Meaning of Health-related Quality of Life among Children and Adolescents in an Asian Country: A Focus Group Approach
Identifieur interne : 001E07 ( Istex/Corpus ); précédent : 001E06; suivant : 001E08Meaning of Health-related Quality of Life among Children and Adolescents in an Asian Country: A Focus Group Approach
Auteurs : H. L. Wee ; H. X. Chua ; S. C. LiSource :
- Quality of Life Research [ 0962-9343 ] ; 2006-06-01.
English descriptors
Abstract
Abstract: Aims: We aimed to evaluate the extent to which HRQoL instruments developed based on the Western notion of health is applicable to Asian children and adolescents by assessing their conceptualization of QoL. A secondary objective is to evaluate the necessity of developing age- or gender-specific HRQoL instruments. Methods: We explored the meaning of general and health-related QoL through focus group discussions in Singapore, a multi-ethnic Asian society. Two investigators independently analysed the data. They extracted major and sub-themes related to both general and health-related QoL. The agreement between the analyses was compared and disagreement was resolved through discussion. Results: Thirty-two subjects (children: 50.0%, female: 50.0%) participated. There were few disagreements. Meanings of general and health-related QoL could be grouped under three broad themes: (1) physical, (2) psychological and (3) social health, consistent with the current definition of HRQoL. We found that Singaporean and Western children/adolescents share a remarkably similar notion of general and health-related QoL. Compared to adolescents, children were more likely to report positive emotions, be less mindful of others’ opinions and had less varied social activities. Conclusion: The results suggest that currently available instruments are potentially useful for Singaporean children/adolescents. We also found that age-specific HRQoL instruments are necessary.
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DOI: 10.1007/s11136-005-5092-9
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Li</name><affiliation><mods:affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</mods:affiliation></affiliation><affiliation><mods:affiliation>E-mail: phalisc@nus.edu.sg</mods:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:9449F90BC0BCD1633B4F25C91EFB08FF476DF425</idno><date when="2006" year="2006">2006</date><idno type="doi">10.1007/s11136-005-5092-9</idno><idno type="url">https://api.istex.fr/ark:/67375/VQC-Z33WG63N-M/fulltext.pdf</idno><idno type="wicri:Area/Istex/Corpus">001E07</idno><idno type="wicri:explorRef" wicri:stream="Istex" wicri:step="Corpus" wicri:corpus="ISTEX">001E07</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">Meaning of Health-related Quality of Life among Children and Adolescents in an Asian Country: A Focus Group Approach</title><author><name sortKey="Wee, H L" sort="Wee, H L" uniqKey="Wee H" first="H. L." last="Wee">H. L. Wee</name><affiliation><mods:affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</mods:affiliation></affiliation></author><author><name sortKey="Chua, H X" sort="Chua, H X" uniqKey="Chua H" first="H. X." last="Chua">H. X. Chua</name><affiliation><mods:affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</mods:affiliation></affiliation></author><author><name sortKey="Li, S C" sort="Li, S C" uniqKey="Li S" first="S. C." last="Li">S. C. Li</name><affiliation><mods:affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</mods:affiliation></affiliation><affiliation><mods:affiliation>E-mail: phalisc@nus.edu.sg</mods:affiliation></affiliation></author></analytic><monogr></monogr><series><title level="j">Quality of Life Research</title><title level="j" type="sub">An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Res</title><title level="j" type="abbrev">Qual Life Res</title><idno type="ISSN">0962-9343</idno><idno type="eISSN">1573-2649</idno><imprint><publisher>Springer Netherlands</publisher><pubPlace>Dordrecht</pubPlace><date type="published" when="2006-06-01">2006-06-01</date><biblScope unit="volume">15</biblScope><biblScope unit="issue">5</biblScope><biblScope unit="page" from="821">821</biblScope><biblScope unit="page" to="831">831</biblScope></imprint><idno type="ISSN">0962-9343</idno></series></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0962-9343</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Cross-cultural comparison</term><term>Focus group</term><term>Pediatrics</term><term>Quality-of-life</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Abstract: Aims: We aimed to evaluate the extent to which HRQoL instruments developed based on the Western notion of health is applicable to Asian children and adolescents by assessing their conceptualization of QoL. A secondary objective is to evaluate the necessity of developing age- or gender-specific HRQoL instruments. Methods: We explored the meaning of general and health-related QoL through focus group discussions in Singapore, a multi-ethnic Asian society. Two investigators independently analysed the data. They extracted major and sub-themes related to both general and health-related QoL. The agreement between the analyses was compared and disagreement was resolved through discussion. Results: Thirty-two subjects (children: 50.0%, female: 50.0%) participated. There were few disagreements. Meanings of general and health-related QoL could be grouped under three broad themes: (1) physical, (2) psychological and (3) social health, consistent with the current definition of HRQoL. We found that Singaporean and Western children/adolescents share a remarkably similar notion of general and health-related QoL. Compared to adolescents, children were more likely to report positive emotions, be less mindful of others’ opinions and had less varied social activities. Conclusion: The results suggest that currently available instruments are potentially useful for Singaporean children/adolescents. We also found that age-specific HRQoL instruments are necessary.</div></front></TEI><istex><corpusName>springer-journals</corpusName><author><json:item><name>H. L. Wee</name><affiliations><json:string>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</json:string></affiliations></json:item><json:item><name>H. X. Chua</name><affiliations><json:string>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</json:string></affiliations></json:item><json:item><name>S. C. Li</name><affiliations><json:string>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</json:string><json:string>E-mail: phalisc@nus.edu.sg</json:string></affiliations></json:item></author><subject><json:item><lang><json:string>eng</json:string></lang><value>Cross-cultural comparison</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Focus group</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Pediatrics</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Quality-of-life</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>HRQoL : Health-Related Quality-of-Life</value></json:item></subject><articleId><json:string>5092</json:string><json:string>DO00025092</json:string></articleId><arkIstex>ark:/67375/VQC-Z33WG63N-M</arkIstex><language><json:string>eng</json:string></language><originalGenre><json:string>OriginalPaper</json:string></originalGenre><abstract>Abstract: Aims: We aimed to evaluate the extent to which HRQoL instruments developed based on the Western notion of health is applicable to Asian children and adolescents by assessing their conceptualization of QoL. A secondary objective is to evaluate the necessity of developing age- or gender-specific HRQoL instruments. Methods: We explored the meaning of general and health-related QoL through focus group discussions in Singapore, a multi-ethnic Asian society. Two investigators independently analysed the data. They extracted major and sub-themes related to both general and health-related QoL. The agreement between the analyses was compared and disagreement was resolved through discussion. Results: Thirty-two subjects (children: 50.0%, female: 50.0%) participated. There were few disagreements. Meanings of general and health-related QoL could be grouped under three broad themes: (1) physical, (2) psychological and (3) social health, consistent with the current definition of HRQoL. We found that Singaporean and Western children/adolescents share a remarkably similar notion of general and health-related QoL. Compared to adolescents, children were more likely to report positive emotions, be less mindful of others’ opinions and had less varied social activities. Conclusion: The results suggest that currently available instruments are potentially useful for Singaporean children/adolescents. 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A secondary objective is to evaluate the necessity of developing age- or gender-specific HRQoL instruments. Methods: We explored the meaning of general and health-related QoL through focus group discussions in Singapore, a multi-ethnic Asian society. Two investigators independently analysed the data. They extracted major and sub-themes related to both general and health-related QoL. The agreement between the analyses was compared and disagreement was resolved through discussion. Results: Thirty-two subjects (children: 50.0%, female: 50.0%) participated. There were few disagreements. Meanings of general and health-related QoL could be grouped under three broad themes: (1) physical, (2) psychological and (3) social health, consistent with the current definition of HRQoL. We found that Singaporean and Western children/adolescents share a remarkably similar notion of general and health-related QoL. Compared to adolescents, children were more likely to report positive emotions, be less mindful of others’ opinions and had less varied social activities. Conclusion: The results suggest that currently available instruments are potentially useful for Singaporean children/adolescents. We also found that age-specific HRQoL instruments are necessary.</p></abstract><textClass xml:lang="en"><keywords scheme="keyword"><list><head>Keywords</head><item><term>Cross-cultural comparison</term></item><item><term>Focus group</term></item><item><term>Pediatrics</term></item><item><term>Quality-of-life</term></item></list></keywords></textClass><textClass><keywords scheme="keyword"><list><head>Abbreviations</head><item><term>HRQoL</term><term>Health-Related Quality-of-Life</term></item></list></keywords></textClass><textClass><keywords scheme="Journal-Subject-Group"><list><label>SCH</label><item><term>Medicine & Public Health</term></item><label>SCH65000</label><item><term>Quality of Life Research</term></item><label>SCX22000</label><item><term>Sociology, general</term></item><label>SCH27002</label><item><term>Public Health</term></item><label>SCX23000</label><item><term>Quality of Life Research</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="2006-06-01">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><extension>txt</extension><original>false</original><mimetype>text/plain</mimetype><uri>https://api.istex.fr/ark:/67375/VQC-Z33WG63N-M/fulltext.txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="corpus springer-journals not found" wicri:toSee="no header"><istex:xmlDeclaration>version="1.0" encoding="UTF-8"</istex:xmlDeclaration><istex:docType PUBLIC="-//Springer-Verlag//DTD A++ V2.4//EN" URI="http://devel.springer.de/A++/V2.4/DTD/A++V2.4.dtd" name="istex:docType"></istex:docType><istex:document><Publisher><PublisherInfo><PublisherName>Springer Netherlands</PublisherName><PublisherLocation>Dordrecht</PublisherLocation></PublisherInfo><Journal><JournalInfo JournalProductType="ArchiveJournal" NumberingStyle="Unnumbered"><JournalID>11136</JournalID><JournalPrintISSN>0962-9343</JournalPrintISSN><JournalElectronicISSN>1573-2649</JournalElectronicISSN><JournalSPIN>QURE</JournalSPIN><JournalTitle>Quality of Life Research</JournalTitle><JournalSubTitle>An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - 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A secondary objective is to evaluate the necessity of developing age- or gender-specific HRQoL instruments. <Emphasis Type="Italic">Methods</Emphasis>: We explored the meaning of general and health-related QoL through focus group discussions in Singapore, a multi-ethnic Asian society. Two investigators independently analysed the data. They extracted major and sub-themes related to both general and health-related QoL. The agreement between the analyses was compared and disagreement was resolved through discussion. <Emphasis Type="Italic">Results</Emphasis>: Thirty-two subjects (children: 50.0%, female: 50.0%) participated. There were few disagreements. Meanings of general and health-related QoL could be grouped under three broad themes: (1) physical, (2) psychological and (3) social health, consistent with the current definition of HRQoL. We found that Singaporean and Western children/adolescents share a remarkably similar notion of general and health-related QoL. Compared to adolescents, children were more likely to report positive emotions, be less mindful of others’ opinions and had less varied social activities. <Emphasis Type="Italic">Conclusion</Emphasis>: The results suggest that currently available instruments are potentially useful for Singaporean children/adolescents. We also found that age-specific HRQoL instruments are necessary.</Para></Abstract><KeywordGroup Language="En"><Heading>Keywords</Heading><Keyword>Cross-cultural comparison</Keyword><Keyword>Focus group</Keyword><Keyword>Pediatrics</Keyword><Keyword>Quality-of-life</Keyword></KeywordGroup><AbbreviationGroup><Heading>Abbreviations</Heading><DefinitionList><DefinitionListEntry><Term>HRQoL</Term><Description><Para>Health-Related Quality-of-Life</Para></Description></DefinitionListEntry></DefinitionList></AbbreviationGroup></ArticleHeader><NoBody></NoBody></Article></Issue></Volume></Journal></Publisher></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>Meaning of Health-related Quality of Life among Children and Adolescents in an Asian Country: A Focus Group Approach</title></titleInfo><titleInfo type="alternative" contentType="CDATA"><title>Meaning of Health-related Quality of Life among Children and Adolescents in an Asian Country: A Focus Group Approach</title></titleInfo><name type="personal"><namePart type="given">H.</namePart><namePart type="given">L.</namePart><namePart type="family">Wee</namePart><affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">H.</namePart><namePart type="given">X.</namePart><namePart type="family">Chua</namePart><affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal" displayLabel="corresp"><namePart type="given">S.</namePart><namePart type="given">C.</namePart><namePart type="family">Li</namePart><affiliation>Department of Pharmacy, Faculty of Science, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Republic of Singapore</affiliation><affiliation>E-mail: phalisc@nus.edu.sg</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="research-article" displayLabel="OriginalPaper" authority="ISTEX" authorityURI="https://content-type.data.istex.fr" valueURI="https://content-type.data.istex.fr/ark:/67375/XTP-1JC4F85T-7">research-article</genre><originInfo><publisher>Springer Netherlands</publisher><place><placeTerm type="text">Dordrecht</placeTerm></place><dateIssued encoding="w3cdtf">2006-06-01</dateIssued><copyrightDate encoding="w3cdtf">2006</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><abstract lang="en">Abstract: Aims: We aimed to evaluate the extent to which HRQoL instruments developed based on the Western notion of health is applicable to Asian children and adolescents by assessing their conceptualization of QoL. A secondary objective is to evaluate the necessity of developing age- or gender-specific HRQoL instruments. Methods: We explored the meaning of general and health-related QoL through focus group discussions in Singapore, a multi-ethnic Asian society. Two investigators independently analysed the data. They extracted major and sub-themes related to both general and health-related QoL. The agreement between the analyses was compared and disagreement was resolved through discussion. Results: Thirty-two subjects (children: 50.0%, female: 50.0%) participated. There were few disagreements. Meanings of general and health-related QoL could be grouped under three broad themes: (1) physical, (2) psychological and (3) social health, consistent with the current definition of HRQoL. We found that Singaporean and Western children/adolescents share a remarkably similar notion of general and health-related QoL. Compared to adolescents, children were more likely to report positive emotions, be less mindful of others’ opinions and had less varied social activities. Conclusion: The results suggest that currently available instruments are potentially useful for Singaporean children/adolescents. We also found that age-specific HRQoL instruments are necessary.</abstract><subject lang="en"><genre>Keywords</genre><topic>Cross-cultural comparison</topic><topic>Focus group</topic><topic>Pediatrics</topic><topic>Quality-of-life</topic></subject><subject><genre>Abbreviations</genre><topic>HRQoL : Health-Related Quality-of-Life</topic></subject><relatedItem type="host"><titleInfo><title>Quality of Life Research</title><subTitle>An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Res</subTitle></titleInfo><titleInfo type="abbreviated"><title>Qual Life Res</title></titleInfo><genre type="journal" authority="ISTEX" authorityURI="https://publication-type.data.istex.fr" valueURI="https://publication-type.data.istex.fr/ark:/67375/JMC-0GLKJH51-B">journal</genre><originInfo><publisher>Springer</publisher><dateIssued encoding="w3cdtf">2006-06-01</dateIssued><copyrightDate encoding="w3cdtf">2006</copyrightDate></originInfo><subject><genre>Journal-Subject-Group</genre><topic authority="SpringerSubjectCodes" authorityURI="SCH">Medicine & Public Health</topic><topic authority="SpringerSubjectCodes" authorityURI="SCH65000">Quality of Life Research</topic><topic authority="SpringerSubjectCodes" authorityURI="SCX22000">Sociology, general</topic><topic authority="SpringerSubjectCodes" authorityURI="SCH27002">Public Health</topic><topic authority="SpringerSubjectCodes" authorityURI="SCX23000">Quality of Life Research</topic></subject><identifier type="ISSN">0962-9343</identifier><identifier type="eISSN">1573-2649</identifier><identifier type="JournalID">11136</identifier><identifier type="JournalSPIN">QURE</identifier><identifier type="IssueArticleCount">16</identifier><identifier type="VolumeIssueCount">10</identifier><part><date>2006</date><detail type="volume"><number>15</number><caption>vol.</caption></detail><detail type="issue"><number>5</number><caption>no.</caption></detail><extent unit="pages"><start>821</start><end>831</end></extent></part><recordInfo><recordOrigin>Springer, 2006</recordOrigin></recordInfo></relatedItem><identifier type="istex">9449F90BC0BCD1633B4F25C91EFB08FF476DF425</identifier><identifier type="ark">ark:/67375/VQC-Z33WG63N-M</identifier><identifier type="DOI">10.1007/s11136-005-5092-9</identifier><identifier type="ArticleID">5092</identifier><identifier type="ArticleID">DO00025092</identifier><accessCondition type="use and reproduction" contentType="copyright">Springer, 2006</accessCondition><recordInfo><recordContentSource authority="ISTEX" authorityURI="https://loaded-corpus.data.istex.fr" valueURI="https://loaded-corpus.data.istex.fr/ark:/67375/XBH-3XSW68JL-F">springer</recordContentSource><recordOrigin>Springer, 2006</recordOrigin></recordInfo></mods><json:item><extension>json</extension><original>false</original><mimetype>application/json</mimetype><uri>https://api.istex.fr/ark:/67375/VQC-Z33WG63N-M/record.json</uri></json:item></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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