A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
Identifieur interne : 000C22 ( Main/Exploration ); précédent : 000C21; suivant : 000C23A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
Auteurs : Esther A. N. Engelhard [Pays-Bas] ; Colette Smit [Pays-Bas] ; Frank P. Kroon [Pays-Bas] ; Pythia T. Nieuwkerk [Pays-Bas] ; Peter Reiss [Pays-Bas] ; Kees Brinkman [Pays-Bas] ; Suzanne E. Geerlings [Pays-Bas]Source :
- Infectious Diseases and Therapy [ 2193-8229 ] ; 2017.
Abstract
Responding to patients’ needs and preferences is important in the delivery of outpatient care. Recent and systematically collected data reflecting human immunodeficiency virus (HIV)-infected patients’ opinions on how their outpatient care should be delivered are lacking. Our aim was to identify aspects of care that people with HIV in outpatient care in The Netherlands consider important and to evaluate the extent to which the received care meets their expectations.
We measured patient preferences and experiences in a nationwide sample of HIV-infected patients using a modified, previously validated questionnaire (QUOTE-HIV).
The aspects of care that were considered most important were specific expertise of the care provider in HIV medicine, the care provider taking the patient seriously and receiving adequate information about treatment options. In addition, confidentiality of HIV status at the outpatient clinic was a major concern. Patient experiences were positive, with the majority of the respondents indicating that they always or usually received care in accordance with their preferences.
HIV-infected patients greatly value having care providers with HIV-specific expertise. Safeguarding the privacy of HIV status and the provision of information about treatment options are matters that deserve continuous attention in the delivery of outpatient HIV care.
The online version of this article (doi:10.1007/s40121-017-0164-z) contains supplementary material, which is available to authorized users.
Url:
DOI: 10.1007/s40121-017-0164-z
PubMed: 28677021
PubMed Central: 5595778
Affiliations:
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N." last="Engelhard">Esther A. N. 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Kroon</name><affiliation wicri:level="1"><nlm:aff id="Aff3"><institution-wrap><institution-id institution-id-type="ISNI">0000000089452978</institution-id><institution-id institution-id-type="GRID">grid.10419.3d</institution-id><institution>Department of Infectious Diseases,</institution><institution>Leiden University Medical Center,</institution></institution-wrap>Leiden, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Leiden</wicri:regionArea></affiliation></author><author><name sortKey="Nieuwkerk, Pythia T" sort="Nieuwkerk, Pythia T" uniqKey="Nieuwkerk P" first="Pythia T." last="Nieuwkerk">Pythia T. Nieuwkerk</name><affiliation wicri:level="1"><nlm:aff id="Aff4"><institution-wrap><institution-id institution-id-type="ISNI">0000000404654431</institution-id><institution-id institution-id-type="GRID">grid.5650.6</institution-id><institution>Department of Medical Psychology,</institution><institution>Academic Medical Center of the University of Amsterdam,</institution></institution-wrap>Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam</wicri:regionArea></affiliation></author><author><name sortKey="Reiss, Peter" sort="Reiss, Peter" uniqKey="Reiss P" first="Peter" last="Reiss">Peter Reiss</name><affiliation wicri:level="1"><nlm:aff id="Aff1"><institution-wrap><institution-id institution-id-type="ISNI">0000000404654431</institution-id><institution-id institution-id-type="GRID">grid.5650.6</institution-id><institution>Division of Infectious Diseases, Department of Internal Medicine,</institution><institution>Academic Medical Center of the University of Amsterdam,</institution></institution-wrap>Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam</wicri:regionArea></affiliation><affiliation wicri:level="3"><nlm:aff id="Aff2">Stichting HIV Monitoring, Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Stichting HIV Monitoring, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation><affiliation wicri:level="1"><nlm:aff id="Aff5"><institution-wrap><institution-id institution-id-type="ISNI">0000000404654431</institution-id><institution-id institution-id-type="GRID">grid.5650.6</institution-id><institution>Department of Global Health,</institution><institution>Academic Medical Center of the University of Amsterdam,</institution></institution-wrap>Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="Aff6"><institution-wrap><institution-id institution-id-type="ISNI">0000 0004 4655 0462</institution-id><institution-id institution-id-type="GRID">grid.450091.9</institution-id><institution>Amsterdam Institute for Global Health and Development,</institution></institution-wrap>Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam</wicri:regionArea></affiliation></author><author><name sortKey="Brinkman, Kees" sort="Brinkman, Kees" uniqKey="Brinkman K" first="Kees" last="Brinkman">Kees Brinkman</name><affiliation wicri:level="1"><nlm:aff id="Aff7"><institution-wrap><institution-id institution-id-type="GRID">grid.440209.b</institution-id><institution>Department of Internal Medicine,</institution><institution>Onze Lieve Vrouwe Gasthuis,</institution></institution-wrap>Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam</wicri:regionArea></affiliation></author><author><name sortKey="Geerlings, Suzanne E" sort="Geerlings, Suzanne E" uniqKey="Geerlings S" first="Suzanne E." last="Geerlings">Suzanne E. Geerlings</name><affiliation wicri:level="1"><nlm:aff id="Aff1"><institution-wrap><institution-id institution-id-type="ISNI">0000000404654431</institution-id><institution-id institution-id-type="GRID">grid.5650.6</institution-id><institution>Division of Infectious Diseases, Department of Internal Medicine,</institution><institution>Academic Medical Center of the University of Amsterdam,</institution></institution-wrap>Amsterdam, The Netherlands</nlm:aff><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Amsterdam</wicri:regionArea></affiliation></author></analytic><series><title level="j">Infectious Diseases and Therapy</title><idno type="ISSN">2193-8229</idno><idno type="eISSN">2193-6382</idno><imprint><date when="2017">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Introduction</title><p id="Par1">Responding to patients’ needs and preferences is important in the delivery of outpatient care. Recent and systematically collected data reflecting human immunodeficiency virus (HIV)-infected patients’ opinions on how their outpatient care should be delivered are lacking. Our aim was to identify aspects of care that people with HIV in outpatient care in The Netherlands consider important and to evaluate the extent to which the received care meets their expectations.</p></sec><sec><title>Methods</title><p id="Par2">We measured patient preferences and experiences in a nationwide sample of HIV-infected patients using a modified, previously validated questionnaire (QUOTE-HIV).</p></sec><sec><title>Results</title><p id="Par3">The aspects of care that were considered most important were specific expertise of the care provider in HIV medicine, the care provider taking the patient seriously and receiving adequate information about treatment options. In addition, confidentiality of HIV status at the outpatient clinic was a major concern. Patient experiences were positive, with the majority of the respondents indicating that they always or usually received care in accordance with their preferences.</p></sec><sec><title>Conclusion</title><p id="Par4">HIV-infected patients greatly value having care providers with HIV-specific expertise. Safeguarding the privacy of HIV status and the provision of information about treatment options are matters that deserve continuous attention in the delivery of outpatient HIV care.</p></sec><sec><title>Electronic supplementary material</title><p>The online version of this article (doi:10.1007/s40121-017-0164-z) contains supplementary material, which is available to authorized users.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Kitson, A" uniqKey="Kitson A">A Kitson</name></author><author><name sortKey="Marshall, A" uniqKey="Marshall A">A Marshall</name></author><author><name sortKey="Bassett, K" uniqKey="Bassett K">K Bassett</name></author><author><name sortKey="Zeitz, K" uniqKey="Zeitz K">K Zeitz</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Cheraghi Sohi, S" uniqKey="Cheraghi Sohi S">S Cheraghi-Sohi</name></author><author><name sortKey="Bower, P" uniqKey="Bower P">P 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Sikorskii</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Kleefstra, Sm" uniqKey="Kleefstra S">SM Kleefstra</name></author><author><name sortKey="Zandbelt, Lc" uniqKey="Zandbelt L">LC Zandbelt</name></author><author><name sortKey="De Haes, Hj" uniqKey="De Haes H">HJ de Haes</name></author><author><name sortKey="Kool, Rb" uniqKey="Kool R">RB Kool</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Jacobi, Ce" uniqKey="Jacobi C">CE Jacobi</name></author><author><name sortKey="Boshuizen, Hc" uniqKey="Boshuizen H">HC Boshuizen</name></author><author><name sortKey="Rupp, I" uniqKey="Rupp I">I Rupp</name></author><author><name sortKey="Dinant, Hj" uniqKey="Dinant H">HJ Dinant</name></author><author><name sortKey="Van Den Bos, Ga" uniqKey="Van Den Bos G">GA van den Bos</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Davis Michaud, M" uniqKey="Davis Michaud M">M Davis-Michaud</name></author><author><name sortKey="Yurk, R" uniqKey="Yurk R">R Yurk</name></author><author><name sortKey="Lansky, D" uniqKey="Lansky D">D Lansky</name></author><author><name sortKey="Asch, S" uniqKey="Asch S">S Asch</name></author><author><name sortKey="Wu, Aw" uniqKey="Wu A">AW Wu</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Minick, Sg" uniqKey="Minick S">SG Minick</name></author><author><name sortKey="Stafford, Cl" uniqKey="Stafford C">CL Stafford</name></author><author><name sortKey="Kertz, Bl" uniqKey="Kertz B">BL Kertz</name></author><author><name sortKey="Cully, Ja" uniqKey="Cully J">JA Cully</name></author><author><name sortKey="Stanley, Ma" uniqKey="Stanley M">MA Stanley</name></author><author><name sortKey="Davila, Ja" uniqKey="Davila J">JA Davila</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Wiering, B" uniqKey="Wiering B">B Wiering</name></author><author><name sortKey="De Boer, D" uniqKey="De Boer D">D de Boer</name></author><author><name sortKey="Delnoij, D" uniqKey="Delnoij D">D Delnoij</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Van Leijen Zeelenberg, Je" uniqKey="Van Leijen Zeelenberg J">JE van Leijen-Zeelenberg</name></author><author><name sortKey="Huismans, Gw" uniqKey="Huismans G">GW Huismans</name></author><author><name sortKey="Bisschop, Ja" uniqKey="Bisschop J">JA Bisschop</name></author><author><name sortKey="Brunings, Jw" uniqKey="Brunings J">JW Brunings</name></author><author><name sortKey="Van Raak, Aj" uniqKey="Van Raak A">AJ van Raak</name></author><author><name sortKey="Ruwaard, D" uniqKey="Ruwaard D">D Ruwaard</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Pays-Bas</li></country><region><li>Hollande-Septentrionale</li></region><settlement><li>Amsterdam</li></settlement></list><tree><country name="Pays-Bas"><noRegion><name sortKey="Engelhard, Esther A N" sort="Engelhard, Esther A N" uniqKey="Engelhard E" first="Esther A. N." last="Engelhard">Esther A. N. Engelhard</name></noRegion><name sortKey="Brinkman, Kees" sort="Brinkman, Kees" uniqKey="Brinkman K" first="Kees" last="Brinkman">Kees Brinkman</name><name sortKey="Engelhard, Esther A N" sort="Engelhard, Esther A N" uniqKey="Engelhard E" first="Esther A. N." last="Engelhard">Esther A. N. Engelhard</name><name sortKey="Geerlings, Suzanne E" sort="Geerlings, Suzanne E" uniqKey="Geerlings S" first="Suzanne E." last="Geerlings">Suzanne E. Geerlings</name><name sortKey="Kroon, Frank P" sort="Kroon, Frank P" uniqKey="Kroon F" first="Frank P." last="Kroon">Frank P. Kroon</name><name sortKey="Nieuwkerk, Pythia T" sort="Nieuwkerk, Pythia T" uniqKey="Nieuwkerk P" first="Pythia T." last="Nieuwkerk">Pythia T. Nieuwkerk</name><name sortKey="Reiss, Peter" sort="Reiss, Peter" uniqKey="Reiss P" first="Peter" last="Reiss">Peter Reiss</name><name sortKey="Reiss, Peter" sort="Reiss, Peter" uniqKey="Reiss P" first="Peter" last="Reiss">Peter Reiss</name><name sortKey="Reiss, Peter" sort="Reiss, Peter" uniqKey="Reiss P" first="Peter" last="Reiss">Peter Reiss</name><name sortKey="Reiss, Peter" sort="Reiss, Peter" uniqKey="Reiss P" first="Peter" last="Reiss">Peter Reiss</name><name sortKey="Smit, Colette" sort="Smit, Colette" uniqKey="Smit C" first="Colette" last="Smit">Colette Smit</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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