Enrolling HIV-positive adolescents in mental health research: A case study reflecting on legal and ethical complexities.
Identifieur interne : 000684 ( PubMed/Checkpoint ); précédent : 000683; suivant : 000685Enrolling HIV-positive adolescents in mental health research: A case study reflecting on legal and ethical complexities.
Auteurs : Nataly Woollett [Afrique du Sud] ; John Peter ; Lucie Cluver ; Heena BrahmbhattSource :
- South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde [ 0256-9574 ] ; 2017.
Abstract
Adolescents living with HIV are an emerging group in the global HIV/AIDS epidemic. Mental health in this population affects HIV care, treatment, consequential morbidity and secondary transmission. There is a paucity of research regarding these youth in South Africa (SA), partly because section 71 of the National Health Act of 2003 (NHA) requires parental or guardian's consent.
PubMed: 28809613
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Enrolling HIV-positive adolescents in mental health research: A case study reflecting on legal and ethical complexities.</title><author><name sortKey="Woollett, Nataly" sort="Woollett, Nataly" uniqKey="Woollett N" first="Nataly" last="Woollett">Nataly Woollett</name><affiliation wicri:level="4"><nlm:affiliation>Department of Paediatrics and School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg; Wits Reproductive Health and HIV Institute, Johannesburg, South Africa. woollettn@gmail.com.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Paediatrics and School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg; Wits Reproductive Health and HIV Institute, Johannesburg</wicri:regionArea><orgName type="university">Université du Witwatersrand</orgName><placeName><settlement type="city">Johannesbourg</settlement><region type="region" nuts="2">Gauteng</region></placeName></affiliation></author><author><name sortKey="Peter, John" sort="Peter, John" uniqKey="Peter J" first="John" last="Peter">John Peter</name></author><author><name sortKey="Cluver, Lucie" sort="Cluver, Lucie" uniqKey="Cluver L" first="Lucie" last="Cluver">Lucie Cluver</name></author><author><name sortKey="Brahmbhatt, Heena" sort="Brahmbhatt, Heena" uniqKey="Brahmbhatt H" first="Heena" last="Brahmbhatt">Heena Brahmbhatt</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:28809613</idno><idno type="pmid">28809613</idno><idno type="wicri:Area/PubMed/Corpus">000B48</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000B48</idno><idno type="wicri:Area/PubMed/Curation">000B48</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000B48</idno><idno type="wicri:Area/PubMed/Checkpoint">000B48</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000B48</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Enrolling HIV-positive adolescents in mental health research: A case study reflecting on legal and ethical complexities.</title><author><name sortKey="Woollett, Nataly" sort="Woollett, Nataly" uniqKey="Woollett N" first="Nataly" last="Woollett">Nataly Woollett</name><affiliation wicri:level="4"><nlm:affiliation>Department of Paediatrics and School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg; Wits Reproductive Health and HIV Institute, Johannesburg, South Africa. woollettn@gmail.com.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Paediatrics and School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg; Wits Reproductive Health and HIV Institute, Johannesburg</wicri:regionArea><orgName type="university">Université du Witwatersrand</orgName><placeName><settlement type="city">Johannesbourg</settlement><region type="region" nuts="2">Gauteng</region></placeName></affiliation></author><author><name sortKey="Peter, John" sort="Peter, John" uniqKey="Peter J" first="John" last="Peter">John Peter</name></author><author><name sortKey="Cluver, Lucie" sort="Cluver, Lucie" uniqKey="Cluver L" first="Lucie" last="Cluver">Lucie Cluver</name></author><author><name sortKey="Brahmbhatt, Heena" sort="Brahmbhatt, Heena" uniqKey="Brahmbhatt H" first="Heena" last="Brahmbhatt">Heena Brahmbhatt</name></author></analytic><series><title level="j">South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde</title><idno type="ISSN">0256-9574</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Adolescents living with HIV are an emerging group in the global HIV/AIDS epidemic. Mental health in this population affects HIV care, treatment, consequential morbidity and secondary transmission. There is a paucity of research regarding these youth in South Africa (SA), partly because section 71 of the National Health Act of 2003 (NHA) requires parental or guardian's consent.</div></front></TEI><pubmed><MedlineCitation Status="In-Data-Review" Owner="NLM"><PMID Version="1">28809613</PMID><DateCreated><Year>2017</Year><Month>08</Month><Day>15</Day></DateCreated><DateRevised><Year>2017</Year><Month>08</Month><Day>15</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Print">0256-9574</ISSN><JournalIssue CitedMedium="Print"><Volume>107</Volume><Issue>8</Issue><PubDate><Year>2017</Year><Month>Jul</Month><Day>28</Day></PubDate></JournalIssue><Title>South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde</Title><ISOAbbreviation>S. Afr. Med. J.</ISOAbbreviation></Journal><ArticleTitle>Enrolling HIV-positive adolescents in mental health research: A case study reflecting on legal and ethical complexities.</ArticleTitle><Pagination><MedlinePgn>679-683</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.7196/SAMJ.2017.v107i8.12409</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Adolescents living with HIV are an emerging group in the global HIV/AIDS epidemic. Mental health in this population affects HIV care, treatment, consequential morbidity and secondary transmission. There is a paucity of research regarding these youth in South Africa (SA), partly because section 71 of the National Health Act of 2003 (NHA) requires parental or guardian's consent.</AbstractText><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">To explore legal and ethical issues related to conducting adolescent mental health research in SA.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">After obtaining a High Court order permitting research on minors aged <18 years without prior parental or guardian's consent, we used qualitative and quantitative methods to interview adolescents in five clinics serving HIV-positive adolescents in Johannesburg.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Our study enrolled 343 participants; 74% were orphaned and did not have legal guardians, 27% were symptomatic for depression, anxiety or post-traumatic stress disorder, 24% were suicidal, and almost 90% did not feel that they belonged in the family with which they lived. Without court intervention, most of the participants could not have participated in this research because parental consent was impossible to obtain. This case study argues for exceptions to the parental consent requirement, which excludes orphaned and vulnerable children and youth from research.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Recommendations are made to promote ethical integrity in conducting mental health research with adolescents. A balance is needed between protecting adolescents from exploitation and permitting access to benefits of research. Requiring parental consent for all research does not necessarily give effect to policy. For the vast majority of SA HIV-positive adolescents, parental consent is not possible. Section 71 of the NHA ought to be amended to facilitate valuable and necessary research concerning HIV-positive orphan children and adolescents.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Woollett</LastName><ForeName>Nataly</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Department of Paediatrics and School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg; Wits Reproductive Health and HIV Institute, Johannesburg, South Africa. woollettn@gmail.com.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Peter</LastName><ForeName>John</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Cluver</LastName><ForeName>Lucie</ForeName><Initials>L</Initials></Author><Author ValidYN="Y"><LastName>Brahmbhatt</LastName><ForeName>Heena</ForeName><Initials>H</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2017</Year><Month>07</Month><Day>28</Day></ArticleDate></Article><MedlineJournalInfo><Country>South Africa</Country><MedlineTA>S Afr Med J</MedlineTA><NlmUniqueID>0404520</NlmUniqueID></MedlineJournalInfo></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2017</Year><Month>07</Month><Day>28</Day></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2017</Year><Month>8</Month><Day>16</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2017</Year><Month>8</Month><Day>16</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2017</Year><Month>8</Month><Day>16</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>epublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">28809613</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Afrique du Sud</li></country><region><li>Gauteng</li></region><settlement><li>Johannesbourg</li></settlement><orgName><li>Université du Witwatersrand</li></orgName></list><tree><noCountry><name sortKey="Brahmbhatt, Heena" sort="Brahmbhatt, Heena" uniqKey="Brahmbhatt H" first="Heena" last="Brahmbhatt">Heena Brahmbhatt</name><name sortKey="Cluver, Lucie" sort="Cluver, Lucie" uniqKey="Cluver L" first="Lucie" last="Cluver">Lucie Cluver</name><name sortKey="Peter, John" sort="Peter, John" uniqKey="Peter J" first="John" last="Peter">John Peter</name></noCountry><country name="Afrique du Sud"><region name="Gauteng"><name sortKey="Woollett, Nataly" sort="Woollett, Nataly" uniqKey="Woollett N" first="Nataly" last="Woollett">Nataly Woollett</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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