Are participants concerned about privacy and security when using short message service to report product adherence in a rectal microbicide trial?
Identifieur interne : 000F22 ( PubMed/Curation ); précédent : 000F21; suivant : 000F23Are participants concerned about privacy and security when using short message service to report product adherence in a rectal microbicide trial?
Auteurs : Rebecca Giguere [États-Unis] ; William Brown Iii [États-Unis] ; Ivan C. Balán [États-Unis] ; Curtis Dolezal [États-Unis] ; Titcha Ho [États-Unis] ; Alan Sheinfil [États-Unis] ; Mobolaji Ibitoye [États-Unis] ; Javier R. Lama [Pérou] ; Ian Mcgowan [États-Unis] ; Ross D. Cranston [États-Unis] ; Alex Carballo-Diéguez [États-Unis]Source :
- Journal of the American Medical Informatics Association : JAMIA [ 1527-974X ] ; 2017.
Abstract
During a Phase 2 rectal microbicide trial, men who have sex with men and transgender women (n = 187) in 4 countries (Peru, South Africa, Thailand, United States) reported product use daily via short message service (SMS). To prevent disclosure of study participation, the SMS system program included privacy and security features. We evaluated participants' perceptions of privacy while using the system and acceptability of privacy/security features.
DOI: 10.1093/jamia/ocx081
PubMed: 29025127
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Balán</name><affiliation wicri:level="1"><nlm:affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY</wicri:regionArea></affiliation></author><author><name sortKey="Dolezal, Curtis" sort="Dolezal, Curtis" uniqKey="Dolezal C" first="Curtis" last="Dolezal">Curtis Dolezal</name><affiliation wicri:level="1"><nlm:affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY</wicri:regionArea></affiliation></author><author><name sortKey="Ho, Titcha" sort="Ho, Titcha" uniqKey="Ho T" first="Titcha" last="Ho">Titcha Ho</name><affiliation wicri:level="1"><nlm:affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY</wicri:regionArea></affiliation></author><author><name sortKey="Sheinfil, Alan" sort="Sheinfil, Alan" uniqKey="Sheinfil A" first="Alan" last="Sheinfil">Alan Sheinfil</name><affiliation wicri:level="1"><nlm:affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY</wicri:regionArea></affiliation></author><author><name sortKey="Ibitoye, Mobolaji" sort="Ibitoye, Mobolaji" uniqKey="Ibitoye M" first="Mobolaji" last="Ibitoye">Mobolaji Ibitoye</name><affiliation wicri:level="1"><nlm:affiliation>Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY</wicri:regionArea></affiliation></author><author><name sortKey="Lama, Javier R" sort="Lama, Javier R" uniqKey="Lama J" first="Javier R" last="Lama">Javier R. Lama</name><affiliation wicri:level="1"><nlm:affiliation>Asociación Civil Impacta Salud y Educación, Lima, Peru.</nlm:affiliation><country xml:lang="fr">Pérou</country><wicri:regionArea>Asociación Civil Impacta Salud y Educación, Lima</wicri:regionArea></affiliation></author><author><name sortKey="Mcgowan, Ian" sort="Mcgowan, Ian" uniqKey="Mcgowan I" first="Ian" last="Mcgowan">Ian Mcgowan</name><affiliation wicri:level="1"><nlm:affiliation>School of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>School of Medicine, University of Pittsburgh, Pittsburgh, PA</wicri:regionArea></affiliation></author><author><name sortKey="Cranston, Ross D" sort="Cranston, Ross D" uniqKey="Cranston R" first="Ross D" last="Cranston">Ross D. Cranston</name><affiliation wicri:level="1"><nlm:affiliation>School of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>School of Medicine, University of Pittsburgh, Pittsburgh, PA</wicri:regionArea></affiliation></author><author><name sortKey="Carballo Dieguez, Alex" sort="Carballo Dieguez, Alex" uniqKey="Carballo Dieguez A" first="Alex" last="Carballo-Diéguez">Alex Carballo-Diéguez</name><affiliation wicri:level="1"><nlm:affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY</wicri:regionArea></affiliation></author></analytic><series><title level="j">Journal of the American Medical Informatics Association : JAMIA</title><idno type="eISSN">1527-974X</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">During a Phase 2 rectal microbicide trial, men who have sex with men and transgender women (n = 187) in 4 countries (Peru, South Africa, Thailand, United States) reported product use daily via short message service (SMS). To prevent disclosure of study participation, the SMS system program included privacy and security features. We evaluated participants' perceptions of privacy while using the system and acceptability of privacy/security features.</div></front></TEI><pubmed><MedlineCitation Status="Publisher" Owner="NLM"><PMID Version="1">29025127</PMID><DateCreated><Year>2017</Year><Month>10</Month><Day>12</Day></DateCreated><DateRevised><Year>2017</Year><Month>10</Month><Day>12</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1527-974X</ISSN><JournalIssue CitedMedium="Internet"><PubDate><Year>2017</Year><Month>Aug</Month><Day>24</Day></PubDate></JournalIssue><Title>Journal of the American Medical Informatics Association : JAMIA</Title><ISOAbbreviation>J Am Med Inform Assoc</ISOAbbreviation></Journal><ArticleTitle>Are participants concerned about privacy and security when using short message service to report product adherence in a rectal microbicide trial?</ArticleTitle><ELocationID EIdType="doi" ValidYN="Y">10.1093/jamia/ocx081</ELocationID><Abstract><AbstractText Label="Objective" NlmCategory="UNASSIGNED">During a Phase 2 rectal microbicide trial, men who have sex with men and transgender women (n = 187) in 4 countries (Peru, South Africa, Thailand, United States) reported product use daily via short message service (SMS). To prevent disclosure of study participation, the SMS system program included privacy and security features. We evaluated participants' perceptions of privacy while using the system and acceptability of privacy/security features.</AbstractText><AbstractText Label="Materials and Methods" NlmCategory="UNASSIGNED">To protect privacy, the SMS system: (1) confirmed participant availability before sending the study questions, (2) required a password, and (3) did not reveal product name or study participation. To ensure security, the system reminded participants to lock phone/delete messages. A computer-assisted self-interview (CASI), administered at the final visit, measured burden of privacy and security features and SMS privacy concerns. A subsample of 33 participants underwent an in-depth interview (IDI).</AbstractText><AbstractText Label="Results" NlmCategory="UNASSIGNED">Based on CASI, 85% had no privacy concerns; only 5% were very concerned. Most were not bothered by the need for a password (73%) or instructions to delete messages (82%). Based on IDI, reasons for low privacy concerns included sending SMS in private or feeling that texting would not draw attention. A few IDI participants found the password unnecessary and more than half did not delete messages.</AbstractText><AbstractText Label="Discussion" NlmCategory="UNASSIGNED">Most participants were not concerned that the SMS system would compromise their confidentiality. SMS privacy and security features were effective and not burdensome.</AbstractText><AbstractText Label="Conclusion" NlmCategory="UNASSIGNED">Short ID-related passwords, ambiguous language, and reminders to implement privacy and security-enhancing behaviors are recommended for SMS systems.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Giguere</LastName><ForeName>Rebecca</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Brown Iii</LastName><ForeName>William</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Center for AIDS Prevention Studies, Department of Medicine, University of California San Francisco, San Francisco, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Balán</LastName><ForeName>Ivan C</ForeName><Initials>IC</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dolezal</LastName><ForeName>Curtis</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ho</LastName><ForeName>Titcha</ForeName><Initials>T</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sheinfil</LastName><ForeName>Alan</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Psychology, Syracuse University, Syracuse, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ibitoye</LastName><ForeName>Mobolaji</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lama</LastName><ForeName>Javier R</ForeName><Initials>JR</Initials><AffiliationInfo><Affiliation>Asociación Civil Impacta Salud y Educación, Lima, Peru.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>McGowan</LastName><ForeName>Ian</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>School of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Cranston</LastName><ForeName>Ross D</ForeName><Initials>RD</Initials><AffiliationInfo><Affiliation>School of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Carballo-Diéguez</LastName><ForeName>Alex</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2017</Year><Month>08</Month><Day>24</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>J Am Med Inform Assoc</MedlineTA><NlmUniqueID>9430800</NlmUniqueID><ISSNLinking>1067-5027</ISSNLinking></MedlineJournalInfo><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">HIV</Keyword><Keyword MajorTopicYN="N">LGBT persons</Keyword><Keyword MajorTopicYN="N">privacy</Keyword><Keyword MajorTopicYN="N">text messaging</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2017</Year><Month>03</Month><Day>10</Day></PubMedPubDate><PubMedPubDate 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