Limited accessibility to HIV services for persons with disabilities living with HIV in Ghana, Uganda and Zambia.
Identifieur interne : 000178 ( PubMed/Curation ); précédent : 000177; suivant : 000179Limited accessibility to HIV services for persons with disabilities living with HIV in Ghana, Uganda and Zambia.
Auteurs : Waimar Tun [Israël] ; Jerry Okal [Kenya] ; Katie Schenk [États-Unis] ; Selina Esantsi [Ghana] ; Felix Mutale [Zambie] ; Rita Kusi Kyeremaa [Ghana] ; Edson Ngirabakunzi [Ouganda] ; Hilary Asiah [Ghana] ; Charlotte Mcclain-Nhlapo [États-Unis] ; Grimond Moono [Zambie]Source :
- Journal of the International AIDS Society [ 1758-2652 ] ; 2016.
Abstract
Knowledge about experiences in accessing HIV services among persons with disabilities who are living with HIV in sub-Saharan Africa is limited. Although HIV transmission among persons with disabilities in Africa is increasingly acknowledged, there is a need to bring to life the experiences and voices from persons with disabilities living with HIV to raise awareness of programme implementers and policy makers about their barriers in accessing HIV services. This paper explores how the barriers faced by persons with disabilities living with HIV impede their ability to access HIV-related services and manage their disease.
PubMed: 27443266
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wicri:step="Curation">000178</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Limited accessibility to HIV services for persons with disabilities living with HIV in Ghana, Uganda and Zambia.</title><author><name sortKey="Tun, Waimar" sort="Tun, Waimar" uniqKey="Tun W" first="Waimar" last="Tun">Waimar Tun</name><affiliation wicri:level="1"><nlm:affiliation>HIV and AIDS Program, Population Council, Washington, DC, USA; wtun@popcouncil.org.</nlm:affiliation><country wicri:rule="url">Israël</country><wicri:regionArea>HIV and AIDS Program, Population Council, Washington, DC</wicri:regionArea></affiliation></author><author><name sortKey="Okal, Jerry" sort="Okal, Jerry" uniqKey="Okal J" first="Jerry" last="Okal">Jerry Okal</name><affiliation wicri:level="1"><nlm:affiliation>HIV and AIDS Program, Population Council, Nairobi, Kenya.</nlm:affiliation><country xml:lang="fr">Kenya</country><wicri:regionArea>HIV and AIDS Program, Population Council, Nairobi</wicri:regionArea></affiliation></author><author><name sortKey="Schenk, Katie" sort="Schenk, Katie" uniqKey="Schenk K" first="Katie" last="Schenk">Katie Schenk</name><affiliation wicri:level="1"><nlm:affiliation>Department of Global and Community Health, George Mason University, Fairfax, VA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Global and Community Health, George Mason University, Fairfax, VA</wicri:regionArea></affiliation></author><author><name sortKey="Esantsi, Selina" sort="Esantsi, Selina" uniqKey="Esantsi S" first="Selina" last="Esantsi">Selina Esantsi</name><affiliation wicri:level="1"><nlm:affiliation>Reproductive Health Program, Population Council, Accra, Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>Reproductive Health Program, Population Council, Accra</wicri:regionArea></affiliation></author><author><name sortKey="Mutale, Felix" sort="Mutale, Felix" uniqKey="Mutale F" first="Felix" last="Mutale">Felix Mutale</name><affiliation wicri:level="1"><nlm:affiliation>Development Consultant, Formerly with Zambia Agency for Persons with Disabilities, Lusaka, Zambia.</nlm:affiliation><country xml:lang="fr">Zambie</country><wicri:regionArea>Development Consultant, Formerly with Zambia Agency for Persons with Disabilities, Lusaka</wicri:regionArea></affiliation></author><author><name sortKey="Kyeremaa, Rita Kusi" sort="Kyeremaa, Rita Kusi" uniqKey="Kyeremaa R" first="Rita Kusi" last="Kyeremaa">Rita Kusi Kyeremaa</name><affiliation wicri:level="1"><nlm:affiliation>Ghana Federation of Disability Organisations, Accra, Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>Ghana Federation of Disability Organisations, Accra</wicri:regionArea></affiliation></author><author><name sortKey="Ngirabakunzi, Edson" sort="Ngirabakunzi, Edson" uniqKey="Ngirabakunzi E" first="Edson" last="Ngirabakunzi">Edson Ngirabakunzi</name><affiliation wicri:level="1"><nlm:affiliation>National Union of Disabled Persons of Uganda, Kampala, Uganda.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>National Union of Disabled Persons of Uganda, Kampala</wicri:regionArea></affiliation></author><author><name sortKey="Asiah, Hilary" sort="Asiah, Hilary" uniqKey="Asiah H" first="Hilary" last="Asiah">Hilary Asiah</name><affiliation wicri:level="1"><nlm:affiliation>Reproductive Health Program, Population Council, Accra, Ghana.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>Reproductive Health Program, Population Council, Accra</wicri:regionArea></affiliation></author><author><name sortKey="Mcclain Nhlapo, Charlotte" sort="Mcclain Nhlapo, Charlotte" uniqKey="Mcclain Nhlapo C" first="Charlotte" last="Mcclain-Nhlapo">Charlotte Mcclain-Nhlapo</name><affiliation wicri:level="1"><nlm:affiliation>The World Bank, Washington, DC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>The World Bank, Washington, DC</wicri:regionArea></affiliation></author><author><name sortKey="Moono, Grimond" sort="Moono, Grimond" uniqKey="Moono G" first="Grimond" last="Moono">Grimond Moono</name><affiliation wicri:level="1"><nlm:affiliation>HIV and AIDS Program, Population Council, Lusaka, Zambia.</nlm:affiliation><country xml:lang="fr">Zambie</country><wicri:regionArea>HIV and AIDS Program, Population Council, Lusaka</wicri:regionArea></affiliation></author></analytic><series><title level="j">Journal of the International AIDS Society</title><idno type="eISSN">1758-2652</idno><imprint><date when="2016" type="published">2016</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Knowledge about experiences in accessing HIV services among persons with disabilities who are living with HIV in sub-Saharan Africa is limited. Although HIV transmission among persons with disabilities in Africa is increasingly acknowledged, there is a need to bring to life the experiences and voices from persons with disabilities living with HIV to raise awareness of programme implementers and policy makers about their barriers in accessing HIV services. This paper explores how the barriers faced by persons with disabilities living with HIV impede their ability to access HIV-related services and manage their disease.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">27443266</PMID><DateCreated><Year>2016</Year><Month>07</Month><Day>22</Day></DateCreated><DateRevised><Year>2017</Year><Month>02</Month><Day>20</Day></DateRevised><Article PubModel="Electronic-eCollection"><Journal><ISSN IssnType="Electronic">1758-2652</ISSN><JournalIssue CitedMedium="Internet"><Volume>19</Volume><Issue>5 Suppl 4</Issue><PubDate><Year>2016</Year></PubDate></JournalIssue><Title>Journal of the International AIDS Society</Title><ISOAbbreviation>J Int AIDS Soc</ISOAbbreviation></Journal><ArticleTitle>Limited accessibility to HIV services for persons with disabilities living with HIV in Ghana, Uganda and Zambia.</ArticleTitle><Pagination><MedlinePgn>20829</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.7448/IAS.19.5.20829</ELocationID><Abstract><AbstractText Label="INTRODUCTION" NlmCategory="BACKGROUND">Knowledge about experiences in accessing HIV services among persons with disabilities who are living with HIV in sub-Saharan Africa is limited. Although HIV transmission among persons with disabilities in Africa is increasingly acknowledged, there is a need to bring to life the experiences and voices from persons with disabilities living with HIV to raise awareness of programme implementers and policy makers about their barriers in accessing HIV services. This paper explores how the barriers faced by persons with disabilities living with HIV impede their ability to access HIV-related services and manage their disease.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">We conducted focus group discussions with 76 persons (41 females; 35 males) with physical, visual and/or hearing impairments who were living with HIV in Ghana, Uganda and Zambia (2012-2013). We explored challenges and facilitators at different levels (individual, psychosocial and structural) of access to HIV services. Transcripts were analyzed using a framework analysis approach.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Persons with disabilities living with HIV encountered a wide variety of challenges in accessing HIV services. Delays in testing for HIV were common, with most waiting until they were sick to be tested. Reasons for delayed testing included challenges in getting to the health facilities, lack of information about HIV and testing, and HIV- and disability-related stigma. Barriers to HIV-related services, including care and treatment, at health facilities included lack of disability-friendly educational materials and sign interpreters, stigmatizing treatment by providers and other patients, lack of skills to provide tailored services to persons with disabilities living with HIV and physically inaccessible infrastructure, all of which make it extremely difficult for persons with disabilities to initiate and adhere to HIV treatment. Accessibility challenges were greater for women than men due to gender-related roles. Challenges were similar across the three countries. Favourable experiences in accessing HIV services were reported in Uganda and Zambia, where disability-tailored services were offered by non-governmental organizations and government facilities (Uganda only).</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Persons with disabilities living with HIV encounter many challenges in accessing HIV testing and continued care and treatment services. Changes are needed at every level to ensure accessibility of HIV services for persons with disabilities.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Tun</LastName><ForeName>Waimar</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>HIV and AIDS Program, Population Council, Washington, DC, USA; wtun@popcouncil.org.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Okal</LastName><ForeName>Jerry</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>HIV and AIDS Program, Population Council, Nairobi, Kenya.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Schenk</LastName><ForeName>Katie</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Department of Global and Community Health, George Mason University, Fairfax, VA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Esantsi</LastName><ForeName>Selina</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Reproductive Health Program, Population Council, Accra, Ghana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mutale</LastName><ForeName>Felix</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Development Consultant, Formerly with Zambia Agency for Persons with Disabilities, Lusaka, Zambia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kyeremaa</LastName><ForeName>Rita Kusi</ForeName><Initials>RK</Initials><AffiliationInfo><Affiliation>Ghana Federation of Disability Organisations, Accra, Ghana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ngirabakunzi</LastName><ForeName>Edson</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>National Union of Disabled Persons of Uganda, Kampala, Uganda.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Asiah</LastName><ForeName>Hilary</ForeName><Initials>H</Initials><AffiliationInfo><Affiliation>Reproductive Health Program, Population Council, Accra, Ghana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>McClain-Nhlapo</LastName><ForeName>Charlotte</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>The World Bank, Washington, DC, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moono</LastName><ForeName>Grimond</ForeName><Initials>G</Initials><AffiliationInfo><Affiliation>HIV and AIDS Program, Population Council, Lusaka, Zambia.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2016</Year><Month>07</Month><Day>20</Day></ArticleDate></Article><MedlineJournalInfo><Country>Switzerland</Country><MedlineTA>J Int AIDS Soc</MedlineTA><NlmUniqueID>101478566</NlmUniqueID><ISSNLinking>1758-2652</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><CitationSubset>X</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>PLoS One. 2015 Jun 03;10(6):e0127392</RefSource><PMID Version="1">26039666</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Disabil Rehabil. 2012;34(7):605-10</RefSource><PMID Version="1">22007632</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Int AIDS Soc. 2010 Feb 04;13:5</RefSource><PMID Version="1">20181091</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Disabil Rehabil. 2009;31(1):51-9</RefSource><PMID Version="1">19194810</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Int AIDS Soc. 2014 Apr 23;17:18806</RefSource><PMID Version="1">24763077</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Int 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Version="1">18420554</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Int AIDS Soc. 2009 Nov 13;12:9</RefSource><PMID Version="1">19912634</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Int AIDS Soc. 2009 Nov 09;12:3</RefSource><PMID Version="1">19900282</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>SAHARA J. 2010 Dec;7(4):17-23</RefSource><PMID Version="1">21409307</PMID></CommentsCorrections></CommentsCorrectionsList><OtherID Source="NLM">PMC4956734</OtherID><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">HIV positive</Keyword><Keyword MajorTopicYN="N">PLHIV</Keyword><Keyword MajorTopicYN="N">accessibility</Keyword><Keyword MajorTopicYN="N">disability</Keyword><Keyword MajorTopicYN="N">persons with disabilities</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2015</Year><Month>11</Month><Day>23</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2016</Year><Month>04</Month><Day>01</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2016</Year><Month>05</Month><Day>02</Day></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2016</Year><Month>7</Month><Day>23</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2016</Year><Month>7</Month><Day>23</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2016</Year><Month>7</Month><Day>23</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>epublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">27443266</ArticleId><ArticleId IdType="pii">20829</ArticleId><ArticleId IdType="pmc">PMC4956734</ArticleId></ArticleIdList></PubmedData></pubmed></record>Pour manipuler ce document sous Unix (Dilib)
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