Management of dystonia in Europe: a survey of the European network for the study of the dystonia syndromes.
Identifieur interne : 000165 ( PubMed/Curation ); précédent : 000164; suivant : 000166Management of dystonia in Europe: a survey of the European network for the study of the dystonia syndromes.
Auteurs : A. Valadas [Portugal] ; M-F Contarino [Pays-Bas] ; A. Albanese [Italie] ; K P Bhatia [Royaume-Uni] ; C. Falup-Pecurariu [Roumanie] ; L. Forsgren [Suède] ; A. Friedman [Pologne] ; N. Giladi [Israël] ; M. Hutchinson [Irlande (pays)] ; V S Kostic [Serbie] ; J K Krauss [Allemagne] ; A. Lokkegaard [Danemark] ; M J Marti [Espagne] ; I. Milanov [Bulgarie] ; Z. Pirtosek [Slovénie] ; M. Relja [Croatie] ; M. Skorvanek ; M. Stamelou [Grèce] ; A. Stepens [Lettonie] ; G. Tamás [Hongrie] ; A. Taravari ; C. Tzoulis [Norvège] ; W. Vandenberghe [Belgique] ; M. Vidailhet [France] ; J J Ferreira [Portugal] ; M A Tijssen [Pays-Bas]Source :
- European journal of neurology [ 1468-1331 ] ; 2016.
English descriptors
- KwdEn :
- Dystonic Disorders (drug therapy), Dystonic Disorders (therapy), European Union (statistics & numerical data), General Practitioners (education), General Practitioners (statistics & numerical data), Health Care Surveys (statistics & numerical data), Humans, Neurology (education), Neurology (statistics & numerical data).
- MESH :
- drug therapy : Dystonic Disorders.
- education : General Practitioners, Neurology.
- statistics & numerical data : European Union, General Practitioners, Health Care Surveys, Neurology.
- therapy : Dystonic Disorders.
- Humans.
Abstract
Dystonia is difficult to recognize due to its large phenomenological complexity. Thus, the use of experts in dystonia is essential for better recognition and management of dystonia syndromes (DS). Our aim was to document managing strategies, facilities and expertise available in various European countries in order to identify which measures should be implemented to improve the management of DS.
DOI: 10.1111/ene.12940
PubMed: 26826067
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M. Skorvanek<affiliation><nlm:affiliation>Department of Neurology, Safarik University, Kosice, Slovak Republic.</nlm:affiliation><wicri:noCountry code="subField">Slovak Republic</wicri:noCountry></affiliation><affiliation><nlm:affiliation>University Clinic of Neurology - Skopje, University 'St Cyril and Methodius', Skopje, Republic of Macedonia.</nlm:affiliation><wicri:noCountry code="subField">Republic of Macedonia</wicri:noCountry></affiliation>Le document en format XML
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Valadas</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Service, Hospital de São Bernardo, Centro Hospitalar de Setúbal, Setúbal, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Neurology Service, Hospital de São Bernardo, Centro Hospitalar de Setúbal, Setúbal</wicri:regionArea></affiliation></author><author><name sortKey="Contarino, M F" sort="Contarino, M F" uniqKey="Contarino M" first="M-F" last="Contarino">M-F Contarino</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Academic Medical Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Neurology, Academic Medical Center, Amsterdam</wicri:regionArea></affiliation></author><author><name sortKey="Albanese, A" sort="Albanese, A" uniqKey="Albanese A" first="A" last="Albanese">A. Albanese</name><affiliation wicri:level="1"><nlm:affiliation>Istituto Clinico Humanitas and Università Cattolica del Sacro Cuore, Milan, Rozzano, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Istituto Clinico Humanitas and Università Cattolica del Sacro Cuore, Milan, Rozzano</wicri:regionArea></affiliation></author><author><name sortKey="Bhatia, K P" sort="Bhatia, K P" uniqKey="Bhatia K" first="K P" last="Bhatia">K P Bhatia</name><affiliation wicri:level="1"><nlm:affiliation>Sobell Department of Motor Neuroscience and Movement Disorders, University College London (UCL) Institute of Neurology, London, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Sobell Department of Motor Neuroscience and Movement Disorders, University College London (UCL) Institute of Neurology, London</wicri:regionArea></affiliation></author><author><name sortKey="Falup Pecurariu, C" sort="Falup Pecurariu, C" uniqKey="Falup Pecurariu C" first="C" last="Falup-Pecurariu">C. 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Friedman</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Medical University of Warsaw, Warszawa, Poland.</nlm:affiliation><country xml:lang="fr">Pologne</country><wicri:regionArea>Department of Neurology, Medical University of Warsaw, Warszawa</wicri:regionArea></affiliation></author><author><name sortKey="Giladi, N" sort="Giladi, N" uniqKey="Giladi N" first="N" last="Giladi">N. Giladi</name><affiliation wicri:level="1"><nlm:affiliation>Neurological Institute, Tel Aviv Medical Center, Sacker School of Medicine, Sagol School of Neuroscience, Sieratzki Chair in Neurology, Tel Aviv University, Tel Aviv, Israel.</nlm:affiliation><country xml:lang="fr">Israël</country><wicri:regionArea>Neurological Institute, Tel Aviv Medical Center, Sacker School of Medicine, Sagol School of Neuroscience, Sieratzki Chair in Neurology, Tel Aviv University, Tel Aviv</wicri:regionArea></affiliation></author><author><name sortKey="Hutchinson, M" sort="Hutchinson, M" uniqKey="Hutchinson M" first="M" last="Hutchinson">M. Hutchinson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, St Vincent's University Hospital, Dublin, Ireland.</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Department of Neurology, St Vincent's University Hospital, Dublin</wicri:regionArea></affiliation></author><author><name sortKey="Kostic, V S" sort="Kostic, V S" uniqKey="Kostic V" first="V S" last="Kostic">V S Kostic</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Clinic CCS, School of Medicine, University of Belgrade, Belgrade, Serbia.</nlm:affiliation><country xml:lang="fr">Serbie</country><wicri:regionArea>Neurology Clinic CCS, School of Medicine, University of Belgrade, Belgrade</wicri:regionArea></affiliation></author><author><name sortKey="Krauss, J K" sort="Krauss, J K" uniqKey="Krauss J" first="J K" last="Krauss">J K Krauss</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurosurgery, Hannover Medical School, Hannover, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Department of Neurosurgery, Hannover Medical School, Hannover</wicri:regionArea></affiliation></author><author><name sortKey="Lokkegaard, A" sort="Lokkegaard, A" uniqKey="Lokkegaard A" first="A" last="Lokkegaard">A. Lokkegaard</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Copenhagen University Hospital Bispebjerg, Copenhagen, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Department of Neurology, Copenhagen University Hospital Bispebjerg, Copenhagen</wicri:regionArea></affiliation></author><author><name sortKey="Marti, M J" sort="Marti, M J" uniqKey="Marti M" first="M J" last="Marti">M J Marti</name><affiliation wicri:level="1"><nlm:affiliation>Parkinson Disease and Movement Disorders Unit, Neurology Service, Institut d'Investigatió Biomèdiques August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Barcelona, Catalonia, Spain.</nlm:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Parkinson Disease and Movement Disorders Unit, Neurology Service, Institut d'Investigatió Biomèdiques August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Barcelona, Catalonia</wicri:regionArea></affiliation></author><author><name sortKey="Milanov, I" sort="Milanov, I" uniqKey="Milanov I" first="I" last="Milanov">I. Milanov</name><affiliation wicri:level="1"><nlm:affiliation>University Hospital for Neurology and Psychiatry 'St Naum', Sofia, Bulgaria.</nlm:affiliation><country xml:lang="fr">Bulgarie</country><wicri:regionArea>University Hospital for Neurology and Psychiatry 'St Naum', Sofia</wicri:regionArea></affiliation></author><author><name sortKey="Pirtosek, Z" sort="Pirtosek, Z" uniqKey="Pirtosek Z" first="Z" last="Pirtosek">Z. Pirtosek</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, University Medical Centre Ljubljana, Ljubljana, Slovenia.</nlm:affiliation><country xml:lang="fr">Slovénie</country><wicri:regionArea>Department of Neurology, University Medical Centre Ljubljana, Ljubljana</wicri:regionArea></affiliation></author><author><name sortKey="Relja, M" sort="Relja, M" uniqKey="Relja M" first="M" last="Relja">M. Relja</name><affiliation wicri:level="1"><nlm:affiliation>Referral Center for Movement Disorders, Department of Neurology, University Hospital Center Zagreb, University of Zagreb, School of Medicine, Zagreb, Croatia.</nlm:affiliation><country xml:lang="fr">Croatie</country><wicri:regionArea>Referral Center for Movement Disorders, Department of Neurology, University Hospital Center Zagreb, University of Zagreb, School of Medicine, Zagreb</wicri:regionArea></affiliation></author><author><name sortKey="Skorvanek, M" sort="Skorvanek, M" uniqKey="Skorvanek M" first="M" last="Skorvanek">M. Skorvanek</name><affiliation><nlm:affiliation>Department of Neurology, Safarik University, Kosice, Slovak Republic.</nlm:affiliation><wicri:noCountry code="subField">Slovak Republic</wicri:noCountry></affiliation></author><author><name sortKey="Stamelou, M" sort="Stamelou, M" uniqKey="Stamelou M" first="M" last="Stamelou">M. Stamelou</name><affiliation wicri:level="1"><nlm:affiliation>Second Department of Neurology, Attiko Hospital, University of Athens, Athens, Greece.</nlm:affiliation><country xml:lang="fr">Grèce</country><wicri:regionArea>Second Department of Neurology, Attiko Hospital, University of Athens, Athens</wicri:regionArea></affiliation></author><author><name sortKey="Stepens, A" sort="Stepens, A" uniqKey="Stepens A" first="A" last="Stepens">A. Stepens</name><affiliation wicri:level="1"><nlm:affiliation>Laboratory for Research in Rehabilitation, Riga Stradins University, Riga, Latvia.</nlm:affiliation><country xml:lang="fr">Lettonie</country><wicri:regionArea>Laboratory for Research in Rehabilitation, Riga Stradins University, Riga</wicri:regionArea></affiliation></author><author><name sortKey="Tamas, G" sort="Tamas, G" uniqKey="Tamas G" first="G" last="Tamás">G. Tamás</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Semmelweis University, Budapest, Hungary.</nlm:affiliation><country xml:lang="fr">Hongrie</country><wicri:regionArea>Department of Neurology, Semmelweis University, Budapest</wicri:regionArea></affiliation></author><author><name sortKey="Taravari, A" sort="Taravari, A" uniqKey="Taravari A" first="A" last="Taravari">A. Taravari</name><affiliation><nlm:affiliation>University Clinic of Neurology - Skopje, University 'St Cyril and Methodius', Skopje, Republic of Macedonia.</nlm:affiliation><wicri:noCountry code="subField">Republic of Macedonia</wicri:noCountry></affiliation></author><author><name sortKey="Tzoulis, C" sort="Tzoulis, C" uniqKey="Tzoulis C" first="C" last="Tzoulis">C. Tzoulis</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Haukeland University Hospital, Bergen, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>Department of Neurology, Haukeland University Hospital, Bergen</wicri:regionArea></affiliation></author><author><name sortKey="Vandenberghe, W" sort="Vandenberghe, W" uniqKey="Vandenberghe W" first="W" last="Vandenberghe">W. Vandenberghe</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, University Hospitals Leuven, Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Neurology, University Hospitals Leuven, Leuven</wicri:regionArea></affiliation></author><author><name sortKey="Vidailhet, M" sort="Vidailhet, M" uniqKey="Vidailhet M" first="M" last="Vidailhet">M. Vidailhet</name><affiliation wicri:level="1"><nlm:affiliation>APHP, Department of Neurology, Salpêtriere Hospital, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>APHP, Department of Neurology, Salpêtriere Hospital, Paris</wicri:regionArea></affiliation></author><author><name sortKey="Ferreira, J J" sort="Ferreira, J J" uniqKey="Ferreira J" first="J J" last="Ferreira">J J Ferreira</name><affiliation wicri:level="1"><nlm:affiliation>Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine, University of Lisbon, Lisbon, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine, University of Lisbon, Lisbon</wicri:regionArea></affiliation></author><author><name sortKey="Tijssen, M A" sort="Tijssen, M A" uniqKey="Tijssen M" first="M A" last="Tijssen">M A Tijssen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, University Medical Centre Groningen, Groningen, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Neurology, University Medical Centre Groningen, Groningen</wicri:regionArea></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2016">2016</date><idno type="RBID">pubmed:26826067</idno><idno type="pmid">26826067</idno><idno type="doi">10.1111/ene.12940</idno><idno type="wicri:Area/PubMed/Corpus">000165</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000165</idno><idno type="wicri:Area/PubMed/Curation">000165</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000165</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Management of dystonia in Europe: a survey of the European network for the study of the dystonia syndromes.</title><author><name sortKey="Valadas, A" sort="Valadas, A" uniqKey="Valadas A" first="A" last="Valadas">A. Valadas</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Service, Hospital de São Bernardo, Centro Hospitalar de Setúbal, Setúbal, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Neurology Service, Hospital de São Bernardo, Centro Hospitalar de Setúbal, Setúbal</wicri:regionArea></affiliation></author><author><name sortKey="Contarino, M F" sort="Contarino, M F" uniqKey="Contarino M" first="M-F" last="Contarino">M-F Contarino</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Academic Medical Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Neurology, Academic Medical Center, Amsterdam</wicri:regionArea></affiliation></author><author><name sortKey="Albanese, A" sort="Albanese, A" uniqKey="Albanese A" first="A" last="Albanese">A. Albanese</name><affiliation wicri:level="1"><nlm:affiliation>Istituto Clinico Humanitas and Università Cattolica del Sacro Cuore, Milan, Rozzano, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Istituto Clinico Humanitas and Università Cattolica del Sacro Cuore, Milan, Rozzano</wicri:regionArea></affiliation></author><author><name sortKey="Bhatia, K P" sort="Bhatia, K P" uniqKey="Bhatia K" first="K P" last="Bhatia">K P Bhatia</name><affiliation wicri:level="1"><nlm:affiliation>Sobell Department of Motor Neuroscience and Movement Disorders, University College London (UCL) Institute of Neurology, London, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Sobell Department of Motor Neuroscience and Movement Disorders, University College London (UCL) Institute of Neurology, London</wicri:regionArea></affiliation></author><author><name sortKey="Falup Pecurariu, C" sort="Falup Pecurariu, C" uniqKey="Falup Pecurariu C" first="C" last="Falup-Pecurariu">C. Falup-Pecurariu</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Faculty of Medicine, Transilvania University, Brasov, Romania.</nlm:affiliation><country xml:lang="fr">Roumanie</country><wicri:regionArea>Department of Neurology, Faculty of Medicine, Transilvania University, Brasov</wicri:regionArea></affiliation></author><author><name sortKey="Forsgren, L" sort="Forsgren, L" uniqKey="Forsgren L" first="L" last="Forsgren">L. Forsgren</name><affiliation wicri:level="1"><nlm:affiliation>Department of Pharmacology and Clinical Neuroscience, Umea University, Umea, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Pharmacology and Clinical Neuroscience, Umea University, Umea</wicri:regionArea></affiliation></author><author><name sortKey="Friedman, A" sort="Friedman, A" uniqKey="Friedman A" first="A" last="Friedman">A. Friedman</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Medical University of Warsaw, Warszawa, Poland.</nlm:affiliation><country xml:lang="fr">Pologne</country><wicri:regionArea>Department of Neurology, Medical University of Warsaw, Warszawa</wicri:regionArea></affiliation></author><author><name sortKey="Giladi, N" sort="Giladi, N" uniqKey="Giladi N" first="N" last="Giladi">N. Giladi</name><affiliation wicri:level="1"><nlm:affiliation>Neurological Institute, Tel Aviv Medical Center, Sacker School of Medicine, Sagol School of Neuroscience, Sieratzki Chair in Neurology, Tel Aviv University, Tel Aviv, Israel.</nlm:affiliation><country xml:lang="fr">Israël</country><wicri:regionArea>Neurological Institute, Tel Aviv Medical Center, Sacker School of Medicine, Sagol School of Neuroscience, Sieratzki Chair in Neurology, Tel Aviv University, Tel Aviv</wicri:regionArea></affiliation></author><author><name sortKey="Hutchinson, M" sort="Hutchinson, M" uniqKey="Hutchinson M" first="M" last="Hutchinson">M. Hutchinson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, St Vincent's University Hospital, Dublin, Ireland.</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Department of Neurology, St Vincent's University Hospital, Dublin</wicri:regionArea></affiliation></author><author><name sortKey="Kostic, V S" sort="Kostic, V S" uniqKey="Kostic V" first="V S" last="Kostic">V S Kostic</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Clinic CCS, School of Medicine, University of Belgrade, Belgrade, Serbia.</nlm:affiliation><country xml:lang="fr">Serbie</country><wicri:regionArea>Neurology Clinic CCS, School of Medicine, University of Belgrade, Belgrade</wicri:regionArea></affiliation></author><author><name sortKey="Krauss, J K" sort="Krauss, J K" uniqKey="Krauss J" first="J K" last="Krauss">J K Krauss</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurosurgery, Hannover Medical School, Hannover, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Department of Neurosurgery, Hannover Medical School, Hannover</wicri:regionArea></affiliation></author><author><name sortKey="Lokkegaard, A" sort="Lokkegaard, A" uniqKey="Lokkegaard A" first="A" last="Lokkegaard">A. Lokkegaard</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Copenhagen University Hospital Bispebjerg, Copenhagen, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Department of Neurology, Copenhagen University Hospital Bispebjerg, Copenhagen</wicri:regionArea></affiliation></author><author><name sortKey="Marti, M J" sort="Marti, M J" uniqKey="Marti M" first="M J" last="Marti">M J Marti</name><affiliation wicri:level="1"><nlm:affiliation>Parkinson Disease and Movement Disorders Unit, Neurology Service, Institut d'Investigatió Biomèdiques August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Barcelona, Catalonia, Spain.</nlm:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Parkinson Disease and Movement Disorders Unit, Neurology Service, Institut d'Investigatió Biomèdiques August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Barcelona, Catalonia</wicri:regionArea></affiliation></author><author><name sortKey="Milanov, I" sort="Milanov, I" uniqKey="Milanov I" first="I" last="Milanov">I. Milanov</name><affiliation wicri:level="1"><nlm:affiliation>University Hospital for Neurology and Psychiatry 'St Naum', Sofia, Bulgaria.</nlm:affiliation><country xml:lang="fr">Bulgarie</country><wicri:regionArea>University Hospital for Neurology and Psychiatry 'St Naum', Sofia</wicri:regionArea></affiliation></author><author><name sortKey="Pirtosek, Z" sort="Pirtosek, Z" uniqKey="Pirtosek Z" first="Z" last="Pirtosek">Z. Pirtosek</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, University Medical Centre Ljubljana, Ljubljana, Slovenia.</nlm:affiliation><country xml:lang="fr">Slovénie</country><wicri:regionArea>Department of Neurology, University Medical Centre Ljubljana, Ljubljana</wicri:regionArea></affiliation></author><author><name sortKey="Relja, M" sort="Relja, M" uniqKey="Relja M" first="M" last="Relja">M. Relja</name><affiliation wicri:level="1"><nlm:affiliation>Referral Center for Movement Disorders, Department of Neurology, University Hospital Center Zagreb, University of Zagreb, School of Medicine, Zagreb, Croatia.</nlm:affiliation><country xml:lang="fr">Croatie</country><wicri:regionArea>Referral Center for Movement Disorders, Department of Neurology, University Hospital Center Zagreb, University of Zagreb, School of Medicine, Zagreb</wicri:regionArea></affiliation></author><author><name sortKey="Skorvanek, M" sort="Skorvanek, M" uniqKey="Skorvanek M" first="M" last="Skorvanek">M. Skorvanek</name><affiliation><nlm:affiliation>Department of Neurology, Safarik University, Kosice, Slovak Republic.</nlm:affiliation><wicri:noCountry code="subField">Slovak Republic</wicri:noCountry></affiliation></author><author><name sortKey="Stamelou, M" sort="Stamelou, M" uniqKey="Stamelou M" first="M" last="Stamelou">M. Stamelou</name><affiliation wicri:level="1"><nlm:affiliation>Second Department of Neurology, Attiko Hospital, University of Athens, Athens, Greece.</nlm:affiliation><country xml:lang="fr">Grèce</country><wicri:regionArea>Second Department of Neurology, Attiko Hospital, University of Athens, Athens</wicri:regionArea></affiliation></author><author><name sortKey="Stepens, A" sort="Stepens, A" uniqKey="Stepens A" first="A" last="Stepens">A. Stepens</name><affiliation wicri:level="1"><nlm:affiliation>Laboratory for Research in Rehabilitation, Riga Stradins University, Riga, Latvia.</nlm:affiliation><country xml:lang="fr">Lettonie</country><wicri:regionArea>Laboratory for Research in Rehabilitation, Riga Stradins University, Riga</wicri:regionArea></affiliation></author><author><name sortKey="Tamas, G" sort="Tamas, G" uniqKey="Tamas G" first="G" last="Tamás">G. Tamás</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Semmelweis University, Budapest, Hungary.</nlm:affiliation><country xml:lang="fr">Hongrie</country><wicri:regionArea>Department of Neurology, Semmelweis University, Budapest</wicri:regionArea></affiliation></author><author><name sortKey="Taravari, A" sort="Taravari, A" uniqKey="Taravari A" first="A" last="Taravari">A. Taravari</name><affiliation><nlm:affiliation>University Clinic of Neurology - Skopje, University 'St Cyril and Methodius', Skopje, Republic of Macedonia.</nlm:affiliation><wicri:noCountry code="subField">Republic of Macedonia</wicri:noCountry></affiliation></author><author><name sortKey="Tzoulis, C" sort="Tzoulis, C" uniqKey="Tzoulis C" first="C" last="Tzoulis">C. Tzoulis</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Haukeland University Hospital, Bergen, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>Department of Neurology, Haukeland University Hospital, Bergen</wicri:regionArea></affiliation></author><author><name sortKey="Vandenberghe, W" sort="Vandenberghe, W" uniqKey="Vandenberghe W" first="W" last="Vandenberghe">W. Vandenberghe</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, University Hospitals Leuven, Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Neurology, University Hospitals Leuven, Leuven</wicri:regionArea></affiliation></author><author><name sortKey="Vidailhet, M" sort="Vidailhet, M" uniqKey="Vidailhet M" first="M" last="Vidailhet">M. Vidailhet</name><affiliation wicri:level="1"><nlm:affiliation>APHP, Department of Neurology, Salpêtriere Hospital, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>APHP, Department of Neurology, Salpêtriere Hospital, Paris</wicri:regionArea></affiliation></author><author><name sortKey="Ferreira, J J" sort="Ferreira, J J" uniqKey="Ferreira J" first="J J" last="Ferreira">J J Ferreira</name><affiliation wicri:level="1"><nlm:affiliation>Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine, University of Lisbon, Lisbon, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine, University of Lisbon, Lisbon</wicri:regionArea></affiliation></author><author><name sortKey="Tijssen, M A" sort="Tijssen, M A" uniqKey="Tijssen M" first="M A" last="Tijssen">M A Tijssen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, University Medical Centre Groningen, Groningen, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Neurology, University Medical Centre Groningen, Groningen</wicri:regionArea></affiliation></author></analytic><series><title level="j">European journal of neurology</title><idno type="eISSN">1468-1331</idno><imprint><date when="2016" type="published">2016</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Dystonic Disorders (drug therapy)</term><term>Dystonic Disorders (therapy)</term><term>European Union (statistics & numerical data)</term><term>General Practitioners (education)</term><term>General Practitioners (statistics & numerical data)</term><term>Health Care Surveys (statistics & numerical data)</term><term>Humans</term><term>Neurology (education)</term><term>Neurology (statistics & numerical data)</term></keywords><keywords scheme="MESH" qualifier="drug therapy" xml:lang="en"><term>Dystonic Disorders</term></keywords><keywords scheme="MESH" qualifier="education" xml:lang="en"><term>General Practitioners</term><term>Neurology</term></keywords><keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>European Union</term><term>General Practitioners</term><term>Health Care Surveys</term><term>Neurology</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Dystonic Disorders</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Humans</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Dystonia is difficult to recognize due to its large phenomenological complexity. Thus, the use of experts in dystonia is essential for better recognition and management of dystonia syndromes (DS). Our aim was to document managing strategies, facilities and expertise available in various European countries in order to identify which measures should be implemented to improve the management of DS.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">26826067</PMID><DateCreated><Year>2016</Year><Month>03</Month><Day>22</Day></DateCreated><DateCompleted><Year>2016</Year><Month>12</Month><Day>13</Day></DateCompleted><DateRevised><Year>2016</Year><Month>12</Month><Day>30</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1468-1331</ISSN><JournalIssue CitedMedium="Internet"><Volume>23</Volume><Issue>4</Issue><PubDate><Year>2016</Year><Month>Apr</Month></PubDate></JournalIssue><Title>European journal of neurology</Title><ISOAbbreviation>Eur. J. Neurol.</ISOAbbreviation></Journal><ArticleTitle>Management of dystonia in Europe: a survey of the European network for the study of the dystonia syndromes.</ArticleTitle><Pagination><MedlinePgn>772-9</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1111/ene.12940</ELocationID><Abstract><AbstractText Label="BACKGROUND AND PURPOSE" NlmCategory="OBJECTIVE">Dystonia is difficult to recognize due to its large phenomenological complexity. Thus, the use of experts in dystonia is essential for better recognition and management of dystonia syndromes (DS). Our aim was to document managing strategies, facilities and expertise available in various European countries in order to identify which measures should be implemented to improve the management of DS.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">A survey was conducted, funded by the Cooperation in Science and Technology, via the management committee of the European network for the study of DS, which is formed from representatives of the 24 countries involved.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Lack of specific training in dystonia by general neurologists, general practitioners as well as other allied health professionals was universal in all countries surveyed. Genetic testing for rare dystonia mutations is not readily available in a significant number of countries and neurophysiological studies are difficult to perform due to a lack of experts in this field of movement disorders. Tetrabenazine is only readily available for treatment of dystonia in half of the surveyed countries. Deep brain stimulation is available in three-quarters of the countries, but other surgical procedures are only available in one-quarter of countries.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Internationally, collaboration in training, advanced diagnosis, treatment and research of DS and, locally, in each country the creation of multidisciplinary teams for the management of dystonia patients could provide the basis for improving all aspects of dystonia management across Europe.</AbstractText><CopyrightInformation>© 2016 EAN.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Valadas</LastName><ForeName>A</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Neurology Service, Hospital de São Bernardo, Centro Hospitalar de Setúbal, Setúbal, Portugal.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Clinical Research Unit, Institute of Molecular Medicine, Lisbon, Portugal.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Contarino</LastName><ForeName>M-F</ForeName><Initials>MF</Initials><AffiliationInfo><Affiliation>Department of Neurology, Academic Medical Center, Amsterdam, The Netherlands.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Neurology, Haga Teaching Hospital, The Hague, The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Albanese</LastName><ForeName>A</ForeName><Initials>A</Initials><Identifier Source="ORCID">http://orcid.org/0000-0002-5864-0006</Identifier><AffiliationInfo><Affiliation>Istituto Clinico Humanitas and Università Cattolica del Sacro Cuore, Milan, Rozzano, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bhatia</LastName><ForeName>K P</ForeName><Initials>KP</Initials><AffiliationInfo><Affiliation>Sobell Department of Motor Neuroscience and Movement Disorders, University College London (UCL) Institute of Neurology, London, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Falup-Pecurariu</LastName><ForeName>C</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Neurology, Faculty of Medicine, Transilvania University, Brasov, Romania.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Forsgren</LastName><ForeName>L</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Department of Pharmacology and Clinical Neuroscience, Umea University, Umea, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Friedman</LastName><ForeName>A</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Neurology, Medical University of Warsaw, Warszawa, Poland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Giladi</LastName><ForeName>N</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Neurological Institute, Tel Aviv Medical Center, Sacker School of Medicine, Sagol School of Neuroscience, Sieratzki Chair in Neurology, Tel Aviv University, Tel Aviv, Israel.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hutchinson</LastName><ForeName>M</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Neurology, St Vincent's University Hospital, Dublin, Ireland.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>School of Medicine and Medical Sciences, University College Dublin, Dublin, Ireland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kostic</LastName><ForeName>V S</ForeName><Initials>VS</Initials><AffiliationInfo><Affiliation>Neurology Clinic CCS, School of Medicine, University of Belgrade, Belgrade, Serbia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Krauss</LastName><ForeName>J K</ForeName><Initials>JK</Initials><AffiliationInfo><Affiliation>Department of Neurosurgery, Hannover Medical School, Hannover, Germany.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lokkegaard</LastName><ForeName>A</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Neurology, Copenhagen University Hospital Bispebjerg, Copenhagen, Denmark.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Marti</LastName><ForeName>M J</ForeName><Initials>MJ</Initials><AffiliationInfo><Affiliation>Parkinson Disease and Movement Disorders Unit, Neurology Service, Institut d'Investigatió Biomèdiques August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Barcelona, Catalonia, Spain.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Milanov</LastName><ForeName>I</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>University Hospital for Neurology and Psychiatry 'St Naum', Sofia, Bulgaria.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Pirtosek</LastName><ForeName>Z</ForeName><Initials>Z</Initials><AffiliationInfo><Affiliation>Department of Neurology, University Medical Centre Ljubljana, Ljubljana, Slovenia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Relja</LastName><ForeName>M</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Referral Center for Movement Disorders, Department of Neurology, University Hospital Center Zagreb, University of Zagreb, School of Medicine, Zagreb, Croatia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Skorvanek</LastName><ForeName>M</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Neurology, Safarik University, Kosice, Slovak Republic.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Neurology, University Hospital of L. Pasteur, Kosice, Slovak Republic.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Stamelou</LastName><ForeName>M</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Second Department of Neurology, Attiko Hospital, University of Athens, Athens, Greece.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Neurology, Philipps Universität, Marburg, Germany.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Stepens</LastName><ForeName>A</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Laboratory for Research in Rehabilitation, Riga Stradins University, Riga, Latvia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tamás</LastName><ForeName>G</ForeName><Initials>G</Initials><AffiliationInfo><Affiliation>Department of Neurology, Semmelweis University, Budapest, Hungary.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Taravari</LastName><ForeName>A</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>University Clinic of Neurology - Skopje, University 'St Cyril and Methodius', Skopje, Republic of Macedonia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tzoulis</LastName><ForeName>C</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Neurology, Haukeland University Hospital, Bergen, Norway.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Clinical Medicine, University of Bergen, Bergen, Norway.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Vandenberghe</LastName><ForeName>W</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>Department of Neurology, University Hospitals Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Vidailhet</LastName><ForeName>M</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>APHP, Department of Neurology, Salpêtriere Hospital, Paris, France.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>ICM (Brain and Spine Institute) UPMC/INSERM, UMR 1127, CNRS UMR7225, Pierre Marie Curie Paris-6 University, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ferreira</LastName><ForeName>J J</ForeName><Initials>JJ</Initials><AffiliationInfo><Affiliation>Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine, University of Lisbon, Lisbon, Portugal.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tijssen</LastName><ForeName>M A</ForeName><Initials>MA</Initials><AffiliationInfo><Affiliation>Department of Neurology, University Medical Centre Groningen, Groningen, The Netherlands.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2016</Year><Month>01</Month><Day>29</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Eur J Neurol</MedlineTA><NlmUniqueID>9506311</NlmUniqueID><ISSNLinking>1351-5101</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D020821" MajorTopicYN="N">Dystonic Disorders</DescriptorName><QualifierName UI="Q000188" MajorTopicYN="N">drug therapy</QualifierName><QualifierName UI="Q000628" MajorTopicYN="Y">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005062" MajorTopicYN="N">European Union</DescriptorName><QualifierName UI="Q000706" MajorTopicYN="Y">statistics & numerical data</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D058005" MajorTopicYN="N">General Practitioners</DescriptorName><QualifierName UI="Q000193" MajorTopicYN="N">education</QualifierName><QualifierName UI="Q000706" MajorTopicYN="Y">statistics & numerical data</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D019538" MajorTopicYN="N">Health Care Surveys</DescriptorName><QualifierName UI="Q000706" MajorTopicYN="N">statistics & numerical data</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D009462" MajorTopicYN="N">Neurology</DescriptorName><QualifierName UI="Q000193" MajorTopicYN="N">education</QualifierName><QualifierName UI="Q000706" MajorTopicYN="Y">statistics & numerical data</QualifierName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Europe</Keyword><Keyword MajorTopicYN="N">dystonia</Keyword><Keyword MajorTopicYN="N">dystonia management</Keyword><Keyword MajorTopicYN="N">dystonia treatment</Keyword><Keyword MajorTopicYN="N">survey</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2015</Year><Month>08</Month><Day>07</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2015</Year><Month>11</Month><Day>04</Day></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2016</Year><Month>1</Month><Day>31</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2016</Year><Month>1</Month><Day>31</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2016</Year><Month>12</Month><Day>15</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">26826067</ArticleId><ArticleId IdType="doi">10.1111/ene.12940</ArticleId></ArticleIdList></PubmedData></pubmed></record>Pour manipuler ce document sous Unix (Dilib)
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