Family-Centered Care During the COVID-19 Era
Identifieur interne : 000189 ( Pmc/Curation ); précédent : 000188; suivant : 000190Family-Centered Care During the COVID-19 Era
Auteurs : Joanna L. Hart [États-Unis] ; Alison E. Turnbull [États-Unis] ; Ian M. Oppenheim [États-Unis] ; Katherine R. Courtright [États-Unis]Source :
- Journal of Pain and Symptom Management [ 0885-3924 ] ; 2020.
Abstract
Family support is more, not less, important during crisis. However, during the COVID-19 pandemic, maintaining public safety necessitates restricting the physical presence of families for hospitalized patients. In response, health systems must rapidly adapt family-centric procedures and tools to circumvent restrictions on physical presence. Strategies for maintaining family integrity must acknowledge clinicians’ limited time and attention to devote to learning new skills. Internet-based solutions can facilitate the routine, predictable, and structured communication which is central to family-centered care. But the reliance on technology may compromise patient privacy and exacerbate racial, socioeconomic, and geographic disparities for populations that lack access to reliable internet access, devices or technological literacy. We provide a toolbox of strategies for supporting family-centered inpatient care during physical distancing responsive to the current clinical climate. Innovations in the implementation of family involvement during hospitalizations may lead to long-term progress in the delivery of family-centered care.
Url:
DOI: 10.1016/j.jpainsymman.2020.04.017
PubMed: 32333961
PubMed Central: 7175858
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Hart</name><affiliation wicri:level="1"><nlm:aff id="aff1">Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff2">Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff3">Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="2"><nlm:aff id="aff4">Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Pennsylvanie</region></placeName><wicri:cityArea>Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia</wicri:cityArea></affiliation></author><author><name sortKey="Turnbull, Alison E" sort="Turnbull, Alison E" uniqKey="Turnbull A" first="Alison E." last="Turnbull">Alison E. 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Hart</name><affiliation wicri:level="1"><nlm:aff id="aff1">Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff2">Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff3">Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="2"><nlm:aff id="aff4">Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Pennsylvanie</region></placeName><wicri:cityArea>Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia</wicri:cityArea></affiliation></author><author><name sortKey="Turnbull, Alison E" sort="Turnbull, Alison E" uniqKey="Turnbull A" first="Alison E." last="Turnbull">Alison E. Turnbull</name><affiliation wicri:level="1"><nlm:aff id="aff5">Division of Pulmonary and Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Pulmonary and Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff6">Department of Epidemiology, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Epidemiology, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff7">Outcomes After Critical Illness and Surgery (OACIS) Group, Johns Hopkins University, Baltimore, MD, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Outcomes After Critical Illness and Surgery (OACIS) Group, Johns Hopkins University, Baltimore, MD</wicri:regionArea></affiliation></author><author><name sortKey="Oppenheim, Ian M" sort="Oppenheim, Ian M" uniqKey="Oppenheim I" first="Ian M." last="Oppenheim">Ian M. Oppenheim</name><affiliation wicri:level="1"><nlm:aff id="aff5">Division of Pulmonary and Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Pulmonary and Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD</wicri:regionArea></affiliation></author><author><name sortKey="Courtright, Katherine R" sort="Courtright, Katherine R" uniqKey="Courtright K" first="Katherine R." last="Courtright">Katherine R. Courtright</name><affiliation wicri:level="1"><nlm:aff id="aff1">Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="aff2">Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea></affiliation><affiliation wicri:level="2"><nlm:aff id="aff4">Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Pennsylvanie</region></placeName><wicri:cityArea>Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia</wicri:cityArea></affiliation></author></analytic><series><title level="j">Journal of Pain and Symptom Management</title><idno type="ISSN">0885-3924</idno><idno type="eISSN">1873-6513</idno><imprint><date when="2020">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p>Family support is more, not less, important during crisis. However, during the COVID-19 pandemic, maintaining public safety necessitates restricting the physical presence of families for hospitalized patients. In response, health systems must rapidly adapt family-centric procedures and tools to circumvent restrictions on physical presence. Strategies for maintaining family integrity must acknowledge clinicians’ limited time and attention to devote to learning new skills. Internet-based solutions can facilitate the routine, predictable, and structured communication which is central to family-centered care. But the reliance on technology may compromise patient privacy and exacerbate racial, socioeconomic, and geographic disparities for populations that lack access to reliable internet access, devices or technological literacy. We provide a toolbox of strategies for supporting family-centered inpatient care during physical distancing responsive to the current clinical climate. Innovations in the implementation of family involvement during hospitalizations may lead to long-term progress in the delivery of family-centered care.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Davidson, J E" uniqKey="Davidson J">J.E. Davidson</name></author><author><name sortKey="Aslakson, R A" uniqKey="Aslakson R">R.A. Aslakson</name></author><author><name sortKey="Long, A C" uniqKey="Long A">A.C. Long</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Howe, E G" uniqKey="Howe E">E.G. Howe</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Papadimos, T J" uniqKey="Papadimos T">T.J. Papadimos</name></author><author><name sortKey="Marcolini, E G" uniqKey="Marcolini E">E.G. Marcolini</name></author><author><name sortKey="Hadian, M" uniqKey="Hadian M">M. Hadian</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Lewnard, J A" uniqKey="Lewnard J">J.A. Lewnard</name></author><author><name sortKey="Lo, N C" uniqKey="Lo N">N.C. Lo</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Curtis, J R" uniqKey="Curtis J">J.R. Curtis</name></author><author><name sortKey="Kross, E K" uniqKey="Kross E">E.K. Kross</name></author><author><name sortKey="Stapleton, R D" uniqKey="Stapleton R">R.D. Stapleton</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Ashana, D C" uniqKey="Ashana D">D.C. Ashana</name></author><author><name sortKey="Lewis, C" uniqKey="Lewis C">C. Lewis</name></author><author><name sortKey="Hart, J L" uniqKey="Hart J">J.L. Hart</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="White, D B" uniqKey="White D">D.B. White</name></author><author><name sortKey="Lo, B" uniqKey="Lo B">B. Lo</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Cypress, B S" uniqKey="Cypress B">B.S. Cypress</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mast, M S" uniqKey="Mast M">M.S. Mast</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Rose, S" uniqKey="Rose S">S. Rose</name></author></analytic></biblStruct></listBibl></div1></back></TEI><pmc article-type="brief-report"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">J Pain Symptom Manage</journal-id><journal-id journal-id-type="iso-abbrev">J Pain Symptom Manage</journal-id><journal-title-group><journal-title>Journal of Pain and Symptom Management</journal-title></journal-title-group><issn pub-type="ppub">0885-3924</issn><issn pub-type="epub">1873-6513</issn><publisher><publisher-name>American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc.</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">32333961</article-id><article-id pub-id-type="pmc">7175858</article-id><article-id pub-id-type="publisher-id">S0885-3924(20)30208-6</article-id><article-id pub-id-type="doi">10.1016/j.jpainsymman.2020.04.017</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>Family-Centered Care During the COVID-19 Era</article-title></title-group><contrib-group><contrib contrib-type="author" id="au1"><name><surname>Hart</surname><given-names>Joanna L.</given-names></name><degrees>MD, MSHP</degrees><xref rid="aff1" ref-type="aff">1</xref><xref rid="aff2" ref-type="aff">2</xref><xref rid="aff3" ref-type="aff">3</xref><xref rid="aff4" ref-type="aff">4</xref></contrib><contrib contrib-type="author" id="au2"><name><surname>Turnbull</surname><given-names>Alison E.</given-names></name><degrees>DVM, MPH, PhD</degrees><email>turnbull@jhmi.edu</email><xref rid="aff5" ref-type="aff">5</xref><xref rid="aff6" ref-type="aff">6</xref><xref rid="aff7" ref-type="aff">7</xref><xref rid="cor1" ref-type="corresp">∗</xref></contrib><contrib contrib-type="author" id="au3"><name><surname>Oppenheim</surname><given-names>Ian M.</given-names></name><degrees>MD</degrees><xref rid="aff5" ref-type="aff">5</xref></contrib><contrib contrib-type="author" id="au4"><name><surname>Courtright</surname><given-names>Katherine R.</given-names></name><degrees>MD, MS</degrees><xref rid="aff1" ref-type="aff">1</xref><xref rid="aff2" ref-type="aff">2</xref><xref rid="aff4" ref-type="aff">4</xref></contrib><aff id="aff1"><label>1</label>Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</aff><aff id="aff2"><label>2</label>Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</aff><aff id="aff3"><label>3</label>Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</aff><aff id="aff4"><label>4</label>Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA</aff><aff id="aff5"><label>5</label>Division of Pulmonary and Critical Care Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD, USA</aff><aff id="aff6"><label>6</label>Department of Epidemiology, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA</aff><aff id="aff7"><label>7</label>Outcomes After Critical Illness and Surgery (OACIS) Group, Johns Hopkins University, Baltimore, MD, USA</aff></contrib-group><author-notes><corresp id="cor1"><label>∗</label><bold>Corresponding Author:</bold> Alison E. Turnbull, DVM, MPH, PhD, Pulmonary and Critical Care Medicine, Johns Hopkins University, 1830 E. Monument St, 5th Flr, Baltimore, MD 21205, , Tel: +1 410 955 2190 <email>turnbull@jhmi.edu</email></corresp></author-notes><pub-date pub-type="pmc-release"><day>22</day><month>4</month><year>2020</year></pub-date><pmc-comment> PMC Release delay is 0 months and 0 days and was based on .</pmc-comment>
<pub-date pub-type="epub"><day>22</day><month>4</month><year>2020</year></pub-date><history><date date-type="received"><day>7</day><month>4</month><year>2020</year></date><date date-type="rev-recd"><day>10</day><month>4</month><year>2020</year></date><date date-type="accepted"><day>14</day><month>4</month><year>2020</year></date></history><permissions><copyright-statement>© 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.</copyright-statement><copyright-year>2020</copyright-year><copyright-holder>American Academy of Hospice and Palliative Medicine</copyright-holder><license><license-p>Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.</license-p></license></permissions><abstract id="abs0010"><p>Family support is more, not less, important during crisis. However, during the COVID-19 pandemic, maintaining public safety necessitates restricting the physical presence of families for hospitalized patients. In response, health systems must rapidly adapt family-centric procedures and tools to circumvent restrictions on physical presence. Strategies for maintaining family integrity must acknowledge clinicians’ limited time and attention to devote to learning new skills. Internet-based solutions can facilitate the routine, predictable, and structured communication which is central to family-centered care. But the reliance on technology may compromise patient privacy and exacerbate racial, socioeconomic, and geographic disparities for populations that lack access to reliable internet access, devices or technological literacy. We provide a toolbox of strategies for supporting family-centered inpatient care during physical distancing responsive to the current clinical climate. Innovations in the implementation of family involvement during hospitalizations may lead to long-term progress in the delivery of family-centered care.</p></abstract><kwd-group id="kwrds0010"><title>Keywords</title><kwd>Communication</kwd><kwd>Patient Care Planning</kwd><kwd>Critical Care</kwd><kwd>Family-centered care</kwd></kwd-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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