Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment
Identifieur interne : 000910 ( Istex/Corpus ); précédent : 000909; suivant : 000911Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment
Auteurs : V. Mcmanus ; S. I. Michelsen ; K. Parkinson ; A. Colver ; E. Beckung ; O. Pez ; B. CaravaleSource :
- Child: Care, Health and Development [ 0305-1862 ] ; 2006-03.
English descriptors
Abstract
Background An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.
Url:
DOI: 10.1111/j.1365-2214.2006.00601.x
Links to Exploration step
ISTEX:F2B114D077096C1FD68592763D0A62426CD92813Le document en format XML
<record><TEI wicri:istexFullTextTei="biblStruct"><teiHeader><fileDesc><titleStmt><title xml:lang="en">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title><author><name sortKey="Mcmanus, V" sort="Mcmanus, V" uniqKey="Mcmanus V" first="V." last="Mcmanus">V. Mcmanus</name><affiliation><mods:affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland</mods:affiliation></affiliation><affiliation><mods:affiliation>E-mail: vmcmanus@enableireland.ie</mods:affiliation></affiliation></author><author><name sortKey="Michelsen, S I" sort="Michelsen, S I" uniqKey="Michelsen S" first="S. I." last="Michelsen">S. I. Michelsen</name><affiliation><mods:affiliation>National Institute of Public Health, Copenhagen K, Denmark</mods:affiliation></affiliation></author><author><name sortKey="Parkinson, K" sort="Parkinson, K" uniqKey="Parkinson K" first="K." last="Parkinson">K. Parkinson</name><affiliation><mods:affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</mods:affiliation></affiliation></author><author><name sortKey="Colver, A" sort="Colver, A" uniqKey="Colver A" first="A." last="Colver">A. Colver</name><affiliation><mods:affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</mods:affiliation></affiliation></author><author><name sortKey="Beckung, E" sort="Beckung, E" uniqKey="Beckung E" first="E." last="Beckung">E. Beckung</name><affiliation><mods:affiliation>SIIM‐ Pole Exploitation, CHU de Grenoble, Grenoble, France</mods:affiliation></affiliation></author><author><name sortKey="Pez, O" sort="Pez, O" uniqKey="Pez O" first="O." last="Pez">O. Pez</name><affiliation><mods:affiliation>Azienda Sanitaria Locale, Viale Trento 18 H, Viterbo, Italy, and</mods:affiliation></affiliation></author><author><name sortKey="Caravale, B" sort="Caravale, B" uniqKey="Caravale B" first="B." last="Caravale">B. Caravale</name><affiliation><mods:affiliation>University of Newcastle, Centre for Health Services Research, Newcastle upon Tyne, UK</mods:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:F2B114D077096C1FD68592763D0A62426CD92813</idno><date when="2006" year="2006">2006</date><idno type="doi">10.1111/j.1365-2214.2006.00601.x</idno><idno type="url">https://api.istex.fr/document/F2B114D077096C1FD68592763D0A62426CD92813/fulltext/pdf</idno><idno type="wicri:Area/Istex/Corpus">000910</idno><idno type="wicri:explorRef" wicri:stream="Istex" wicri:step="Corpus" wicri:corpus="ISTEX">000910</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title><author><name sortKey="Mcmanus, V" sort="Mcmanus, V" uniqKey="Mcmanus V" first="V." last="Mcmanus">V. Mcmanus</name><affiliation><mods:affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland</mods:affiliation></affiliation><affiliation><mods:affiliation>E-mail: vmcmanus@enableireland.ie</mods:affiliation></affiliation></author><author><name sortKey="Michelsen, S I" sort="Michelsen, S I" uniqKey="Michelsen S" first="S. I." last="Michelsen">S. I. Michelsen</name><affiliation><mods:affiliation>National Institute of Public Health, Copenhagen K, Denmark</mods:affiliation></affiliation></author><author><name sortKey="Parkinson, K" sort="Parkinson, K" uniqKey="Parkinson K" first="K." last="Parkinson">K. Parkinson</name><affiliation><mods:affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</mods:affiliation></affiliation></author><author><name sortKey="Colver, A" sort="Colver, A" uniqKey="Colver A" first="A." last="Colver">A. Colver</name><affiliation><mods:affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</mods:affiliation></affiliation></author><author><name sortKey="Beckung, E" sort="Beckung, E" uniqKey="Beckung E" first="E." last="Beckung">E. Beckung</name><affiliation><mods:affiliation>SIIM‐ Pole Exploitation, CHU de Grenoble, Grenoble, France</mods:affiliation></affiliation></author><author><name sortKey="Pez, O" sort="Pez, O" uniqKey="Pez O" first="O." last="Pez">O. Pez</name><affiliation><mods:affiliation>Azienda Sanitaria Locale, Viale Trento 18 H, Viterbo, Italy, and</mods:affiliation></affiliation></author><author><name sortKey="Caravale, B" sort="Caravale, B" uniqKey="Caravale B" first="B." last="Caravale">B. Caravale</name><affiliation><mods:affiliation>University of Newcastle, Centre for Health Services Research, Newcastle upon Tyne, UK</mods:affiliation></affiliation></author></analytic><monogr></monogr><series><title level="j">Child: Care, Health and Development</title><idno type="ISSN">0305-1862</idno><idno type="eISSN">1365-2214</idno><imprint><publisher>Blackwell Science Ltd</publisher><pubPlace>Oxford, UK</pubPlace><date type="published" when="2006-03">2006-03</date><biblScope unit="volume">32</biblScope><biblScope unit="issue">2</biblScope><biblScope unit="page" from="185">185</biblScope><biblScope unit="page" to="192">192</biblScope></imprint><idno type="ISSN">0305-1862</idno></series><idno type="istex">F2B114D077096C1FD68592763D0A62426CD92813</idno><idno type="DOI">10.1111/j.1365-2214.2006.00601.x</idno><idno type="ArticleID">CCH601</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0305-1862</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>cerebral palsy</term><term>children</term><term>disability</term><term>discussion groups</term><term>environment</term><term>participation</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract">Background An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</div></front></TEI><istex><corpusName>wiley</corpusName><author><json:item><name>V. McManus</name><affiliations><json:string>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland</json:string><json:string>E-mail: vmcmanus@enableireland.ie</json:string></affiliations></json:item><json:item><name>S. I. Michelsen</name><affiliations><json:string>National Institute of Public Health, Copenhagen K, Denmark</json:string></affiliations></json:item><json:item><name>K. Parkinson</name><affiliations><json:string>The Queen Silvia Children's Hospital, Göteborg, Sweden</json:string></affiliations></json:item><json:item><name>A. Colver</name><affiliations><json:string>The Queen Silvia Children's Hospital, Göteborg, Sweden</json:string></affiliations></json:item><json:item><name>E. Beckung</name><affiliations><json:string>SIIM‐ Pole Exploitation, CHU de Grenoble, Grenoble, France</json:string></affiliations></json:item><json:item><name>O. Pez</name><affiliations><json:string>Azienda Sanitaria Locale, Viale Trento 18 H, Viterbo, Italy, and</json:string></affiliations></json:item><json:item><name>B. Caravale</name><affiliations><json:string>University of Newcastle, Centre for Health Services Research, Newcastle upon Tyne, UK</json:string></affiliations></json:item></author><subject><json:item><lang><json:string>eng</json:string></lang><value>cerebral palsy</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>children</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>disability</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>discussion groups</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>environment</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>participation</value></json:item></subject><articleId><json:string>CCH601</json:string></articleId><language><json:string>eng</json:string></language><originalGenre><json:string>article</json:string></originalGenre><qualityIndicators><score>4.998</score><pdfVersion>1.4</pdfVersion><pdfPageSize>595 x 782 pts</pdfPageSize><refBibsNative>true</refBibsNative><abstractCharCount>304</abstractCharCount><pdfWordCount>4006</pdfWordCount><pdfCharCount>24854</pdfCharCount><pdfPageCount>8</pdfPageCount><abstractWordCount>41</abstractWordCount></qualityIndicators><title>Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title><refBibs><json:item><author><json:item><name>J. M. Clark</name></json:item><json:item><name>J. Maben</name></json:item><json:item><name>K. Jones</name></json:item></author><host><volume>1</volume><pages><last>155</last><first>143</first></pages><author></author><title>NT Research</title></host><title>The use of focus group interviews in nursing research: issues and challenges</title></json:item><json:item><author><json:item><name>D. Hammal</name></json:item><json:item><name>S. N. Jarvis</name></json:item><json:item><name>A. F. Colver</name></json:item></author><host><volume>46</volume><pages><last>298</last><first>292</first></pages><author></author><title>Developmental Medicine and Child Neurology</title></host><title>Participation of children with cerebral palsy is influenced by where they live</title></json:item><json:item><author><json:item><name>D. Hughes</name></json:item><json:item><name>K. DuMont</name></json:item></author><host><volume>21</volume><pages><last>806</last><first>775</first></pages><author></author><title>American Journal of Community Psychology</title></host><title>Using focus groups to facilitate culturally anchored research</title></json:item><json:item><host><author></author><title>Krueger, R. A. (1994) Focus Groups: a Practical Guide for Applied Research. Sage, London, UK.</title></host></json:item><json:item><author><json:item><name>K. Lawlor</name></json:item><json:item><name>S. Mihaylov</name></json:item><json:item><name>B. Welsh</name></json:item><json:item><name>S. Jarvis</name></json:item><json:item><name>A. F. Colver</name></json:item></author><host><author></author><title>Pediatric Rehabilitation</title></host><title>A qualitative study of the physical, social and attitudinal environments influencing the participation of children with cerebral palsy in northeast England</title></json:item><json:item><author><json:item><name>S. I. Mihaylov</name></json:item><json:item><name>S. N. Jarvis</name></json:item><json:item><name>A. F. Colver</name></json:item><json:item><name>B. Beresford</name></json:item></author><host><volume>46</volume><pages><last>304</last><first>299</first></pages><author></author><title>Developmental Medicine and Child Neurology</title></host><title>Identification and description of environmental factors that influence participation of children with cerebral palsy</title></json:item><json:item><host><author></author><title>Morgan, D. (1997) Focus Groups as Qualitative Research. Sage, London, UK.</title></host></json:item><json:item><host><author></author><title>Mullan, J. T. (2000) Measuring Disability: The Relevance of Focus Group Research. Available at: http://apha.confex.com/apha/128am/techprogram/paper_6188.htm (accessed 3 January 2006).</title></host></json:item><json:item><author><json:item><name>J. H. Rimmer</name></json:item><json:item><name>B. Riley</name></json:item><json:item><name>E. Wand</name></json:item></author><host><volume>26</volume><pages><last>425</last><first>419</first></pages><author></author><title>American Journal of Preventive Medicine</title></host><title>Physical activity participation among persons with disabilities</title></json:item><json:item><host><author></author><title>World Health Organisation (2001) International Classification of Functioning, Disability and Health.World Health Organisation, Geneva, Switzerland.</title></host></json:item></refBibs><genre><json:string>article</json:string></genre><host><volume>32</volume><publisherId><json:string>CCH</json:string></publisherId><pages><total>8</total><last>192</last><first>185</first></pages><issn><json:string>0305-1862</json:string></issn><issue>2</issue><genre><json:string>journal</json:string></genre><language><json:string>unknown</json:string></language><eissn><json:string>1365-2214</json:string></eissn><title>Child: Care, Health and Development</title><doi><json:string>10.1111/(ISSN)1365-2214</json:string></doi></host><categories><wos><json:string>social science</json:string><json:string>psychology, developmental</json:string><json:string>science</json:string><json:string>pediatrics</json:string></wos><scienceMetrix><json:string>health sciences</json:string><json:string>psychology & cognitive sciences</json:string><json:string>developmental & child psychology</json:string></scienceMetrix></categories><publicationDate>2006</publicationDate><copyrightDate>2006</copyrightDate><doi><json:string>10.1111/j.1365-2214.2006.00601.x</json:string></doi><id>F2B114D077096C1FD68592763D0A62426CD92813</id><score>0.13276738</score><fulltext><json:item><extension>pdf</extension><original>true</original><mimetype>application/pdf</mimetype><uri>https://api.istex.fr/document/F2B114D077096C1FD68592763D0A62426CD92813/fulltext/pdf</uri></json:item><json:item><extension>zip</extension><original>false</original><mimetype>application/zip</mimetype><uri>https://api.istex.fr/document/F2B114D077096C1FD68592763D0A62426CD92813/fulltext/zip</uri></json:item><istex:fulltextTEI uri="https://api.istex.fr/document/F2B114D077096C1FD68592763D0A62426CD92813/fulltext/tei"><teiHeader><fileDesc><titleStmt><title level="a" type="main" xml:lang="en">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title></titleStmt><publicationStmt><authority>ISTEX</authority><publisher>Blackwell Science Ltd</publisher><pubPlace>Oxford, UK</pubPlace><availability><p>WILEY</p></availability><date>2006</date></publicationStmt><sourceDesc><biblStruct type="inbook"><analytic><title level="a" type="main" xml:lang="en">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title><author xml:id="author-1"><persName><forename type="first">V.</forename><surname>McManus</surname></persName><email>vmcmanus@enableireland.ie</email><affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland</affiliation></author><author xml:id="author-2"><persName><forename type="first">S. I.</forename><surname>Michelsen</surname></persName><affiliation>National Institute of Public Health, Copenhagen K, Denmark</affiliation></author><author xml:id="author-3"><persName><forename type="first">K.</forename><surname>Parkinson</surname></persName><affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</affiliation></author><author xml:id="author-4"><persName><forename type="first">A.</forename><surname>Colver</surname></persName><affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</affiliation></author><author xml:id="author-5"><persName><forename type="first">E.</forename><surname>Beckung</surname></persName><affiliation>SIIM‐ Pole Exploitation, CHU de Grenoble, Grenoble, France</affiliation></author><author xml:id="author-6"><persName><forename type="first">O.</forename><surname>Pez</surname></persName><affiliation>Azienda Sanitaria Locale, Viale Trento 18 H, Viterbo, Italy, and</affiliation></author><author xml:id="author-7"><persName><forename type="first">B.</forename><surname>Caravale</surname></persName><affiliation>University of Newcastle, Centre for Health Services Research, Newcastle upon Tyne, UK</affiliation></author></analytic><monogr><title level="j">Child: Care, Health and Development</title><idno type="pISSN">0305-1862</idno><idno type="eISSN">1365-2214</idno><idno type="DOI">10.1111/(ISSN)1365-2214</idno><imprint><publisher>Blackwell Science Ltd</publisher><pubPlace>Oxford, UK</pubPlace><date type="published" when="2006-03"></date><biblScope unit="volume">32</biblScope><biblScope unit="issue">2</biblScope><biblScope unit="page" from="185">185</biblScope><biblScope unit="page" to="192">192</biblScope></imprint></monogr><idno type="istex">F2B114D077096C1FD68592763D0A62426CD92813</idno><idno type="DOI">10.1111/j.1365-2214.2006.00601.x</idno><idno type="ArticleID">CCH601</idno></biblStruct></sourceDesc></fileDesc><profileDesc><creation><date>2006</date></creation><langUsage><language ident="en">en</language></langUsage><abstract><p>Background An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</p></abstract><abstract><p>Objective To inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe.</p></abstract><abstract><p>Design A qualitative study using discussion groups.</p></abstract><abstract><p>Participants Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group.</p></abstract><abstract><p>Results The four themes identified in the preliminary work done in England were strongly confirmed across Europe – namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.</p></abstract><abstract><p>Conclusions The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.</p></abstract><textClass xml:lang="en"><keywords scheme="keyword"><list><head>keywords</head><item><term>cerebral palsy</term></item><item><term>children</term></item><item><term>disability</term></item><item><term>discussion groups</term></item><item><term>environment</term></item><item><term>participation</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="2006-03">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><extension>txt</extension><original>false</original><mimetype>text/plain</mimetype><uri>https://api.istex.fr/document/F2B114D077096C1FD68592763D0A62426CD92813/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="Wiley, elements deleted: body"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="yes"</istex:xmlDeclaration><istex:document><component version="2.0" type="serialArticle" xml:lang="en"><header><publicationMeta level="product"><publisherInfo><publisherName>Blackwell Science Ltd</publisherName><publisherLoc>Oxford, UK</publisherLoc></publisherInfo><doi origin="wiley" registered="yes">10.1111/(ISSN)1365-2214</doi><issn type="print">0305-1862</issn><issn type="electronic">1365-2214</issn><idGroup><id type="product" value="CCH"></id><id type="publisherDivision" value="ST"></id></idGroup><titleGroup><title type="main" sort="CHILD CARE HEALTH DEVELOPMENT">Child: Care, Health and Development</title></titleGroup></publicationMeta><publicationMeta level="part" position="03002"><doi origin="wiley">10.1111/cch.2006.32.issue-2</doi><numberingGroup><numbering type="journalVolume" number="32">32</numbering><numbering type="journalIssue" number="2">2</numbering></numberingGroup><coverDate startDate="2006-03">March 2006</coverDate></publicationMeta><publicationMeta level="unit" type="article" position="6" status="forIssue"><doi origin="wiley">10.1111/j.1365-2214.2006.00601.x</doi><idGroup><id type="unit" value="CCH601"></id></idGroup><countGroup><count type="pageTotal" number="8"></count></countGroup><titleGroup><title type="tocHeading1">Original Articles</title></titleGroup><eventGroup><event type="firstOnline" date="2006-01-25"></event><event type="publishedOnlineFinalForm" date="2006-01-25"></event><event type="xmlConverted" agent="Converter:BPG_TO_WML3G version:2.3.2 mode:FullText source:FullText result:FullText" date="2010-03-09"></event><event type="xmlConverted" agent="Converter:WILEY_ML3G_TO_WILEY_ML3GV2 version:3.8.8" date="2014-01-09"></event><event type="xmlConverted" agent="Converter:WML3G_To_WML3G version:4.1.7 mode:FullText,remove_FC" date="2014-10-16"></event></eventGroup><numberingGroup><numbering type="pageFirst" number="185">185</numbering><numbering type="pageLast" number="192">192</numbering></numberingGroup><correspondenceTo>Vicki McManus, Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland
E‐mail: <email>vmcmanus@enableireland.ie</email></correspondenceTo><linkGroup><link type="toTypesetVersion" href="file:CCH.CCH601.pdf"></link></linkGroup></publicationMeta><contentMeta><unparsedEditorialHistory>Accepted for publication 9 November 2005</unparsedEditorialHistory><countGroup><count type="figureTotal" number="0"></count><count type="tableTotal" number="2"></count><count type="formulaTotal" number="0"></count><count type="referenceTotal" number="10"></count><count type="wordTotal" number="3769"></count><count type="linksPubMed" number="0"></count><count type="linksCrossRef" number="0"></count></countGroup><titleGroup><title type="main">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title><title type="shortAuthors">V. McManus <i>et al.</i></title><title type="short">Measuring the environment for children with cerebral palsy</title></titleGroup><creators><creator creatorRole="author" xml:id="cr1" affiliationRef="#a1" corresponding="yes"><personName><givenNames>V.</givenNames><familyName>McManus</familyName></personName></creator><creator creatorRole="author" xml:id="cr2" affiliationRef="#a2"><personName><givenNames>S. I.</givenNames><familyName>Michelsen</familyName></personName></creator><creator creatorRole="author" xml:id="cr3" affiliationRef="#a3"><personName><givenNames>K.</givenNames><familyName>Parkinson</familyName></personName></creator><creator creatorRole="author" xml:id="cr4" affiliationRef="#a3"><personName><givenNames>A.</givenNames><familyName>Colver</familyName></personName></creator><creator creatorRole="author" xml:id="cr5" affiliationRef="#a4"><personName><givenNames>E.</givenNames><familyName>Beckung</familyName></personName></creator><creator creatorRole="author" xml:id="cr6" affiliationRef="#a5"><personName><givenNames>O.</givenNames><familyName>Pez</familyName></personName></creator><creator creatorRole="author" xml:id="cr7" affiliationRef="#a6"><personName><givenNames>B.</givenNames><familyName>Caravale</familyName></personName></creator></creators><affiliationGroup><affiliation xml:id="a1" countryCode="IE"><unparsedAffiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland</unparsedAffiliation></affiliation><affiliation xml:id="a2" countryCode="DK"><unparsedAffiliation>National Institute of Public Health, Copenhagen K, Denmark</unparsedAffiliation></affiliation><affiliation xml:id="a3" countryCode="SE"><unparsedAffiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</unparsedAffiliation></affiliation><affiliation xml:id="a4" countryCode="FR"><unparsedAffiliation>SIIM‐ Pole Exploitation, CHU de Grenoble, Grenoble, France</unparsedAffiliation></affiliation><affiliation xml:id="a5" countryCode="IT"><unparsedAffiliation>Azienda Sanitaria Locale, Viale Trento 18 H, Viterbo, Italy, and</unparsedAffiliation></affiliation><affiliation xml:id="a6" countryCode="GB"><unparsedAffiliation>University of Newcastle, Centre for Health Services Research, Newcastle upon Tyne, UK</unparsedAffiliation></affiliation></affiliationGroup><keywordGroup xml:lang="en"><keyword xml:id="k1">cerebral palsy</keyword><keyword xml:id="k2">children</keyword><keyword xml:id="k3">disability</keyword><keyword xml:id="k4">discussion groups</keyword><keyword xml:id="k5">environment</keyword><keyword xml:id="k6">participation </keyword></keywordGroup><abstractGroup><abstract type="main" xml:lang="en"><title type="main">Abstract</title><p><b>Background </b> An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</p><p><b>Objective </b> To inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe.</p><p><b>Design </b> A qualitative study using discussion groups.</p><p><b>Participants </b> Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group.</p><p><b>Results </b> The four themes identified in the preliminary work done in England were strongly confirmed across Europe – namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.</p><p><b>Conclusions </b> The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.</p></abstract></abstractGroup></contentMeta><noteGroup><note xml:id="fn1" numbered="no"><p>On behalf of the SPARCLE Collaborative Group: Allan Colver and Kathryn Parkinson, Newcastle University, Newcastle, UK; Eva Beckung, Göteborg University, Göteborg, Sweden; Jackie Parkes, Queens University, Belfast, UK; Jerome Fauconnier, Université Joseph Fournier, Grenoble, France; Vicki McManus, Enable Ireland, Cork, Ireland; Susan Michelsen, NIPH, Copenhagen, Denmark; Giorgio Schirripa, ASL, Viterbo, Italy; Catherine Arnaud, INSERM, Toulouse, France; Ute Thyen, Children's Hospital, Lübeck, Germany.</p></note></noteGroup></header></component></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title></titleInfo><titleInfo type="abbreviated" lang="en"><title>Measuring the environment for children with cerebral palsy</title></titleInfo><titleInfo type="alternative" contentType="CDATA" lang="en"><title>Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment</title></titleInfo><name type="personal"><namePart type="given">V.</namePart><namePart type="family">McManus</namePart><affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland</affiliation><affiliation>E-mail: vmcmanus@enableireland.ie</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">S. I.</namePart><namePart type="family">Michelsen</namePart><affiliation>National Institute of Public Health, Copenhagen K, Denmark</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">K.</namePart><namePart type="family">Parkinson</namePart><affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">A.</namePart><namePart type="family">Colver</namePart><affiliation>The Queen Silvia Children's Hospital, Göteborg, Sweden</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">E.</namePart><namePart type="family">Beckung</namePart><affiliation>SIIM‐ Pole Exploitation, CHU de Grenoble, Grenoble, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">O.</namePart><namePart type="family">Pez</namePart><affiliation>Azienda Sanitaria Locale, Viale Trento 18 H, Viterbo, Italy, and</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">B.</namePart><namePart type="family">Caravale</namePart><affiliation>University of Newcastle, Centre for Health Services Research, Newcastle upon Tyne, UK</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="article" displayLabel="article"></genre><originInfo><publisher>Blackwell Science Ltd</publisher><place><placeTerm type="text">Oxford, UK</placeTerm></place><dateIssued encoding="w3cdtf">2006-03</dateIssued><edition>Accepted for publication 9 November 2005</edition><copyrightDate encoding="w3cdtf">2006</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType><extent unit="tables">2</extent><extent unit="references">10</extent><extent unit="words">3769</extent></physicalDescription><abstract>Background An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</abstract><abstract>Objective To inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe.</abstract><abstract>Design A qualitative study using discussion groups.</abstract><abstract>Participants Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group.</abstract><abstract>Results The four themes identified in the preliminary work done in England were strongly confirmed across Europe – namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.</abstract><abstract>Conclusions The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.</abstract><subject lang="en"><genre>keywords</genre><topic>cerebral palsy</topic><topic>children</topic><topic>disability</topic><topic>discussion groups</topic><topic>environment</topic><topic>participation</topic></subject><relatedItem type="host"><titleInfo><title>Child: Care, Health and Development</title></titleInfo><genre type="journal">journal</genre><identifier type="ISSN">0305-1862</identifier><identifier type="eISSN">1365-2214</identifier><identifier type="DOI">10.1111/(ISSN)1365-2214</identifier><identifier type="PublisherID">CCH</identifier><part><date>2006</date><detail type="volume"><caption>vol.</caption><number>32</number></detail><detail type="issue"><caption>no.</caption><number>2</number></detail><extent unit="pages"><start>185</start><end>192</end><total>8</total></extent></part></relatedItem><identifier type="istex">F2B114D077096C1FD68592763D0A62426CD92813</identifier><identifier type="DOI">10.1111/j.1365-2214.2006.00601.x</identifier><identifier type="ArticleID">CCH601</identifier><recordInfo><recordContentSource>WILEY</recordContentSource><recordOrigin>Blackwell Science Ltd</recordOrigin></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Sante/explor/ParkinsonFranceV1/Data/Istex/Corpus
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000910 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Istex/Corpus/biblio.hfd -nk 000910 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Sante
|area= ParkinsonFranceV1
|flux= Istex
|étape= Corpus
|type= RBID
|clé= ISTEX:F2B114D077096C1FD68592763D0A62426CD92813
|texte= Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment
}}
| This area was generated with Dilib version V0.6.29. |  |