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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Informal Caregiving of Hospice Patients</title><author><name sortKey="Pottie, Colin G" sort="Pottie, Colin G" uniqKey="Pottie C" first="Colin G." last="Pottie">Colin G. Pottie</name><affiliation><nlm:aff id="aff1"></nlm:aff></affiliation></author><author><name sortKey="Burch, Karen A" sort="Burch, Karen A" uniqKey="Burch K" first="Karen A." last="Burch">Karen A. Burch</name><affiliation><nlm:aff id="aff2"></nlm:aff></affiliation></author><author><name sortKey="Montross Thomas, Lori P" sort="Montross Thomas, Lori P" uniqKey="Montross Thomas L" first="Lori P." last="Montross Thomas">Lori P. Montross Thomas</name><affiliation><nlm:aff id="aff3"></nlm:aff></affiliation><affiliation><nlm:aff id="aff4"></nlm:aff></affiliation></author><author><name sortKey="Irwin, Scott A" sort="Irwin, Scott A" uniqKey="Irwin S" first="Scott A." last="Irwin">Scott A. Irwin</name><affiliation><nlm:aff id="aff3"></nlm:aff></affiliation><affiliation><nlm:aff id="aff4"></nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">24992371</idno><idno type="pmc">4842949</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4842949</idno><idno type="RBID">PMC:4842949</idno><idno type="doi">10.1089/jpm.2013.0196</idno><date when="2014">2014</date><idno type="wicri:Area/Pmc/Corpus">000164</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000164</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Informal Caregiving of Hospice Patients</title><author><name sortKey="Pottie, Colin G" sort="Pottie, Colin G" uniqKey="Pottie C" first="Colin G." last="Pottie">Colin G. Pottie</name><affiliation><nlm:aff id="aff1"></nlm:aff></affiliation></author><author><name sortKey="Burch, Karen A" sort="Burch, Karen A" uniqKey="Burch K" first="Karen A." last="Burch">Karen A. Burch</name><affiliation><nlm:aff id="aff2"></nlm:aff></affiliation></author><author><name sortKey="Montross Thomas, Lori P" sort="Montross Thomas, Lori P" uniqKey="Montross Thomas L" first="Lori P." last="Montross Thomas">Lori P. Montross Thomas</name><affiliation><nlm:aff id="aff3"></nlm:aff></affiliation><affiliation><nlm:aff id="aff4"></nlm:aff></affiliation></author><author><name sortKey="Irwin, Scott A" sort="Irwin, Scott A" uniqKey="Irwin S" first="Scott A." last="Irwin">Scott A. Irwin</name><affiliation><nlm:aff id="aff3"></nlm:aff></affiliation><affiliation><nlm:aff id="aff4"></nlm:aff></affiliation></author></analytic><series><title level="j">Journal of Palliative Medicine</title><idno type="ISSN">1096-6218</idno><idno type="eISSN">1557-7740</idno><imprint><date when="2014">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><title>Abstract</title><p><bold><italic>Background:</italic></bold> Informal caregivers play a critical role in the provision of care to hospice patients. The care they provide often impacts their physical and psychological well-being.</p><p><bold><italic>Objective:</italic></bold> This study synthesized 58 articles pertaining to informal hospice caregiving, focusing on caregivers' satisfaction with hospice services, the physical and psychological well-being of caregivers, the predictors of caregivers' well-being, the direct impact of hospice services on caregivers, and the effectiveness of targeted interventions for hospice caregivers.</p><p><bold><italic>Method:</italic></bold> A systematic literature review of journal articles published between 1985 and 2012 was conducted.</p><p><bold><italic>Results:</italic></bold> The studies reviewed found hospice caregivers to experience clinically significant levels of anxiety, depression, and stress; however, results for caregiver burden and quality of life were mixed. Caregivers' perceptions regarding the meaningfulness of care as well as their levels of social support were associated with enhanced psychological outcomes.</p><p><bold><italic>Conclusions:</italic></bold> Beyond satisfaction with hospice services, the direct impact of standard hospice care on caregivers remains uncertain. Caregiver intervention studies have demonstrated promising outcomes signifying a need for additional investigations into hospice-specific interventions that improve caregiver outcomes. Additional research and resources are needed to assist hospice caregivers, with the ultimate goal of minimizing their psychiatric and physical morbidity and enhancing their caregiving and subsequent bereavement processes.</p></div></front></TEI><pmc article-type="review-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<front><journal-meta><journal-id journal-id-type="nlm-ta">J Palliat Med</journal-id><journal-id journal-id-type="iso-abbrev">J Palliat Med</journal-id><journal-id journal-id-type="publisher-id">jpm</journal-id><journal-title-group><journal-title>Journal of Palliative Medicine</journal-title></journal-title-group><issn pub-type="ppub">1096-6218</issn><issn pub-type="epub">1557-7740</issn><publisher><publisher-name>Mary Ann Liebert, Inc.</publisher-name><publisher-loc>140 Huguenot Street, 3rd FloorNew Rochelle, NY 10801USA</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">24992371</article-id><article-id pub-id-type="pmc">4842949</article-id><article-id pub-id-type="publisher-id">10.1089/jpm.2013.0196</article-id><article-id pub-id-type="doi">10.1089/jpm.2013.0196</article-id><article-categories><subj-group subj-group-type="heading"><subject>Palliative Care Review<break></break><italic>Feature Editor: Vyjeyanthi S. Periyakoil</italic></subject></subj-group></article-categories><title-group><article-title>Informal Caregiving of Hospice Patients</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Pottie</surname><given-names>Colin G.</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff1"><sup>1</sup></xref></contrib><contrib contrib-type="author"><name><surname>Burch</surname><given-names>Karen A.</given-names></name><degrees>MD, FRCPC</degrees><xref ref-type="aff" rid="aff2"><sup>2</sup></xref></contrib><contrib contrib-type="author" corresp="yes"><name><surname>Montross Thomas</surname><given-names>Lori P.</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff3"><sup>3,</sup></xref><xref ref-type="aff" rid="aff4"><sup>4</sup></xref></contrib><contrib contrib-type="author"><name><surname>Irwin</surname><given-names>Scott A.</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="aff3"><sup>3,</sup></xref><xref ref-type="aff" rid="aff4"><sup>4</sup></xref></contrib><aff id="aff1"><label><sup>1</sup></label>Department of Psychiatry,<institution>Dalhousie University</institution>, Capital District Health Authority, Halifax, Nova Scotia,<country>Canada</country>.</aff><aff id="aff2"><label><sup>2</sup></label>Department of Internal Medicine,<institution>Annapolis Valley District Health Authority</institution>, Annapolis Valley Health Palliative Care Program, Nova Scotia,<country>Canada</country>.</aff><aff id="aff3"><label><sup>3</sup></label><institution>The Institute for Palliative Medicine at San Diego Hospice</institution>, San Diego, California.</aff><aff id="aff4"><label><sup>4</sup></label><institution>University of California</institution>, San Diego Psychiatry & Psychosocial Services, Patient & Family Support Services, Moores Cancer Center, San Diego, California.</aff></contrib-group><author-notes><corresp><addr-line>Address correspondence to:</addr-line><addr-line><italic>Lori P. Montross Thomas, PhD</italic></addr-line><addr-line><italic>University of California, San Diego</italic></addr-line><addr-line><italic>9500 Gilman Drive, #0664</italic></addr-line><addr-line><italic>La Jolla, CA 92093-0664</italic></addr-line><italic>E-mail:</italic><email xlink:href="mailto:lpmontross@ucsd.edu">lpmontross@ucsd.edu</email></corresp></author-notes><pub-date pub-type="ppub"><day>01</day><month>7</month><year>2014</year><pmc-comment>string-date: July 2014</pmc-comment>
</pub-date><volume>17</volume><issue>7</issue><fpage>845</fpage><lpage>856</lpage><history><date date-type="accepted"><day>29</day><month>11</month><year>2013</year><pmc-comment>string-date: Accepted November 29, 2013</pmc-comment>
</date></history><permissions><copyright-statement>Copyright 2014, Mary Ann Liebert, Inc.</copyright-statement><copyright-year>2014</copyright-year></permissions><self-uri content-type="pdf" xlink:type="simple" xlink:href="jpm.2013.0196.pdf"></self-uri><abstract><title>Abstract</title><p><bold><italic>Background:</italic></bold> Informal caregivers play a critical role in the provision of care to hospice patients. The care they provide often impacts their physical and psychological well-being.</p><p><bold><italic>Objective:</italic></bold> This study synthesized 58 articles pertaining to informal hospice caregiving, focusing on caregivers' satisfaction with hospice services, the physical and psychological well-being of caregivers, the predictors of caregivers' well-being, the direct impact of hospice services on caregivers, and the effectiveness of targeted interventions for hospice caregivers.</p><p><bold><italic>Method:</italic></bold> A systematic literature review of journal articles published between 1985 and 2012 was conducted.</p><p><bold><italic>Results:</italic></bold> The studies reviewed found hospice caregivers to experience clinically significant levels of anxiety, depression, and stress; however, results for caregiver burden and quality of life were mixed. Caregivers' perceptions regarding the meaningfulness of care as well as their levels of social support were associated with enhanced psychological outcomes.</p><p><bold><italic>Conclusions:</italic></bold> Beyond satisfaction with hospice services, the direct impact of standard hospice care on caregivers remains uncertain. Caregiver intervention studies have demonstrated promising outcomes signifying a need for additional investigations into hospice-specific interventions that improve caregiver outcomes. Additional research and resources are needed to assist hospice caregivers, with the ultimate goal of minimizing their psychiatric and physical morbidity and enhancing their caregiving and subsequent bereavement processes.</p></abstract><counts><fig-count count="1"></fig-count><table-count count="1"></table-count><ref-count count="80"></ref-count><page-count count="12"></page-count></counts></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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