Sharing behavioral data through a grid infrastructure using data standards
Identifieur interne : 000364 ( Pmc/Corpus ); précédent : 000363; suivant : 000365Sharing behavioral data through a grid infrastructure using data standards
Auteurs : Hua Min ; Riki Ohira ; Michael A. Collins ; Jessica Bondy ; Nancy E. Avis ; Olga Tchuvatkina ; Paul K. Courtney ; Richard P. Moser ; Abdul R. Shaikh ; Bradford W. Hesse ; Mary Cooper ; Dianne Reeves ; Bob Lanese ; Cindy Helba ; Suzanne M. Miller ; Eric A. RossSource :
- Journal of the American Medical Informatics Association : JAMIA [ 1067-5027 ] ; 2013.
Abstract
In an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR).
The methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR.
UML models have been developed for four GEM measures, which have been registered in the caDSR as CDE. New behavioral concepts related to these measures have been created and incorporated into the NCI thesaurus. Best practices for representing measures using UML models have been utilized in the practice (eg, caDSR). One dataset based on a GEM-curated measure is available for use by other systems and users connected to the grid.
Behavioral and population science data can be standardized by using and extending current standards. A new branch of CDE for behavioral science was developed for the caDSR. It expands the caDSR domain coverage beyond the clinical and biological areas. In addition, missing terms and concepts specific to the behavioral measures addressed in this paper were added to the NCI thesaurus. A methodology was developed and refined for curation of behavioral and population science data.
Url:
DOI: 10.1136/amiajnl-2013-001763
PubMed: 24076749
PubMed Central: 4078270
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PMC:4078270Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Sharing behavioral data through a grid infrastructure using data standards</title><author><name sortKey="Min, Hua" sort="Min, Hua" uniqKey="Min H" first="Hua" last="Min">Hua Min</name><affiliation><nlm:aff id="af1"><addr-line>Department of Health Administration and Policy</addr-line>,<institution>College of Health and Human Services, George Mason University</institution>,<addr-line>Fairfax, Virginia</addr-line>,<country>USA</country></nlm:aff></affiliation><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Ohira, Riki" sort="Ohira, Riki" uniqKey="Ohira R" first="Riki" last="Ohira">Riki Ohira</name><affiliation><nlm:aff id="af3"><institution>Booz Allen Hamilton</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Collins, Michael A" sort="Collins, Michael A" uniqKey="Collins M" first="Michael A" last="Collins">Michael A. Collins</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Bondy, Jessica" sort="Bondy, Jessica" uniqKey="Bondy J" first="Jessica" last="Bondy">Jessica Bondy</name><affiliation><nlm:aff id="af4"><institution>University of Colorado Denver</institution>,<addr-line>Denver, Colorado</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Avis, Nancy E" sort="Avis, Nancy E" uniqKey="Avis N" first="Nancy E" last="Avis">Nancy E. Avis</name><affiliation><nlm:aff id="af5"><addr-line>Department of Social Sciences and Health Policy</addr-line>,<institution>Wake Forest University School of Medicine</institution>,<addr-line>Winston-Salem, North Carolina</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Tchuvatkina, Olga" sort="Tchuvatkina, Olga" uniqKey="Tchuvatkina O" first="Olga" last="Tchuvatkina">Olga Tchuvatkina</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Courtney, Paul K" sort="Courtney, Paul K" uniqKey="Courtney P" first="Paul K" last="Courtney">Paul K. Courtney</name><affiliation><nlm:aff id="af6"><institution>Dana-Farber Cancer Institute</institution>,<addr-line>Boston, Massachusetts</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Moser, Richard P" sort="Moser, Richard P" uniqKey="Moser R" first="Richard P" last="Moser">Richard P. Moser</name><affiliation><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Shaikh, Abdul R" sort="Shaikh, Abdul R" uniqKey="Shaikh A" first="Abdul R" last="Shaikh">Abdul R. Shaikh</name><affiliation><nlm:aff id="af8"><institution>PricewaterhouseCoopers LLP</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name><affiliation><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Cooper, Mary" sort="Cooper, Mary" uniqKey="Cooper M" first="Mary" last="Cooper">Mary Cooper</name><affiliation><nlm:aff id="af9"><institution>Science Applications International Corporation</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Reeves, Dianne" sort="Reeves, Dianne" uniqKey="Reeves D" first="Dianne" last="Reeves">Dianne Reeves</name><affiliation><nlm:aff id="af10"><institution>National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Lanese, Bob" sort="Lanese, Bob" uniqKey="Lanese B" first="Bob" last="Lanese">Bob Lanese</name><affiliation><nlm:aff id="af11"><institution>Ireland Cancer Center, Case Western Reserve University</institution>,<addr-line>Cleveland, Ohio</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Helba, Cindy" sort="Helba, Cindy" uniqKey="Helba C" first="Cindy" last="Helba">Cindy Helba</name><affiliation><nlm:aff id="af12"><institution>Westat</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Miller, Suzanne M" sort="Miller, Suzanne M" uniqKey="Miller S" first="Suzanne M" last="Miller">Suzanne M. Miller</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Ross, Eric A" sort="Ross, Eric A" uniqKey="Ross E" first="Eric A" last="Ross">Eric A. Ross</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">24076749</idno><idno type="pmc">4078270</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4078270</idno><idno type="RBID">PMC:4078270</idno><idno type="doi">10.1136/amiajnl-2013-001763</idno><date when="2013">2013</date><idno type="wicri:Area/Pmc/Corpus">000364</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Sharing behavioral data through a grid infrastructure using data standards</title><author><name sortKey="Min, Hua" sort="Min, Hua" uniqKey="Min H" first="Hua" last="Min">Hua Min</name><affiliation><nlm:aff id="af1"><addr-line>Department of Health Administration and Policy</addr-line>,<institution>College of Health and Human Services, George Mason University</institution>,<addr-line>Fairfax, Virginia</addr-line>,<country>USA</country></nlm:aff></affiliation><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Ohira, Riki" sort="Ohira, Riki" uniqKey="Ohira R" first="Riki" last="Ohira">Riki Ohira</name><affiliation><nlm:aff id="af3"><institution>Booz Allen Hamilton</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Collins, Michael A" sort="Collins, Michael A" uniqKey="Collins M" first="Michael A" last="Collins">Michael A. Collins</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Bondy, Jessica" sort="Bondy, Jessica" uniqKey="Bondy J" first="Jessica" last="Bondy">Jessica Bondy</name><affiliation><nlm:aff id="af4"><institution>University of Colorado Denver</institution>,<addr-line>Denver, Colorado</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Avis, Nancy E" sort="Avis, Nancy E" uniqKey="Avis N" first="Nancy E" last="Avis">Nancy E. Avis</name><affiliation><nlm:aff id="af5"><addr-line>Department of Social Sciences and Health Policy</addr-line>,<institution>Wake Forest University School of Medicine</institution>,<addr-line>Winston-Salem, North Carolina</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Tchuvatkina, Olga" sort="Tchuvatkina, Olga" uniqKey="Tchuvatkina O" first="Olga" last="Tchuvatkina">Olga Tchuvatkina</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Courtney, Paul K" sort="Courtney, Paul K" uniqKey="Courtney P" first="Paul K" last="Courtney">Paul K. Courtney</name><affiliation><nlm:aff id="af6"><institution>Dana-Farber Cancer Institute</institution>,<addr-line>Boston, Massachusetts</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Moser, Richard P" sort="Moser, Richard P" uniqKey="Moser R" first="Richard P" last="Moser">Richard P. Moser</name><affiliation><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Shaikh, Abdul R" sort="Shaikh, Abdul R" uniqKey="Shaikh A" first="Abdul R" last="Shaikh">Abdul R. Shaikh</name><affiliation><nlm:aff id="af8"><institution>PricewaterhouseCoopers LLP</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name><affiliation><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Cooper, Mary" sort="Cooper, Mary" uniqKey="Cooper M" first="Mary" last="Cooper">Mary Cooper</name><affiliation><nlm:aff id="af9"><institution>Science Applications International Corporation</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Reeves, Dianne" sort="Reeves, Dianne" uniqKey="Reeves D" first="Dianne" last="Reeves">Dianne Reeves</name><affiliation><nlm:aff id="af10"><institution>National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Lanese, Bob" sort="Lanese, Bob" uniqKey="Lanese B" first="Bob" last="Lanese">Bob Lanese</name><affiliation><nlm:aff id="af11"><institution>Ireland Cancer Center, Case Western Reserve University</institution>,<addr-line>Cleveland, Ohio</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Helba, Cindy" sort="Helba, Cindy" uniqKey="Helba C" first="Cindy" last="Helba">Cindy Helba</name><affiliation><nlm:aff id="af12"><institution>Westat</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Miller, Suzanne M" sort="Miller, Suzanne M" uniqKey="Miller S" first="Suzanne M" last="Miller">Suzanne M. Miller</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author><author><name sortKey="Ross, Eric A" sort="Ross, Eric A" uniqKey="Ross E" first="Eric A" last="Ross">Eric A. Ross</name><affiliation><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff></affiliation></author></analytic><series><title level="j">Journal of the American Medical Informatics Association : JAMIA</title><idno type="ISSN">1067-5027</idno><idno type="eISSN">1527-974X</idno><imprint><date when="2013">2013</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Objective</title><p>In an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR).</p></sec><sec><title>Methods</title><p>The methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR.</p></sec><sec><title>Results</title><p>UML models have been developed for four GEM measures, which have been registered in the caDSR as CDE. New behavioral concepts related to these measures have been created and incorporated into the NCI thesaurus. Best practices for representing measures using UML models have been utilized in the practice (eg, caDSR). One dataset based on a GEM-curated measure is available for use by other systems and users connected to the grid.</p></sec><sec><title>Conclusions</title><p>Behavioral and population science data can be standardized by using and extending current standards. A new branch of CDE for behavioral science was developed for the caDSR. It expands the caDSR domain coverage beyond the clinical and biological areas. In addition, missing terms and concepts specific to the behavioral measures addressed in this paper were added to the NCI thesaurus. A methodology was developed and refined for curation of behavioral and population science data.</p></sec></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<front><journal-meta><journal-id journal-id-type="nlm-ta">J Am Med Inform Assoc</journal-id><journal-id journal-id-type="iso-abbrev">J Am Med Inform Assoc</journal-id><journal-id journal-id-type="hwp">amiajnl</journal-id><journal-id journal-id-type="publisher-id">jamia</journal-id><journal-title-group><journal-title>Journal of the American Medical Informatics Association : JAMIA</journal-title></journal-title-group><issn pub-type="ppub">1067-5027</issn><issn pub-type="epub">1527-974X</issn><publisher><publisher-name>BMJ Publishing Group</publisher-name><publisher-loc>BMA House, Tavistock Square, London, WC1H 9JR</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">24076749</article-id><article-id pub-id-type="pmc">4078270</article-id><article-id pub-id-type="publisher-id">amiajnl-2013-001763</article-id><article-id pub-id-type="doi">10.1136/amiajnl-2013-001763</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research and Applications</subject></subj-group></article-categories><title-group><article-title>Sharing behavioral data through a grid infrastructure using data standards</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Min</surname><given-names>Hua</given-names></name><xref ref-type="aff" rid="af1">1</xref><xref ref-type="aff" rid="af2">2</xref></contrib><contrib contrib-type="author"><name><surname>Ohira</surname><given-names>Riki</given-names></name><xref ref-type="aff" rid="af3">3</xref></contrib><contrib contrib-type="author"><name><surname>Collins</surname><given-names>Michael A</given-names></name><xref ref-type="aff" rid="af2">2</xref></contrib><contrib contrib-type="author"><name><surname>Bondy</surname><given-names>Jessica</given-names></name><xref ref-type="aff" rid="af4">4</xref></contrib><contrib contrib-type="author"><name><surname>Avis</surname><given-names>Nancy E</given-names></name><xref ref-type="aff" rid="af5">5</xref></contrib><contrib contrib-type="author"><name><surname>Tchuvatkina</surname><given-names>Olga</given-names></name><xref ref-type="aff" rid="af2">2</xref></contrib><contrib contrib-type="author"><name><surname>Courtney</surname><given-names>Paul K</given-names></name><xref ref-type="aff" rid="af6">6</xref></contrib><contrib contrib-type="author"><name><surname>Moser</surname><given-names>Richard P</given-names></name><xref ref-type="aff" rid="af7">7</xref></contrib><contrib contrib-type="author"><name><surname>Shaikh</surname><given-names>Abdul R</given-names></name><xref ref-type="aff" rid="af8">8</xref></contrib><contrib contrib-type="author"><name><surname>Hesse</surname><given-names>Bradford W</given-names></name><xref ref-type="aff" rid="af7">7</xref></contrib><contrib contrib-type="author"><name><surname>Cooper</surname><given-names>Mary</given-names></name><xref ref-type="aff" rid="af9">9</xref></contrib><contrib contrib-type="author"><name><surname>Reeves</surname><given-names>Dianne</given-names></name><xref ref-type="aff" rid="af10">10</xref></contrib><contrib contrib-type="author"><name><surname>Lanese</surname><given-names>Bob</given-names></name><xref ref-type="aff" rid="af11">11</xref></contrib><contrib contrib-type="author"><name><surname>Helba</surname><given-names>Cindy</given-names></name><xref ref-type="aff" rid="af12">12</xref></contrib><contrib contrib-type="author"><name><surname>Miller</surname><given-names>Suzanne M</given-names></name><xref ref-type="aff" rid="af2">2</xref></contrib><contrib contrib-type="author"><name><surname>Ross</surname><given-names>Eric A</given-names></name><xref ref-type="aff" rid="af2">2</xref></contrib></contrib-group><aff id="af1"><label>1</label><addr-line>Department of Health Administration and Policy</addr-line>,<institution>College of Health and Human Services, George Mason University</institution>,<addr-line>Fairfax, Virginia</addr-line>,<country>USA</country></aff><aff id="af2"><label>2</label><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></aff><aff id="af3"><label>3</label><institution>Booz Allen Hamilton</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></aff><aff id="af4"><label>4</label><institution>University of Colorado Denver</institution>,<addr-line>Denver, Colorado</addr-line>,<country>USA</country></aff><aff id="af5"><label>5</label><addr-line>Department of Social Sciences and Health Policy</addr-line>,<institution>Wake Forest University School of Medicine</institution>,<addr-line>Winston-Salem, North Carolina</addr-line>,<country>USA</country></aff><aff id="af6"><label>6</label><institution>Dana-Farber Cancer Institute</institution>,<addr-line>Boston, Massachusetts</addr-line>,<country>USA</country></aff><aff id="af7"><label>7</label><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></aff><aff id="af8"><label>8</label><institution>PricewaterhouseCoopers LLP</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></aff><aff id="af9"><label>9</label><institution>Science Applications International Corporation</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></aff><aff id="af10"><label>10</label><institution>National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></aff><aff id="af11"><label>11</label><institution>Ireland Cancer Center, Case Western Reserve University</institution>,<addr-line>Cleveland, Ohio</addr-line>,<country>USA</country></aff><aff id="af12"><label>12</label><institution>Westat</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></aff><author-notes><corresp><label>Correspondence to</label> Dr Hua Min, Department of Health Administration and Policy, College of Health and Human Services, 4400 University Drive – MS1J3, George Mason University, Fairfax, VA 22030, USA; <email>gmu3@gmu.edu</email></corresp></author-notes><pub-date pub-type="ppub"><month>7</month><year>2014</year></pub-date><pub-date pub-type="epub"><day>27</day><month>9</month><year>2013</year></pub-date><volume>21</volume><issue>4</issue><fpage>642</fpage><lpage>649</lpage><history><date date-type="received"><day>25</day><month>2</month><year>2013</year></date><date date-type="rev-recd"><day>21</day><month>8</month><year>2013</year></date><date date-type="accepted"><day>9</day><month>9</month><year>2013</year></date></history><permissions><copyright-statement>Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</copyright-statement><copyright-year>2014</copyright-year></permissions><self-uri xlink:title="pdf" xlink:type="simple" xlink:href="amiajnl-2013-001763.pdf"></self-uri><abstract><sec><title>Objective</title><p>In an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR).</p></sec><sec><title>Methods</title><p>The methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR.</p></sec><sec><title>Results</title><p>UML models have been developed for four GEM measures, which have been registered in the caDSR as CDE. New behavioral concepts related to these measures have been created and incorporated into the NCI thesaurus. Best practices for representing measures using UML models have been utilized in the practice (eg, caDSR). One dataset based on a GEM-curated measure is available for use by other systems and users connected to the grid.</p></sec><sec><title>Conclusions</title><p>Behavioral and population science data can be standardized by using and extending current standards. A new branch of CDE for behavioral science was developed for the caDSR. It expands the caDSR domain coverage beyond the clinical and biological areas. In addition, missing terms and concepts specific to the behavioral measures addressed in this paper were added to the NCI thesaurus. A methodology was developed and refined for curation of behavioral and population science data.</p></sec></abstract><kwd-group><kwd>Common Data Element</kwd><kwd>Vocabulary</kwd><kwd>Ontology</kwd><kwd>Behavioral Measure</kwd><kwd>Grid Infrastructure</kwd><kwd>Data Sharing</kwd></kwd-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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