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Quality of life and related concepts in Parkinson's disease: A systematic review

Identifieur interne : 003140 ( Main/Corpus ); précédent : 003139; suivant : 003141

Quality of life and related concepts in Parkinson's disease: A systematic review

Auteurs : Brenda L. Den Oudsten ; Guus L. Van Heck ; Jolanda De Vries

Source :

RBID : ISTEX:478A2766B3316A6C8BE8382FE9B93CCC2F914A93

English descriptors

Abstract

Several studies have investigated the quality of life (QOL) of patients with Parkinson's disease (PD). The purpose of this study was to review the conceptual and methodological quality of quality of life (QOL) studies among patients with PD and to identify factors associated with poor (HR)QOL. Computerized bibliographic databases were screened for publications from 1960 to January 2007. According to a list of predefined criteria, the methodological quality of the 61 studies, was moderate. The term ‘QOL’ was often used inappropriately. In fact, almost all studies in this review actually assessed health status (HS) instead of QOL. The functioning of patients with PD on physical, social, and emotional domains is affected by PD. Their HS seems to be lower when compared to healthy persons or patients with other chronic diseases. HS studies augment the insight in self‐perceived functioning. Therefore, HS is conceived as a valuable construct. However, QOL is also an important factor in health care. Attention towards QOL is needed in order to draw valid conclusions regarding a person's subjective experience of well‐being in a broad sense. In order to accomplish this, future studies should apply the QOL concept with more rigor, should use an adequate operational definition, and should employ sound measures. © 2007 Movement Disorder Society

Url:
DOI: 10.1002/mds.21567

Links to Exploration step

ISTEX:478A2766B3316A6C8BE8382FE9B93CCC2F914A93

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<p>Several studies have investigated the quality of life (QOL) of patients with Parkinson's disease (PD). The purpose of this study was to review the conceptual and methodological quality of quality of life (QOL) studies among patients with PD and to identify factors associated with poor (HR)QOL. Computerized bibliographic databases were screened for publications from 1960 to January 2007. According to a list of predefined criteria, the methodological quality of the 61 studies, was moderate. The term ‘QOL’ was often used inappropriately. In fact, almost all studies in this review actually assessed health status (HS) instead of QOL. The functioning of patients with PD on physical, social, and emotional domains is affected by PD. Their HS seems to be lower when compared to healthy persons or patients with other chronic diseases. HS studies augment the insight in self‐perceived functioning. Therefore, HS is conceived as a valuable construct. However, QOL is also an important factor in health care. Attention towards QOL is needed in order to draw valid conclusions regarding a person's subjective experience of well‐being in a broad sense. In order to accomplish this, future studies should apply the QOL concept with more rigor, should use an adequate operational definition, and should employ sound measures. © 2007 Movement Disorder Society</p>
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<title>Quality of life and related concepts in Parkinson's disease: A systematic review</title>
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<affiliation>Medical Psychology, Department of Psychology and Health, Tilburg University, Tilburg, The Netherlands</affiliation>
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<affiliation>Medical Psychology, Department of Psychology and Health, Tilburg University, Tilburg, The Netherlands</affiliation>
<affiliation>Tranzo, Tilburg University, Tilburg, The Netherlands</affiliation>
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<name type="personal">
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<namePart type="family">De Vries</namePart>
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<affiliation>Medical Psychology, Department of Psychology and Health, Tilburg University, Tilburg, The Netherlands</affiliation>
<affiliation>Medical Psychology, St. Elisabeth Hospital, Tilburg, The Netherlands</affiliation>
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<abstract lang="en">Several studies have investigated the quality of life (QOL) of patients with Parkinson's disease (PD). The purpose of this study was to review the conceptual and methodological quality of quality of life (QOL) studies among patients with PD and to identify factors associated with poor (HR)QOL. Computerized bibliographic databases were screened for publications from 1960 to January 2007. According to a list of predefined criteria, the methodological quality of the 61 studies, was moderate. The term ‘QOL’ was often used inappropriately. In fact, almost all studies in this review actually assessed health status (HS) instead of QOL. The functioning of patients with PD on physical, social, and emotional domains is affected by PD. Their HS seems to be lower when compared to healthy persons or patients with other chronic diseases. HS studies augment the insight in self‐perceived functioning. Therefore, HS is conceived as a valuable construct. However, QOL is also an important factor in health care. Attention towards QOL is needed in order to draw valid conclusions regarding a person's subjective experience of well‐being in a broad sense. In order to accomplish this, future studies should apply the QOL concept with more rigor, should use an adequate operational definition, and should employ sound measures. © 2007 Movement Disorder Society</abstract>
<subject lang="en">
<genre>Keywords</genre>
<topic>Parkinson's disease</topic>
<topic>quality of life</topic>
<topic>health‐related quality of life</topic>
<topic>health status</topic>
<topic>systematic review</topic>
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<note type="content"> This article is part of the journal's CME program. The CME form can be found on page 1680 and is available online at http://www.movementdisorders.org/education/activities.html .</note>
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<identifier type="ISSN">0885-3185</identifier>
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<identifier type="DOI">10.1002/(ISSN)1531-8257</identifier>
<identifier type="PublisherID">MDS</identifier>
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<date>2007</date>
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<caption>vol.</caption>
<number>22</number>
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<caption>no.</caption>
<number>11</number>
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