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National survey of speech and language therapy provision for people with Parkinson's disease in the United Kingdom: therapists’ practices

Identifieur interne : 000591 ( Main/Corpus ); précédent : 000590; suivant : 000592

National survey of speech and language therapy provision for people with Parkinson's disease in the United Kingdom: therapists’ practices

Auteurs : Nick Miller ; Katherine H. O. Deane ; Diana Jones ; Emma Noble ; Catherine Gibb

Source :

RBID : ISTEX:D14A92FD99E40C320E18DD84E3174C64737CEFDD

English descriptors

Abstract

Background: Communication and swallowing changes feature prominently in Parkinson's disease. People with Parkinson's disease appear under‐represented in speech–language therapy clinics in the United Kingdom. The nature of the speech–language therapy services in the UK to people with Parkinson's disease has not been examined. Aims: To ascertain the number of speech–language therapists in the UK who work with people with Parkinson's disease; to establish the nature of contacts in terms of caseloads, referral stages and routes, management practices, assessments and treatments employed; and to reflect on service provision in relation to published guidelines. Methods & Procedures: A questionnaire survey of speech–language therapists. Outcomes & Results: A total of 185 speech–language therapists responded. They were treating a median of three (inter‐quartile range (IQR) = 1–6) people with Parkinson's disease with a further median of five (IQR = 1–10) on review. The majority of contacts were for assessment and advice given, especially in later and earlier stages of Parkinson's disease. Typically, respondents offered a median of six sessions (IQR = 6–8) of treatment, each session lasting a median of 45 min (IQR = 45–60), delivered over a median period of 42 days (IQR = 28–56). Speech–language therapists worked in a variety of settings, predominantly hospital. They received referrals principally from medical specialities, from whom the majority had support. Referrals were perceived in general to be later in Parkinson's disease progression than desired. Assessment focused primarily on impairment measures, in contrast to a belief that therapy focus on activity and participation issues. Speech–language therapists were relatively confident in treating people with Parkinson's disease, but 75% wanted more training. Conclusions & Implications: Speech–language therapist services for people with Parkinson's disease in the UK are restricted on most dimensions. Management practices often do not match guideline suggestions. Consideration needs to be given to the training for, content of and delivery of speech–language therapy services for people with Parkinson's disease.

Url:
DOI: 10.3109/13682822.2010.484849

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ISTEX:D14A92FD99E40C320E18DD84E3174C64737CEFDD

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<unparsedAffiliation>School of Nursing and Midwifery, University of East Anglia, Norwich, UK</unparsedAffiliation>
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<affiliation xml:id="a3" countryCode="GB">
<unparsedAffiliation>School of Health, Community, and Educational Studies, University of Northumbria, Newcastle, UK</unparsedAffiliation>
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<unparsedAffiliation>Institute of Health and Society, University of Newcastle, Newcastle, UK</unparsedAffiliation>
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<keyword xml:id="k1">Parkinson's disease</keyword>
<keyword xml:id="k2">speech–language therapy practice</keyword>
<keyword xml:id="k3">survey</keyword>
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<i>Background:</i>
Communication and swallowing changes feature prominently in Parkinson's disease. People with Parkinson's disease appear under‐represented in speech–language therapy clinics in the United Kingdom. The nature of the speech–language therapy services in the UK to people with Parkinson's disease has not been examined.</p>
<p>
<i>Aims:</i>
To ascertain the number of speech–language therapists in the UK who work with people with Parkinson's disease; to establish the nature of contacts in terms of caseloads, referral stages and routes, management practices, assessments and treatments employed; and to reflect on service provision in relation to published guidelines.</p>
<p>
<i>Methods & Procedures:</i>
A questionnaire survey of speech–language therapists.</p>
<p>
<i>Outcomes & Results:</i>
A total of 185 speech–language therapists responded. They were treating a median of three (inter‐quartile range (IQR) = 1–6) people with Parkinson's disease with a further median of five (IQR = 1–10) on review. The majority of contacts were for assessment and advice given, especially in later and earlier stages of Parkinson's disease. Typically, respondents offered a median of six sessions (IQR = 6–8) of treatment, each session lasting a median of 45 min (IQR = 45–60), delivered over a median period of 42 days (IQR = 28–56). Speech–language therapists worked in a variety of settings, predominantly hospital. They received referrals principally from medical specialities, from whom the majority had support. Referrals were perceived in general to be later in Parkinson's disease progression than desired. Assessment focused primarily on impairment measures, in contrast to a belief that therapy focus on activity and participation issues. Speech–language therapists were relatively confident in treating people with Parkinson's disease, but 75% wanted more training.</p>
<p>
<i>Conclusions & Implications:</i>
Speech–language therapist services for people with Parkinson's disease in the UK are restricted on most dimensions. Management practices often do not match guideline suggestions. Consideration needs to be given to the training for, content of and delivery of speech–language therapy services for people with Parkinson's disease.</p>
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<title>National survey of speech and language therapy provision for people with Parkinson's disease in the United Kingdom: therapists’ practices</title>
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<title>Speech and language therapy for Parkinson's disease: a survey</title>
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<title>National survey of speech and language therapy provision for people with Parkinson's disease in the United Kingdom: therapists’ practices</title>
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<name type="personal">
<namePart type="given">Nick</namePart>
<namePart type="family">Miller</namePart>
<affiliation>Institute of Health and Society, Speech–Language Sciences, University Newcastle, Newcastle, UK</affiliation>
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<roleTerm type="text">author</roleTerm>
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<name type="personal">
<namePart type="given">Katherine H. O.</namePart>
<namePart type="family">Deane</namePart>
<affiliation>School of Nursing and Midwifery, University of East Anglia, Norwich, UK</affiliation>
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<name type="personal">
<namePart type="given">Diana</namePart>
<namePart type="family">Jones</namePart>
<affiliation>School of Health, Community, and Educational Studies, University of Northumbria, Newcastle, UK</affiliation>
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<name type="personal">
<namePart type="given">Emma</namePart>
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<affiliation>Institute of Health and Society, University of Newcastle, Newcastle, UK</affiliation>
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<roleTerm type="text">author</roleTerm>
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<name type="personal">
<namePart type="given">Catherine</namePart>
<namePart type="family">Gibb</namePart>
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<edition>(Received 6 November 2009; accepted 8 April 2010)</edition>
<copyrightDate encoding="w3cdtf">2011</copyrightDate>
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<abstract lang="en">Background: Communication and swallowing changes feature prominently in Parkinson's disease. People with Parkinson's disease appear under‐represented in speech–language therapy clinics in the United Kingdom. The nature of the speech–language therapy services in the UK to people with Parkinson's disease has not been examined. Aims: To ascertain the number of speech–language therapists in the UK who work with people with Parkinson's disease; to establish the nature of contacts in terms of caseloads, referral stages and routes, management practices, assessments and treatments employed; and to reflect on service provision in relation to published guidelines. Methods & Procedures: A questionnaire survey of speech–language therapists. Outcomes & Results: A total of 185 speech–language therapists responded. They were treating a median of three (inter‐quartile range (IQR) = 1–6) people with Parkinson's disease with a further median of five (IQR = 1–10) on review. The majority of contacts were for assessment and advice given, especially in later and earlier stages of Parkinson's disease. Typically, respondents offered a median of six sessions (IQR = 6–8) of treatment, each session lasting a median of 45 min (IQR = 45–60), delivered over a median period of 42 days (IQR = 28–56). Speech–language therapists worked in a variety of settings, predominantly hospital. They received referrals principally from medical specialities, from whom the majority had support. Referrals were perceived in general to be later in Parkinson's disease progression than desired. Assessment focused primarily on impairment measures, in contrast to a belief that therapy focus on activity and participation issues. Speech–language therapists were relatively confident in treating people with Parkinson's disease, but 75% wanted more training. Conclusions & Implications: Speech–language therapist services for people with Parkinson's disease in the UK are restricted on most dimensions. Management practices often do not match guideline suggestions. Consideration needs to be given to the training for, content of and delivery of speech–language therapy services for people with Parkinson's disease.</abstract>
<subject lang="en">
<genre>Keywords</genre>
<topic>Parkinson's disease</topic>
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<title>International Journal of Language & Communication Disorders</title>
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<identifier type="ISSN">1368-2822</identifier>
<identifier type="eISSN">1460-6984</identifier>
<identifier type="DOI">10.1111/(ISSN)1460-6984</identifier>
<identifier type="PublisherID">JLCD</identifier>
<part>
<date>2011</date>
<detail type="volume">
<caption>vol.</caption>
<number>46</number>
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<detail type="issue">
<caption>no.</caption>
<number>2</number>
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<extent unit="pages">
<start>189</start>
<end>201</end>
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</part>
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<identifier type="DOI">10.3109/13682822.2010.484849</identifier>
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<accessCondition type="use and reproduction" contentType="copyright">© 2010 Royal College of Speech & Language Therapists</accessCondition>
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