How Breast Cancer Patients Want to Search for and Retrieve Information From Stories of Other Patients on the Internet: an Online Randomized Controlled Experiment
Identifieur interne : 003394 ( Pmc/Checkpoint ); précédent : 003393; suivant : 003395How Breast Cancer Patients Want to Search for and Retrieve Information From Stories of Other Patients on the Internet: an Online Randomized Controlled Experiment
Auteurs :Source :
- Journal of Medical Internet Research [ 1438-8871 ] ; 2010.
Abstract
Other patients’ stories on the Internet can give patients information, support, reassurance, and practical advice.
We examined which search facility for online stories resulted in patients’ satisfaction and search success.
This study was a randomized controlled experiment with a 2x2 factorial design conducted online. We facilitated access to 170 stories of breast cancer patients in four ways based on two factors: (1) no versus yes search by story topic, and (2) no versus yes search by writer profile. Dutch speaking women with breast cancer were recruited. Women who gave informed consent were randomly assigned to one of four groups. After searching for stories, women were offered a questionnaire relating to satisfaction with the search facility, the stories retrieved, and impact of the stories on coping with breast cancer. Of 353 enrolled women, 182 (51.6%) completed the questionnaire: control group (n = 37), story topics group (n = 49), writer profile group (n = 51), and combination group (n = 45).
Questionnaire completers were evenly distributed over the four groups (χ23 = 3.7,
Having access to the story topics search facility clearly had the most positive effect on patient satisfaction and search success.
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DOI: 10.2196/jmir.1215
PubMed: 20215101
PubMed Central: 2855205
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">How Breast Cancer Patients Want to Search for and Retrieve Information From Stories of Other Patients on the Internet: an Online Randomized Controlled Experiment</title></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">20215101</idno><idno type="pmc">2855205</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2855205</idno><idno type="RBID">PMC:2855205</idno><idno type="doi">10.2196/jmir.1215</idno><date when="2010">2010</date><idno type="wicri:Area/Pmc/Corpus">004097</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">004097</idno><idno type="wicri:Area/Pmc/Curation">004096</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">004096</idno><idno type="wicri:Area/Pmc/Checkpoint">003394</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">003394</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">How Breast Cancer Patients Want to Search for and Retrieve Information From Stories of Other Patients on the Internet: an Online Randomized Controlled Experiment</title></analytic><series><title level="j">Journal of Medical Internet Research</title><idno type="eISSN">1438-8871</idno><imprint><date when="2010">2010</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec sec-type="background"><title>Background</title><p>Other patients’ stories on the Internet can give patients information, support, reassurance, and practical advice.</p></sec><sec sec-type="objectives"><title>Objectives</title><p> We examined which search facility for online stories resulted in patients’ satisfaction and search success.</p></sec><sec sec-type="methods"><title>Methods</title><p> This study was a randomized controlled experiment with a 2x2 factorial design conducted online. We facilitated access to 170 stories of breast cancer patients in four ways based on two factors: (1) no versus yes search by story topic, and (2) no versus yes search by writer profile. Dutch speaking women with breast cancer were recruited. Women who gave informed consent were randomly assigned to one of four groups. After searching for stories, women were offered a questionnaire relating to satisfaction with the search facility, the stories retrieved, and impact of the stories on coping with breast cancer. Of 353 enrolled women, 182 (51.6%) completed the questionnaire: control group (n = 37), story topics group (n = 49), writer profile group (n = 51), and combination group (n = 45).</p></sec><sec sec-type="results"><title>Results</title><p> Questionnaire completers were evenly distributed over the four groups (χ<sup>2</sup><sub>3</sub> = 3.7, <italic>P</italic> = .30). Women who had access to the story topics search facility (yes vs no): were more positive about (mean scores 4.0 vs 3.6, <italic>P</italic> = .001) and more satisfied with the search facility (mean scores 7.3 vs 6.3, <italic>P </italic>< .001); were more positive about the number of search options (mean scores 2.3 vs 2.1, <italic>P</italic> = .04); were better enabled to find desired information (mean scores 3.3 vs 2.8, <italic>P</italic> = .001); were more likely to recommend the search facility to others or intend to use it themselves (mean scores 4.1 vs 3.5, <italic>P</italic> < .001); were more positive about how retrieved stories were displayed (mean scores 3.6 vs 3.2, <italic>P</italic> = .001); retrieved stories that better covered their information needs (mean scores 3.0 vs 2.6, <italic>P</italic> = .02); were more satisfied with the stories retrieved (mean scores 7.1 vs 6.4, <italic>P</italic> = .002); and were more likely to report an impact of the stories on coping with breast cancer (mean scores 3.2 vs 2.9, <italic>P</italic> =. 02). Three main effects were associated with use of the writer profile search (yes vs no): being more positive about (mean scores 3.9 vs 3.6, <italic>P</italic> = .005) and more satisfied with the search facility (mean scores 7.1 vs 6.5, <italic>P</italic> =. 01), and being more positive about how retrieved stories were displayed (mean scores 3.8 vs 2.9, <italic>P</italic> < .001). For satisfaction with the search facility, an interaction effect was found (<italic>P</italic> = .03): at least one of the two search facilities was needed for satisfaction.</p></sec><sec sec-type="conclusions"><title>Conclusions</title><p>Having access to the story topics search facility clearly had the most positive effect on patient satisfaction and search success.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Rozmovits, Linda" uniqKey="Rozmovits L">Linda Rozmovits</name></author><author><name sortKey="Ziebland, Sue" uniqKey="Ziebland S">Sue Ziebland</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Ziebland, Sue" uniqKey="Ziebland S">Sue Ziebland</name></author><author><name sortKey="Chapple, Alison" uniqKey="Chapple A">Alison Chapple</name></author><author><name sortKey="Dumelow, Carol" uniqKey="Dumelow C">Carol Dumelow</name></author><author><name sortKey="Evans, Julie" uniqKey="Evans J">Julie Evans</name></author><author><name sortKey="Prinjha, Suman" uniqKey="Prinjha S">Suman Prinjha</name></author><author><name sortKey="Rozmovits, Linda" uniqKey="Rozmovits L">Linda Rozmovits</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mctavish, F M" uniqKey="Mctavish F">F M McTavish</name></author><author><name sortKey="Gustafson, D H" uniqKey="Gustafson D">D H Gustafson</name></author><author><name sortKey="Owens, B H" uniqKey="Owens B">B H Owens</name></author><author><name sortKey="Hawkins, R P" uniqKey="Hawkins R">R P Hawkins</name></author><author><name sortKey="Pingree, S" uniqKey="Pingree S">S Pingree</name></author><author><name sortKey="Wise, M" uniqKey="Wise M">M Wise</name></author><author><name sortKey="Taylor, J O" uniqKey="Taylor J">J O Taylor</name></author><author><name sortKey="Apantaku, F M" uniqKey="Apantaku F">F M Apantaku</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Herxheimer, A" uniqKey="Herxheimer A">A Herxheimer</name></author><author><name sortKey="Mcpherson, A" uniqKey="Mcpherson A">A McPherson</name></author><author><name sortKey="Miller, R" uniqKey="Miller R">R Miller</name></author><author><name sortKey="Shepperd, S" uniqKey="Shepperd S">S Shepperd</name></author><author><name sortKey="Yaphe, J" uniqKey="Yaphe J">J Yaphe</name></author><author><name sortKey="Ziebland, S" uniqKey="Ziebland S">S Ziebland</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Pitts, Victoria" uniqKey="Pitts V">Victoria Pitts</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Hardey, M" uniqKey="Hardey M">M Hardey</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mclellan, Mf" uniqKey="Mclellan M">MF McLellan</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Wise, Meg" uniqKey="Wise M">Meg Wise</name></author><author><name sortKey="Han, Jeong Yeob" uniqKey="Han J">Jeong Yeob Han</name></author><author><name sortKey="Shaw, Bret" uniqKey="Shaw B">Bret Shaw</name></author><author><name sortKey="Mctavish, Fiona" uniqKey="Mctavish F">Fiona McTavish</name></author><author><name sortKey="Gustafson, David H" uniqKey="Gustafson D">David H Gustafson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Overberg, R I" uniqKey="Overberg R">R I Overberg</name></author><author><name sortKey="Alpay, L L" uniqKey="Alpay L">L L Alpay</name></author><author><name sortKey="Verhoef, J" uniqKey="Verhoef J">J Verhoef</name></author><author><name sortKey="Zwetsloot Schonk, J H M" uniqKey="Zwetsloot Schonk J">J H M Zwetsloot-Schonk</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Williamson, Kirsty" uniqKey="Williamson K">Kirsty Williamson</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Eysenbach, Gunther" uniqKey="Eysenbach G">Gunther Eysenbach</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Spink, A" uniqKey="Spink A">A Spink</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Zeng, Qing T" uniqKey="Zeng Q">Qing T Zeng</name></author><author><name sortKey="Kogan, Sandra" uniqKey="Kogan S">Sandra Kogan</name></author><author><name sortKey="Plovnick, Robert M" uniqKey="Plovnick R">Robert M Plovnick</name></author><author><name sortKey="Crowell, Jonathan" uniqKey="Crowell J">Jonathan Crowell</name></author><author><name sortKey="Lacroix, Eve Marie" uniqKey="Lacroix E">Eve-Marie Lacroix</name></author><author><name sortKey="Greenes, Robert A" uniqKey="Greenes R">Robert A Greenes</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Folkman, S" uniqKey="Folkman S">S Folkman</name></author><author><name sortKey="Lazarus, R S" uniqKey="Lazarus R">R S Lazarus</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Folkman, S" uniqKey="Folkman S">S Folkman</name></author><author><name sortKey="Lazarus, R S" uniqKey="Lazarus R">R S Lazarus</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mccrae, Rr" uniqKey="Mccrae R">RR McCrae</name></author><author><name sortKey="Costa, Pt" uniqKey="Costa P">PT Costa</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Carver, C S" uniqKey="Carver C">C S Carver</name></author><author><name sortKey="Scheier, M F" uniqKey="Scheier M">M F Scheier</name></author><author><name sortKey="Weintraub, J K" uniqKey="Weintraub J">J K 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Kamel Boulos</name></author><author><name sortKey="Wheeler, S" uniqKey="Wheeler S">S Wheeler</name></author></analytic></biblStruct></listBibl></div1></back></TEI><pmc article-type="research-article"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">J Med Internet Res</journal-id><journal-id journal-id-type="publisher-id">JMIR</journal-id><journal-title-group><journal-title>Journal of Medical Internet Research</journal-title></journal-title-group><issn pub-type="epub">1438-8871</issn><publisher><publisher-name>Gunther Eysenbach</publisher-name><publisher-loc>Centre for Global eHealth Innovation, Toronto, Canada</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">20215101</article-id><article-id pub-id-type="pmc">2855205</article-id><article-id pub-id-type="publisher-id">v12i1e7</article-id><article-id pub-id-type="doi">10.2196/jmir.1215</article-id><article-categories><subj-group subj-group-type="heading"><subject>Original Paper</subject></subj-group></article-categories><title-group><article-title>How Breast Cancer Patients Want to Search for and Retrieve Information From Stories of Other Patients on the Internet: an Online Randomized Controlled Experiment</article-title></title-group><contrib-group><contrib contrib-type="editor"><name><surname>Eysenbach</surname><given-names>Gunther</given-names></name></contrib></contrib-group><contrib-group><contrib contrib-type="reviewer"><name><surname>Bender</surname><given-names>Jackie</given-names></name></contrib><contrib contrib-type="reviewer"><name><surname>Fogel</surname><given-names>Joshua</given-names></name></contrib></contrib-group><contrib-group><contrib id="contrib1" contrib-type="author" corresp="yes"><name><surname>Overberg</surname><given-names>Regina</given-names></name><degrees>MSc</degrees><xref ref-type="aff" rid="aff1">1</xref><address><institution>Clinical Informatics Group</institution><institution>Leiden University Medical Center</institution><addr-line>Postal Zone S5-P, PO Box 9600, 2300 RC Leiden</addr-line><country>The Netherlands</country><phone>+31 71 526 9700</phone><fax>+31 71 526 8280</fax><email>r.i.overberg@lumc.nl</email></address></contrib><contrib id="contrib2" contrib-type="author"><name><surname>Otten</surname><given-names>Wilma</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff2">2</xref></contrib><contrib id="contrib3" contrib-type="author"><name><surname>de Man</surname><given-names>Andries</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff1">1</xref></contrib><contrib id="contrib4" contrib-type="author"><name><surname>Toussaint</surname><given-names>Pieter</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff3">3</xref></contrib><contrib id="contrib5" contrib-type="author"><name><surname>Westenbrink</surname><given-names>Judith</given-names></name><xref ref-type="aff" rid="aff4">4</xref></contrib><contrib id="contrib6" contrib-type="author"><name><surname>Zwetsloot-Schonk</surname><given-names>Bertie</given-names></name><degrees>MD</degrees><degrees>PhD</degrees><xref ref-type="aff" rid="aff1">1</xref></contrib></contrib-group><aff id="aff4" rid="aff4"><sup>4</sup><addr-line>The Amazones Foundation</addr-line><addr-line>Haarlem</addr-line><country>The Netherlands</country></aff><aff id="aff3" rid="aff3"><sup>3</sup><institution>Department of Computer and Information Science</institution><institution>Norwegian University of Science and Technology</institution><addr-line>Trondheim</addr-line><country>Norway</country></aff><aff id="aff2" rid="aff2"><sup>2</sup><addr-line>Medical Decision Making</addr-line><institution>Leiden University Medical Center</institution><addr-line>Leiden</addr-line><country>The Netherlands</country></aff><aff id="aff1" rid="aff1"><sup>1</sup><addr-line>Clinical Informatics Group</addr-line><institution>Leiden University Medical Center</institution><addr-line>Leiden</addr-line><country>The Netherlands</country></aff><pub-date pub-type="collection"><season>Jan-Mar</season><year>2010</year></pub-date><pub-date pub-type="epub"><day>9</day><month>3</month><year>2010</year></pub-date><volume>12</volume><issue>1</issue><elocation-id>e7</elocation-id><history><date date-type="received"><day>02</day><month>2</month><year>2009</year></date><date date-type="rev-request"><day>27</day><month>2</month><year>2009</year></date><date date-type="rev-recd"><day>31</day><month>12</month><year>2009</year></date><date date-type="accepted"><day>20</day><month>1</month><year>2010</year></date></history><permissions><copyright-statement>© Regina Overberg, Wilma Otten, Andries de Man, Pieter Toussaint, Judith Westenbrink, Bertie Zwetsloot-Schonk. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 09.03.2010.
</copyright-statement><copyright-year>2010</copyright-year><license license-type="open-access" xlink:href="http://creativecommons.org/licenses/by/2.0/"><license-p><pmc-comment>CREATIVE COMMONS</pmc-comment>This is an open-access article distributed under the terms of the
Creative Commons Attribution License (<ext-link ext-link-type="uri" xlink:href="http://creativecommons.org/licenses/by/2.0/">http://creativecommons.org/licenses/by/2.0/</ext-link>), which permits unrestricted use,
distribution, and reproduction in any medium, provided the original
work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on <ext-link ext-link-type="uri" xlink:href="http://www.jmir.org/,">http://www.jmir.org/,</ext-link> as well as this copyright and license information must be included.</license-p></license></permissions><self-uri xlink:type="simple" xlink:href="http://www.jmir.org/2010/1/e7/"></self-uri><abstract><sec sec-type="background"><title>Background</title><p>Other patients’ stories on the Internet can give patients information, support, reassurance, and practical advice.</p></sec><sec sec-type="objectives"><title>Objectives</title><p> We examined which search facility for online stories resulted in patients’ satisfaction and search success.</p></sec><sec sec-type="methods"><title>Methods</title><p> This study was a randomized controlled experiment with a 2x2 factorial design conducted online. We facilitated access to 170 stories of breast cancer patients in four ways based on two factors: (1) no versus yes search by story topic, and (2) no versus yes search by writer profile. Dutch speaking women with breast cancer were recruited. Women who gave informed consent were randomly assigned to one of four groups. After searching for stories, women were offered a questionnaire relating to satisfaction with the search facility, the stories retrieved, and impact of the stories on coping with breast cancer. Of 353 enrolled women, 182 (51.6%) completed the questionnaire: control group (n = 37), story topics group (n = 49), writer profile group (n = 51), and combination group (n = 45).</p></sec><sec sec-type="results"><title>Results</title><p> Questionnaire completers were evenly distributed over the four groups (χ<sup>2</sup><sub>3</sub> = 3.7, <italic>P</italic> = .30). Women who had access to the story topics search facility (yes vs no): were more positive about (mean scores 4.0 vs 3.6, <italic>P</italic> = .001) and more satisfied with the search facility (mean scores 7.3 vs 6.3, <italic>P </italic>< .001); were more positive about the number of search options (mean scores 2.3 vs 2.1, <italic>P</italic> = .04); were better enabled to find desired information (mean scores 3.3 vs 2.8, <italic>P</italic> = .001); were more likely to recommend the search facility to others or intend to use it themselves (mean scores 4.1 vs 3.5, <italic>P</italic> < .001); were more positive about how retrieved stories were displayed (mean scores 3.6 vs 3.2, <italic>P</italic> = .001); retrieved stories that better covered their information needs (mean scores 3.0 vs 2.6, <italic>P</italic> = .02); were more satisfied with the stories retrieved (mean scores 7.1 vs 6.4, <italic>P</italic> = .002); and were more likely to report an impact of the stories on coping with breast cancer (mean scores 3.2 vs 2.9, <italic>P</italic> =. 02). Three main effects were associated with use of the writer profile search (yes vs no): being more positive about (mean scores 3.9 vs 3.6, <italic>P</italic> = .005) and more satisfied with the search facility (mean scores 7.1 vs 6.5, <italic>P</italic> =. 01), and being more positive about how retrieved stories were displayed (mean scores 3.8 vs 2.9, <italic>P</italic> < .001). For satisfaction with the search facility, an interaction effect was found (<italic>P</italic> = .03): at least one of the two search facilities was needed for satisfaction.</p></sec><sec sec-type="conclusions"><title>Conclusions</title><p>Having access to the story topics search facility clearly had the most positive effect on patient satisfaction and search success.</p></sec></abstract><kwd-group><kwd>Breast cancer</kwd><kwd>life experiences</kwd><kwd>social support</kwd><kwd>Internet</kwd><kwd>information retrieval</kwd><kwd>patient satisfaction.</kwd></kwd-group></article-meta></front></pmc><affiliations><list></list><tree></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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