Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study.
Identifieur interne : 000997 ( Ncbi/Merge ); précédent : 000996; suivant : 000998Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study.
Auteurs : Jérôme Fauconnier [France] ; Heather O. Dickinson ; Eva Beckung ; Marco Marcelli ; Vicki Mcmanus ; Susan I. Michelsen ; Jackie Parkes ; Kathryn N. Parkinson ; Ute Thyen ; Catherine Arnaud ; Allan ColverSource :
- BMJ (Clinical research ed.) [ 1756-1833 ] ; 2009.
English descriptors
- KwdEn :
- Adaptation, Psychological, Cerebral Palsy (psychology), Child, Cross-Sectional Studies, Disabled Persons (psychology), Disabled Persons (statistics & numerical data), Educational Status, Epidemiologic Methods, Europe, Humans, Leisure Activities, Pain (psychology), Social Environment, Social Responsibility.
- MESH :
- geographic : Europe.
- psychology : Cerebral Palsy, Disabled Persons, Pain.
- statistics & numerical data : Disabled Persons.
- Adaptation, Psychological, Child, Cross-Sectional Studies, Educational Status, Epidemiologic Methods, Humans, Leisure Activities, Social Environment, Social Responsibility.
Abstract
To evaluate how involvement in life situations (participation) in children with cerebral palsy varies with type and severity of impairment and to investigate geographical variation in participation.
PubMed: 19395424
Links toward previous steps (curation, corpus...)
- to stream PubMed, to step Corpus: 000B96
- to stream PubMed, to step Curation: 000B56
- to stream PubMed, to step Checkpoint: 000B56
Links to Exploration step
pubmed:19395424Le document en format XML
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Dickinson</name></author><author><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name></author><author><name sortKey="Marcelli, Marco" sort="Marcelli, Marco" uniqKey="Marcelli M" first="Marco" last="Marcelli">Marco Marcelli</name></author><author><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name></author><author><name sortKey="Michelsen, Susan I" sort="Michelsen, Susan I" uniqKey="Michelsen S" first="Susan I" last="Michelsen">Susan I. Michelsen</name></author><author><name sortKey="Parkes, Jackie" sort="Parkes, Jackie" uniqKey="Parkes J" first="Jackie" last="Parkes">Jackie Parkes</name></author><author><name sortKey="Parkinson, Kathryn N" sort="Parkinson, Kathryn N" uniqKey="Parkinson K" first="Kathryn N" last="Parkinson">Kathryn N. Parkinson</name></author><author><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></author><author><name sortKey="Arnaud, Catherine" sort="Arnaud, Catherine" uniqKey="Arnaud C" first="Catherine" last="Arnaud">Catherine Arnaud</name></author><author><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2009">2009</date><idno type="RBID">pubmed:19395424</idno><idno type="pmid">19395424</idno><idno type="wicri:Area/PubMed/Corpus">000B96</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000B96</idno><idno type="wicri:Area/PubMed/Curation">000B56</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000B56</idno><idno type="wicri:Area/PubMed/Checkpoint">000B56</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000B56</idno><idno type="wicri:Area/Ncbi/Merge">000997</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study.</title><author><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jérôme" last="Fauconnier">Jérôme Fauconnier</name><affiliation wicri:level="3"><nlm:affiliation>Université Joseph Fournier, DIM-Pôle Santé Publique Equipe ThEMAS, CHU de Grenoble BP 217, 38043 Grenoble Cedex 9, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Université Joseph Fournier, DIM-Pôle Santé Publique Equipe ThEMAS, CHU de Grenoble BP 217, 38043 Grenoble Cedex 9</wicri:regionArea><placeName><region type="region" nuts="2">Auvergne-Rhône-Alpes</region><region type="old region" nuts="2">Rhône-Alpes</region><settlement type="city">Grenoble</settlement></placeName></affiliation></author><author><name sortKey="Dickinson, Heather O" sort="Dickinson, Heather O" uniqKey="Dickinson H" first="Heather O" last="Dickinson">Heather O. Dickinson</name></author><author><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name></author><author><name sortKey="Marcelli, Marco" sort="Marcelli, Marco" uniqKey="Marcelli M" first="Marco" last="Marcelli">Marco Marcelli</name></author><author><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name></author><author><name sortKey="Michelsen, Susan I" sort="Michelsen, Susan I" uniqKey="Michelsen S" first="Susan I" last="Michelsen">Susan I. Michelsen</name></author><author><name sortKey="Parkes, Jackie" sort="Parkes, Jackie" uniqKey="Parkes J" first="Jackie" last="Parkes">Jackie Parkes</name></author><author><name sortKey="Parkinson, Kathryn N" sort="Parkinson, Kathryn N" uniqKey="Parkinson K" first="Kathryn N" last="Parkinson">Kathryn N. Parkinson</name></author><author><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></author><author><name sortKey="Arnaud, Catherine" sort="Arnaud, Catherine" uniqKey="Arnaud C" first="Catherine" last="Arnaud">Catherine Arnaud</name></author><author><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name></author></analytic><series><title level="j">BMJ (Clinical research ed.)</title><idno type="eISSN">1756-1833</idno><imprint><date when="2009" type="published">2009</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological</term><term>Cerebral Palsy (psychology)</term><term>Child</term><term>Cross-Sectional Studies</term><term>Disabled Persons (psychology)</term><term>Disabled Persons (statistics & numerical data)</term><term>Educational Status</term><term>Epidemiologic Methods</term><term>Europe</term><term>Humans</term><term>Leisure Activities</term><term>Pain (psychology)</term><term>Social Environment</term><term>Social Responsibility</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Europe</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Cerebral Palsy</term><term>Disabled Persons</term><term>Pain</term></keywords><keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>Disabled Persons</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term><term>Child</term><term>Cross-Sectional Studies</term><term>Educational Status</term><term>Epidemiologic Methods</term><term>Humans</term><term>Leisure Activities</term><term>Social Environment</term><term>Social Responsibility</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">To evaluate how involvement in life situations (participation) in children with cerebral palsy varies with type and severity of impairment and to investigate geographical variation in participation.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">19395424</PMID><DateCreated><Year>2009</Year><Month>04</Month><Day>27</Day></DateCreated><DateCompleted><Year>2009</Year><Month>05</Month><Day>13</Day></DateCompleted><DateRevised><Year>2014</Year><Month>12</Month><Day>09</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1756-1833</ISSN><JournalIssue CitedMedium="Internet"><Volume>338</Volume><PubDate><Year>2009</Year><Month>Apr</Month><Day>24</Day></PubDate></JournalIssue><Title>BMJ (Clinical research ed.)</Title><ISOAbbreviation>BMJ</ISOAbbreviation></Journal><ArticleTitle>Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study.</ArticleTitle><Pagination><MedlinePgn>b1458</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1136/bmj.b1458</ELocationID><ELocationID EIdType="pii" ValidYN="Y">338/apr23_2/b1458</ELocationID><Abstract><AbstractText Label="OBJECTIVES" NlmCategory="OBJECTIVE">To evaluate how involvement in life situations (participation) in children with cerebral palsy varies with type and severity of impairment and to investigate geographical variation in participation.</AbstractText><AbstractText Label="DESIGN" NlmCategory="METHODS">Cross sectional study. Trained interviewers visited parents of children with cerebral palsy; multilevel multivariable regression related participation to impairments, pain, and sociodemographic characteristics.</AbstractText><AbstractText Label="SETTING" NlmCategory="METHODS">Eight European regions with population registers of children with cerebral palsy; one further region recruited children from multiple sources.</AbstractText><AbstractText Label="PARTICIPANTS" NlmCategory="METHODS">1174 children aged 8-12 with cerebral palsy randomly selected from the population registers, 743 (63%) joined in the study; the further region recruited 75 children.</AbstractText><AbstractText Label="MAIN OUTCOME MEASURE" NlmCategory="METHODS">Children's participation assessed by the Life-H questionnaire covering 10 main areas of daily life. Scoring ignored adaptations or assistance required for participation.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Children with pain and those with more severely impaired walking, fine motor skills, communication, and intellectual abilities had lower participation across most domains. Type of cerebral palsy and problems with feeding and vision were associated with lower participation for specific domains, but the sociodemographic factors examined were not. Impairment and pain accounted for up to a sixth of the variation in participation. Participation on all domains varied substantially between regions: children in east Denmark had consistently higher participation than children in other regions. For most participation domains, about a third of the unexplained variation could be ascribed to variation between regions and about two thirds to variation between individuals.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Participation in children with cerebral palsy should be assessed in clinical practice to guide intervention and assess its effect. Pain should be carefully assessed. Some European countries facilitate participation better than others, implying some countries could make better provision. Legislation and regulation should be directed to ensuring this happens.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Fauconnier</LastName><ForeName>Jérôme</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Université Joseph Fournier, DIM-Pôle Santé Publique Equipe ThEMAS, CHU de Grenoble BP 217, 38043 Grenoble Cedex 9, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dickinson</LastName><ForeName>Heather O</ForeName><Initials>HO</Initials></Author><Author ValidYN="Y"><LastName>Beckung</LastName><ForeName>Eva</ForeName><Initials>E</Initials></Author><Author ValidYN="Y"><LastName>Marcelli</LastName><ForeName>Marco</ForeName><Initials>M</Initials></Author><Author ValidYN="Y"><LastName>McManus</LastName><ForeName>Vicki</ForeName><Initials>V</Initials></Author><Author ValidYN="Y"><LastName>Michelsen</LastName><ForeName>Susan I</ForeName><Initials>SI</Initials></Author><Author ValidYN="Y"><LastName>Parkes</LastName><ForeName>Jackie</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Parkinson</LastName><ForeName>Kathryn N</ForeName><Initials>KN</Initials></Author><Author ValidYN="Y"><LastName>Thyen</LastName><ForeName>Ute</ForeName><Initials>U</Initials></Author><Author ValidYN="Y"><LastName>Arnaud</LastName><ForeName>Catherine</ForeName><Initials>C</Initials></Author><Author ValidYN="Y"><LastName>Colver</LastName><ForeName>Allan</ForeName><Initials>A</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016448">Multicenter Study</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2009</Year><Month>04</Month><Day>24</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>BMJ</MedlineTA><NlmUniqueID>8900488</NlmUniqueID><ISSNLinking>0959-535X</ISSNLinking></MedlineJournalInfo><CitationSubset>AIM</CitationSubset><CitationSubset>IM</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>Pain. 2000 Dec 1;88(3):225-30</RefSource><PMID Version="1">11068109</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Spine (Phila Pa 1976). 2000 Dec 15;25(24):3186-91</RefSource><PMID Version="1">11124735</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Dev Med Child Neurol. 2002 May;44(5):309-16</RefSource><PMID Version="1">12033716</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Dev Med Child Neurol. 2002 Sep;44(9):633-40</RefSource><PMID Version="1">12227618</PMID></CommentsCorrections><CommentsCorrections 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UI="D002547" MajorTopicYN="N">Cerebral Palsy</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D003430" MajorTopicYN="N">Cross-Sectional Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006233" MajorTopicYN="N">Disabled Persons</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName><QualifierName UI="Q000706" MajorTopicYN="N">statistics & numerical data</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D004522" MajorTopicYN="N">Educational Status</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D004812" MajorTopicYN="N">Epidemiologic Methods</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005060" MajorTopicYN="N" Type="Geographic">Europe</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007899" MajorTopicYN="N">Leisure Activities</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010146" MajorTopicYN="N">Pain</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D012931" MajorTopicYN="N">Social Environment</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012941" MajorTopicYN="N">Social Responsibility</DescriptorName></MeshHeading></MeshHeadingList><OtherID Source="NLM">PMC2673343</OtherID></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2009</Year><Month>4</Month><Day>28</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2009</Year><Month>4</Month><Day>28</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2009</Year><Month>5</Month><Day>14</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>epublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">19395424</ArticleId><ArticleId IdType="pmc">PMC2673343</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>France</li></country><region><li>Auvergne-Rhône-Alpes</li><li>Rhône-Alpes</li></region><settlement><li>Grenoble</li></settlement></list><tree><noCountry><name sortKey="Arnaud, Catherine" sort="Arnaud, Catherine" uniqKey="Arnaud C" first="Catherine" last="Arnaud">Catherine Arnaud</name><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name><name sortKey="Dickinson, Heather O" sort="Dickinson, Heather O" uniqKey="Dickinson H" first="Heather O" last="Dickinson">Heather O. Dickinson</name><name sortKey="Marcelli, Marco" sort="Marcelli, Marco" uniqKey="Marcelli M" first="Marco" last="Marcelli">Marco Marcelli</name><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name><name sortKey="Michelsen, Susan I" sort="Michelsen, Susan I" uniqKey="Michelsen S" first="Susan I" last="Michelsen">Susan I. Michelsen</name><name sortKey="Parkes, Jackie" sort="Parkes, Jackie" uniqKey="Parkes J" first="Jackie" last="Parkes">Jackie Parkes</name><name sortKey="Parkinson, Kathryn N" sort="Parkinson, Kathryn N" uniqKey="Parkinson K" first="Kathryn N" last="Parkinson">Kathryn N. Parkinson</name><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></noCountry><country name="France"><region name="Auvergne-Rhône-Alpes"><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jérôme" last="Fauconnier">Jérôme Fauconnier</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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