SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana
Identifieur interne : 001D61 ( Pmc/Corpus ); précédent : 001D60; suivant : 001D62SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana
Auteurs : Nancy R. Reynolds ; Angela Ofori-Atta ; Margaret Lartey ; Lorna Renner ; Sampson Antwi ; Anthony Enimil ; Ann Christine Catlin ; Sumudinie Fernando ; Tassos C. Kyriakides ; Elijah PaintsilSource :
- AIDS (London, England) [ 0269-9370 ] ; 2015.
Abstract
With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment.
Yet many of these children, especially preadolescents, do not know they are HIV-infected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child’s caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.
Url:
DOI: 10.1097/QAD.0000000000000725
PubMed: 26049537
PubMed Central: 4880360
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PMC:4880360Le document en format XML
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<front><div type="abstract" xml:lang="en"><p id="P1">With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment.</p>
<p id="P2">Yet many of these children, especially preadolescents, do not know they are HIV-infected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child’s caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.</p>
</div>
</front>
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<pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
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<front><journal-meta><journal-id journal-id-type="nlm-journal-id">8710219</journal-id>
<journal-id journal-id-type="pubmed-jr-id">1493</journal-id>
<journal-id journal-id-type="nlm-ta">AIDS</journal-id>
<journal-id journal-id-type="iso-abbrev">AIDS</journal-id>
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<article-id pub-id-type="manuscript">NIHMS787164</article-id>
<article-categories><subj-group subj-group-type="heading"><subject>Article</subject>
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<title-group><article-title>SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana</article-title>
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<contrib-group><contrib contrib-type="author"><name><surname>Reynolds</surname>
<given-names>Nancy R.</given-names>
</name>
<xref ref-type="aff" rid="A1">a</xref>
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<contrib contrib-type="author"><name><surname>Ofori-Atta</surname>
<given-names>Angela</given-names>
</name>
<xref ref-type="aff" rid="A2">b</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Lartey</surname>
<given-names>Margaret</given-names>
</name>
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<contrib contrib-type="author"><name><surname>Renner</surname>
<given-names>Lorna</given-names>
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<xref ref-type="aff" rid="A4">d</xref>
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<contrib contrib-type="author"><name><surname>Antwi</surname>
<given-names>Sampson</given-names>
</name>
<xref ref-type="aff" rid="A5">e</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Enimil</surname>
<given-names>Anthony</given-names>
</name>
<xref ref-type="aff" rid="A5">e</xref>
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<contrib contrib-type="author"><name><surname>Catlin</surname>
<given-names>Ann Christine</given-names>
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<xref ref-type="aff" rid="A6">f</xref>
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<contrib contrib-type="author"><name><surname>Fernando</surname>
<given-names>Sumudinie</given-names>
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<contrib contrib-type="author"><name><surname>Kyriakides</surname>
<given-names>Tassos C.</given-names>
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<xref ref-type="aff" rid="A7">g</xref>
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<contrib contrib-type="author"><name><surname>Paintsil</surname>
<given-names>Elijah</given-names>
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<xref ref-type="aff" rid="A8">h</xref>
<xref ref-type="aff" rid="A9">i</xref>
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<aff id="A1"><label>a</label>
Yale University School of Nursing, West Haven, Connecticut, USA</aff>
<aff id="A2"><label>b</label>
Department of Psychiatry, University of Ghana School of Medicine and Dentistry, Accra</aff>
<aff id="A3"><label>c</label>
Department of Medicine, University of Ghana School of Medicine and Dentistry, Accra</aff>
<aff id="A4"><label>d</label>
Department of Child Health, University of Ghana School of Medicine and Dentistry, Accra</aff>
<aff id="A5"><label>e</label>
Department of Child Health, School of Medical Sciences, Kwame Nkrumah University of Science and Technology and Komfo Anokye Teaching Hospital, Kumasi, Ghana</aff>
<aff id="A6"><label>f</label>
Purdue University, Yale University School of Medicine, New Haven, Connecticut, USA</aff>
<aff id="A7"><label>g</label>
Yale Center for Analytical Sciences, Yale University School of Medicine, New Haven, Connecticut, USA</aff>
<aff id="A8"><label>h</label>
Department of Pediatrics, Yale University School of Medicine, New Haven, Connecticut, USA</aff>
<aff id="A9"><label>i</label>
Department of Pharmacology & Public Health, Yale University School of Medicine, New Haven, Connecticut, USA</aff>
<author-notes><corresp id="FN1">Correspondence to Nancy R. Reynolds, PhD, Yale University, West Campus, P.O. Box 27339, West Haven, CT 06516, USA. Tel: +1 203 737 2313; fax: +1 203 737 4480; <email>nancy.reynolds@yale.edu</email>
</corresp>
</author-notes>
<pub-date pub-type="nihms-submitted"><day>17</day>
<month>5</month>
<year>2016</year>
</pub-date>
<pub-date pub-type="ppub"><month>6</month>
<year>2015</year>
</pub-date>
<pub-date pub-type="pmc-release"><day>01</day>
<month>6</month>
<year>2016</year>
</pub-date>
<volume>29</volume>
<issue>Suppl 1</issue>
<fpage>S35</fpage>
<lpage>S45</lpage>
<pmc-comment>elocation-id from pubmed: 10.1097/QAD.0000000000000725</pmc-comment>
<abstract><p id="P1">With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment.</p>
<p id="P2">Yet many of these children, especially preadolescents, do not know they are HIV-infected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child’s caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.</p>
</abstract>
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<kwd>Ghana</kwd>
<kwd>HIV</kwd>
<kwd>intervention</kwd>
<kwd>paediatric</kwd>
</kwd-group>
</article-meta>
</front>
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