Movement Disorders (revue)

Attention, ce site est en cours de développement !
Attention, site généré par des moyens informatiques à partir de corpus bruts.
Les informations ne sont donc pas validées.

Characteristics of individuals with Huntington disease in long‐term care

Identifieur interne : 005681 ( Main/Exploration ); précédent : 005680; suivant : 005682

Characteristics of individuals with Huntington disease in long‐term care

Auteurs : Nance ; G. Sanders [États-Unis]

Source :

RBID : ISTEX:313B714A30F24B9F0524566BDE3DA2F0A9D7BC69

English descriptors

Abstract

This is a retrospective review of 97 Huntington disease (HD) patients living in long‐term care facilities in the Twin Cities. The purpose of the study was to describe the demographic features, patterns of behavior, weight change, nursing issues medication use, and hospitalization in this population. On admission to the nursing home, the “average” HD patient was of either sex, 45 years old, previously employed, a high school graduate, and not married. One third had severe behavior problems. Half gained and half lost weight; weight loss was not a predictor of death. Almost all used central nervous system‐active drugs, most commonly neuroleptics. Eighty‐four percent were ambulatory on admission, but 88% of those who died were nonambulatory at the time of death. We concluded that (a) HD patients are demographically different from other residents of long‐term care facilities, (b) weight gain can occur in some late‐stage patients, (c) negative behavior is a significant problem but is restricted to a subset of patients, and (d) adapting creatively to increasing multifaceted disability is the greatest challenge to the staff in facilities caring for HD patients.

Url:
DOI: 10.1002/mds.870110509


Affiliations:


Links toward previous steps (curation, corpus...)


Le document en format XML

<record>
<TEI wicri:istexFullTextTei="biblStruct">
<teiHeader>
<fileDesc>
<titleStmt>
<title xml:lang="en">Characteristics of individuals with Huntington disease in long‐term care</title>
<author>
<name sortKey="Nance" sort="Nance" uniqKey="Nance" last="Nance">Nance</name>
</author>
<author>
<name sortKey="Sanders, G" sort="Sanders, G" uniqKey="Sanders G" first="G." last="Sanders">G. Sanders</name>
</author>
</titleStmt>
<publicationStmt>
<idno type="wicri:source">ISTEX</idno>
<idno type="RBID">ISTEX:313B714A30F24B9F0524566BDE3DA2F0A9D7BC69</idno>
<date when="1996" year="1996">1996</date>
<idno type="doi">10.1002/mds.870110509</idno>
<idno type="url">https://api.istex.fr/document/313B714A30F24B9F0524566BDE3DA2F0A9D7BC69/fulltext/pdf</idno>
<idno type="wicri:Area/Istex/Corpus">001873</idno>
<idno type="wicri:Area/Istex/Curation">001873</idno>
<idno type="wicri:Area/Istex/Checkpoint">003B83</idno>
<idno type="wicri:doubleKey">0885-3185:1996:Nance:characteristics:of:individuals</idno>
<idno type="wicri:source">PubMed</idno>
<idno type="RBID">pubmed:8866495</idno>
<idno type="wicri:Area/PubMed/Corpus">004784</idno>
<idno type="wicri:Area/PubMed/Curation">004784</idno>
<idno type="wicri:Area/PubMed/Checkpoint">004854</idno>
<idno type="wicri:Area/Ncbi/Merge">004B98</idno>
<idno type="wicri:Area/Ncbi/Curation">004B98</idno>
<idno type="wicri:Area/Ncbi/Checkpoint">004B98</idno>
<idno type="wicri:doubleKey">0885-3185:1996:Nance M:characteristics:of:individuals</idno>
<idno type="wicri:Area/Main/Merge">008787</idno>
<idno type="wicri:Area/Main/Curation">005681</idno>
<idno type="wicri:Area/Main/Exploration">005681</idno>
</publicationStmt>
<sourceDesc>
<biblStruct>
<analytic>
<title level="a" type="main" xml:lang="en">Characteristics of individuals with Huntington disease in long‐term care</title>
<author>
<name sortKey="Nance" sort="Nance" uniqKey="Nance" last="Nance">Nance</name>
<affiliation>
<wicri:noCountry code="subField">Minneapolis</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Sanders, G" sort="Sanders, G" uniqKey="Sanders G" first="G." last="Sanders">G. Sanders</name>
<affiliation wicri:level="2">
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Twin Rivers Care Center, Anoka, Minnesota</wicri:regionArea>
<placeName>
<region type="state">Minnesota</region>
</placeName>
</affiliation>
</author>
</analytic>
<monogr></monogr>
<series>
<title level="j">Movement Disorders</title>
<title level="j" type="sub">Official Journal of the Movement Disorder Society</title>
<title level="j" type="abbrev">Mov. Disord.</title>
<idno type="ISSN">0885-3185</idno>
<idno type="eISSN">1531-8257</idno>
<imprint>
<publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher>
<pubPlace>Hoboken</pubPlace>
<date type="published" when="1996-09">1996-09</date>
<biblScope unit="vol">11</biblScope>
<biblScope unit="issue">5</biblScope>
<biblScope unit="page" from="542">542</biblScope>
<biblScope unit="page" to="548">548</biblScope>
</imprint>
<idno type="ISSN">0885-3185</idno>
</series>
<idno type="istex">313B714A30F24B9F0524566BDE3DA2F0A9D7BC69</idno>
<idno type="DOI">10.1002/mds.870110509</idno>
<idno type="ArticleID">MDS870110509</idno>
</biblStruct>
</sourceDesc>
<seriesStmt>
<idno type="ISSN">0885-3185</idno>
</seriesStmt>
</fileDesc>
<profileDesc>
<textClass>
<keywords scheme="KwdEn" xml:lang="en">
<term>Adult</term>
<term>Aged</term>
<term>Body Weight</term>
<term>Dementia</term>
<term>Female</term>
<term>Humans</term>
<term>Huntington Disease (diagnosis)</term>
<term>Huntington disease</term>
<term>Institutionalization</term>
<term>Long-Term Care</term>
<term>Long‐term care</term>
<term>Male</term>
<term>Mental Disorders</term>
<term>Middle Aged</term>
<term>Nutritional Status</term>
<term>Retrospective Studies</term>
<term>Sex Factors</term>
<term>Weight Loss</term>
</keywords>
<keywords scheme="MESH" qualifier="diagnosis" xml:lang="en">
<term>Huntington Disease</term>
</keywords>
<keywords scheme="MESH" xml:lang="en">
<term>Adult</term>
<term>Aged</term>
<term>Body Weight</term>
<term>Female</term>
<term>Humans</term>
<term>Institutionalization</term>
<term>Long-Term Care</term>
<term>Male</term>
<term>Mental Disorders</term>
<term>Middle Aged</term>
<term>Nutritional Status</term>
<term>Retrospective Studies</term>
<term>Sex Factors</term>
<term>Weight Loss</term>
</keywords>
</textClass>
<langUsage>
<language ident="en">en</language>
</langUsage>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">This is a retrospective review of 97 Huntington disease (HD) patients living in long‐term care facilities in the Twin Cities. The purpose of the study was to describe the demographic features, patterns of behavior, weight change, nursing issues medication use, and hospitalization in this population. On admission to the nursing home, the “average” HD patient was of either sex, 45 years old, previously employed, a high school graduate, and not married. One third had severe behavior problems. Half gained and half lost weight; weight loss was not a predictor of death. Almost all used central nervous system‐active drugs, most commonly neuroleptics. Eighty‐four percent were ambulatory on admission, but 88% of those who died were nonambulatory at the time of death. We concluded that (a) HD patients are demographically different from other residents of long‐term care facilities, (b) weight gain can occur in some late‐stage patients, (c) negative behavior is a significant problem but is restricted to a subset of patients, and (d) adapting creatively to increasing multifaceted disability is the greatest challenge to the staff in facilities caring for HD patients.</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>États-Unis</li>
</country>
<region>
<li>Minnesota</li>
</region>
</list>
<tree>
<noCountry>
<name sortKey="Nance" sort="Nance" uniqKey="Nance" last="Nance">Nance</name>
</noCountry>
<country name="États-Unis">
<region name="Minnesota">
<name sortKey="Sanders, G" sort="Sanders, G" uniqKey="Sanders G" first="G." last="Sanders">G. Sanders</name>
</region>
</country>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Wicri/Santé/explor/MovDisordV3/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 005681 | SxmlIndent | more

Ou

HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 005681 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Wicri/Santé
   |area=    MovDisordV3
   |flux=    Main
   |étape=   Exploration
   |type=    RBID
   |clé=     ISTEX:313B714A30F24B9F0524566BDE3DA2F0A9D7BC69
   |texte=   Characteristics of individuals with Huntington disease in long‐term care
}}

Wicri

This area was generated with Dilib version V0.6.23.
Data generation: Sun Jul 3 12:29:32 2016. Site generation: Wed Feb 14 10:52:30 2024