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QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury

Identifieur interne : 005C63 ( Main/Merge ); précédent : 005C62; suivant : 005C64

QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury

Auteurs : Nicole Von Steinbuechel [Allemagne] ; Lindsay Wilson [Royaume-Uni] ; Henning Gibbons [Allemagne] ; Holger Muehlan [Allemagne] ; Holger Schmidt [Allemagne] ; Silke Schmidt [Allemagne] ; Nadine Sasse [Allemagne] ; Sanna Koskinen [Finlande] ; Jaana Sarajuuri [Finlande] ; Stefan Höfer [Autriche] ; Monika Bullinger [Allemagne] ; Andrew Maas [Belgique] ; Edmund Neugebauer [Allemagne] ; Jane Powell [Royaume-Uni] ; Klaus Von Wild [Allemagne] ; George Zitnay [États-Unis] ; Wilbert Bakx [Pays-Bas] ; Anne-Lise Christensen [Danemark] ; Rita Formisano [Italie] ; Graeme Hawthorne [Australie] ; Jean-Luc Truelle [France]

Source :

Journal of neurology, neurosurgery and psychiatry [ 0022-3050 ] ; 2012.

RBID : Pascal:12-0421700

Descripteurs français

Pascal (Inist)
- Traumatisme crânien, Pathologie du système nerveux, Qualité de vie.

English descriptors

KwdEn :
- Head trauma, Nervous system diseases, Quality of life.

Abstract

Background The Quality of Life after Brain Injury (QOLIBRI) scale is a recently developed instrument that provides a profile of health-related quality of life (HRQoL) in domains typically affected by brain injury. However, for global assessment it is desirable to have a brief summary measure. This study examined a 6-item QOLIBRI Overall Scale (QOLIBRI-OS), and considered whether it could provide an index of HRQoL after traumatic brain injury (TBI). Methods The properties of the QOLIBRI-OS were studied in a sample of 792 participants with TBI recruited from centres in nine countries covering six languages. An examination of construct validity was undertaken on a subsample of 153 participants recruited in Germany who had been assessed on two relevant brief quality of life measures, the Satisfaction With Life Scale and the Quality of Life Visual Analogue Scale. Results The reliability of the QOLIBRI-OS was good (Cronbach's α=0.86, test-retest reliability =0.81) and similar in participants with higher and lower cognitive performance. Factor analysis indicated that the scale is unidimensional. Rasch analysis also showed a satisfactory fit with this model. The QOLIBRI-OS correlates highly with the total score from the full QOLIBRI scale (r=0.87). Moderate to strong relationships were found among the QOLIBRI-OS and the Extended Glasgow Outcome Scale, Short-Form-36, and Hospital Anxiety and Depression scale (r=0.54 to -0.76). The QOLIBRI-OS showed good construct validity in the TBI group. Conclusions The QOLIBRI-OS assesses a similar construct to the QOLIBRI total score and can be used as a brief index of HRQoL for TBI.

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<author><name sortKey="Powell, Jane" sort="Powell, Jane" uniqKey="Powell J" first="Jane" last="Powell">Jane Powell</name>
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<author><name sortKey="Von Wild, Klaus" sort="Von Wild, Klaus" uniqKey="Von Wild K" first="Klaus" last="Von Wild">Klaus Von Wild</name>
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<author><name sortKey="Bakx, Wilbert" sort="Bakx, Wilbert" uniqKey="Bakx W" first="Wilbert" last="Bakx">Wilbert Bakx</name>
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<author><name sortKey="Truelle, Jean Luc" sort="Truelle, Jean Luc" uniqKey="Truelle J" first="Jean-Luc" last="Truelle">Jean-Luc Truelle</name>
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<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a">QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury</title>
<author><name sortKey="Von Steinbuechel, Nicole" sort="Von Steinbuechel, Nicole" uniqKey="Von Steinbuechel N" first="Nicole" last="Von Steinbuechel">Nicole Von Steinbuechel</name>
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<author><name sortKey="Wilson, Lindsay" sort="Wilson, Lindsay" uniqKey="Wilson L" first="Lindsay" last="Wilson">Lindsay Wilson</name>
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<author><name sortKey="Schmidt, Silke" sort="Schmidt, Silke" uniqKey="Schmidt S" first="Silke" last="Schmidt">Silke Schmidt</name>
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<author><name sortKey="Sasse, Nadine" sort="Sasse, Nadine" uniqKey="Sasse N" first="Nadine" last="Sasse">Nadine Sasse</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Department of Medical Psychology and Medical Sociology, Georg-August-University</s1>
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<author><name sortKey="Koskinen, Sanna" sort="Koskinen, Sanna" uniqKey="Koskinen S" first="Sanna" last="Koskinen">Sanna Koskinen</name>
<affiliation wicri:level="1"><inist:fA14 i1="05"><s1>Unit of Clinical Neuropsychology and Psychology, Käpylä Rehabilitation Centre</s1>
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<country>Finlande</country>
<wicri:noRegion>Helsinki</wicri:noRegion>
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<author><name sortKey="Sarajuuri, Jaana" sort="Sarajuuri, Jaana" uniqKey="Sarajuuri J" first="Jaana" last="Sarajuuri">Jaana Sarajuuri</name>
<affiliation wicri:level="1"><inist:fA14 i1="05"><s1>Unit of Clinical Neuropsychology and Psychology, Käpylä Rehabilitation Centre</s1>
<s2>Helsinki</s2>
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<sZ>8 aut.</sZ>
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<author><name sortKey="Hofer, Stefan" sort="Hofer, Stefan" uniqKey="Hofer S" first="Stefan" last="Höfer">Stefan Höfer</name>
<affiliation wicri:level="1"><inist:fA14 i1="06"><s1>Department of Medical Psychology, Innsbruck Medical University</s1>
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<s3>AUT</s3>
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<country>Autriche</country>
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<author><name sortKey="Bullinger, Monika" sort="Bullinger, Monika" uniqKey="Bullinger M" first="Monika" last="Bullinger">Monika Bullinger</name>
<affiliation wicri:level="3"><inist:fA14 i1="07"><s1>Institut und Poliklinik für Medizinische Psychologie, University of Hamburg</s1>
<s2>Hamburg</s2>
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</affiliation>
</author>
<author><name sortKey="Maas, Andrew" sort="Maas, Andrew" uniqKey="Maas A" first="Andrew" last="Maas">Andrew Maas</name>
<affiliation wicri:level="1"><inist:fA14 i1="08"><s1>Department of Neurosurgery, University Hospital Antwerp</s1>
<s2>Antwerp</s2>
<s3>BEL</s3>
<sZ>12 aut.</sZ>
</inist:fA14>
<country>Belgique</country>
<wicri:noRegion>Antwerp</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Neugebauer, Edmund" sort="Neugebauer, Edmund" uniqKey="Neugebauer E" first="Edmund" last="Neugebauer">Edmund Neugebauer</name>
<affiliation wicri:level="1"><inist:fA14 i1="09"><s1>Institute for Research in Operative Medicine, University of Witten/Herdecke</s1>
<s2>Cologne</s2>
<s3>DEU</s3>
<sZ>13 aut.</sZ>
</inist:fA14>
<country>Allemagne</country>
<wicri:noRegion>Cologne</wicri:noRegion>
<wicri:noRegion>University of Witten/Herdecke</wicri:noRegion>
<wicri:noRegion>Cologne</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Powell, Jane" sort="Powell, Jane" uniqKey="Powell J" first="Jane" last="Powell">Jane Powell</name>
<affiliation wicri:level="4"><inist:fA14 i1="10"><s1>Department of Psychology, Goldsmiths, University of London</s1>
<s2>London</s2>
<s3>GBR</s3>
<sZ>14 aut.</sZ>
</inist:fA14>
<country>Royaume-Uni</country>
<placeName><settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
<settlement type="city">Londres</settlement>
</placeName>
<orgName type="university">Université de Londres</orgName>
</affiliation>
</author>
<author><name sortKey="Von Wild, Klaus" sort="Von Wild, Klaus" uniqKey="Von Wild K" first="Klaus" last="Von Wild">Klaus Von Wild</name>
<affiliation wicri:level="3"><inist:fA14 i1="11"><s1>Westfälische Wilhelms-University</s1>
<s2>Münster</s2>
<s3>DEU</s3>
<sZ>15 aut.</sZ>
</inist:fA14>
<country>Allemagne</country>
<placeName><region type="land" nuts="1">Rhénanie-du-Nord-Westphalie</region>
<region type="district" nuts="2">District de Münster</region>
<settlement type="city">Münster</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Zitnay, George" sort="Zitnay, George" uniqKey="Zitnay G" first="George" last="Zitnay">George Zitnay</name>
<affiliation wicri:level="2"><inist:fA14 i1="12"><s1>University of Pittsburgh School of Medicine</s1>
<s2>Pittsburgh, Pennsylvania</s2>
<s3>USA</s3>
<sZ>16 aut.</sZ>
</inist:fA14>
<country>États-Unis</country>
<placeName><region type="state">Pennsylvanie</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Bakx, Wilbert" sort="Bakx, Wilbert" uniqKey="Bakx W" first="Wilbert" last="Bakx">Wilbert Bakx</name>
<affiliation wicri:level="1"><inist:fA14 i1="13"><s1>Adelante Adult Rehabilitation Centre, Maastricht University</s1>
<s2>Maastricht</s2>
<s3>NLD</s3>
<sZ>17 aut.</sZ>
</inist:fA14>
<country>Pays-Bas</country>
<wicri:noRegion>Maastricht</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Christensen, Anne Lise" sort="Christensen, Anne Lise" uniqKey="Christensen A" first="Anne-Lise" last="Christensen">Anne-Lise Christensen</name>
<affiliation wicri:level="3"><inist:fA14 i1="14"><s1>Centre for Rehabilitation of Brain Injury and Centre for Cognition and Memory, University of Copenhagen</s1>
<s2>Copenhagen</s2>
<s3>DNK</s3>
<sZ>18 aut.</sZ>
</inist:fA14>
<country>Danemark</country>
<placeName><settlement type="city">Copenhague</settlement>
<region type="région" nuts="2">Hovedstaden</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Formisano, Rita" sort="Formisano, Rita" uniqKey="Formisano R" first="Rita" last="Formisano">Rita Formisano</name>
<affiliation wicri:level="3"><inist:fA14 i1="15"><s1>IRCCS Fondazione 'Santa Lucia'</s1>
<s2>Rome</s2>
<s3>ITA</s3>
<sZ>19 aut.</sZ>
</inist:fA14>
<country>Italie</country>
<placeName><settlement type="city">Rome</settlement>
<region nuts="2">Latium</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Hawthorne, Graeme" sort="Hawthorne, Graeme" uniqKey="Hawthorne G" first="Graeme" last="Hawthorne">Graeme Hawthorne</name>
<affiliation wicri:level="4"><inist:fA14 i1="16"><s1>Department of Psychiatry, University of Melbourne</s1>
<s2>Victoria</s2>
<s3>AUS</s3>
<sZ>20 aut.</sZ>
</inist:fA14>
<country>Australie</country>
<placeName><settlement type="city">Melbourne</settlement>
<region type="état">Victoria (État)</region>
</placeName>
<orgName type="university">Université de Melbourne</orgName>
</affiliation>
</author>
<author><name sortKey="Truelle, Jean Luc" sort="Truelle, Jean Luc" uniqKey="Truelle J" first="Jean-Luc" last="Truelle">Jean-Luc Truelle</name>
<affiliation wicri:level="1"><inist:fA14 i1="17"><s1>Rehabilitation Department, University Hospital Garches</s1>
<s2>Garches</s2>
<s3>FRA</s3>
<sZ>21 aut.</sZ>
</inist:fA14>
<country>France</country>
<wicri:noRegion>Garches</wicri:noRegion>
<wicri:noRegion>University Hospital Garches</wicri:noRegion>
<wicri:noRegion>Garches</wicri:noRegion>
</affiliation>
</author>
</analytic>
<series><title level="j" type="main">Journal of neurology, neurosurgery and psychiatry</title>
<title level="j" type="abbreviated">J. neurol. neurosurg. psychiatry</title>
<idno type="ISSN">0022-3050</idno>
<imprint><date when="2012">2012</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
<seriesStmt><title level="j" type="main">Journal of neurology, neurosurgery and psychiatry</title>
<title level="j" type="abbreviated">J. neurol. neurosurg. psychiatry</title>
<idno type="ISSN">0022-3050</idno>
</seriesStmt>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Head trauma</term>
<term>Nervous system diseases</term>
<term>Quality of life</term>
</keywords>
<keywords scheme="Pascal" xml:lang="fr"><term>Traumatisme crânien</term>
<term>Pathologie du   système nerveux</term>
<term>Qualité de vie</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en">Background The Quality of Life after Brain Injury (QOLIBRI) scale is a recently developed instrument that provides a profile of health-related quality of life (HRQoL) in domains typically affected by brain injury. However, for global assessment it is desirable to have a brief summary measure. This study examined a 6-item QOLIBRI Overall Scale (QOLIBRI-OS), and considered whether it could provide an index of HRQoL after traumatic brain injury (TBI). Methods The properties of the QOLIBRI-OS were studied in a sample of 792 participants with TBI recruited from centres in nine countries covering six languages. An examination of construct validity was undertaken on a subsample of 153 participants recruited in Germany who had been assessed on two relevant brief quality of life measures, the Satisfaction With Life Scale and the Quality of Life Visual Analogue Scale. Results The reliability of the QOLIBRI-OS was good (Cronbach's α=0.86, test-retest reliability =0.81) and similar in participants with higher and lower cognitive performance. Factor analysis indicated that the scale is unidimensional. Rasch analysis also showed a satisfactory fit with this model. The QOLIBRI-OS correlates highly with the total score from the full QOLIBRI scale (r=0.87). Moderate to strong relationships were found among the QOLIBRI-OS and the Extended Glasgow Outcome Scale, Short-Form-36, and Hospital Anxiety and Depression scale (r=0.54 to -0.76). The QOLIBRI-OS showed good construct validity in the TBI group. Conclusions The QOLIBRI-OS assesses a similar construct to the QOLIBRI total score and can be used as a brief index of HRQoL for TBI.</div>
</front>
</TEI>
<affiliations><list><country><li>Allemagne</li>
<li>Australie</li>
<li>Autriche</li>
<li>Belgique</li>
<li>Danemark</li>
<li>Finlande</li>
<li>France</li>
<li>Italie</li>
<li>Pays-Bas</li>
<li>Royaume-Uni</li>
<li>États-Unis</li>
</country>
<region><li>Angleterre</li>
<li>Basse-Saxe</li>
<li>District de Münster</li>
<li>Grand Londres</li>
<li>Hambourg</li>
<li>Hovedstaden</li>
<li>Latium</li>
<li>Pennsylvanie</li>
<li>Rhénanie-du-Nord-Westphalie</li>
<li>Victoria (État)</li>
</region>
<settlement><li>Copenhague</li>
<li>Göttingen</li>
<li>Hambourg</li>
<li>Londres</li>
<li>Melbourne</li>
<li>Münster</li>
<li>Rome</li>
</settlement>
<orgName><li>Université de Londres</li>
<li>Université de Melbourne</li>
</orgName>
</list>
<tree><country name="Allemagne"><noRegion><name sortKey="Von Steinbuechel, Nicole" sort="Von Steinbuechel, Nicole" uniqKey="Von Steinbuechel N" first="Nicole" last="Von Steinbuechel">Nicole Von Steinbuechel</name>
</noRegion>
<name sortKey="Bullinger, Monika" sort="Bullinger, Monika" uniqKey="Bullinger M" first="Monika" last="Bullinger">Monika Bullinger</name>
<name sortKey="Gibbons, Henning" sort="Gibbons, Henning" uniqKey="Gibbons H" first="Henning" last="Gibbons">Henning Gibbons</name>
<name sortKey="Muehlan, Holger" sort="Muehlan, Holger" uniqKey="Muehlan H" first="Holger" last="Muehlan">Holger Muehlan</name>
<name sortKey="Neugebauer, Edmund" sort="Neugebauer, Edmund" uniqKey="Neugebauer E" first="Edmund" last="Neugebauer">Edmund Neugebauer</name>
<name sortKey="Sasse, Nadine" sort="Sasse, Nadine" uniqKey="Sasse N" first="Nadine" last="Sasse">Nadine Sasse</name>
<name sortKey="Schmidt, Holger" sort="Schmidt, Holger" uniqKey="Schmidt H" first="Holger" last="Schmidt">Holger Schmidt</name>
<name sortKey="Schmidt, Silke" sort="Schmidt, Silke" uniqKey="Schmidt S" first="Silke" last="Schmidt">Silke Schmidt</name>
<name sortKey="Von Wild, Klaus" sort="Von Wild, Klaus" uniqKey="Von Wild K" first="Klaus" last="Von Wild">Klaus Von Wild</name>
</country>
<country name="Royaume-Uni"><noRegion><name sortKey="Wilson, Lindsay" sort="Wilson, Lindsay" uniqKey="Wilson L" first="Lindsay" last="Wilson">Lindsay Wilson</name>
</noRegion>
<name sortKey="Powell, Jane" sort="Powell, Jane" uniqKey="Powell J" first="Jane" last="Powell">Jane Powell</name>
</country>
<country name="Finlande"><noRegion><name sortKey="Koskinen, Sanna" sort="Koskinen, Sanna" uniqKey="Koskinen S" first="Sanna" last="Koskinen">Sanna Koskinen</name>
</noRegion>
<name sortKey="Sarajuuri, Jaana" sort="Sarajuuri, Jaana" uniqKey="Sarajuuri J" first="Jaana" last="Sarajuuri">Jaana Sarajuuri</name>
</country>
<country name="Autriche"><noRegion><name sortKey="Hofer, Stefan" sort="Hofer, Stefan" uniqKey="Hofer S" first="Stefan" last="Höfer">Stefan Höfer</name>
</noRegion>
</country>
<country name="Belgique"><noRegion><name sortKey="Maas, Andrew" sort="Maas, Andrew" uniqKey="Maas A" first="Andrew" last="Maas">Andrew Maas</name>
</noRegion>
</country>
<country name="États-Unis"><region name="Pennsylvanie"><name sortKey="Zitnay, George" sort="Zitnay, George" uniqKey="Zitnay G" first="George" last="Zitnay">George Zitnay</name>
</region>
</country>
<country name="Pays-Bas"><noRegion><name sortKey="Bakx, Wilbert" sort="Bakx, Wilbert" uniqKey="Bakx W" first="Wilbert" last="Bakx">Wilbert Bakx</name>
</noRegion>
</country>
<country name="Danemark"><region name="Hovedstaden"><name sortKey="Christensen, Anne Lise" sort="Christensen, Anne Lise" uniqKey="Christensen A" first="Anne-Lise" last="Christensen">Anne-Lise Christensen</name>
</region>
</country>
<country name="Italie"><region name="Latium"><name sortKey="Formisano, Rita" sort="Formisano, Rita" uniqKey="Formisano R" first="Rita" last="Formisano">Rita Formisano</name>
</region>
</country>
<country name="Australie"><region name="Victoria (État)"><name sortKey="Hawthorne, Graeme" sort="Hawthorne, Graeme" uniqKey="Hawthorne G" first="Graeme" last="Hawthorne">Graeme Hawthorne</name>
</region>
</country>
<country name="France"><noRegion><name sortKey="Truelle, Jean Luc" sort="Truelle, Jean Luc" uniqKey="Truelle J" first="Jean-Luc" last="Truelle">Jean-Luc Truelle</name>
</noRegion>
</country>
</tree>
</affiliations>
</record>

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QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury

QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury

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