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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Pediatric Palliative Care in the Age of eHealth: Opportunities for Advances in HIT to Improve Patient-Centered Communication</title><author><name sortKey="Madhavan, Subha" sort="Madhavan, Subha" uniqKey="Madhavan S" first="Subha" last="Madhavan">Subha Madhavan</name><affiliation><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff></affiliation></author><author><name sortKey="Sanders, Amy" sort="Sanders, Amy" uniqKey="Sanders A" first="Amy" last="Sanders">Amy Sanders</name><affiliation><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff></affiliation></author><author><name sortKey="Chou, Wen Ying Sylvia" sort="Chou, Wen Ying Sylvia" uniqKey="Chou W" first="Wen-Ying Sylvia" last="Chou">Wen-Ying Sylvia Chou</name><affiliation><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff></affiliation></author><author><name sortKey="Shusterdg, Alex" sort="Shusterdg, Alex" uniqKey="Shusterdg A" first="Alex" last="Shusterdg">Alex Shusterdg</name><affiliation><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff></affiliation></author><author><name sortKey="Boone, Keith" sort="Boone, Keith" uniqKey="Boone K" first="Keith" last="Boone">Keith Boone</name><affiliation><nlm:aff id="A3">GE Healthcare Information Technology, Boston, MA</nlm:aff></affiliation></author><author><name sortKey="Dente, Mark" sort="Dente, Mark" uniqKey="Dente M" first="Mark" last="Dente">Mark Dente</name><affiliation><nlm:aff id="A3">GE Healthcare Information Technology, Boston, MA</nlm:aff></affiliation></author><author><name sortKey="Shad, Aziza T" sort="Shad, Aziza T" uniqKey="Shad A" first="Aziza T." last="Shad">Aziza T. Shad</name><affiliation><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W." last="Hesse">Bradford W. Hesse</name><affiliation><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">21521596</idno><idno type="pmc">3703627</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3703627</idno><idno type="RBID">PMC:3703627</idno><idno type="doi">10.1016/j.amepre.2011.01.013</idno><date when="2011">2011</date><idno type="wicri:Area/Pmc/Corpus">000454</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Pediatric Palliative Care in the Age of eHealth: Opportunities for Advances in HIT to Improve Patient-Centered Communication</title><author><name sortKey="Madhavan, Subha" sort="Madhavan, Subha" uniqKey="Madhavan S" first="Subha" last="Madhavan">Subha Madhavan</name><affiliation><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff></affiliation></author><author><name sortKey="Sanders, Amy" sort="Sanders, Amy" uniqKey="Sanders A" first="Amy" last="Sanders">Amy Sanders</name><affiliation><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff></affiliation></author><author><name sortKey="Chou, Wen Ying Sylvia" sort="Chou, Wen Ying Sylvia" uniqKey="Chou W" first="Wen-Ying Sylvia" last="Chou">Wen-Ying Sylvia Chou</name><affiliation><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff></affiliation></author><author><name sortKey="Shusterdg, Alex" sort="Shusterdg, Alex" uniqKey="Shusterdg A" first="Alex" last="Shusterdg">Alex Shusterdg</name><affiliation><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff></affiliation></author><author><name sortKey="Boone, Keith" sort="Boone, Keith" uniqKey="Boone K" first="Keith" last="Boone">Keith Boone</name><affiliation><nlm:aff id="A3">GE Healthcare Information Technology, Boston, MA</nlm:aff></affiliation></author><author><name sortKey="Dente, Mark" sort="Dente, Mark" uniqKey="Dente M" first="Mark" last="Dente">Mark Dente</name><affiliation><nlm:aff id="A3">GE Healthcare Information Technology, Boston, MA</nlm:aff></affiliation></author><author><name sortKey="Shad, Aziza T" sort="Shad, Aziza T" uniqKey="Shad A" first="Aziza T." last="Shad">Aziza T. Shad</name><affiliation><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W." last="Hesse">Bradford W. Hesse</name><affiliation><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff></affiliation></author></analytic><series><title level="j">American journal of preventive medicine</title><idno type="ISSN">0749-3797</idno><idno type="eISSN">1873-2607</idno><imprint><date when="2011">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">Pediatric palliative care is an organized method for delivering effective, compassionate and timely care to children with cancer and their families, but it currently faces many challenges despite advances in technology and health care delivery. A key challenge involves unnecessary suffering from debilitating symptoms, such as pain, resulting from insufficient personalized treatment. Additionally, breakdowns in communication and a paucity of usable patient-centric information impede effective care. Recent advances in informatics for consumer health through eHealth initiatives have begun to be adopted in care coordination and communication, but overall remain under-utilized. Tremendous potentials exist in effective use of health information technology (HIT) to improve areas requiring personalized care such as pain management in pediatric oncology patients.</p><p id="P2">This article aims first to identify communication challenges and needs in pediatric palliative cancer care from the perspectives of the entire group of individuals around the pediatric oncology patient, and then to describe how adoption and adaptation of these technologies can improve patient-provider communication, behavioral support, pain assessment, and education through integration into existing work flows. The goal of this research is to promote the value of using HIT standards-based technology solutions and stimulate development of interoperable, standardized technologies and delivery of context-sensitive information through user-friendly portals to facilitate communication in an existing pediatric clinical care setting.</p></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<pmc-dir>properties manuscript</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-journal-id">8704773</journal-id><journal-id journal-id-type="pubmed-jr-id">1656</journal-id><journal-id journal-id-type="nlm-ta">Am J Prev Med</journal-id><journal-id journal-id-type="iso-abbrev">Am J Prev Med</journal-id><journal-title-group><journal-title>American journal of preventive medicine</journal-title></journal-title-group><issn pub-type="ppub">0749-3797</issn><issn pub-type="epub">1873-2607</issn></journal-meta><article-meta><article-id pub-id-type="pmid">21521596</article-id><article-id pub-id-type="pmc">3703627</article-id><article-id pub-id-type="doi">10.1016/j.amepre.2011.01.013</article-id><article-id pub-id-type="manuscript">NIHMS477908</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>Pediatric Palliative Care in the Age of eHealth: Opportunities for Advances in HIT to Improve Patient-Centered Communication</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Madhavan</surname><given-names>Subha</given-names></name><degrees>Ph.D.</degrees><xref ref-type="corresp" rid="CR1">*</xref><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Sanders</surname><given-names>Amy</given-names></name><degrees>M.A.</degrees><xref ref-type="aff" rid="A2">2</xref></contrib><contrib contrib-type="author"><name><surname>Chou</surname><given-names>Wen-Ying Sylvia</given-names></name><degrees>Ph.D., M.P.H</degrees><xref ref-type="aff" rid="A2">2</xref></contrib><contrib contrib-type="author"><name><surname>Shusterdg</surname><given-names>Alex</given-names></name><degrees>B.A.</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Boone</surname><given-names>Keith</given-names></name><degrees>B.S.</degrees><xref ref-type="aff" rid="A3">3</xref></contrib><contrib contrib-type="author"><name><surname>Dente</surname><given-names>Mark</given-names></name><degrees>M.D.</degrees><xref ref-type="aff" rid="A3">3</xref></contrib><contrib contrib-type="author"><name><surname>Shad</surname><given-names>Aziza T.</given-names></name><degrees>M.D.</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Hesse</surname><given-names>Bradford W.</given-names></name><degrees>Ph.D.</degrees><xref ref-type="aff" rid="A2">2</xref></contrib></contrib-group><aff id="A1"><label>1</label>Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</aff><aff id="A2"><label>2</label>National Cancer Institute, National Institutes of Health, Bethesda, MD</aff><aff id="A3"><label>3</label>GE Healthcare Information Technology, Boston, MA</aff><author-notes><corresp id="CR1"><label>*</label><underline>Corresponding Author</underline> Subha Madhavan, M.S., Ph.D Georgetown University, Lombardi Comprehensive Cancer Center 3300 Whitehaven Street NW, Suite 1200 Washington DC 20007 Phone (202) 687-3294 FAX (301) 480-4743 <email>sm696@georgetown.edu</email></corresp></author-notes><pub-date pub-type="nihms-submitted"><day>5</day><month>6</month><year>2013</year></pub-date><pub-date pub-type="ppub"><month>5</month><year>2011</year></pub-date><pub-date pub-type="pmc-release"><day>08</day><month>7</month><year>2013</year></pub-date><volume>40</volume><issue>5 0 2</issue><fpage>S208</fpage><lpage>S216</lpage><abstract><p id="P1">Pediatric palliative care is an organized method for delivering effective, compassionate and timely care to children with cancer and their families, but it currently faces many challenges despite advances in technology and health care delivery. A key challenge involves unnecessary suffering from debilitating symptoms, such as pain, resulting from insufficient personalized treatment. Additionally, breakdowns in communication and a paucity of usable patient-centric information impede effective care. Recent advances in informatics for consumer health through eHealth initiatives have begun to be adopted in care coordination and communication, but overall remain under-utilized. Tremendous potentials exist in effective use of health information technology (HIT) to improve areas requiring personalized care such as pain management in pediatric oncology patients.</p><p id="P2">This article aims first to identify communication challenges and needs in pediatric palliative cancer care from the perspectives of the entire group of individuals around the pediatric oncology patient, and then to describe how adoption and adaptation of these technologies can improve patient-provider communication, behavioral support, pain assessment, and education through integration into existing work flows. The goal of this research is to promote the value of using HIT standards-based technology solutions and stimulate development of interoperable, standardized technologies and delivery of context-sensitive information through user-friendly portals to facilitate communication in an existing pediatric clinical care setting.</p></abstract><kwd-group><kwd>health information technology</kwd><kwd>palliative care</kwd><kwd>pain management</kwd><kwd>quality of care and care coordination</kwd><kwd>health information exchange</kwd></kwd-group><funding-group><award-group><funding-source country="United States">National Center for Research Resources : NCRR</funding-source><award-id>UL1 RR031975 || RR</award-id></award-group><award-group><funding-source country="United States">National Cancer Institute : NCI</funding-source><award-id>P30 CA051008 || CA</award-id></award-group></funding-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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