The Family Caregiving Crisis Meets an Actual Pandemic
Identifieur interne : 000096 ( Pmc/Checkpoint ); précédent : 000095; suivant : 000097The Family Caregiving Crisis Meets an Actual Pandemic
Auteurs : Erin E. Kent [États-Unis] ; Katherine A. Ornstein [États-Unis] ; J. Nicholas Dionne-Odom [États-Unis]Source :
- Journal of Pain and Symptom Management [ 0885-3924 ] ; 2020.
Abstract
The coronavirus disease 2019 (COVID-19) pandemic presents unique challenges to those who work with the seriously ill population, including both health care providers and the family caregivers providing unpaid care. We rely on this lay workforce as health care routinely transitions care to the home, and now more than ever, we are depending on them in the current pandemic. As palliative care and other health care providers become overwhelmed with patients critically ill with COVID-19, and routine care becomes delayed, we have a charge to recognize and work with family caregivers. Our commentary provides rationale for the need to focus on family caregivers and key considerations for how to include them in pandemic clinical decision making.
Url:
DOI: 10.1016/j.jpainsymman.2020.04.006
PubMed: 32283220
PubMed Central: 7151363
Affiliations:
- États-Unis
- Alabama, Caroline du Nord, État de New York
- Chapel Hill (Caroline du Nord)
- Université de Caroline du Nord à Chapel Hill
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Kent</name><affiliation wicri:level="4"><nlm:aff id="aff1">Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina</wicri:regionArea><placeName><region type="state">Caroline du Nord</region><settlement type="city">Chapel Hill (Caroline du Nord)</settlement></placeName><orgName type="university">Université de Caroline du Nord à Chapel Hill</orgName></affiliation></author><author><name sortKey="Ornstein, Katherine A" sort="Ornstein, Katherine A" uniqKey="Ornstein K" first="Katherine A." last="Ornstein">Katherine A. Ornstein</name><affiliation wicri:level="2"><nlm:aff id="aff2">Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Dionne Odom, J Nicholas" sort="Dionne Odom, J Nicholas" uniqKey="Dionne Odom J" first="J. Nicholas" last="Dionne-Odom">J. Nicholas Dionne-Odom</name><affiliation wicri:level="2"><nlm:aff id="aff3">Caregiver and Bereavement Support Services, UAB Center for Palliative and Supportive Care, School of Nursing, The University of Alabama at Birmingham, Birmingham, Alabama, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Caregiver and Bereavement Support Services, UAB Center for Palliative and Supportive Care, School of Nursing, The University of Alabama at Birmingham, Birmingham, Alabama</wicri:regionArea><placeName><region type="state">Alabama</region></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">32283220</idno><idno type="pmc">7151363</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7151363</idno><idno type="RBID">PMC:7151363</idno><idno type="doi">10.1016/j.jpainsymman.2020.04.006</idno><date when="2020">2020</date><idno type="wicri:Area/Pmc/Corpus">000188</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000188</idno><idno type="wicri:Area/Pmc/Curation">000188</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">000188</idno><idno type="wicri:Area/Pmc/Checkpoint">000096</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">000096</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">The Family Caregiving Crisis Meets an Actual Pandemic</title><author><name sortKey="Kent, Erin E" sort="Kent, Erin E" uniqKey="Kent E" first="Erin E." last="Kent">Erin E. Kent</name><affiliation wicri:level="4"><nlm:aff id="aff1">Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina</wicri:regionArea><placeName><region type="state">Caroline du Nord</region><settlement type="city">Chapel Hill (Caroline du Nord)</settlement></placeName><orgName type="university">Université de Caroline du Nord à Chapel Hill</orgName></affiliation></author><author><name sortKey="Ornstein, Katherine A" sort="Ornstein, Katherine A" uniqKey="Ornstein K" first="Katherine A." last="Ornstein">Katherine A. Ornstein</name><affiliation wicri:level="2"><nlm:aff id="aff2">Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Dionne Odom, J Nicholas" sort="Dionne Odom, J Nicholas" uniqKey="Dionne Odom J" first="J. Nicholas" last="Dionne-Odom">J. Nicholas Dionne-Odom</name><affiliation wicri:level="2"><nlm:aff id="aff3">Caregiver and Bereavement Support Services, UAB Center for Palliative and Supportive Care, School of Nursing, The University of Alabama at Birmingham, Birmingham, Alabama, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Caregiver and Bereavement Support Services, UAB Center for Palliative and Supportive Care, School of Nursing, The University of Alabama at Birmingham, Birmingham, Alabama</wicri:regionArea><placeName><region type="state">Alabama</region></placeName></affiliation></author></analytic><series><title level="j">Journal of Pain and Symptom Management</title><idno type="ISSN">0885-3924</idno><idno type="eISSN">1873-6513</idno><imprint><date when="2020">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p>The coronavirus disease 2019 (COVID-19) pandemic presents unique challenges to those who work with the seriously ill population, including both health care providers and the family caregivers providing unpaid care. We rely on this lay workforce as health care routinely transitions care to the home, and now more than ever, we are depending on them in the current pandemic. As palliative care and other health care providers become overwhelmed with patients critically ill with COVID-19, and routine care becomes delayed, we have a charge to recognize and work with family caregivers. Our commentary provides rationale for the need to focus on family caregivers and key considerations for how to include them in pandemic clinical decision making.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Holt Lunstad, J" uniqKey="Holt Lunstad J">J. Holt-Lunstad</name></author><author><name sortKey="Smith, T B" uniqKey="Smith T">T.B. Smith</name></author><author><name sortKey="Baker, M" uniqKey="Baker M">M. Baker</name></author><author><name sortKey="Harris, T" uniqKey="Harris T">T. Harris</name></author><author><name sortKey="Stephenson, D" uniqKey="Stephenson D">D. Stephenson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Cross, S H" uniqKey="Cross S">S.H. Cross</name></author><author><name sortKey="Warraich, H J" uniqKey="Warraich H">H.J. Warraich</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Bedard, M" uniqKey="Bedard M">M. Bedard</name></author><author><name sortKey="Molloy, D W" uniqKey="Molloy D">D.W. Molloy</name></author><author><name sortKey="Squire, L" uniqKey="Squire L">L. Squire</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Shaffer, K M" uniqKey="Shaffer K">K.M. Shaffer</name></author><author><name sortKey="Benvengo, S" uniqKey="Benvengo S">S. Benvengo</name></author><author><name sortKey="Zaleta, A K" uniqKey="Zaleta A">A.K. Zaleta</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Chi, N C" uniqKey="Chi N">N.C. Chi</name></author><author><name sortKey="Demiris, G" uniqKey="Demiris G">G. Demiris</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Badr, H" uniqKey="Badr H">H. Badr</name></author><author><name sortKey="Bakhshaie, J" uniqKey="Bakhshaie J">J. Bakhshaie</name></author><author><name sortKey="Chhabria, K" uniqKey="Chhabria K">K. Chhabria</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct></listBibl></div1></back></TEI><pmc article-type="brief-report"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">J Pain Symptom Manage</journal-id><journal-id journal-id-type="iso-abbrev">J Pain Symptom Manage</journal-id><journal-title-group><journal-title>Journal of Pain and Symptom Management</journal-title></journal-title-group><issn pub-type="ppub">0885-3924</issn><issn pub-type="epub">1873-6513</issn><publisher><publisher-name>American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc.</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">32283220</article-id><article-id pub-id-type="pmc">7151363</article-id><article-id pub-id-type="publisher-id">S0885-3924(20)30203-7</article-id><article-id pub-id-type="doi">10.1016/j.jpainsymman.2020.04.006</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>The Family Caregiving Crisis Meets an Actual Pandemic</article-title></title-group><contrib-group><contrib contrib-type="author" id="au1"><name><surname>Kent</surname><given-names>Erin E.</given-names></name><degrees>PhD, MS</degrees><email>erin.kent@unc.edu</email><xref rid="aff1" ref-type="aff">a</xref><xref rid="cor1" ref-type="corresp">∗</xref></contrib><contrib contrib-type="author" id="au2"><name><surname>Ornstein</surname><given-names>Katherine A.</given-names></name><degrees>PhD, MPH</degrees><xref rid="aff2" ref-type="aff">b</xref></contrib><contrib contrib-type="author" id="au3"><name><surname>Dionne-Odom</surname><given-names>J. Nicholas</given-names></name><degrees>PhD, APRN, ACHPN</degrees><xref rid="aff3" ref-type="aff">c</xref></contrib><aff id="aff1"><label>a</label>Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA</aff><aff id="aff2"><label>b</label>Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA</aff><aff id="aff3"><label>c</label>Caregiver and Bereavement Support Services, UAB Center for Palliative and Supportive Care, School of Nursing, The University of Alabama at Birmingham, Birmingham, Alabama, USA</aff></contrib-group><author-notes><corresp id="cor1"><label>∗</label><italic>Address correspondence to:</italic> Erin E. Kent, PhD, MS, Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, 1102B McGavran_Greenberg Hall, CB #7411, Chapel Hill, NC 27599-7411, USA. <email>erin.kent@unc.edu</email></corresp></author-notes><pub-date pub-type="pmc-release"><day>10</day><month>4</month><year>2020</year></pub-date><pmc-comment> PMC Release delay is 0 months and 0 days and was based on .</pmc-comment>
<pub-date pub-type="epub"><day>10</day><month>4</month><year>2020</year></pub-date><history><date date-type="accepted"><day>8</day><month>4</month><year>2020</year></date></history><permissions><copyright-statement>© 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.</copyright-statement><copyright-year>2020</copyright-year><copyright-holder>American Academy of Hospice and Palliative Medicine</copyright-holder><license><license-p>Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.</license-p></license></permissions><abstract id="abs0010"><p>The coronavirus disease 2019 (COVID-19) pandemic presents unique challenges to those who work with the seriously ill population, including both health care providers and the family caregivers providing unpaid care. We rely on this lay workforce as health care routinely transitions care to the home, and now more than ever, we are depending on them in the current pandemic. As palliative care and other health care providers become overwhelmed with patients critically ill with COVID-19, and routine care becomes delayed, we have a charge to recognize and work with family caregivers. Our commentary provides rationale for the need to focus on family caregivers and key considerations for how to include them in pandemic clinical decision making.</p></abstract><kwd-group id="kwrds0010"><title>Key Words</title><kwd>Family caregivers</kwd><kwd>COVID-19</kwd><kwd>pandemic</kwd><kwd>palliative and supportive care</kwd></kwd-group></article-meta></front></pmc><affiliations><list><country><li>États-Unis</li></country><region><li>Alabama</li><li>Caroline du Nord</li><li>État de New York</li></region><settlement><li>Chapel Hill (Caroline du Nord)</li></settlement><orgName><li>Université de Caroline du Nord à Chapel Hill</li></orgName></list><tree><country name="États-Unis"><region name="Caroline du Nord"><name sortKey="Kent, Erin E" sort="Kent, Erin E" uniqKey="Kent E" first="Erin E." last="Kent">Erin E. Kent</name></region><name sortKey="Dionne Odom, J Nicholas" sort="Dionne Odom, J Nicholas" uniqKey="Dionne Odom J" first="J. Nicholas" last="Dionne-Odom">J. Nicholas Dionne-Odom</name><name sortKey="Ornstein, Katherine A" sort="Ornstein, Katherine A" uniqKey="Ornstein K" first="Katherine A." last="Ornstein">Katherine A. Ornstein</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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