The experience of SARS-related stigma at Amoy Gardens.
Identifieur interne : 002719 ( PubMed/Corpus ); précédent : 002718; suivant : 002720The experience of SARS-related stigma at Amoy Gardens.
Auteurs : Sing Lee ; Lydia Y Y. Chan ; Annie M Y. Chau ; Kathleen P S. Kwok ; Arthur KleinmanSource :
- Social science & medicine (1982) [ 0277-9536 ] ; 2005.
English descriptors
- KwdEn :
- Adaptation, Psychological, Adolescent, Adult, Aged, Attitude to Health, Cluster Analysis, Disease Outbreaks, Female, Health Services Accessibility, Hong Kong (epidemiology), Housing, Humans, Interpersonal Relations, Maintenance, Male, Middle Aged, Prejudice, Refusal to Treat, Schools, Severe Acute Respiratory Syndrome (epidemiology), Social Isolation, Social Support, Socioeconomic Factors, Stereotyping, Surveys and Questionnaires, Workplace (psychology).
- MESH :
- geographic , epidemiology : Hong Kong.
- epidemiology : Severe Acute Respiratory Syndrome.
- psychology : Workplace.
- Adaptation, Psychological, Adolescent, Adult, Aged, Attitude to Health, Cluster Analysis, Disease Outbreaks, Female, Health Services Accessibility, Housing, Humans, Interpersonal Relations, Maintenance, Male, Middle Aged, Prejudice, Refusal to Treat, Schools, Social Isolation, Social Support, Socioeconomic Factors, Stereotyping, Surveys and Questionnaires.
Abstract
Severe Acute Respiratory Syndrome (SARS) possesses characteristics that render it particularly prone to stigmatization. SARS-related stigma, despite its salience for public health and stigma research, has had little examination. This study combines survey and case study methods to examine subjective stigma among residents of Amoy Gardens (AG), the first officially recognized site of community outbreak of SARS in Hong Kong. A total of 903 residents of AG completed a self-report questionnaire derived from two focus groups conducted toward the end of the 3-month outbreak. Case studies of two residents who lived in Block E, the heart of the SARS epidemic at AG, complement the survey data. Findings show that stigma affected most residents and took various forms of being shunned, insulted, marginalized, and rejected in the domains of work, interpersonal relationships, use of services and schooling. Stigma was also associated with psychosomatic distress. Residents' strategies for diminishing stigma varied with gender, age, education, occupation, and proximity to perceived risk factors for SARS such as residential location, previous SARS infection and the presence of ex-SARS household members. Residents attributed stigma to government mismanagement, contagiousness of the mysterious SARS virus, and alarmist media reporting. Stigma clearly decreased, but never completely disappeared, after the outbreak. The findings confirm and add to existing knowledge on the varied origins, correlates, and impacts of stigma. They also highlight the synergistic roles of inconsistent health policy responses and risk miscommunication by the media in rapidly amplifying stigma toward an unfamiliar illness. While recognizing the intrinsically stigmatizing nature of public health measures to control SARS, we recommend that a consistent inter-sectoral approach is needed to minimize stigma and to make an effective health response to future outbreaks.
DOI: 10.1016/j.socscimed.2005.04.010
PubMed: 15913861
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">The experience of SARS-related stigma at Amoy Gardens.</title><author><name sortKey="Lee, Sing" sort="Lee, Sing" uniqKey="Lee S" first="Sing" last="Lee">Sing Lee</name><affiliation><nlm:affiliation>Department of Psychiatry, The Chinese University of Hong Kong, Hong Kong. singlee@cuhk.edu.hk</nlm:affiliation></affiliation></author><author><name sortKey="Chan, Lydia Y Y" sort="Chan, Lydia Y Y" uniqKey="Chan L" first="Lydia Y Y" last="Chan">Lydia Y Y. Chan</name></author><author><name sortKey="Chau, Annie M Y" sort="Chau, Annie M Y" uniqKey="Chau A" first="Annie M Y" last="Chau">Annie M Y. Chau</name></author><author><name sortKey="Kwok, Kathleen P S" sort="Kwok, Kathleen P S" uniqKey="Kwok K" first="Kathleen P S" last="Kwok">Kathleen P S. Kwok</name></author><author><name sortKey="Kleinman, Arthur" sort="Kleinman, Arthur" uniqKey="Kleinman A" first="Arthur" last="Kleinman">Arthur Kleinman</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2005">2005</date><idno type="RBID">pubmed:15913861</idno><idno type="pmid">15913861</idno><idno type="doi">10.1016/j.socscimed.2005.04.010</idno><idno type="wicri:Area/PubMed/Corpus">002719</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">002719</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">The experience of SARS-related stigma at Amoy Gardens.</title><author><name sortKey="Lee, Sing" sort="Lee, Sing" uniqKey="Lee S" first="Sing" last="Lee">Sing Lee</name><affiliation><nlm:affiliation>Department of Psychiatry, The Chinese University of Hong Kong, Hong Kong. singlee@cuhk.edu.hk</nlm:affiliation></affiliation></author><author><name sortKey="Chan, Lydia Y Y" sort="Chan, Lydia Y Y" uniqKey="Chan L" first="Lydia Y Y" last="Chan">Lydia Y Y. Chan</name></author><author><name sortKey="Chau, Annie M Y" sort="Chau, Annie M Y" uniqKey="Chau A" first="Annie M Y" last="Chau">Annie M Y. Chau</name></author><author><name sortKey="Kwok, Kathleen P S" sort="Kwok, Kathleen P S" uniqKey="Kwok K" first="Kathleen P S" last="Kwok">Kathleen P S. Kwok</name></author><author><name sortKey="Kleinman, Arthur" sort="Kleinman, Arthur" uniqKey="Kleinman A" first="Arthur" last="Kleinman">Arthur Kleinman</name></author></analytic><series><title level="j">Social science & medicine (1982)</title><idno type="ISSN">0277-9536</idno><imprint><date when="2005" type="published">2005</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological</term><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Attitude to Health</term><term>Cluster Analysis</term><term>Disease Outbreaks</term><term>Female</term><term>Health Services Accessibility</term><term>Hong Kong (epidemiology)</term><term>Housing</term><term>Humans</term><term>Interpersonal Relations</term><term>Maintenance</term><term>Male</term><term>Middle Aged</term><term>Prejudice</term><term>Refusal to Treat</term><term>Schools</term><term>Severe Acute Respiratory Syndrome (epidemiology)</term><term>Social Isolation</term><term>Social Support</term><term>Socioeconomic Factors</term><term>Stereotyping</term><term>Surveys and Questionnaires</term><term>Workplace (psychology)</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Hong Kong</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Severe Acute Respiratory Syndrome</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Workplace</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Attitude to Health</term><term>Cluster Analysis</term><term>Disease Outbreaks</term><term>Female</term><term>Health Services Accessibility</term><term>Housing</term><term>Humans</term><term>Interpersonal Relations</term><term>Maintenance</term><term>Male</term><term>Middle Aged</term><term>Prejudice</term><term>Refusal to Treat</term><term>Schools</term><term>Social Isolation</term><term>Social Support</term><term>Socioeconomic Factors</term><term>Stereotyping</term><term>Surveys and Questionnaires</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Severe Acute Respiratory Syndrome (SARS) possesses characteristics that render it particularly prone to stigmatization. SARS-related stigma, despite its salience for public health and stigma research, has had little examination. This study combines survey and case study methods to examine subjective stigma among residents of Amoy Gardens (AG), the first officially recognized site of community outbreak of SARS in Hong Kong. A total of 903 residents of AG completed a self-report questionnaire derived from two focus groups conducted toward the end of the 3-month outbreak. Case studies of two residents who lived in Block E, the heart of the SARS epidemic at AG, complement the survey data. Findings show that stigma affected most residents and took various forms of being shunned, insulted, marginalized, and rejected in the domains of work, interpersonal relationships, use of services and schooling. Stigma was also associated with psychosomatic distress. Residents' strategies for diminishing stigma varied with gender, age, education, occupation, and proximity to perceived risk factors for SARS such as residential location, previous SARS infection and the presence of ex-SARS household members. Residents attributed stigma to government mismanagement, contagiousness of the mysterious SARS virus, and alarmist media reporting. Stigma clearly decreased, but never completely disappeared, after the outbreak. The findings confirm and add to existing knowledge on the varied origins, correlates, and impacts of stigma. They also highlight the synergistic roles of inconsistent health policy responses and risk miscommunication by the media in rapidly amplifying stigma toward an unfamiliar illness. While recognizing the intrinsically stigmatizing nature of public health measures to control SARS, we recommend that a consistent inter-sectoral approach is needed to minimize stigma and to make an effective health response to future outbreaks.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">15913861</PMID><DateCompleted><Year>2006</Year><Month>01</Month><Day>24</Day></DateCompleted><DateRevised><Year>2020</Year><Month>04</Month><Day>07</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Print">0277-9536</ISSN><JournalIssue CitedMedium="Print"><Volume>61</Volume><Issue>9</Issue><PubDate><Year>2005</Year><Month>Nov</Month></PubDate></JournalIssue><Title>Social science & medicine (1982)</Title><ISOAbbreviation>Soc Sci Med</ISOAbbreviation></Journal><ArticleTitle>The experience of SARS-related stigma at Amoy Gardens.</ArticleTitle><Pagination><MedlinePgn>2038-46</MedlinePgn></Pagination><Abstract><AbstractText>Severe Acute Respiratory Syndrome (SARS) possesses characteristics that render it particularly prone to stigmatization. SARS-related stigma, despite its salience for public health and stigma research, has had little examination. This study combines survey and case study methods to examine subjective stigma among residents of Amoy Gardens (AG), the first officially recognized site of community outbreak of SARS in Hong Kong. A total of 903 residents of AG completed a self-report questionnaire derived from two focus groups conducted toward the end of the 3-month outbreak. Case studies of two residents who lived in Block E, the heart of the SARS epidemic at AG, complement the survey data. Findings show that stigma affected most residents and took various forms of being shunned, insulted, marginalized, and rejected in the domains of work, interpersonal relationships, use of services and schooling. Stigma was also associated with psychosomatic distress. Residents' strategies for diminishing stigma varied with gender, age, education, occupation, and proximity to perceived risk factors for SARS such as residential location, previous SARS infection and the presence of ex-SARS household members. Residents attributed stigma to government mismanagement, contagiousness of the mysterious SARS virus, and alarmist media reporting. Stigma clearly decreased, but never completely disappeared, after the outbreak. The findings confirm and add to existing knowledge on the varied origins, correlates, and impacts of stigma. They also highlight the synergistic roles of inconsistent health policy responses and risk miscommunication by the media in rapidly amplifying stigma toward an unfamiliar illness. While recognizing the intrinsically stigmatizing nature of public health measures to control SARS, we recommend that a consistent inter-sectoral approach is needed to minimize stigma and to make an effective health response to future outbreaks.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Lee</LastName><ForeName>Sing</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Psychiatry, The Chinese University of Hong Kong, Hong Kong. singlee@cuhk.edu.hk</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Chan</LastName><ForeName>Lydia Y Y</ForeName><Initials>LY</Initials></Author><Author ValidYN="Y"><LastName>Chau</LastName><ForeName>Annie M Y</ForeName><Initials>AM</Initials></Author><Author ValidYN="Y"><LastName>Kwok</LastName><ForeName>Kathleen P S</ForeName><Initials>KP</Initials></Author><Author 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