Parent-reported quality of life of children with cerebral palsy in Europe.
Identifieur interne : 000C91 ( PubMed/Curation ); précédent : 000C90; suivant : 000C92Parent-reported quality of life of children with cerebral palsy in Europe.
Auteurs : Catherine Arnaud [France] ; Melanie White-Koning ; Susan Ishoy Michelsen ; Jackie Parkes ; Kathryn Parkinson ; Ute Thyen ; Eva Beckung ; Heather O. Dickinson ; Jerome Fauconnier ; Marco Marcelli ; Vicki Mcmanus ; Allan ColverSource :
- Pediatrics [ 1098-4275 ] ; 2008.
English descriptors
- KwdEn :
- Adaptation, Physiological, Adaptation, Psychological, Cerebral Palsy (diagnosis), Cerebral Palsy (psychology), Cerebral Palsy (rehabilitation), Child, Cross-Sectional Studies, Developmental Disabilities (epidemiology), Developmental Disabilities (psychology), Disabled Children (psychology), Disabled Children (rehabilitation), Europe, Female, Humans, Linear Models, Logistic Models, Male, Parent-Child Relations, Quality of Life, Severity of Illness Index, Sickness Impact Profile, Social Desirability, Social Support, Surveys and Questionnaires.
- MESH :
- geographic : Europe.
- diagnosis : Cerebral Palsy.
- epidemiology : Developmental Disabilities.
- psychology : Cerebral Palsy, Developmental Disabilities, Disabled Children.
- rehabilitation : Cerebral Palsy, Disabled Children.
- Adaptation, Physiological, Adaptation, Psychological, Child, Cross-Sectional Studies, Female, Humans, Linear Models, Logistic Models, Male, Parent-Child Relations, Quality of Life, Severity of Illness Index, Sickness Impact Profile, Social Desirability, Social Support, Surveys and Questionnaires.
Abstract
The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy.
DOI: 10.1542/peds.2007-0854
PubMed: 18166557
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pubmed:18166557Le document en format XML
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<country xml:lang="fr">France</country>
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<term>Cerebral Palsy (rehabilitation)</term>
<term>Child</term>
<term>Cross-Sectional Studies</term>
<term>Developmental Disabilities (epidemiology)</term>
<term>Developmental Disabilities (psychology)</term>
<term>Disabled Children (psychology)</term>
<term>Disabled Children (rehabilitation)</term>
<term>Europe</term>
<term>Female</term>
<term>Humans</term>
<term>Linear Models</term>
<term>Logistic Models</term>
<term>Male</term>
<term>Parent-Child Relations</term>
<term>Quality of Life</term>
<term>Severity of Illness Index</term>
<term>Sickness Impact Profile</term>
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<front><div type="abstract" xml:lang="en">The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy.</div>
</front>
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<ArticleTitle>Parent-reported quality of life of children with cerebral palsy in Europe.</ArticleTitle>
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<Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Our population-based, cross-sectional survey conducted in 2004 to 2005 involved 818 children with cerebral palsy, 8 to 12 years of age, from 7 countries (9 regions) in Europe. Child quality of life was assessed through parent reports by using the Kidscreen questionnaire, and data were analyzed separately for each of its 10 domains.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">The parental response rates were >93% for all domains except one. Gross motor function and IQ level were found to be associated independently with quality of life in most domains. However, greater severity of impairment was not always associated with poorer quality of life; in the moods and emotions, self-perception, social acceptance, and school environment domains, less severely impaired children were more likely to have poor quality of life. Pain was associated with poor quality of life in the physical and psychological well-being and self-perception domains. Parents with higher levels of stress were more likely to report poor quality of life in all domains, which suggests that factors other than the severity of the child's impairment may influence the way in which parents report quality of life.</AbstractText>
<AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The parent-reported quality of life for children with cerebral palsy is associated strongly with impairment. However, depending on the areas of life, the most severely impaired children (in terms of motor functioning or intellectual ability) do not always have the poorest quality of life.</AbstractText>
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<AffiliationInfo><Affiliation>National Institute of Health and Medical Research, U558, Research Unit on Perinatal Epidemiology, Child Health and Development, Toulouse University III Paul Sabatier, Toulouse, France. carnaud@cict.fr</Affiliation>
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<Author ValidYN="Y"><LastName>Michelsen</LastName>
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<Author ValidYN="Y"><LastName>Parkes</LastName>
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