Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure
Identifieur interne : 000483 ( Ncbi/Curation ); précédent : 000482; suivant : 000484Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure
Auteurs : Christopher Whalen [États-Unis] ; Deborah Donnell [États-Unis] ; Michael Tartakovsky [États-Unis]Source :
- Journal of acquired immune deficiency syndromes (1999) [ 1525-4135 ] ; 2014.
English descriptors
- KwdEn :
- MESH :
- methods : Data Collection.
- organization & administration : Biomedical Research.
- prevention & control : HIV Infections.
- standards : Biomedical Research.
- Cell Phones, Health Resources, Humans, Internet, Medical Informatics.
Abstract
As Information and Communication Technology infrastructure becomes more reliable, new methods of Electronic Data Capture (EDC), datamarts/Data warehouses, and mobile computing provide platforms for rapid coordination of international research projects and multisite studies. However, despite the increasing availability of internet connectivity and communication systems in remote regions of the world, there are still significant obstacles. Sites with poor infrastructure face serious challenges participating in modern clinical and basic research, particularly that relying on EDC and internet communication technologies. This report discusses our experiences in supporting research in resource-limited settings (RLS). We describe examples of the practical and ethical/regulatory challenges raised by use of these newer technologies for data collection in multisite clinical studies.
Url:
DOI: 10.1097/QAI.0000000000000039
PubMed: 24321986
PubMed Central: 4195443
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PMC:4195443Le document en format XML
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<front><div type="abstract" xml:lang="en"><p id="P1">As Information and Communication Technology infrastructure becomes more reliable, new methods of Electronic Data Capture (EDC), datamarts/Data warehouses, and mobile computing provide platforms for rapid coordination of international research projects and multisite studies. However, despite the increasing availability of internet connectivity and communication systems in remote regions of the world, there are still significant obstacles. Sites with poor infrastructure face serious challenges participating in modern clinical and basic research, particularly that relying on EDC and internet communication technologies. This report discusses our experiences in supporting research in resource-limited settings (RLS). We describe examples of the practical and ethical/regulatory challenges raised by use of these newer technologies for data collection in multisite clinical studies.</p>
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