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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">When Darkness Falls at Mid-Day: Young Patients' Perceptions and Meanings of Chronic Illness and Their Implications for Medical Care</title><author><name sortKey="Atobrah, D" sort="Atobrah, D" uniqKey="Atobrah D" first="D" last="Atobrah">D. Atobrah</name></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">23661817</idno><idno type="pmc">3645148</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3645148</idno><idno type="RBID">PMC:3645148</idno><date when="2012">2012</date><idno type="wicri:Area/Pmc/Corpus">000333</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000333</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">When Darkness Falls at Mid-Day: Young Patients' Perceptions and Meanings of Chronic Illness and Their Implications for Medical Care</title><author><name sortKey="Atobrah, D" sort="Atobrah, D" uniqKey="Atobrah D" first="D" last="Atobrah">D. Atobrah</name></author></analytic><series><title level="j">Ghana Medical Journal</title><idno type="ISSN">0016-9560</idno><imprint><date when="2012">2012</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><title>Summary</title><sec><title>Background</title><p>This study illustrates the perceptions and meanings that patients who have had the onset of certain chronic diseases at young adulthood ascribe to their condition of chronic illness. The paper further examines the implications of such perceptions and construction for medical care.</p></sec><sec><title>Design</title><p>Qualitative and ethnography.</p></sec><sec><title>Setting</title><p>Outpatient chronically ill patients were recruited from the Korle Bu Teaching Hospital, Accra Ghana. Patients were followed up and studied in-depth in their homes.</p></sec><sec><title>Participants</title><p>Purposive sample of 24 consenting patients diagnosed of cancer, renal disease and stroke.</p></sec><sec sec-type="methods"><title>Methods</title><p>Anthropological data collection techniques mainly in-depth interviews, narratives, conversation and observations were used. Issues explored included patients' perceptions, causal explanations, meanings ascribed to diagnosis, and search for treatment and cure.</p></sec><sec sec-type="results"><title>Results</title><p>Young adults had very low knowledge of chronic illnesses and did not consider themselves at risk to chronic diseases. The search for diagnosis, upon the presentation of symptoms, was long and winding. Families of young patients were more likely to make future search for “spiritual diagnoses” than elderly patients and their families. Keeping silent and maintaining secrecy about diagnosis are important ways by which young adult patients cope with their condition. Irrespective of the prognosis, young patients nurture a strong hope of cure.</p></sec><sec sec-type="conclusion"><title>Conclusion</title><p>Young adults diagnosed of certain chronic illnesses ascribe supernatural interpretations to their disease condition. These determine their attitude to their condition as well as health seeking behaviours adopted by them and their families. Responses interfered with their biomedical care and thus have implications for health promotion and healthcare planning and policy.</p></sec></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Ghana Med J</journal-id><journal-title-group><journal-title>Ghana Medical Journal</journal-title></journal-title-group><issn pub-type="ppub">0016-9560</issn><publisher><publisher-name>Ghana Medical Association</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">23661817</article-id><article-id pub-id-type="pmc">3645148</article-id><article-id pub-id-type="publisher-id">jGMJ.v46.i2S.pg46</article-id><article-categories><subj-group subj-group-type="heading"><subject>Original Articles</subject></subj-group></article-categories><title-group><article-title>When Darkness Falls at Mid-Day: Young Patients' Perceptions and Meanings of Chronic Illness and Their Implications for Medical Care</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Atobrah</surname><given-names>D</given-names></name></contrib></contrib-group><aff>Institute of African Studies, University of Ghana, Accra, Ghana</aff><author-notes><corresp><bold>Corresponding author:</bold> Deborah Atobrah <bold>Email:</bold><email>datobrah@ug.edu.gh</email></corresp><fn fn-type="conflict"><p><bold>Conflict of interes:</bold> None declared</p></fn></author-notes><pub-date pub-type="ppub"><month>6</month><year>2012</year></pub-date><volume>46</volume><issue>2 Suppl</issue><fpage>46</fpage><lpage>53</lpage><permissions><copyright-statement>Copyright © Ghana Medical Association 2012</copyright-statement><copyright-year>2012</copyright-year></permissions><abstract abstract-type="executive-summary"><title>Summary</title><sec><title>Background</title><p>This study illustrates the perceptions and meanings that patients who have had the onset of certain chronic diseases at young adulthood ascribe to their condition of chronic illness. The paper further examines the implications of such perceptions and construction for medical care.</p></sec><sec><title>Design</title><p>Qualitative and ethnography.</p></sec><sec><title>Setting</title><p>Outpatient chronically ill patients were recruited from the Korle Bu Teaching Hospital, Accra Ghana. Patients were followed up and studied in-depth in their homes.</p></sec><sec><title>Participants</title><p>Purposive sample of 24 consenting patients diagnosed of cancer, renal disease and stroke.</p></sec><sec sec-type="methods"><title>Methods</title><p>Anthropological data collection techniques mainly in-depth interviews, narratives, conversation and observations were used. Issues explored included patients' perceptions, causal explanations, meanings ascribed to diagnosis, and search for treatment and cure.</p></sec><sec sec-type="results"><title>Results</title><p>Young adults had very low knowledge of chronic illnesses and did not consider themselves at risk to chronic diseases. The search for diagnosis, upon the presentation of symptoms, was long and winding. Families of young patients were more likely to make future search for “spiritual diagnoses” than elderly patients and their families. Keeping silent and maintaining secrecy about diagnosis are important ways by which young adult patients cope with their condition. Irrespective of the prognosis, young patients nurture a strong hope of cure.</p></sec><sec sec-type="conclusion"><title>Conclusion</title><p>Young adults diagnosed of certain chronic illnesses ascribe supernatural interpretations to their disease condition. These determine their attitude to their condition as well as health seeking behaviours adopted by them and their families. Responses interfered with their biomedical care and thus have implications for health promotion and healthcare planning and policy.</p></sec></abstract><kwd-group><kwd>young adulthood</kwd><kwd>chronic illness</kwd><kwd>causal explanation</kwd></kwd-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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