Pediatric palliative care and eHealth opportunities for patient-centered care.
Identifieur interne : 000043 ( PubMed/Checkpoint ); précédent : 000042; suivant : 000044Pediatric palliative care and eHealth opportunities for patient-centered care.
Auteurs : Subha Madhavan [États-Unis] ; Amy E. Sanders ; Wen-Ying Sylvia Chou ; Alex Shuster ; Keith W. Boone ; Mark A. Dente ; Aziza T. Shad ; Bradford W. HesseSource :
- American journal of preventive medicine [ 1873-2607 ] ; 2011.
English descriptors
- KwdEn :
- Adolescent, Child, Child, Preschool, Communication, Female, Humans, Male, Medical Informatics (organization & administration), Medical Oncology (organization & administration), Needs Assessment, Neoplasms (therapy), Palliative Care (organization & administration), Patient Education as Topic (organization & administration), Patient-Centered Care (organization & administration), Pediatrics (methods), Physician-Patient Relations, Prospective Studies, Quality of Health Care, Young Adult.
- MESH :
- methods : Pediatrics.
- organization & administration : Medical Informatics, Medical Oncology, Palliative Care, Patient Education as Topic, Patient-Centered Care.
- therapy : Neoplasms.
- Adolescent, Child, Child, Preschool, Communication, Female, Humans, Male, Needs Assessment, Physician-Patient Relations, Prospective Studies, Quality of Health Care, Young Adult.
Abstract
Pediatric palliative care currently faces many challenges including unnecessary pain from insufficiently personalized treatment, doctor-patient communication breakdowns, and a paucity of usable patient-centric information. Recent advances in informatics for consumer health through eHealth initiatives have the potential to bridge known communication gaps, but overall these technologies remain under-utilized in practice.
DOI: 10.1016/j.amepre.2011.01.013
PubMed: 21521596
Affiliations:
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pubmed:21521596Le document en format XML
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Sanders</name></author><author><name sortKey="Chou, Wen Ying Sylvia" sort="Chou, Wen Ying Sylvia" uniqKey="Chou W" first="Wen-Ying Sylvia" last="Chou">Wen-Ying Sylvia Chou</name></author><author><name sortKey="Shuster, Alex" sort="Shuster, Alex" uniqKey="Shuster A" first="Alex" last="Shuster">Alex Shuster</name></author><author><name sortKey="Boone, Keith W" sort="Boone, Keith W" uniqKey="Boone K" first="Keith W" last="Boone">Keith W. Boone</name></author><author><name sortKey="Dente, Mark A" sort="Dente, Mark A" uniqKey="Dente M" first="Mark A" last="Dente">Mark A. Dente</name></author><author><name sortKey="Shad, Aziza T" sort="Shad, Aziza T" uniqKey="Shad A" first="Aziza T" last="Shad">Aziza T. Shad</name></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2011">2011</date><idno type="doi">10.1016/j.amepre.2011.01.013</idno><idno type="RBID">pubmed:21521596</idno><idno type="pmid">21521596</idno><idno type="wicri:Area/PubMed/Corpus">000042</idno><idno type="wicri:Area/PubMed/Curation">000042</idno><idno type="wicri:Area/PubMed/Checkpoint">000042</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Pediatric palliative care and eHealth opportunities for patient-centered care.</title><author><name sortKey="Madhavan, Subha" sort="Madhavan, Subha" uniqKey="Madhavan S" first="Subha" last="Madhavan">Subha Madhavan</name><affiliation wicri:level="2"><nlm:affiliation>Lombardi Comprehensive Cancer Center, Georgetown University Medical Center, 3300 Whitehaven Street NW, Washington, DC 20007, USA. sm696@georgetown.edu</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Lombardi Comprehensive Cancer Center, Georgetown University Medical Center, 3300 Whitehaven Street NW, Washington, DC 20007</wicri:regionArea><placeName><region type="state">District de Columbia</region></placeName></affiliation></author><author><name sortKey="Sanders, Amy E" sort="Sanders, Amy E" uniqKey="Sanders A" first="Amy E" last="Sanders">Amy E. Sanders</name></author><author><name sortKey="Chou, Wen Ying Sylvia" sort="Chou, Wen Ying Sylvia" uniqKey="Chou W" first="Wen-Ying Sylvia" last="Chou">Wen-Ying Sylvia Chou</name></author><author><name sortKey="Shuster, Alex" sort="Shuster, Alex" uniqKey="Shuster A" first="Alex" last="Shuster">Alex Shuster</name></author><author><name sortKey="Boone, Keith W" sort="Boone, Keith W" uniqKey="Boone K" first="Keith W" last="Boone">Keith W. Boone</name></author><author><name sortKey="Dente, Mark A" sort="Dente, Mark A" uniqKey="Dente M" first="Mark A" last="Dente">Mark A. Dente</name></author><author><name sortKey="Shad, Aziza T" sort="Shad, Aziza T" uniqKey="Shad A" first="Aziza T" last="Shad">Aziza T. Shad</name></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name></author></analytic><series><title level="j">American journal of preventive medicine</title><idno type="eISSN">1873-2607</idno><imprint><date when="2011" type="published">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Child, Preschool</term><term>Communication</term><term>Female</term><term>Humans</term><term>Male</term><term>Medical Informatics (organization & administration)</term><term>Medical Oncology (organization & administration)</term><term>Needs Assessment</term><term>Neoplasms (therapy)</term><term>Palliative Care (organization & administration)</term><term>Patient Education as Topic (organization & administration)</term><term>Patient-Centered Care (organization & administration)</term><term>Pediatrics (methods)</term><term>Physician-Patient Relations</term><term>Prospective Studies</term><term>Quality of Health Care</term><term>Young Adult</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Pediatrics</term></keywords><keywords scheme="MESH" qualifier="organization & administration" xml:lang="en"><term>Medical Informatics</term><term>Medical Oncology</term><term>Palliative Care</term><term>Patient Education as Topic</term><term>Patient-Centered Care</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Neoplasms</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Child, Preschool</term><term>Communication</term><term>Female</term><term>Humans</term><term>Male</term><term>Needs Assessment</term><term>Physician-Patient Relations</term><term>Prospective Studies</term><term>Quality of Health Care</term><term>Young Adult</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Pediatric palliative care currently faces many challenges including unnecessary pain from insufficiently personalized treatment, doctor-patient communication breakdowns, and a paucity of usable patient-centric information. Recent advances in informatics for consumer health through eHealth initiatives have the potential to bridge known communication gaps, but overall these technologies remain under-utilized in practice.</div></front></TEI><pubmed><MedlineCitation Owner="NLM" Status="MEDLINE"><PMID Version="1">21521596</PMID><DateCreated><Year>2011</Year><Month>04</Month><Day>27</Day></DateCreated><DateCompleted><Year>2011</Year><Month>07</Month><Day>20</Day></DateCompleted><DateRevised><Year>2015</Year><Month>02</Month><Day>22</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1873-2607</ISSN><JournalIssue CitedMedium="Internet"><Volume>40</Volume><Issue>5 Suppl 2</Issue><PubDate><Year>2011</Year><Month>May</Month></PubDate></JournalIssue><Title>American journal of preventive medicine</Title><ISOAbbreviation>Am J Prev Med</ISOAbbreviation></Journal><ArticleTitle>Pediatric palliative care and eHealth opportunities for patient-centered care.</ArticleTitle><Pagination><MedlinePgn>S208-16</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1016/j.amepre.2011.01.013</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Pediatric palliative care currently faces many challenges including unnecessary pain from insufficiently personalized treatment, doctor-patient communication breakdowns, and a paucity of usable patient-centric information. Recent advances in informatics for consumer health through eHealth initiatives have the potential to bridge known communication gaps, but overall these technologies remain under-utilized in practice.</AbstractText><AbstractText Label="PURPOSE" NlmCategory="OBJECTIVE">This paper seeks to identify effective uses of existing and developing health information technology (HIT) to improve communications and care within the clinical setting.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">A needs analysis was conducted by surveying seven pediatric oncology patients and their extended support network at the Lombardi Pediatric Clinic at Georgetown University Medical Center in May and June of 2010. Needs were mapped onto an existing inventory of emerging HIT technologies to assess what existing informatics solutions could effectively bridge these gaps.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Through the patient interviews, a number of communication challenges and needs in pediatric palliative cancer care were identified from the interconnected group perspective surrounding each patient. These gaps mapped well, in most cases, to existing or emerging cyberinfrastructure. However, adoption and adaptation of appropriate technologies could improve, including for patient-provider communication, behavioral support, pain assessment, and education, all through integration within existing work flows.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">This study provides a blueprint for more optimal use of HIT technologies, effectively utilizing HIT standards-based technology solutions to improve communication. This research aims to further stimulate the development and adoption of interoperable, standardized technologies and delivery of context-sensitive information to substantially improve the quality of care patients receive within pediatric palliative care clinics and other settings.</AbstractText><CopyrightInformation>Copyright © 2011 American Journal of Preventive Medicine. All rights reserved.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Madhavan</LastName><ForeName>Subha</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Lombardi Comprehensive Cancer Center, Georgetown University Medical Center, 3300 Whitehaven Street NW, Washington, DC 20007, USA. sm696@georgetown.edu</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sanders</LastName><ForeName>Amy E</ForeName><Initials>AE</Initials></Author><Author ValidYN="Y"><LastName>Chou</LastName><ForeName>Wen-Ying Sylvia</ForeName><Initials>WY</Initials></Author><Author ValidYN="Y"><LastName>Shuster</LastName><ForeName>Alex</ForeName><Initials>A</Initials></Author><Author ValidYN="Y"><LastName>Boone</LastName><ForeName>Keith W</ForeName><Initials>KW</Initials></Author><Author ValidYN="Y"><LastName>Dente</LastName><ForeName>Mark A</ForeName><Initials>MA</Initials></Author><Author ValidYN="Y"><LastName>Shad</LastName><ForeName>Aziza T</ForeName><Initials>AT</Initials></Author><Author ValidYN="Y"><LastName>Hesse</LastName><ForeName>Bradford W</ForeName><Initials>BW</Initials></Author></AuthorList><Language>eng</Language><GrantList CompleteYN="Y"><Grant><GrantID>P30 CA051008</GrantID><Acronym>CA</Acronym><Agency>NCI NIH HHS</Agency><Country>United States</Country></Grant><Grant><GrantID>UL1 RR031975</GrantID><Acronym>RR</Acronym><Agency>NCRR NIH HHS</Agency><Country>United States</Country></Grant><Grant><GrantID>UL1 TR000101</GrantID><Acronym>TR</Acronym><Agency>NCATS NIH HHS</Agency><Country>United States</Country></Grant><Grant><GrantID>UL1RR031975</GrantID><Acronym>RR</Acronym><Agency>NCRR NIH HHS</Agency><Country>United States</Country></Grant></GrantList><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D052061">Research Support, N.I.H., 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Version="1">19945947</PMID></CommentsCorrections></CommentsCorrectionsList><MeshHeadingList><MeshHeading><DescriptorName MajorTopicYN="N" UI="D000293">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D002648">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D002675">Child, Preschool</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D003142">Communication</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D005260">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D006801">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008297">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008490">Medical Informatics</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000458">organization & administration</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008495">Medical Oncology</DescriptorName><QualifierName MajorTopicYN="N" UI="Q000458">organization & administration</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D020380">Needs Assessment</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D009369">Neoplasms</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000628">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D010166">Palliative Care</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000458">organization & administration</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D010353">Patient Education as Topic</DescriptorName><QualifierName MajorTopicYN="N" UI="Q000458">organization & administration</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D018802">Patient-Centered Care</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000458">organization & administration</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D010372">Pediatrics</DescriptorName><QualifierName MajorTopicYN="N" UI="Q000379">methods</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D010817">Physician-Patient Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D011446">Prospective Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D011787">Quality of Health Care</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D055815">Young Adult</DescriptorName></MeshHeading></MeshHeadingList><OtherID Source="NLM">NIHMS477908</OtherID><OtherID Source="NLM">PMC3703627</OtherID></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2010</Year><Month>9</Month><Day>13</Day></PubMedPubDate><PubMedPubDate 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Boone</name><name sortKey="Chou, Wen Ying Sylvia" sort="Chou, Wen Ying Sylvia" uniqKey="Chou W" first="Wen-Ying Sylvia" last="Chou">Wen-Ying Sylvia Chou</name><name sortKey="Dente, Mark A" sort="Dente, Mark A" uniqKey="Dente M" first="Mark A" last="Dente">Mark A. Dente</name><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name><name sortKey="Sanders, Amy E" sort="Sanders, Amy E" uniqKey="Sanders A" first="Amy E" last="Sanders">Amy E. Sanders</name><name sortKey="Shad, Aziza T" sort="Shad, Aziza T" uniqKey="Shad A" first="Aziza T" last="Shad">Aziza T. Shad</name><name sortKey="Shuster, Alex" sort="Shuster, Alex" uniqKey="Shuster A" first="Alex" last="Shuster">Alex Shuster</name></noCountry><country name="États-Unis"><region name="District de Columbia"><name sortKey="Madhavan, Subha" sort="Madhavan, Subha" uniqKey="Madhavan S" first="Subha" last="Madhavan">Subha Madhavan</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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