The experience of caregivers of people living with serious mental disorders: a study from rural Ghana
Identifieur interne : 000822 ( Ncbi/Merge ); précédent : 000821; suivant : 000823The experience of caregivers of people living with serious mental disorders: a study from rural Ghana
Auteurs : Kenneth Ayuurebobi Ae-Ngibise [Ghana] ; Victor Christian Korley Doku [Royaume-Uni] ; Kwaku Poku Asante [Ghana] ; Seth Owusu-Agyei [Ghana]Source :
- Global Health Action [ 1654-9716 ] ; 2015.
Abstract
Families and friends who give care to people with mental disorders (MDs) are affected in a variety of ways and degrees. The interplay of caregiving consequences: poverty, discrimination and stigma, lack of support from others, diminished social relationships, depression, emotional trauma, and poor or interrupted sleep are associated caregiver burden.
The burden of care on caregivers of people living with MDs was assessed in two districts located in the middle part of Ghana. Coping strategies and available support for caregivers of MDs were also assessed.
A qualitative study was carried out involving 75 caregivers of participants with MDs registered within the Kintampo Health and Demographic Surveillance Systems. Data were gathered from caregivers about their experiences in providing care for their relations with MDs.
Caregivers reported various degrees of burden, which included financial, social exclusion, emotional, depression, and inadequate time for other social responsibilities. Responsibilities around caregiving were mostly shared among close relatives but to a varying and limited extent. Religious prayers and the anticipation of cure were the main coping strategies adopted by caregivers, with expectation of new treatments being discovered.
Emotional distress, stigma, financial burden, lack of support networks, social exclusion, health impact, and absence of decentralised mental health services were experienced by family caregivers. These findings highlight the need for interventions to support people with MDs and their caregivers. This might include policy development and implementation that will decentralise mental health care provision including psychosocial support for caregivers. This will ameliorate families’ financial and emotional burden, facilitate early diagnosis and management, reduce travel time to seek care, and improve the quality of life of family caregivers of persons with MDs.
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DOI: 10.3402/gha.v8.26957
PubMed: 25967587
PubMed Central: 4429259
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">The experience of caregivers of people living with serious mental disorders: a study from rural Ghana</title><author><name sortKey="Ae Ngibise, Kenneth Ayuurebobi" sort="Ae Ngibise, Kenneth Ayuurebobi" uniqKey="Ae Ngibise K" first="Kenneth Ayuurebobi" last="Ae-Ngibise">Kenneth Ayuurebobi Ae-Ngibise</name><affiliation wicri:level="1"><nlm:aff id="AF0001">Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</nlm:aff><country xml:lang="fr">Ghana</country><wicri:regionArea>Kintampo Health Research Centre, Ghana Health Service, Kintampo</wicri:regionArea><wicri:noRegion>Kintampo</wicri:noRegion></affiliation></author><author><name sortKey="Doku, Victor Christian Korley" sort="Doku, Victor Christian Korley" uniqKey="Doku V" first="Victor Christian Korley" last="Doku">Victor Christian Korley Doku</name><affiliation wicri:level="1"><nlm:aff id="AF0002">Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London, United Kingdom</nlm:aff><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London</wicri:regionArea><wicri:noRegion>King's College London</wicri:noRegion></affiliation></author><author><name sortKey="Asante, Kwaku Poku" sort="Asante, Kwaku Poku" uniqKey="Asante K" first="Kwaku Poku" last="Asante">Kwaku Poku Asante</name><affiliation wicri:level="1"><nlm:aff id="AF0001">Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</nlm:aff><country xml:lang="fr">Ghana</country><wicri:regionArea>Kintampo Health Research Centre, Ghana Health Service, Kintampo</wicri:regionArea><wicri:noRegion>Kintampo</wicri:noRegion></affiliation></author><author><name sortKey="Owusu Agyei, Seth" sort="Owusu Agyei, Seth" uniqKey="Owusu Agyei S" first="Seth" last="Owusu-Agyei">Seth Owusu-Agyei</name><affiliation wicri:level="1"><nlm:aff id="AF0001">Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</nlm:aff><country xml:lang="fr">Ghana</country><wicri:regionArea>Kintampo Health Research Centre, Ghana Health Service, Kintampo</wicri:regionArea><wicri:noRegion>Kintampo</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">25967587</idno><idno type="pmc">4429259</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4429259</idno><idno type="RBID">PMC:4429259</idno><idno type="doi">10.3402/gha.v8.26957</idno><date when="2015">2015</date><idno type="wicri:Area/Pmc/Corpus">000010</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000010</idno><idno type="wicri:Area/Pmc/Curation">000010</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">000010</idno><idno type="wicri:Area/Pmc/Checkpoint">000134</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">000134</idno><idno type="wicri:Area/Ncbi/Merge">000822</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">The experience of caregivers of people living with serious mental disorders: a study from rural Ghana</title><author><name sortKey="Ae Ngibise, Kenneth Ayuurebobi" sort="Ae Ngibise, Kenneth Ayuurebobi" uniqKey="Ae Ngibise K" first="Kenneth Ayuurebobi" last="Ae-Ngibise">Kenneth Ayuurebobi Ae-Ngibise</name><affiliation wicri:level="1"><nlm:aff id="AF0001">Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</nlm:aff><country xml:lang="fr">Ghana</country><wicri:regionArea>Kintampo Health Research Centre, Ghana Health Service, Kintampo</wicri:regionArea><wicri:noRegion>Kintampo</wicri:noRegion></affiliation></author><author><name sortKey="Doku, Victor Christian Korley" sort="Doku, Victor Christian Korley" uniqKey="Doku V" first="Victor Christian Korley" last="Doku">Victor Christian Korley Doku</name><affiliation wicri:level="1"><nlm:aff id="AF0002">Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London, United Kingdom</nlm:aff><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London</wicri:regionArea><wicri:noRegion>King's College London</wicri:noRegion></affiliation></author><author><name sortKey="Asante, Kwaku Poku" sort="Asante, Kwaku Poku" uniqKey="Asante K" first="Kwaku Poku" last="Asante">Kwaku Poku Asante</name><affiliation wicri:level="1"><nlm:aff id="AF0001">Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</nlm:aff><country xml:lang="fr">Ghana</country><wicri:regionArea>Kintampo Health Research Centre, Ghana Health Service, Kintampo</wicri:regionArea><wicri:noRegion>Kintampo</wicri:noRegion></affiliation></author><author><name sortKey="Owusu Agyei, Seth" sort="Owusu Agyei, Seth" uniqKey="Owusu Agyei S" first="Seth" last="Owusu-Agyei">Seth Owusu-Agyei</name><affiliation wicri:level="1"><nlm:aff id="AF0001">Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</nlm:aff><country xml:lang="fr">Ghana</country><wicri:regionArea>Kintampo Health Research Centre, Ghana Health Service, Kintampo</wicri:regionArea><wicri:noRegion>Kintampo</wicri:noRegion></affiliation></author></analytic><series><title level="j">Global Health Action</title><idno type="ISSN">1654-9716</idno><idno type="eISSN">1654-9880</idno><imprint><date when="2015">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec id="st1"><title>Background</title><p>Families and friends who give care to people with mental disorders (MDs) are affected in a variety of ways and degrees. The interplay of caregiving consequences: poverty, discrimination and stigma, lack of support from others, diminished social relationships, depression, emotional trauma, and poor or interrupted sleep are associated caregiver burden.</p></sec><sec id="st2"><title>Objective</title><p>The burden of care on caregivers of people living with MDs was assessed in two districts located in the middle part of Ghana. Coping strategies and available support for caregivers of MDs were also assessed.</p></sec><sec id="st3"><title>Design</title><p>A qualitative study was carried out involving 75 caregivers of participants with MDs registered within the Kintampo Health and Demographic Surveillance Systems. Data were gathered from caregivers about their experiences in providing care for their relations with MDs.</p></sec><sec id="st4"><title>Results</title><p>Caregivers reported various degrees of burden, which included financial, social exclusion, emotional, depression, and inadequate time for other social responsibilities. Responsibilities around caregiving were mostly shared among close relatives but to a varying and limited extent. Religious prayers and the anticipation of cure were the main coping strategies adopted by caregivers, with expectation of new treatments being discovered.</p></sec><sec id="st5"><title>Conclusions</title><p>Emotional distress, stigma, financial burden, lack of support networks, social exclusion, health impact, and absence of decentralised mental health services were experienced by family caregivers. These findings highlight the need for interventions to support people with MDs and their caregivers. This might include policy development and implementation that will decentralise mental health care provision including psychosocial support for caregivers. 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<front><journal-meta><journal-id journal-id-type="nlm-ta">Glob Health Action</journal-id><journal-id journal-id-type="iso-abbrev">Glob Health Action</journal-id><journal-id journal-id-type="publisher-id">GHA</journal-id><journal-title-group><journal-title>Global Health Action</journal-title></journal-title-group><issn pub-type="ppub">1654-9716</issn><issn pub-type="epub">1654-9880</issn><publisher><publisher-name>Co-Action Publishing</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">25967587</article-id><article-id pub-id-type="pmc">4429259</article-id><article-id pub-id-type="publisher-id">26957</article-id><article-id pub-id-type="doi">10.3402/gha.v8.26957</article-id><article-categories><subj-group subj-group-type="heading"><subject>Original Article</subject></subj-group></article-categories><title-group><article-title>The experience of caregivers of people living with serious mental disorders: a study from rural Ghana</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Ae-Ngibise</surname><given-names>Kenneth Ayuurebobi</given-names></name><xref ref-type="aff" rid="AF0001">1</xref><xref ref-type="corresp" rid="cor1">*</xref></contrib><contrib contrib-type="author"><name><surname>Doku</surname><given-names>Victor Christian Korley</given-names></name><xref ref-type="aff" rid="AF0002">2</xref></contrib><contrib contrib-type="author"><name><surname>Asante</surname><given-names>Kwaku Poku</given-names></name><xref ref-type="aff" rid="AF0001">1</xref></contrib><contrib contrib-type="author"><name><surname>Owusu-Agyei</surname><given-names>Seth</given-names></name><xref ref-type="aff" rid="AF0001">1</xref></contrib></contrib-group><aff id="AF0001"><label>1</label>Kintampo Health Research Centre, Ghana Health Service, Kintampo, Ghana</aff><aff id="AF0002"><label>2</label>Centre for Global Mental Health, Institute of Psychiatry, Psychology and Neuroscience, King's College London, United Kingdom</aff><author-notes><corresp id="cor1"><label>*</label>Correspondence to: Kenneth Ayuurebobi Ae-Ngibise, Kintampo Health Research Centre, PO Box 200, Brong Ahafo Region, Kintampo, Ghana, Email: <email xlink:href="kenneth.asayah@kintampo-hrc.org">kenneth.asayah@kintampo-hrc.org</email></corresp><fn><p>Responsible Editor: Malin Eriksson, Umeå University, Sweden.</p></fn></author-notes><pub-date pub-type="epub"><day>11</day><month>5</month><year>2015</year></pub-date><pub-date pub-type="collection"><year>2015</year></pub-date><volume>8</volume><elocation-id content-type="doi">10.3402/gha.v8.26957</elocation-id><history><date date-type="received"><day>11</day><month>12</month><year>2014</year></date><date date-type="rev-recd"><day>07</day><month>4</month><year>2015</year></date><date date-type="accepted"><day>10</day><month>4</month><year>2015</year></date></history><permissions><copyright-statement>© 2015 Kenneth Ayuurebobi Ae-Ngibise et al.</copyright-statement><copyright-year>2015</copyright-year><license license-type="open-access" xlink:href="http://creativecommons.org/licenses/by/4.0/"><license-p>This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 International License, allowing third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material for any purpose, even commercially, provided the original work is properly cited and states its license.</license-p></license></permissions><abstract><sec id="st1"><title>Background</title><p>Families and friends who give care to people with mental disorders (MDs) are affected in a variety of ways and degrees. The interplay of caregiving consequences: poverty, discrimination and stigma, lack of support from others, diminished social relationships, depression, emotional trauma, and poor or interrupted sleep are associated caregiver burden.</p></sec><sec id="st2"><title>Objective</title><p>The burden of care on caregivers of people living with MDs was assessed in two districts located in the middle part of Ghana. Coping strategies and available support for caregivers of MDs were also assessed.</p></sec><sec id="st3"><title>Design</title><p>A qualitative study was carried out involving 75 caregivers of participants with MDs registered within the Kintampo Health and Demographic Surveillance Systems. Data were gathered from caregivers about their experiences in providing care for their relations with MDs.</p></sec><sec id="st4"><title>Results</title><p>Caregivers reported various degrees of burden, which included financial, social exclusion, emotional, depression, and inadequate time for other social responsibilities. Responsibilities around caregiving were mostly shared among close relatives but to a varying and limited extent. Religious prayers and the anticipation of cure were the main coping strategies adopted by caregivers, with expectation of new treatments being discovered.</p></sec><sec id="st5"><title>Conclusions</title><p>Emotional distress, stigma, financial burden, lack of support networks, social exclusion, health impact, and absence of decentralised mental health services were experienced by family caregivers. These findings highlight the need for interventions to support people with MDs and their caregivers. This might include policy development and implementation that will decentralise mental health care provision including psychosocial support for caregivers. This will ameliorate families’ financial and emotional burden, facilitate early diagnosis and management, reduce travel time to seek care, and improve the quality of life of family caregivers of persons with MDs.</p></sec></abstract><kwd-group><kwd>burden</kwd><kwd>primary caregiver</kwd><kwd>mental disorders</kwd><kwd>stigma</kwd><kwd>Kintampo</kwd></kwd-group></article-meta></front></pmc><affiliations><list><country><li>Ghana</li><li>Royaume-Uni</li></country></list><tree><country name="Ghana"><noRegion><name sortKey="Ae Ngibise, Kenneth Ayuurebobi" sort="Ae Ngibise, Kenneth Ayuurebobi" uniqKey="Ae Ngibise K" first="Kenneth Ayuurebobi" last="Ae-Ngibise">Kenneth Ayuurebobi Ae-Ngibise</name></noRegion><name sortKey="Asante, Kwaku Poku" sort="Asante, Kwaku Poku" uniqKey="Asante K" first="Kwaku Poku" last="Asante">Kwaku Poku Asante</name><name sortKey="Owusu Agyei, Seth" sort="Owusu Agyei, Seth" uniqKey="Owusu Agyei S" first="Seth" last="Owusu-Agyei">Seth Owusu-Agyei</name></country><country name="Royaume-Uni"><noRegion><name sortKey="Doku, Victor Christian Korley" sort="Doku, Victor Christian Korley" uniqKey="Doku V" first="Victor Christian Korley" last="Doku">Victor Christian Korley Doku</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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