SidaSubSaharaV1, Istex, Corpus, bibRecord, 003157

Nutrition research in rural communities: application of ethical principles

Identifieur interne : 003157 ( Istex/Corpus ); précédent : 003156; suivant : 003158

Nutrition research in rural communities: application of ethical principles

Auteurs : Mieke Faber ; H. Salomé Kruger

Source :

Maternal & Child Nutrition [ 1740-8695 ] ; 2013-10.

RBID : ISTEX:9680E68CCB6A3FF80F51C70E1B838FCC9153CBB8

English descriptors

KwdEn :
- Adequate sample size, Adequate training, African countries, African journal, African township, Agricultural organization, American journal, Atienza king, Better understanding, Blood sampling, Boyle holben, Callens seiffert, Careful attention, Child nutrition, Clinical nutrition, Clinical research, Clinical trials, Community health workers, Community leaders, Community level, Community members, Community nutrition, Community participation, Consent form, Consent forms, Consent process, Control group, Daily activities, Data collection, Dietary diversity questionnaire, Dietary intake, Eastern cape, Educational level, Eldworker, Eldworkers, Epidemiological studies, Ethical principle, Ethical principles, Ethnicity disease, Excessive incentives, Exit strategy, Faber, Fieldworker, Food sciences, Foreseeable risks, Fraser alexander, Growth monitoring, Health education, Health facilities, Health professionals, Health volunteers, Hills mullett, Host community, Illiterate participants, International journal, International organizations, John wiley sons, Karlberg speers, Laurie faber, Limited resources, Local conditions, Local context, Local knowledge, Local language, Maternal, Mckeown weed, Medical ethics, Medical research council, Medical sciences, Methodological issues, Methodology, Micronutrient status, Mieke faber, Narrative review, Nutrition, Nutrition interventions, Nutrition research, Nutritional intervention research unit, Overweight women, Participant, Participation research model, Participatory, Participatory research, Personal characteristics, Planning stage, Potential risks, Programme, Project activities, Project equipment, Project volunteers, Public health, Public health nutrition programmes, Questionnaire design, Reasonable decision, Remuneration, Research activities, Research data, Research ethics, Research methodology, Research participant, Research participants, Research participation, Research procedures, Research project, Research projects, Research question, Research team, Researcher, Researchers need, Resnik kennedy, Rural area, Rural areas, Rural communities, Rural community, Rural village, Sample size, Seasonal availability, Selection criteria, Selection process, Serum retinol concentrations, Social aspects, Social science medicine, Social stigmatization, Steering committee, Study activities, Study ends, Study participants, Study population, Study procedures, Study results, Such cases, Suitable study population, Support health volunteers, Target audience, Target population, Term community, Therapeutic methods, Time burden, Unbiased measurement outcome, Urban health, Village leader community representatives, Vitamin vegetables, Voluntary nature, Vulnerable communities, Wallerstein duran.
Teeft :
- Adequate sample size, Adequate training, African countries, African journal, African township, Agricultural organization, American journal, Atienza king, Better understanding, Blood sampling, Boyle holben, Callens seiffert, Careful attention, Child nutrition, Clinical nutrition, Clinical research, Clinical trials, Community health workers, Community leaders, Community level, Community members, Community nutrition, Community participation, Consent form, Consent forms, Consent process, Control group, Daily activities, Data collection, Dietary diversity questionnaire, Dietary intake, Eastern cape, Educational level, Eldworker, Eldworkers, Epidemiological studies, Ethical principle, Ethical principles, Ethnicity disease, Excessive incentives, Exit strategy, Faber, Fieldworker, Food sciences, Foreseeable risks, Fraser alexander, Growth monitoring, Health education, Health facilities, Health professionals, Health volunteers, Hills mullett, Host community, Illiterate participants, International journal, International organizations, John wiley sons, Karlberg speers, Laurie faber, Limited resources, Local conditions, Local context, Local knowledge, Local language, Maternal, Mckeown weed, Medical ethics, Medical research council, Medical sciences, Methodological issues, Methodology, Micronutrient status, Mieke faber, Narrative review, Nutrition, Nutrition interventions, Nutrition research, Nutritional intervention research unit, Overweight women, Participant, Participation research model, Participatory, Participatory research, Personal characteristics, Planning stage, Potential risks, Programme, Project activities, Project equipment, Project volunteers, Public health, Public health nutrition programmes, Questionnaire design, Reasonable decision, Remuneration, Research activities, Research data, Research ethics, Research methodology, Research participant, Research participants, Research participation, Research procedures, Research project, Research projects, Research question, Research team, Researcher, Researchers need, Resnik kennedy, Rural area, Rural areas, Rural communities, Rural community, Rural village, Sample size, Seasonal availability, Selection criteria, Selection process, Serum retinol concentrations, Social aspects, Social science medicine, Social stigmatization, Steering committee, Study activities, Study ends, Study participants, Study population, Study procedures, Study results, Such cases, Suitable study population, Support health volunteers, Target audience, Target population, Term community, Therapeutic methods, Time burden, Unbiased measurement outcome, Urban health, Village leader community representatives, Vitamin vegetables, Voluntary nature, Vulnerable communities, Wallerstein duran.

Abstract

This narrative review focuses on ethics related to nutrition‐specific community‐based research, within the framework of science for society, and focusing on the rights and well‐being of fieldworkers and research participants. In addition to generally accepted conditions of scientific validity, such as adequate sample size, unbiased measurement outcome and suitable study population, research needs to be appropriate and feasible within the local context. Communities' suspicions about research can be overcome through community participation and clear dialogue. Recruitment of fieldworkers and research participants should be transparent and guided by project‐specific selection criteria. Fieldworkers need to be adequately trained, their daily schedules and remuneration must be realistic, and their inputs to the study must be recognized. Fieldworkers may be negatively affected emotionally, financially and physically. Benefits to research participants may include physical and psychological benefits, minimal economic benefit, and health education; while risks may be of a physical, psychological, social, or economic nature. Targeting individuals in high‐risk groups may result in social stigmatization. The time burden to the research participant can be minimized by careful attention to study procedures and questionnaire design. Potential benefits to the community, fieldworkers and research participants and anticipated knowledge to be gained should outweigh and justify the potential risks. Researchers should have an exit strategy for study participants. For effective dissemination of results to individual research participants, the host community and nutrition community, the language, format and level of presentation need to be appropriate for the target audience.

Url:

https://api.istex.fr/document/9680E68CCB6A3FF80F51C70E1B838FCC9153CBB8/fulltext/pdf

DOI: 10.1111/j.1740-8709.2012.00414.x

Links to Exploration step

ISTEX:9680E68CCB6A3FF80F51C70E1B838FCC9153CBB8

Le document en format XML

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<affiliation><mods:affiliation>E-mail: mieke.faber@mrc.ac.za</mods:affiliation>
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<author><name sortKey="Kruger, H Salome" sort="Kruger, H Salome" uniqKey="Kruger H" first="H. Salomé" last="Kruger">H. Salomé Kruger</name>
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<term>African countries</term>
<term>African journal</term>
<term>African township</term>
<term>Agricultural organization</term>
<term>American journal</term>
<term>Atienza king</term>
<term>Better understanding</term>
<term>Blood sampling</term>
<term>Boyle holben</term>
<term>Callens seiffert</term>
<term>Careful attention</term>
<term>Child nutrition</term>
<term>Clinical nutrition</term>
<term>Clinical research</term>
<term>Clinical trials</term>
<term>Community health workers</term>
<term>Community leaders</term>
<term>Community level</term>
<term>Community members</term>
<term>Community nutrition</term>
<term>Community participation</term>
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<term>Consent forms</term>
<term>Consent process</term>
<term>Control group</term>
<term>Daily activities</term>
<term>Data collection</term>
<term>Dietary diversity questionnaire</term>
<term>Dietary intake</term>
<term>Eastern cape</term>
<term>Educational level</term>
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<term>Epidemiological studies</term>
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<term>Ethical principles</term>
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<term>Fraser alexander</term>
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<term>International organizations</term>
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<term>Nutrition interventions</term>
<term>Nutrition research</term>
<term>Nutritional intervention research unit</term>
<term>Overweight women</term>
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<term>Participation research model</term>
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<term>Planning stage</term>
<term>Potential risks</term>
<term>Programme</term>
<term>Project activities</term>
<term>Project equipment</term>
<term>Project volunteers</term>
<term>Public health</term>
<term>Public health nutrition programmes</term>
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<term>Reasonable decision</term>
<term>Remuneration</term>
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<term>Research data</term>
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<term>Research methodology</term>
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<term>Rural communities</term>
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<term>Seasonal availability</term>
<term>Selection criteria</term>
<term>Selection process</term>
<term>Serum retinol concentrations</term>
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<term>Social science medicine</term>
<term>Social stigmatization</term>
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<term>Such cases</term>
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<term>Target population</term>
<term>Term community</term>
<term>Therapeutic methods</term>
<term>Time burden</term>
<term>Unbiased measurement outcome</term>
<term>Urban health</term>
<term>Village leader community representatives</term>
<term>Vitamin vegetables</term>
<term>Voluntary nature</term>
<term>Vulnerable communities</term>
<term>Wallerstein duran</term>
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<term>Adequate training</term>
<term>African countries</term>
<term>African journal</term>
<term>African township</term>
<term>Agricultural organization</term>
<term>American journal</term>
<term>Atienza king</term>
<term>Better understanding</term>
<term>Blood sampling</term>
<term>Boyle holben</term>
<term>Callens seiffert</term>
<term>Careful attention</term>
<term>Child nutrition</term>
<term>Clinical nutrition</term>
<term>Clinical research</term>
<term>Clinical trials</term>
<term>Community health workers</term>
<term>Community leaders</term>
<term>Community level</term>
<term>Community members</term>
<term>Community nutrition</term>
<term>Community participation</term>
<term>Consent form</term>
<term>Consent forms</term>
<term>Consent process</term>
<term>Control group</term>
<term>Daily activities</term>
<term>Data collection</term>
<term>Dietary diversity questionnaire</term>
<term>Dietary intake</term>
<term>Eastern cape</term>
<term>Educational level</term>
<term>Eldworker</term>
<term>Eldworkers</term>
<term>Epidemiological studies</term>
<term>Ethical principle</term>
<term>Ethical principles</term>
<term>Ethnicity disease</term>
<term>Excessive incentives</term>
<term>Exit strategy</term>
<term>Faber</term>
<term>Fieldworker</term>
<term>Food sciences</term>
<term>Foreseeable risks</term>
<term>Fraser alexander</term>
<term>Growth monitoring</term>
<term>Health education</term>
<term>Health facilities</term>
<term>Health professionals</term>
<term>Health volunteers</term>
<term>Hills mullett</term>
<term>Host community</term>
<term>Illiterate participants</term>
<term>International journal</term>
<term>International organizations</term>
<term>John wiley sons</term>
<term>Karlberg speers</term>
<term>Laurie faber</term>
<term>Limited resources</term>
<term>Local conditions</term>
<term>Local context</term>
<term>Local knowledge</term>
<term>Local language</term>
<term>Maternal</term>
<term>Mckeown weed</term>
<term>Medical ethics</term>
<term>Medical research council</term>
<term>Medical sciences</term>
<term>Methodological issues</term>
<term>Methodology</term>
<term>Micronutrient status</term>
<term>Mieke faber</term>
<term>Narrative review</term>
<term>Nutrition</term>
<term>Nutrition interventions</term>
<term>Nutrition research</term>
<term>Nutritional intervention research unit</term>
<term>Overweight women</term>
<term>Participant</term>
<term>Participation research model</term>
<term>Participatory</term>
<term>Participatory research</term>
<term>Personal characteristics</term>
<term>Planning stage</term>
<term>Potential risks</term>
<term>Programme</term>
<term>Project activities</term>
<term>Project equipment</term>
<term>Project volunteers</term>
<term>Public health</term>
<term>Public health nutrition programmes</term>
<term>Questionnaire design</term>
<term>Reasonable decision</term>
<term>Remuneration</term>
<term>Research activities</term>
<term>Research data</term>
<term>Research ethics</term>
<term>Research methodology</term>
<term>Research participant</term>
<term>Research participants</term>
<term>Research participation</term>
<term>Research procedures</term>
<term>Research project</term>
<term>Research projects</term>
<term>Research question</term>
<term>Research team</term>
<term>Researcher</term>
<term>Researchers need</term>
<term>Resnik kennedy</term>
<term>Rural area</term>
<term>Rural areas</term>
<term>Rural communities</term>
<term>Rural community</term>
<term>Rural village</term>
<term>Sample size</term>
<term>Seasonal availability</term>
<term>Selection criteria</term>
<term>Selection process</term>
<term>Serum retinol concentrations</term>
<term>Social aspects</term>
<term>Social science medicine</term>
<term>Social stigmatization</term>
<term>Steering committee</term>
<term>Study activities</term>
<term>Study ends</term>
<term>Study participants</term>
<term>Study population</term>
<term>Study procedures</term>
<term>Study results</term>
<term>Such cases</term>
<term>Suitable study population</term>
<term>Support health volunteers</term>
<term>Target audience</term>
<term>Target population</term>
<term>Term community</term>
<term>Therapeutic methods</term>
<term>Time burden</term>
<term>Unbiased measurement outcome</term>
<term>Urban health</term>
<term>Village leader community representatives</term>
<term>Vitamin vegetables</term>
<term>Voluntary nature</term>
<term>Vulnerable communities</term>
<term>Wallerstein duran</term>
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<front><div type="abstract" xml:lang="en">This narrative review focuses on ethics related to nutrition‐specific community‐based research, within the framework of science for society, and focusing on the rights and well‐being of fieldworkers and research participants. In addition to generally accepted conditions of scientific validity, such as adequate sample size, unbiased measurement outcome and suitable study population, research needs to be appropriate and feasible within the local context. Communities' suspicions about research can be overcome through community participation and clear dialogue. Recruitment of fieldworkers and research participants should be transparent and guided by project‐specific selection criteria. Fieldworkers need to be adequately trained, their daily schedules and remuneration must be realistic, and their inputs to the study must be recognized. Fieldworkers may be negatively affected emotionally, financially and physically. Benefits to research participants may include physical and psychological benefits, minimal economic benefit, and health education; while risks may be of a physical, psychological, social, or economic nature. Targeting individuals in high‐risk groups may result in social stigmatization. The time burden to the research participant can be minimized by careful attention to study procedures and questionnaire design. Potential benefits to the community, fieldworkers and research participants and anticipated knowledge to be gained should outweigh and justify the potential risks. Researchers should have an exit strategy for study participants. For effective dissemination of results to individual research participants, the host community and nutrition community, the language, format and level of presentation need to be appropriate for the target audience.</div>
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Nutrition research in rural communities: application of ethical principles

Nutrition research in rural communities: application of ethical principles

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