Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy.
Identifieur interne : 000774 ( Ncbi/Merge ); précédent : 000773; suivant : 000775Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy.
Auteurs : Melanie White-Koning [France] ; Catherine Arnaud ; Heather O. Dickinson ; Ute Thyen ; Eva Beckung ; Jerome Fauconnier ; Vicki Mcmanus ; Susan I. Michelsen ; Jackie Parkes ; Kathryn Parkinson ; Giorgio Schirripa ; Allan ColverSource :
- Pediatrics [ 1098-4275 ] ; 2007.
English descriptors
- KwdEn :
- Adolescent, Age Factors, Cerebral Palsy (epidemiology), Cerebral Palsy (psychology), Child, Communication Disorders (epidemiology), Europe (epidemiology), Female, Humans, Income, Intelligence, Male, Multivariate Analysis, Pain (epidemiology), Pain (psychology), Parent-Child Relations, Parents (psychology), Quality of Life, Social Desirability, Social Support, Stress, Psychological (epidemiology), Surveys and Questionnaires.
- MESH :
- geographic , epidemiology : Europe.
- epidemiology : Cerebral Palsy, Communication Disorders, Pain, Stress, Psychological.
- psychology : Cerebral Palsy, Pain, Parents.
- Adolescent, Age Factors, Child, Female, Humans, Income, Intelligence, Male, Multivariate Analysis, Parent-Child Relations, Quality of Life, Social Desirability, Social Support, Surveys and Questionnaires.
Abstract
The differences between child self-reports and parent proxy reports of quality of life in a large population of children with cerebral palsy were studied. We examined whether child characteristics, severity of impairment, socioeconomic factors, and parental stress were associated with parent proxy reports being respectively higher or lower than child self-reports of quality of life.
DOI: 10.1542/peds.2006-3272
PubMed: 17908738
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pubmed:17908738Le document en format XML
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Dickinson</name></author><author><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></author><author><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name></author><author><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jerome" last="Fauconnier">Jerome Fauconnier</name></author><author><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name></author><author><name sortKey="Michelsen, Susan I" sort="Michelsen, Susan I" uniqKey="Michelsen S" first="Susan I" last="Michelsen">Susan I. 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Dickinson</name></author><author><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></author><author><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name></author><author><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jerome" last="Fauconnier">Jerome Fauconnier</name></author><author><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name></author><author><name sortKey="Michelsen, Susan I" sort="Michelsen, Susan I" uniqKey="Michelsen S" first="Susan I" last="Michelsen">Susan I. Michelsen</name></author><author><name sortKey="Parkes, Jackie" sort="Parkes, Jackie" uniqKey="Parkes J" first="Jackie" last="Parkes">Jackie Parkes</name></author><author><name sortKey="Parkinson, Kathryn" sort="Parkinson, Kathryn" uniqKey="Parkinson K" first="Kathryn" last="Parkinson">Kathryn Parkinson</name></author><author><name sortKey="Schirripa, Giorgio" sort="Schirripa, Giorgio" uniqKey="Schirripa G" first="Giorgio" last="Schirripa">Giorgio Schirripa</name></author><author><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name></author></analytic><series><title level="j">Pediatrics</title><idno type="eISSN">1098-4275</idno><imprint><date when="2007" type="published">2007</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Age Factors</term><term>Cerebral Palsy (epidemiology)</term><term>Cerebral Palsy (psychology)</term><term>Child</term><term>Communication Disorders (epidemiology)</term><term>Europe (epidemiology)</term><term>Female</term><term>Humans</term><term>Income</term><term>Intelligence</term><term>Male</term><term>Multivariate Analysis</term><term>Pain (epidemiology)</term><term>Pain (psychology)</term><term>Parent-Child Relations</term><term>Parents (psychology)</term><term>Quality of Life</term><term>Social Desirability</term><term>Social Support</term><term>Stress, Psychological (epidemiology)</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Europe</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Cerebral Palsy</term><term>Communication Disorders</term><term>Pain</term><term>Stress, Psychological</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Cerebral Palsy</term><term>Pain</term><term>Parents</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Age Factors</term><term>Child</term><term>Female</term><term>Humans</term><term>Income</term><term>Intelligence</term><term>Male</term><term>Multivariate Analysis</term><term>Parent-Child Relations</term><term>Quality of Life</term><term>Social Desirability</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">The differences between child self-reports and parent proxy reports of quality of life in a large population of children with cerebral palsy were studied. We examined whether child characteristics, severity of impairment, socioeconomic factors, and parental stress were associated with parent proxy reports being respectively higher or lower than child self-reports of quality of life.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">17908738</PMID><DateCreated><Year>2007</Year><Month>10</Month><Day>02</Day></DateCreated><DateCompleted><Year>2007</Year><Month>10</Month><Day>29</Day></DateCompleted><DateRevised><Year>2015</Year><Month>11</Month><Day>19</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1098-4275</ISSN><JournalIssue CitedMedium="Internet"><Volume>120</Volume><Issue>4</Issue><PubDate><Year>2007</Year><Month>Oct</Month></PubDate></JournalIssue><Title>Pediatrics</Title><ISOAbbreviation>Pediatrics</ISOAbbreviation></Journal><ArticleTitle>Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy.</ArticleTitle><Pagination><MedlinePgn>e804-14</MedlinePgn></Pagination><Abstract><AbstractText Label="OBJECTIVES" NlmCategory="OBJECTIVE">The differences between child self-reports and parent proxy reports of quality of life in a large population of children with cerebral palsy were studied. We examined whether child characteristics, severity of impairment, socioeconomic factors, and parental stress were associated with parent proxy reports being respectively higher or lower than child self-reports of quality of life.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">This study was conducted in 2004-2005 and assessed child quality of life (using the Kidscreen questionnaire, 10 domains, each scored 0-100) through self-reports and parent proxy reports of 500 children aged 8 to 12 years who had cerebral palsy and were living in 7 countries in Europe.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The mean child-reported scores of quality of life were significantly higher than the parent proxy reports in 8 domains, significantly lower for the finances domain, and similar for the emotions domain. The average frequency of disagreement (child-parent difference greater than half an SD of child scores) over all domains was 64%, with parents rating their child's quality of life lower than the children themselves in 29% to 57% of child-parent pairs. We found that high levels of stress in parenting negatively influenced parents' perception of their child's quality of life, whereas the main factor explaining parents' ratings of children's quality of life higher than the children themselves is self-reported severe child pain.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">This study shows that the factors associated with disagreement are different according to the direction of disagreement. In particular, parental well-being and child pain should be taken into account in the interpretation of parent proxy reports, especially when no child self-report of quality of life is available. In the latter cases, it may be advisable to obtain additional proxy reports (from caregivers, teachers, or clinicians) to obtain complementary information on the child's quality of life.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>White-Koning</LastName><ForeName>Melanie</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Institut National de la Santé et de la Recherche Médicale, U558, Faculté de Médecine, 37 Allées Jules Guesde, 31073 Toulouse Cedex, France. koning@cict.fr</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Arnaud</LastName><ForeName>Catherine</ForeName><Initials>C</Initials></Author><Author ValidYN="Y"><LastName>Dickinson</LastName><ForeName>Heather O</ForeName><Initials>HO</Initials></Author><Author ValidYN="Y"><LastName>Thyen</LastName><ForeName>Ute</ForeName><Initials>U</Initials></Author><Author ValidYN="Y"><LastName>Beckung</LastName><ForeName>Eva</ForeName><Initials>E</Initials></Author><Author ValidYN="Y"><LastName>Fauconnier</LastName><ForeName>Jerome</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>McManus</LastName><ForeName>Vicki</ForeName><Initials>V</Initials></Author><Author ValidYN="Y"><LastName>Michelsen</LastName><ForeName>Susan I</ForeName><Initials>SI</Initials></Author><Author ValidYN="Y"><LastName>Parkes</LastName><ForeName>Jackie</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Parkinson</LastName><ForeName>Kathryn</ForeName><Initials>K</Initials></Author><Author ValidYN="Y"><LastName>Schirripa</LastName><ForeName>Giorgio</ForeName><Initials>G</Initials></Author><Author ValidYN="Y"><LastName>Colver</LastName><ForeName>Allan</ForeName><Initials>A</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016448">Multicenter Study</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Pediatrics</MedlineTA><NlmUniqueID>0376422</NlmUniqueID><ISSNLinking>0031-4005</ISSNLinking></MedlineJournalInfo><CitationSubset>AIM</CitationSubset><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000367" MajorTopicYN="N">Age Factors</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002547" MajorTopicYN="N">Cerebral Palsy</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D003147" MajorTopicYN="N">Communication Disorders</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005060" MajorTopicYN="N" Type="Geographic">Europe</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007182" MajorTopicYN="N">Income</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007360" MajorTopicYN="N">Intelligence</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D015999" MajorTopicYN="N">Multivariate Analysis</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010146" MajorTopicYN="N">Pain</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D010287" MajorTopicYN="N">Parent-Child Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010290" MajorTopicYN="N">Parents</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D011788" MajorTopicYN="Y">Quality of Life</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012928" MajorTopicYN="N">Social Desirability</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012944" MajorTopicYN="N">Social Support</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D013315" MajorTopicYN="N">Stress, Psychological</DescriptorName><QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2007</Year><Month>10</Month><Day>3</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2007</Year><Month>10</Month><Day>30</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2007</Year><Month>10</Month><Day>3</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">17908738</ArticleId><ArticleId IdType="pii">120/4/e804</ArticleId><ArticleId IdType="doi">10.1542/peds.2006-3272</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>France</li></country><region><li>Midi-Pyrénées</li><li>Occitanie (région administrative)</li></region><settlement><li>Toulouse</li></settlement></list><tree><noCountry><name sortKey="Arnaud, Catherine" sort="Arnaud, Catherine" uniqKey="Arnaud C" first="Catherine" last="Arnaud">Catherine Arnaud</name><name sortKey="Beckung, Eva" sort="Beckung, Eva" uniqKey="Beckung E" first="Eva" last="Beckung">Eva Beckung</name><name sortKey="Colver, Allan" sort="Colver, Allan" uniqKey="Colver A" first="Allan" last="Colver">Allan Colver</name><name sortKey="Dickinson, Heather O" sort="Dickinson, Heather O" uniqKey="Dickinson H" first="Heather O" last="Dickinson">Heather O. Dickinson</name><name sortKey="Fauconnier, Jerome" sort="Fauconnier, Jerome" uniqKey="Fauconnier J" first="Jerome" last="Fauconnier">Jerome Fauconnier</name><name sortKey="Mcmanus, Vicki" sort="Mcmanus, Vicki" uniqKey="Mcmanus V" first="Vicki" last="Mcmanus">Vicki Mcmanus</name><name sortKey="Michelsen, Susan I" sort="Michelsen, Susan I" uniqKey="Michelsen S" first="Susan I" last="Michelsen">Susan I. Michelsen</name><name sortKey="Parkes, Jackie" sort="Parkes, Jackie" uniqKey="Parkes J" first="Jackie" last="Parkes">Jackie Parkes</name><name sortKey="Parkinson, Kathryn" sort="Parkinson, Kathryn" uniqKey="Parkinson K" first="Kathryn" last="Parkinson">Kathryn Parkinson</name><name sortKey="Schirripa, Giorgio" sort="Schirripa, Giorgio" uniqKey="Schirripa G" first="Giorgio" last="Schirripa">Giorgio Schirripa</name><name sortKey="Thyen, Ute" sort="Thyen, Ute" uniqKey="Thyen U" first="Ute" last="Thyen">Ute Thyen</name></noCountry><country name="France"><region name="Occitanie (région administrative)"><name sortKey="White Koning, Melanie" sort="White Koning, Melanie" uniqKey="White Koning M" first="Melanie" last="White-Koning">Melanie White-Koning</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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