Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis
Identifieur interne : 000674 ( Main/Exploration ); précédent : 000673; suivant : 000675Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis
Auteurs : Andrew Soundy [Royaume-Uni] ; Nicola Condon [Royaume-Uni]Source :
- Frontiers in Psychology [ 1664-1078 ] ; 2015.
Abstract
Research is required that can synthesize the experiences of patients with Motor Neuron Disease (MND). One value of being able to do this is to understand the psychological experiences and processes involved in maintaining mental well-being and hope. A qualitative thematic synthesis of studies was undertaken. Studies were electronically searched from inception until June 2014. Twenty-nine studies with 342 (175 male) unique individuals with MND were identified. Five themes were identified: (1)The effects of the disease on interactions, relationships, roles and meaningful activities, (2) Responses that relate to the expression of hope, (3) Factors which disable hope, (4) Factors which enable hope, and (5) Cognitive and Practical adaptation that enabled hope, control and coping. Finally, a model of hope enablement was identified that considers the psychological pathways undertaken by a patient which influence mental well-being and hope. Within this review article evidence is provided which illustrates the central importance of relationships and social support for individuals with MND. Further, it has been identified that periods of coping are possible and are likely associated with greater mental well-being for patients with MND.
Url:
DOI: 10.3389/fpsyg.2015.00606
PubMed: 26029142
PubMed Central: 4428059
Affiliations:
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One value of being able to do this is to understand the psychological experiences and processes involved in maintaining mental well-being and hope. A qualitative thematic synthesis of studies was undertaken. Studies were electronically searched from inception until June 2014. Twenty-nine studies with 342 (175 male) unique individuals with MND were identified. Five themes were identified: (1)The effects of the disease on interactions, relationships, roles and meaningful activities, (2) Responses that relate to the expression of hope, (3) Factors which disable hope, (4) Factors which enable hope, and (5) Cognitive and Practical adaptation that enabled hope, control and coping. Finally, a model of hope enablement was identified that considers the psychological pathways undertaken by a patient which influence mental well-being and hope. Within this review article evidence is provided which illustrates the central importance of relationships and social support for individuals with MND. Further, it has been identified that periods of coping are possible and are likely associated with greater mental well-being for patients with MND.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Abdulla, S" uniqKey="Abdulla S">S. Abdulla</name></author><author><name sortKey="Vielhaber, S" uniqKey="Vielhaber S">S. Vielhaber</name></author><author><name sortKey="Machts, J" uniqKey="Machts J">J. Machts</name></author><author><name sortKey="Heinze, H J" uniqKey="Heinze H">H.-J. Heinze</name></author><author><name sortKey="Dengler, R" uniqKey="Dengler R">R. Dengler</name></author><author><name sortKey="Petri, S" uniqKey="Petri S">S. Petri</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Achi, E Y" uniqKey="Achi E">E. Y. Achi</name></author><author><name sortKey="Rudnicki, S A" uniqKey="Rudnicki S">S. A. 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McNicoll</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Royaume-Uni</li></country></list><tree><country name="Royaume-Uni"><noRegion><name sortKey="Soundy, Andrew" sort="Soundy, Andrew" uniqKey="Soundy A" first="Andrew" last="Soundy">Andrew Soundy</name></noRegion><name sortKey="Condon, Nicola" sort="Condon, Nicola" uniqKey="Condon N" first="Nicola" last="Condon">Nicola Condon</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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