SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana.
Identifieur interne : 000065 ( PubMed/Corpus ); précédent : 000064; suivant : 000066SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana.
Auteurs : Nancy R. Reynolds ; Angela Ofori-Atta ; Margaret Lartey ; Lorna Renner ; Sampson Antwi ; Anthony Enimil ; Ann Christine Catlin ; Sumudinie Fernando ; Tassos C. Kyriakides ; Elijah PaintsilSource :
- AIDS (London, England) [ 1473-5571 ] ; 2015.
English descriptors
- KwdEn :
- MESH :
- geographic : Ghana.
- drug therapy : HIV Infections.
- methods : Pediatrics.
- psychology : Caregivers, HIV Infections.
- Adolescent, Adult, Child, Cooperative Behavior, Female, Humans, Male, Truth Disclosure.
Abstract
With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment.Yet many of these children, especially preadolescents, do not know they are HIV-infected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child's caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.
DOI: 10.1097/QAD.0000000000000725
PubMed: 26049537
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pubmed:26049537Le document en format XML
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Reynolds</name><affiliation><nlm:affiliation>aYale University School of Nursing, West Haven, Connecticut, USA bDepartment of Psychiatry cDepartment of Medicine dDepartment of Child Health, University of Ghana School of Medicine and Dentistry, Accra eDepartment of Child Health, School of Medical Sciences, Kwame Nkrumah University of Science and Technology and Komfo Anokye Teaching Hospital, Kumasi, Ghana fPurdue University gYale Center for Analytical Sciences hDepartment of Pediatrics iDepartment of Pharmacology & Public Health, Yale University School of Medicine, New Haven, Connecticut, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Ofori Atta, Angela" sort="Ofori Atta, Angela" uniqKey="Ofori Atta A" first="Angela" last="Ofori-Atta">Angela Ofori-Atta</name></author><author><name sortKey="Lartey, Margaret" sort="Lartey, Margaret" uniqKey="Lartey M" first="Margaret" last="Lartey">Margaret Lartey</name></author><author><name sortKey="Renner, Lorna" sort="Renner, Lorna" uniqKey="Renner L" first="Lorna" last="Renner">Lorna Renner</name></author><author><name sortKey="Antwi, Sampson" sort="Antwi, Sampson" uniqKey="Antwi S" first="Sampson" last="Antwi">Sampson Antwi</name></author><author><name sortKey="Enimil, Anthony" sort="Enimil, Anthony" uniqKey="Enimil A" first="Anthony" last="Enimil">Anthony Enimil</name></author><author><name sortKey="Catlin, Ann Christine" sort="Catlin, Ann Christine" uniqKey="Catlin A" first="Ann Christine" last="Catlin">Ann Christine Catlin</name></author><author><name sortKey="Fernando, Sumudinie" sort="Fernando, Sumudinie" uniqKey="Fernando S" first="Sumudinie" last="Fernando">Sumudinie Fernando</name></author><author><name sortKey="Kyriakides, Tassos C" sort="Kyriakides, Tassos C" uniqKey="Kyriakides T" first="Tassos C" last="Kyriakides">Tassos C. Kyriakides</name></author><author><name sortKey="Paintsil, Elijah" sort="Paintsil, Elijah" uniqKey="Paintsil E" first="Elijah" last="Paintsil">Elijah Paintsil</name></author></analytic><series><title level="j">AIDS (London, England)</title><idno type="eISSN">1473-5571</idno><imprint><date when="2015" type="published">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Caregivers (psychology)</term><term>Child</term><term>Cooperative Behavior</term><term>Female</term><term>Ghana</term><term>HIV Infections (drug therapy)</term><term>HIV Infections (psychology)</term><term>Humans</term><term>Male</term><term>Pediatrics (methods)</term><term>Truth Disclosure</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Ghana</term></keywords><keywords scheme="MESH" qualifier="drug therapy" xml:lang="en"><term>HIV Infections</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Pediatrics</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Caregivers</term><term>HIV Infections</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Child</term><term>Cooperative Behavior</term><term>Female</term><term>Humans</term><term>Male</term><term>Truth Disclosure</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment.Yet many of these children, especially preadolescents, do not know they are HIV-infected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child's caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">26049537</PMID><DateCreated><Year>2015</Year><Month>06</Month><Day>08</Day></DateCreated><DateCompleted><Year>2016</Year><Month>02</Month><Day>26</Day></DateCompleted><DateRevised><Year>2017</Year><Month>02</Month><Day>20</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1473-5571</ISSN><JournalIssue CitedMedium="Internet"><Volume>29 Suppl 1</Volume><PubDate><Year>2015</Year><Month>Jun</Month></PubDate></JournalIssue><Title>AIDS (London, England)</Title><ISOAbbreviation>AIDS</ISOAbbreviation></Journal><ArticleTitle>SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana.</ArticleTitle><Pagination><MedlinePgn>S35-45</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1097/QAD.0000000000000725</ELocationID><Abstract><AbstractText>With the scale-up of effective antiretroviral therapy in resource-limited settings, many HIV-infected children are now able to survive into adulthood. To achieve this potential, children must navigate normative developmental processes and challenges while living with an unusually complex, stigmatizing, potentially fatal chronic illness and meeting the demands of treatment.Yet many of these children, especially preadolescents, do not know they are HIV-infected. Despite compelling evidence supporting the merits of informing children of their HIV status, there has been little emphasis on equipping the child's caregiver with information and skills to promote disclosure, particularly, when the caregiver faces a variety of sociocultural barriers and is reluctant to do so. In this study, we present the background, process and methods for a first of its kind collaboration that is examining the efficacy of an intervention developed to facilitate the engagement of caregivers in the process of disclosure in a manner suitable to the sociocultural context and developmental age and needs of the child in Ghana. We also report preliminary data that supported the design of the intervention approach and currently available domains of the data system. Finally, we discuss challenges and implications for future research.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Reynolds</LastName><ForeName>Nancy R</ForeName><Initials>NR</Initials><AffiliationInfo><Affiliation>aYale University School of Nursing, West Haven, Connecticut, USA bDepartment of Psychiatry cDepartment of Medicine dDepartment of Child Health, University of Ghana School of Medicine and Dentistry, Accra eDepartment of Child Health, School of Medical Sciences, Kwame Nkrumah University of Science and Technology and Komfo Anokye Teaching Hospital, Kumasi, Ghana fPurdue University gYale Center for Analytical Sciences hDepartment of Pediatrics iDepartment of Pharmacology & Public Health, Yale University School of Medicine, New Haven, Connecticut, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ofori-Atta</LastName><ForeName>Angela</ForeName><Initials>A</Initials></Author><Author ValidYN="Y"><LastName>Lartey</LastName><ForeName>Margaret</ForeName><Initials>M</Initials></Author><Author ValidYN="Y"><LastName>Renner</LastName><ForeName>Lorna</ForeName><Initials>L</Initials></Author><Author ValidYN="Y"><LastName>Antwi</LastName><ForeName>Sampson</ForeName><Initials>S</Initials></Author><Author ValidYN="Y"><LastName>Enimil</LastName><ForeName>Anthony</ForeName><Initials>A</Initials></Author><Author ValidYN="Y"><LastName>Catlin</LastName><ForeName>Ann Christine</ForeName><Initials>AC</Initials></Author><Author ValidYN="Y"><LastName>Fernando</LastName><ForeName>Sumudinie</ForeName><Initials>S</Initials></Author><Author ValidYN="Y"><LastName>Kyriakides</LastName><ForeName>Tassos C</ForeName><Initials>TC</Initials></Author><Author ValidYN="Y"><LastName>Paintsil</LastName><ForeName>Elijah</ForeName><Initials>E</Initials></Author></AuthorList><Language>eng</Language><GrantList CompleteYN="Y"><Grant><GrantID>R01 HD074253</GrantID><Acronym>HD</Acronym><Agency>NICHD NIH HHS</Agency><Country>United States</Country></Grant><Grant><GrantID>R01HD074253</GrantID><Acronym>HD</Acronym><Agency>NICHD NIH HHS</Agency><Country>United States</Country></Grant></GrantList><PublicationTypeList><PublicationType UI="D016421">Editorial</PublicationType><PublicationType UI="D052061">Research Support, N.I.H., Extramural</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>AIDS</MedlineTA><NlmUniqueID>8710219</NlmUniqueID><ISSNLinking>0269-9370</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><CitationSubset>X</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>J Clin Epidemiol. 1999 Nov;52(11):1037-46</RefSource><PMID Version="1">10526997</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Clin Epidemiol. 1993 Dec;46(12):1417-32</RefSource><PMID Version="1">8263569</PMID></CommentsCorrections><CommentsCorrections 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