Characteristics of individuals with Huntington disease in long‐term care
Identifieur interne : 001873 ( Istex/Corpus ); précédent : 001872; suivant : 001874Characteristics of individuals with Huntington disease in long‐term care
Auteurs : Nance ; G. SandersSource :
- Movement Disorders [ 0885-3185 ] ; 1996-09.
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- KwdEn :
Abstract
This is a retrospective review of 97 Huntington disease (HD) patients living in long‐term care facilities in the Twin Cities. The purpose of the study was to describe the demographic features, patterns of behavior, weight change, nursing issues medication use, and hospitalization in this population. On admission to the nursing home, the “average” HD patient was of either sex, 45 years old, previously employed, a high school graduate, and not married. One third had severe behavior problems. Half gained and half lost weight; weight loss was not a predictor of death. Almost all used central nervous system‐active drugs, most commonly neuroleptics. Eighty‐four percent were ambulatory on admission, but 88% of those who died were nonambulatory at the time of death. We concluded that (a) HD patients are demographically different from other residents of long‐term care facilities, (b) weight gain can occur in some late‐stage patients, (c) negative behavior is a significant problem but is restricted to a subset of patients, and (d) adapting creatively to increasing multifaceted disability is the greatest challenge to the staff in facilities caring for HD patients.
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DOI: 10.1002/mds.870110509
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ISTEX:313B714A30F24B9F0524566BDE3DA2F0A9D7BC69Le document en format XML
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Sanders</name><affiliation><mods:affiliation>Twin Rivers Care Center, Anoka, Minnesota, U.S.A.</mods:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:313B714A30F24B9F0524566BDE3DA2F0A9D7BC69</idno><date when="1996" year="1996">1996</date><idno type="doi">10.1002/mds.870110509</idno><idno type="url">https://api.istex.fr/document/313B714A30F24B9F0524566BDE3DA2F0A9D7BC69/fulltext/pdf</idno><idno type="wicri:Area/Istex/Corpus">001873</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">Characteristics of individuals with Huntington disease in long‐term care</title><author><name sortKey="Nance" sort="Nance" uniqKey="Nance" last="Nance">Nance</name><affiliation><mods:affiliation>Department of Neurology, Hennepin County Medical Center and Minneapolis VA Medical Center, Minneapolis</mods:affiliation></affiliation></author><author><name sortKey="Sanders, G" sort="Sanders, G" uniqKey="Sanders G" first="G." last="Sanders">G. 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The purpose of the study was to describe the demographic features, patterns of behavior, weight change, nursing issues medication use, and hospitalization in this population. On admission to the nursing home, the “average” HD patient was of either sex, 45 years old, previously employed, a high school graduate, and not married. One third had severe behavior problems. Half gained and half lost weight; weight loss was not a predictor of death. Almost all used central nervous system‐active drugs, most commonly neuroleptics. Eighty‐four percent were ambulatory on admission, but 88% of those who died were nonambulatory at the time of death. We concluded that (a) HD patients are demographically different from other residents of long‐term care facilities, (b) weight gain can occur in some late‐stage patients, (c) negative behavior is a significant problem but is restricted to a subset of patients, and (d) adapting creatively to increasing multifaceted disability is the greatest challenge to the staff in facilities caring for HD patients.</div></front></TEI><istex><corpusName>wiley</corpusName><author><json:item><name>Dr. Nance</name><affiliations><json:string>Department of Neurology, Hennepin County Medical Center and Minneapolis VA Medical Center, Minneapolis</json:string></affiliations></json:item><json:item><name>G. 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Half gained and half lost weight; weight loss was not a predictor of death. Almost all used central nervous system‐active drugs, most commonly neuroleptics. Eighty‐four percent were ambulatory on admission, but 88% of those who died were nonambulatory at the time of death. We concluded that (a) HD patients are demographically different from other residents of long‐term care facilities, (b) weight gain can occur in some late‐stage patients, (c) negative behavior is a significant problem but is restricted to a subset of patients, and (d) adapting creatively to increasing multifaceted disability is the greatest challenge to the staff in facilities caring for HD patients.</abstract><qualityIndicators><score>5.948</score><pdfVersion>1.3</pdfVersion><pdfPageSize>576 x 792 pts</pdfPageSize><refBibsNative>true</refBibsNative><abstractCharCount>1171</abstractCharCount><pdfWordCount>3776</pdfWordCount><pdfCharCount>23666</pdfCharCount><pdfPageCount>7</pdfPageCount><abstractWordCount>181</abstractWordCount></qualityIndicators><title>Characteristics of individuals with Huntington disease in long‐term care</title><genre><json:string>Serial article</json:string></genre><host><volume>11</volume><pages><total>7</total><last>548</last><first>542</first></pages><issn><json:string>0885-3185</json:string></issn><issue>5</issue><subject><json:item><value>Article</value></json:item></subject><genre></genre><language><json:string>unknown</json:string></language><title>Movement Disorders</title><doi><json:string>10.1002/(ISSN)1531-8257</json:string></doi></host><publicationDate>1996</publicationDate><copyrightDate>1996</copyrightDate><doi><json:string>10.1002/mds.870110509</json:string></doi><id>313B714A30F24B9F0524566BDE3DA2F0A9D7BC69</id><fulltext><json:item><original>true</original><mimetype>application/pdf</mimetype><extension>pdf</extension><uri>https://api.istex.fr/document/313B714A30F24B9F0524566BDE3DA2F0A9D7BC69/fulltext/pdf</uri></json:item><json:item><original>false</original><mimetype>application/zip</mimetype><extension>zip</extension><uri>https://api.istex.fr/document/313B714A30F24B9F0524566BDE3DA2F0A9D7BC69/fulltext/zip</uri></json:item><istex:fulltextTEI uri="https://api.istex.fr/document/313B714A30F24B9F0524566BDE3DA2F0A9D7BC69/fulltext/tei"><teiHeader type="text"><fileDesc><titleStmt><title level="a" type="main" xml:lang="en">Characteristics of individuals with Huntington disease in long‐term care</title></titleStmt><publicationStmt><authority>ISTEX</authority><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><pubPlace>Hoboken</pubPlace><availability><p>Wiley Subscription Services, Inc., A Wiley Company</p></availability><date>1996</date></publicationStmt><sourceDesc><biblStruct type="inbook"><analytic><title level="a" type="main" xml:lang="en">Characteristics of individuals with Huntington disease in long‐term care</title><author><persName><surname>Nance</surname><roleName type="degree">Dr.</roleName></persName><note type="correspondence"><p>Correspondence: Department of Neurology‐127, Minneapolis VA Medical Center, 1 Veterans Drive, Minneapolis, MN 55417, U.S.A.</p></note><affiliation>Department of Neurology, Hennepin County Medical Center and Minneapolis VA Medical Center, Minneapolis</affiliation></author><author><persName><forename type="first">G.</forename><surname>Sanders</surname></persName><affiliation>Twin Rivers Care Center, Anoka, Minnesota, U.S.A.</affiliation></author></analytic><monogr><title level="j">Movement Disorders</title><title level="j" type="sub">Official Journal of the Movement Disorder Society</title><title level="j" type="abbrev">Mov. 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