The experiences of caregivers of children living with HIV and AIDS in Uganda: a qualitative study.
Identifieur interne : 000312 ( PubMed/Curation ); précédent : 000311; suivant : 000313The experiences of caregivers of children living with HIV and AIDS in Uganda: a qualitative study.
Auteurs : Joseph Osafo [Ghana] ; Birthe Loa Knizek [Norvège] ; James Mugisha [Ouganda] ; Eugene Kinyanda [Ouganda]Source :
- Globalization and health [ 1744-8603 ] ; 2017.
Abstract
Home-based care for HIV patients is popular in contexts severely affected by the epidemic and exacts a heavy toll on caregivers. This study aimed at understanding the experiences of caregivers and their survival strategies.
DOI: 10.1186/s12992-017-0294-9
PubMed: 28899415
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Box LG84, Legon</wicri:regionArea></affiliation></author><author><name sortKey="Knizek, Birthe Loa" sort="Knizek, Birthe Loa" uniqKey="Knizek B" first="Birthe Loa" last="Knizek">Birthe Loa Knizek</name><affiliation wicri:level="1"><nlm:affiliation>Department of Mental Health, Faculty of Medicine and Health Science, Norwegian University of Science and Technology, Trondheim, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>Department of Mental Health, Faculty of Medicine and Health Science, Norwegian University of Science and Technology, Trondheim</wicri:regionArea></affiliation></author><author><name sortKey="Mugisha, James" sort="Mugisha, James" uniqKey="Mugisha J" first="James" last="Mugisha">James Mugisha</name><affiliation wicri:level="1"><nlm:affiliation>Kyambogo University, Kampala, Uganda.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>Kyambogo University, Kampala</wicri:regionArea></affiliation></author><author><name sortKey="Kinyanda, Eugene" sort="Kinyanda, Eugene" uniqKey="Kinyanda E" first="Eugene" last="Kinyanda">Eugene Kinyanda</name><affiliation wicri:level="1"><nlm:affiliation>Mental Health Project, Medical Research Council/Uganda Virus Research Institute (MRC/UVRI). Uganda Research Unit on AIDS, Uganda and Senior Wellcome Trust Fellowship, Kampala, Uganda.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>Mental Health Project, Medical Research Council/Uganda Virus Research Institute (MRC/UVRI). 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O. Box LG84, Legon, Ghana. josaforo@gmail.com.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>Department of Psychology, Centre for Suicide and Violence Research , School of Social Sciences, University of Ghana, P. O. Box LG84, Legon</wicri:regionArea></affiliation></author><author><name sortKey="Knizek, Birthe Loa" sort="Knizek, Birthe Loa" uniqKey="Knizek B" first="Birthe Loa" last="Knizek">Birthe Loa Knizek</name><affiliation wicri:level="1"><nlm:affiliation>Department of Mental Health, Faculty of Medicine and Health Science, Norwegian University of Science and Technology, Trondheim, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>Department of Mental Health, Faculty of Medicine and Health Science, Norwegian University of Science and Technology, Trondheim</wicri:regionArea></affiliation></author><author><name sortKey="Mugisha, James" sort="Mugisha, James" uniqKey="Mugisha J" first="James" last="Mugisha">James Mugisha</name><affiliation wicri:level="1"><nlm:affiliation>Kyambogo University, Kampala, Uganda.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>Kyambogo University, Kampala</wicri:regionArea></affiliation></author><author><name sortKey="Kinyanda, Eugene" sort="Kinyanda, Eugene" uniqKey="Kinyanda E" first="Eugene" last="Kinyanda">Eugene Kinyanda</name><affiliation wicri:level="1"><nlm:affiliation>Mental Health Project, Medical Research Council/Uganda Virus Research Institute (MRC/UVRI). Uganda Research Unit on AIDS, Uganda and Senior Wellcome Trust Fellowship, Kampala, Uganda.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>Mental Health Project, Medical Research Council/Uganda Virus Research Institute (MRC/UVRI). Uganda Research Unit on AIDS, Uganda and Senior Wellcome Trust Fellowship, Kampala</wicri:regionArea></affiliation></author></analytic><series><title level="j">Globalization and health</title><idno type="eISSN">1744-8603</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Home-based care for HIV patients is popular in contexts severely affected by the epidemic and exacts a heavy toll on caregivers. This study aimed at understanding the experiences of caregivers and their survival strategies.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">28899415</PMID><DateCreated><Year>2017</Year><Month>09</Month><Day>13</Day></DateCreated><DateRevised><Year>2017</Year><Month>09</Month><Day>17</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1744-8603</ISSN><JournalIssue CitedMedium="Internet"><Volume>13</Volume><Issue>1</Issue><PubDate><Year>2017</Year><Month>Sep</Month><Day>12</Day></PubDate></JournalIssue><Title>Globalization and health</Title><ISOAbbreviation>Global Health</ISOAbbreviation></Journal><ArticleTitle>The experiences of caregivers of children living with HIV and AIDS in Uganda: a qualitative study.</ArticleTitle><Pagination><MedlinePgn>72</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1186/s12992-017-0294-9</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Home-based care for HIV patients is popular in contexts severely affected by the epidemic and exacts a heavy toll on caregivers. This study aimed at understanding the experiences of caregivers and their survival strategies.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">A total of 18 caregivers (3 males and 15 females) were interviewed using a semi-structured interview guide, and thematic analysis was used to analyse the data.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Analysis suggests that the caregivers are burdened with insecure provisions for food and difficulties in accessing health care. They however survived these strains through managing their relationships, sharing burden with care-recipients, social networks and instrumental spirituality. These findings are discussed under two major themes: 1). Labour of caregiving and 2). Survivalism.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Home-based care presents huge opportunities for community response to the HIV/AIDS epidemic in African settings. It is however burdensome and thus should not be left for families alone to shoulder. There is therefore an urgent need for protecting home-based care for HIV children in Uganda. Implications for improving and strengthening social interventions in home-based care of HIV/AIDS in the Ugandan context are addressed.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Osafo</LastName><ForeName>Joseph</ForeName><Initials>J</Initials><Identifier Source="ORCID">http://orcid.org/0000-0003-4002-291X</Identifier><AffiliationInfo><Affiliation>Department of Psychology, Centre for Suicide and Violence Research , School of Social Sciences, University of Ghana, P. O. Box LG84, Legon, Ghana. josaforo@gmail.com.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Knizek</LastName><ForeName>Birthe Loa</ForeName><Initials>BL</Initials><AffiliationInfo><Affiliation>Department of Mental Health, Faculty of Medicine and Health Science, Norwegian University of Science and Technology, Trondheim, Norway.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mugisha</LastName><ForeName>James</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Kyambogo University, Kampala, Uganda.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Butabika National Psychiatric Referral Hospital, P.o.Box 7017, Off Old Port Bell, Kampala, Uganda.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kinyanda</LastName><ForeName>Eugene</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Mental Health Project, Medical Research Council/Uganda Virus Research Institute (MRC/UVRI). Uganda Research Unit on AIDS, Uganda and Senior Wellcome Trust Fellowship, Kampala, Uganda.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2017</Year><Month>09</Month><Day>12</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Global Health</MedlineTA><NlmUniqueID>101245734</NlmUniqueID><ISSNLinking>1744-8603</ISSNLinking></MedlineJournalInfo><CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>AIDS. 2000 Oct 20;14(15):2391-400</RefSource><PMID Version="1">11089628</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Curationis. 2004 Aug;27(3):5-14</RefSource><PMID Version="1">15777025</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>AIDS Care. 2006 Oct;18(7):694-7</RefSource><PMID 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