional status</term><term>Generic measures</term><term>German language sample</term><term>Glasgow</term><term>Glasgow coma scale</term><term>Glasgow outcome scale</term><term>Global assessment</term><term>Good testeretest reliability</term><term>Gose</term><term>Hads</term><term>Hads depression</term><term>Head trauma</term><term>Health status</term><term>Health survey</term><term>Hospital anxiety</term><term>Hrqol</term><term>Impairment</term><term>Injury severity</term><term>Internal consistency</term><term>International sample</term><term>Intraclass correlation</term><term>Language versions</term><term>Last item</term><term>Life scale</term><term>Major head injury</term><term>Medical psychology</term><term>Mental component score</term><term>Mental health</term><term>Mmse</term><term>Nervous system diseases</term><term>Neurol</term><term>Neurol neurosurg psychiatry</term><term>Neurology</term><term>Neurosurg</term><term>Other measures</term><term>Other outcome assessments</term><term>Outcome assessments</term><term>Outcome measures</term><term>Participant</term><term>Performance tics</term><term>Person separation index</term><term>Physical component score</term><term>Psychometric</term><term>Qolibri</term><term>Quality of life</term><term>Rasch</term><term>Rasch analyses</term><term>Rasch analysis</term><term>Rasch model</term><term>Rehabil</term><term>Reliability</term><term>Satisfactory psychometric properties</term><term>Scale reliability</term><term>Scale scores</term><term>Scale validity</term><term>Short scale</term><term>Similar relationships</term><term>Spearman correlations</term><term>Square error</term><term>State examination</term><term>Strong relationships</term><term>Subsample</term><term>Swls</term><term>Telephone interview</term><term>Testeretest</term><term>Testeretest reliability</term><term>Tic</term><term>Total sample</term><term>Total score</term><term>Traumatic</term><term>Traumatic brain injury</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Pathologie du système nerveux</term><term>Qualité de vie</term><term>Traumatisme crânien</term></keywords><keywords scheme="Teeft" xml:lang="en"><term>Analogue scale</term><term>Arch phys</term><term>Brain injury</term><term>Brief hrqol scale</term><term>Brief index</term><term>Brief measures</term><term>Case notes</term><term>Ceiling effects</term><term>Centre</term><term>Clinical information</term><term>Cognition</term><term>Cognitive</term><term>Cognitive impairment</term><term>Cognitive neurology</term><term>Cognitive status</term><term>Conventional criteria</term><term>Current study</term><term>Daily life</term><term>Depression scale</term><term>Different aspects</term><term>Factor analysis</term><term>Full qolibri</term><term>Functional status</term><term>Generic measures</term><term>German language sample</term><term>Glasgow</term><term>Glasgow coma scale</term><term>Glasgow outcome scale</term><term>Global assessment</term><term>Good testeretest reliability</term><term>Gose</term><term>Hads</term><term>Hads depression</term><term>Health status</term><term>Health survey</term><term>Hospital anxiety</term><term>Hrqol</term><term>Impairment</term><term>Injury severity</term><term>Internal consistency</term><term>International sample</term><term>Intraclass correlation</term><term>Language versions</term><term>Last item</term><term>Life scale</term><term>Major head injury</term><term>Medical psychology</term><term>Mental component score</term><term>Mental health</term><term>Mmse</term><term>Neurol</term><term>Neurol neurosurg psychiatry</term><term>Neurology</term><term>Neurosurg</term><term>Other measures</term><term>Other outcome assessments</term><term>Outcome assessments</term><term>Outcome measures</term><term>Participant</term><term>Performance tics</term><term>Person separation index</term><term>Physical component score</term><term>Psychometric</term><term>Qolibri</term><term>Rasch</term><term>Rasch analyses</term><term>Rasch analysis</term><term>Rasch model</term><term>Rehabil</term><term>Reliability</term><term>Satisfactory psychometric properties</term><term>Scale reliability</term><term>Scale scores</term><term>Scale validity</term><term>Short scale</term><term>Similar relationships</term><term>Spearman correlations</term><term>Square error</term><term>State examination</term><term>Strong relationships</term><term>Subsample</term><term>Swls</term><term>Telephone interview</term><term>Testeretest</term><term>Testeretest reliability</term><term>Tic</term><term>Total sample</term><term>Total score</term><term>Traumatic</term><term>Traumatic brain injury</term></keywords><keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Santé mentale</term><term>Neurologie</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract">Background The Quality of Life after Brain Injury (QOLIBRI) scale is a recently developed instrument that provides a profile of health-related quality of life (HRQoL) in domains typically affected by brain injury. However, for global assessment it is desirable to have a brief summary measure. This study examined a 6-item QOLIBRI Overall Scale (QOLIBRI-OS), and considered whether it could provide an index of HRQoL after traumatic brain injury (TBI). Methods The properties of the QOLIBRI-OS were studied in a sample of 792 participants with TBI recruited from centres in nine countries covering six languages. An examination of construct validity was undertaken on a subsample of 153 participants recruited in Germany who had been assessed on two relevant brief quality of life measures, the Satisfaction With Life Scale and the Quality of Life Visual Analogue Scale. Results The reliability of the QOLIBRI-OS was good (Cronbach's α=0.86, test–retest reliability =0.81) and similar in participants with higher and lower cognitive performance. Factor analysis indicated that the scale is unidimensional. Rasch analysis also showed a satisfactory fit with this model. The QOLIBRI-OS correlates highly with the total score from the full QOLIBRI scale (r=0.87). Moderate to strong relationships were found among the QOLIBRI-OS and the Extended Glasgow Outcome Scale, Short-Form-36, and Hospital Anxiety and Depression scale (r=0.54 to -0.76). The QOLIBRI-OS showed good construct validity in the TBI group. Conclusions The QOLIBRI-OS assesses a similar construct to the QOLIBRI total score and can be used as a brief index of HRQoL for TBI.</div></front></TEI><affiliations><list><country><li>Allemagne</li><li>Australie</li><li>Autriche</li><li>Belgique</li><li>Danemark</li><li>Finlande</li><li>France</li><li>Italie</li><li>Pays-Bas</li><li>Royaume-Uni</li><li>États-Unis</li></country><region><li>Angleterre</li><li>Basse-Saxe</li><li>District de Münster</li><li>Grand Londres</li><li>Hambourg</li><li>Hovedstaden</li><li>Latium</li><li>Pennsylvanie</li><li>Rhénanie-du-Nord-Westphalie</li><li>Victoria (État)</li></region><settlement><li>Copenhague</li><li>Göttingen</li><li>Hambourg</li><li>Londres</li><li>Melbourne</li><li>Münster</li><li>Rome</li></settlement><orgName><li>Université de Londres</li><li>Université de Melbourne</li></orgName></list><tree><country name="Allemagne"><region name="Basse-Saxe"><name sortKey="Von Steinbuechel, Nicole" sort="Von Steinbuechel, Nicole" uniqKey="Von Steinbuechel N" first="Nicole" last="Von Steinbuechel">Nicole Von Steinbuechel</name></region><name sortKey="Bullinger, Monika" sort="Bullinger, Monika" uniqKey="Bullinger M" first="Monika" last="Bullinger">Monika Bullinger</name><name sortKey="Gibbons, Henning" sort="Gibbons, Henning" uniqKey="Gibbons H" first="Henning" last="Gibbons">Henning Gibbons</name><name sortKey="Muehlan, Holger" sort="Muehlan, Holger" uniqKey="Muehlan H" first="Holger" last="Muehlan">Holger Muehlan</name><name sortKey="Neugebauer, Edmund" sort="Neugebauer, Edmund" uniqKey="Neugebauer E" first="Edmund" last="Neugebauer">Edmund Neugebauer</name><name sortKey="Sasse, Nadine" sort="Sasse, Nadine" uniqKey="Sasse N" first="Nadine" last="Sasse">Nadine Sasse</name><name sortKey="Schmidt, Holger" sort="Schmidt, Holger" uniqKey="Schmidt H" first="Holger" last="Schmidt">Holger Schmidt</name><name sortKey="Schmidt, Silke" sort="Schmidt, Silke" uniqKey="Schmidt S" first="Silke" last="Schmidt">Silke Schmidt</name><name sortKey="Von Wild, Klaus" sort="Von Wild, Klaus" uniqKey="Von Wild K" first="Klaus" last="Von Wild">Klaus Von Wild</name></country><country name="Royaume-Uni"><noRegion><name sortKey="Wilson, Lindsay" sort="Wilson, Lindsay" uniqKey="Wilson L" first="Lindsay" last="Wilson">Lindsay Wilson</name></noRegion><name sortKey="Powell, Jane" sort="Powell, Jane" uniqKey="Powell J" first="Jane" last="Powell">Jane Powell</name><name sortKey="Wilson, Lindsay" sort="Wilson, Lindsay" uniqKey="Wilson L" first="Lindsay" last="Wilson">Lindsay Wilson</name></country><country name="Finlande"><noRegion><name sortKey="Koskinen, Sanna" sort="Koskinen, Sanna" uniqKey="Koskinen S" first="Sanna" last="Koskinen">Sanna Koskinen</name></noRegion><name sortKey="Sarajuuri, Jaana" sort="Sarajuuri, Jaana" uniqKey="Sarajuuri J" first="Jaana" last="Sarajuuri">Jaana Sarajuuri</name></country><country name="Autriche"><noRegion><name sortKey="Hofer, Stefan" sort="Hofer, Stefan" uniqKey="Hofer S" first="Stefan" last="Höfer">Stefan Höfer</name></noRegion></country><country name="Belgique"><noRegion><name sortKey="Maas, Andrew" sort="Maas, Andrew" uniqKey="Maas A" first="Andrew" last="Maas">Andrew Maas</name></noRegion></country><country name="États-Unis"><region name="Pennsylvanie"><name sortKey="Zitnay, George" sort="Zitnay, George" uniqKey="Zitnay G" first="George" last="Zitnay">George Zitnay</name></region></country><country name="Pays-Bas"><noRegion><name sortKey="Bakx, Wilbert" sort="Bakx, Wilbert" uniqKey="Bakx W" first="Wilbert" last="Bakx">Wilbert Bakx</name></noRegion></country><country name="Danemark"><region name="Hovedstaden"><name sortKey="Christensen, Anne Lise" sort="Christensen, Anne Lise" uniqKey="Christensen A" first="Anne-Lise" last="Christensen">Anne-Lise Christensen</name></region></country><country name="Italie"><region name="Latium"><name sortKey="Formisano, Rita" sort="Formisano, Rita" uniqKey="Formisano R" first="Rita" last="Formisano">Rita Formisano</name></region></country><country name="Australie"><region name="Victoria (État)"><name sortKey="Hawthorne, Graeme" sort="Hawthorne, Graeme" uniqKey="Hawthorne G" first="Graeme" last="Hawthorne">Graeme Hawthorne</name></region></country><country name="France"><noRegion><name sortKey="Truelle, Jean Luc" sort="Truelle, Jean Luc" uniqKey="Truelle J" first="Jean-Luc" last="Truelle">Jean-Luc Truelle</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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