Parent-reported quality of life of children with cerebral palsy in Europe.
Identifieur interne : 000C91 ( PubMed/Curation ); précédent : 000C90; suivant : 000C92Parent-reported quality of life of children with cerebral palsy in Europe.
Auteurs : Catherine Arnaud [France] ; Melanie White-Koning ; Susan Ishoy Michelsen ; Jackie Parkes ; Kathryn Parkinson ; Ute Thyen ; Eva Beckung ; Heather O. Dickinson ; Jerome Fauconnier ; Marco Marcelli ; Vicki Mcmanus ; Allan ColverSource :
- Pediatrics [ 1098-4275 ] ; 2008.
English descriptors
- KwdEn :
- Adaptation, Physiological, Adaptation, Psychological, Cerebral Palsy (diagnosis), Cerebral Palsy (psychology), Cerebral Palsy (rehabilitation), Child, Cross-Sectional Studies, Developmental Disabilities (epidemiology), Developmental Disabilities (psychology), Disabled Children (psychology), Disabled Children (rehabilitation), Europe, Female, Humans, Linear Models, Logistic Models, Male, Parent-Child Relations, Quality of Life, Severity of Illness Index, Sickness Impact Profile, Social Desirability, Social Support, Surveys and Questionnaires.
- MESH :
- geographic : Europe.
- diagnosis : Cerebral Palsy.
- epidemiology : Developmental Disabilities.
- psychology : Cerebral Palsy, Developmental Disabilities, Disabled Children.
- rehabilitation : Cerebral Palsy, Disabled Children.
- Adaptation, Physiological, Adaptation, Psychological, Child, Cross-Sectional Studies, Female, Humans, Linear Models, Logistic Models, Male, Parent-Child Relations, Quality of Life, Severity of Illness Index, Sickness Impact Profile, Social Desirability, Social Support, Surveys and Questionnaires.
Abstract
The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy.
DOI: 10.1542/peds.2007-0854
PubMed: 18166557
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Dickinson</name></author><author><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jerome" last="Fauconnier">Jerome Fauconnier</name></author><author><name sortKey="Marcelli, Marco" sort="Marcelli, Marco" uniqKey="Marcelli M" first="Marco" last="Marcelli">Marco Marcelli</name></author><author><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name></author><author><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2008">2008</date><idno type="RBID">pubmed:18166557</idno><idno type="pmid">18166557</idno><idno type="doi">10.1542/peds.2007-0854</idno><idno type="wicri:Area/PubMed/Corpus">000D31</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000D31</idno><idno type="wicri:Area/PubMed/Curation">000C91</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000C91</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Parent-reported quality of life of children with cerebral palsy in Europe.</title><author><name sortKey="Arnaud, Catherine" sort="Arnaud, Catherine" uniqKey="Arnaud C" first="Catherine" last="Arnaud">Catherine Arnaud</name><affiliation wicri:level="1"><nlm:affiliation>National Institute of Health and Medical Research, U558, Research Unit on Perinatal Epidemiology, Child Health and Development, Toulouse University III Paul Sabatier, Toulouse, France. carnaud@cict.fr</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>National Institute of Health and Medical Research, U558, Research Unit on Perinatal Epidemiology, Child Health and Development, Toulouse University III Paul Sabatier, Toulouse</wicri:regionArea></affiliation></author><author><name sortKey="White Koning, Melanie" sort="White Koning, Melanie" uniqKey="White Koning M" first="Melanie" last="White-Koning">Melanie White-Koning</name></author><author><name sortKey="Michelsen, Susan Ishoy" sort="Michelsen, Susan Ishoy" uniqKey="Michelsen S" first="Susan Ishoy" last="Michelsen">Susan Ishoy Michelsen</name></author><author><name sortKey="Parkes, Jackie" sort="Parkes, Jackie" uniqKey="Parkes J" first="Jackie" last="Parkes">Jackie Parkes</name></author><author><name sortKey="Parkinson, Kathryn" sort="Parkinson, Kathryn" uniqKey="Parkinson K" first="Kathryn" last="Parkinson">Kathryn Parkinson</name></author><author><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></author><author><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name></author><author><name sortKey="Dickinson, Heather O" sort="Dickinson, Heather O" uniqKey="Dickinson H" first="Heather O" last="Dickinson">Heather O. Dickinson</name></author><author><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jerome" last="Fauconnier">Jerome Fauconnier</name></author><author><name sortKey="Marcelli, Marco" sort="Marcelli, Marco" uniqKey="Marcelli M" first="Marco" last="Marcelli">Marco Marcelli</name></author><author><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name></author><author><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name></author></analytic><series><title level="j">Pediatrics</title><idno type="eISSN">1098-4275</idno><imprint><date when="2008" type="published">2008</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Physiological</term><term>Adaptation, Psychological</term><term>Cerebral Palsy (diagnosis)</term><term>Cerebral Palsy (psychology)</term><term>Cerebral Palsy (rehabilitation)</term><term>Child</term><term>Cross-Sectional Studies</term><term>Developmental Disabilities (epidemiology)</term><term>Developmental Disabilities (psychology)</term><term>Disabled Children (psychology)</term><term>Disabled Children (rehabilitation)</term><term>Europe</term><term>Female</term><term>Humans</term><term>Linear Models</term><term>Logistic Models</term><term>Male</term><term>Parent-Child Relations</term><term>Quality of Life</term><term>Severity of Illness Index</term><term>Sickness Impact Profile</term><term>Social Desirability</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Europe</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Cerebral Palsy</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Developmental Disabilities</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Cerebral Palsy</term><term>Developmental Disabilities</term><term>Disabled Children</term></keywords><keywords scheme="MESH" qualifier="rehabilitation" xml:lang="en"><term>Cerebral Palsy</term><term>Disabled Children</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Physiological</term><term>Adaptation, Psychological</term><term>Child</term><term>Cross-Sectional Studies</term><term>Female</term><term>Humans</term><term>Linear Models</term><term>Logistic Models</term><term>Male</term><term>Parent-Child Relations</term><term>Quality of Life</term><term>Severity of Illness Index</term><term>Sickness Impact Profile</term><term>Social Desirability</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">18166557</PMID><DateCreated><Year>2008</Year><Month>01</Month><Day>01</Day></DateCreated><DateCompleted><Year>2008</Year><Month>02</Month><Day>05</Day></DateCompleted><DateRevised><Year>2015</Year><Month>11</Month><Day>19</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1098-4275</ISSN><JournalIssue CitedMedium="Internet"><Volume>121</Volume><Issue>1</Issue><PubDate><Year>2008</Year><Month>Jan</Month></PubDate></JournalIssue><Title>Pediatrics</Title><ISOAbbreviation>Pediatrics</ISOAbbreviation></Journal><ArticleTitle>Parent-reported quality of life of children with cerebral palsy in Europe.</ArticleTitle><Pagination><MedlinePgn>54-64</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1542/peds.2007-0854</ELocationID><Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">Our population-based, cross-sectional survey conducted in 2004 to 2005 involved 818 children with cerebral palsy, 8 to 12 years of age, from 7 countries (9 regions) in Europe. Child quality of life was assessed through parent reports by using the Kidscreen questionnaire, and data were analyzed separately for each of its 10 domains.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The parental response rates were >93% for all domains except one. Gross motor function and IQ level were found to be associated independently with quality of life in most domains. However, greater severity of impairment was not always associated with poorer quality of life; in the moods and emotions, self-perception, social acceptance, and school environment domains, less severely impaired children were more likely to have poor quality of life. Pain was associated with poor quality of life in the physical and psychological well-being and self-perception domains. Parents with higher levels of stress were more likely to report poor quality of life in all domains, which suggests that factors other than the severity of the child's impairment may influence the way in which parents report quality of life.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The parent-reported quality of life for children with cerebral palsy is associated strongly with impairment. However, depending on the areas of life, the most severely impaired children (in terms of motor functioning or intellectual ability) do not always have the poorest quality of life.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Arnaud</LastName><ForeName>Catherine</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>National Institute of Health and Medical Research, U558, Research Unit on Perinatal Epidemiology, Child Health and Development, Toulouse University III Paul Sabatier, Toulouse, France. carnaud@cict.fr</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>White-Koning</LastName><ForeName>Melanie</ForeName><Initials>M</Initials></Author><Author ValidYN="Y"><LastName>Michelsen</LastName><ForeName>Susan Ishoy</ForeName><Initials>SI</Initials></Author><Author ValidYN="Y"><LastName>Parkes</LastName><ForeName>Jackie</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Parkinson</LastName><ForeName>Kathryn</ForeName><Initials>K</Initials></Author><Author ValidYN="Y"><LastName>Thyen</LastName><ForeName>Ute</ForeName><Initials>U</Initials></Author><Author ValidYN="Y"><LastName>Beckung</LastName><ForeName>Eva</ForeName><Initials>E</Initials></Author><Author ValidYN="Y"><LastName>Dickinson</LastName><ForeName>Heather O</ForeName><Initials>HO</Initials></Author><Author ValidYN="Y"><LastName>Fauconnier</LastName><ForeName>Jerome</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Marcelli</LastName><ForeName>Marco</ForeName><Initials>M</Initials></Author><Author ValidYN="Y"><LastName>McManus</LastName><ForeName>Vicki</ForeName><Initials>V</Initials></Author><Author ValidYN="Y"><LastName>Colver</LastName><ForeName>Allan</ForeName><Initials>A</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016448">Multicenter Study</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Pediatrics</MedlineTA><NlmUniqueID>0376422</NlmUniqueID><ISSNLinking>0031-4005</ISSNLinking></MedlineJournalInfo><CitationSubset>AIM</CitationSubset><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000222" MajorTopicYN="N">Adaptation, Physiological</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000223" MajorTopicYN="N">Adaptation, Psychological</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002547" MajorTopicYN="N">Cerebral Palsy</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="N">diagnosis</QualifierName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName><QualifierName UI="Q000534" MajorTopicYN="N">rehabilitation</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D003430" MajorTopicYN="N">Cross-Sectional Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002658" MajorTopicYN="N">Developmental Disabilities</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D019988" MajorTopicYN="N">Disabled Children</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName><QualifierName UI="Q000534" MajorTopicYN="N">rehabilitation</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005060" MajorTopicYN="N" Type="Geographic">Europe</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D016014" MajorTopicYN="N">Linear Models</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D016015" MajorTopicYN="N">Logistic Models</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010287" MajorTopicYN="N">Parent-Child Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011788" MajorTopicYN="Y">Quality of Life</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012720" MajorTopicYN="N">Severity of Illness Index</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D018434" MajorTopicYN="N">Sickness Impact Profile</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012928" MajorTopicYN="N">Social Desirability</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012944" MajorTopicYN="N">Social Support</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2008</Year><Month>1</Month><Day>2</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2008</Year><Month>2</Month><Day>6</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2008</Year><Month>1</Month><Day>2</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">18166557</ArticleId><ArticleId IdType="pii">121/1/54</ArticleId><ArticleId IdType="doi">10.1542/peds.2007-0854</ArticleId></ArticleIdList></PubmedData></pubmed></record>Pour manipuler ce document 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