Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.
Identifieur interne : 000585 ( Ncbi/Merge ); précédent : 000584; suivant : 000586Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.
Auteurs : V. Mcmanus [Irlande (pays)] ; S I Michelsen ; K. Parkinson ; A. Colver ; E. Beckung ; O. Pez ; B. CaravaleSource :
- Child: care, health and development [ 0305-1862 ] ; 2006.
English descriptors
- KwdEn :
- Adolescent, Attitude to Health, Cerebral Palsy (rehabilitation), Child, Child, Preschool, Environment, Environment Design, Europe, Focus Groups, Government, Health Education, Helping Behavior, Humans, Interpersonal Relations, Parents (psychology), Quality of Life (psychology), Social Environment, Social Support, Surveys and Questionnaires, Transportation.
- MESH :
- geographic : Europe.
- psychology : Parents, Quality of Life.
- rehabilitation : Cerebral Palsy.
- Adolescent, Attitude to Health, Child, Child, Preschool, Environment, Environment Design, Focus Groups, Government, Health Education, Helping Behavior, Humans, Interpersonal Relations, Social Environment, Social Support, Surveys and Questionnaires, Transportation.
Abstract
An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.
DOI: 10.1111/j.1365-2214.2006.00601.x
PubMed: 16441853
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.</title><author><name sortKey="Mcmanus, V" sort="Mcmanus, V" uniqKey="Mcmanus V" first="V" last="Mcmanus">V. Mcmanus</name><affiliation wicri:level="1"><nlm:affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland. vmcmanus@enableireland.ie</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Enable Ireland, Lavanagh Centre, Ballintemple, Cork</wicri:regionArea><wicri:noRegion>Cork</wicri:noRegion></affiliation></author><author><name sortKey="Michelsen, S I" sort="Michelsen, S I" uniqKey="Michelsen S" first="S I" last="Michelsen">S I Michelsen</name></author><author><name sortKey="Parkinson, K" sort="Parkinson, K" uniqKey="Parkinson K" first="K" last="Parkinson">K. Parkinson</name></author><author><name sortKey="Colver, A" sort="Colver, A" uniqKey="Colver A" first="A" last="Colver">A. Colver</name></author><author><name sortKey="Beckung, E" sort="Beckung, E" uniqKey="Beckung E" first="E" last="Beckung">E. Beckung</name></author><author><name sortKey="Pez, O" sort="Pez, O" uniqKey="Pez O" first="O" last="Pez">O. Pez</name></author><author><name sortKey="Caravale, B" sort="Caravale, B" uniqKey="Caravale B" first="B" last="Caravale">B. Caravale</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2006">2006</date><idno type="RBID">pubmed:16441853</idno><idno type="pmid">16441853</idno><idno type="doi">10.1111/j.1365-2214.2006.00601.x</idno><idno type="wicri:Area/PubMed/Corpus">000E82</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000E82</idno><idno type="wicri:Area/PubMed/Curation">000E42</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000E42</idno><idno type="wicri:Area/PubMed/Checkpoint">000E42</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000E42</idno><idno type="wicri:Area/Ncbi/Merge">000585</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.</title><author><name sortKey="Mcmanus, V" sort="Mcmanus, V" uniqKey="Mcmanus V" first="V" last="Mcmanus">V. Mcmanus</name><affiliation wicri:level="1"><nlm:affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland. vmcmanus@enableireland.ie</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Enable Ireland, Lavanagh Centre, Ballintemple, Cork</wicri:regionArea><wicri:noRegion>Cork</wicri:noRegion></affiliation></author><author><name sortKey="Michelsen, S I" sort="Michelsen, S I" uniqKey="Michelsen S" first="S I" last="Michelsen">S I Michelsen</name></author><author><name sortKey="Parkinson, K" sort="Parkinson, K" uniqKey="Parkinson K" first="K" last="Parkinson">K. Parkinson</name></author><author><name sortKey="Colver, A" sort="Colver, A" uniqKey="Colver A" first="A" last="Colver">A. Colver</name></author><author><name sortKey="Beckung, E" sort="Beckung, E" uniqKey="Beckung E" first="E" last="Beckung">E. Beckung</name></author><author><name sortKey="Pez, O" sort="Pez, O" uniqKey="Pez O" first="O" last="Pez">O. Pez</name></author><author><name sortKey="Caravale, B" sort="Caravale, B" uniqKey="Caravale B" first="B" last="Caravale">B. Caravale</name></author></analytic><series><title level="j">Child: care, health and development</title><idno type="ISSN">0305-1862</idno><imprint><date when="2006" type="published">2006</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Attitude to Health</term><term>Cerebral Palsy (rehabilitation)</term><term>Child</term><term>Child, Preschool</term><term>Environment</term><term>Environment Design</term><term>Europe</term><term>Focus Groups</term><term>Government</term><term>Health Education</term><term>Helping Behavior</term><term>Humans</term><term>Interpersonal Relations</term><term>Parents (psychology)</term><term>Quality of Life (psychology)</term><term>Social Environment</term><term>Social Support</term><term>Surveys and Questionnaires</term><term>Transportation</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Europe</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Parents</term><term>Quality of Life</term></keywords><keywords scheme="MESH" qualifier="rehabilitation" xml:lang="en"><term>Cerebral Palsy</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Attitude to Health</term><term>Child</term><term>Child, Preschool</term><term>Environment</term><term>Environment Design</term><term>Focus Groups</term><term>Government</term><term>Health Education</term><term>Helping Behavior</term><term>Humans</term><term>Interpersonal Relations</term><term>Social Environment</term><term>Social Support</term><term>Surveys and Questionnaires</term><term>Transportation</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">16441853</PMID><DateCreated><Year>2006</Year><Month>01</Month><Day>30</Day></DateCreated><DateCompleted><Year>2006</Year><Month>06</Month><Day>09</Day></DateCompleted><DateRevised><Year>2015</Year><Month>11</Month><Day>19</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Print">0305-1862</ISSN><JournalIssue CitedMedium="Print"><Volume>32</Volume><Issue>2</Issue><PubDate><Year>2006</Year><Month>Mar</Month></PubDate></JournalIssue><Title>Child: care, health and development</Title><ISOAbbreviation>Child Care Health Dev</ISOAbbreviation></Journal><ArticleTitle>Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.</ArticleTitle><Pagination><MedlinePgn>185-92</MedlinePgn></Pagination><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</AbstractText><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">To inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe.</AbstractText><AbstractText Label="DESIGN" NlmCategory="METHODS">A qualitative study using discussion groups.</AbstractText><AbstractText Label="PARTICIPANTS" NlmCategory="METHODS">Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The four themes identified in the preliminary work done in England were strongly confirmed across Europe - namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>McManus</LastName><ForeName>V</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland. vmcmanus@enableireland.ie</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Michelsen</LastName><ForeName>S I</ForeName><Initials>SI</Initials></Author><Author ValidYN="Y"><LastName>Parkinson</LastName><ForeName>K</ForeName><Initials>K</Initials></Author><Author ValidYN="Y"><LastName>Colver</LastName><ForeName>A</ForeName><Initials>A</Initials></Author><Author ValidYN="Y"><LastName>Beckung</LastName><ForeName>E</ForeName><Initials>E</Initials></Author><Author ValidYN="Y"><LastName>Pez</LastName><ForeName>O</ForeName><Initials>O</Initials></Author><Author ValidYN="Y"><LastName>Caravale</LastName><ForeName>B</ForeName><Initials>B</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Child Care Health Dev</MedlineTA><NlmUniqueID>7602632</NlmUniqueID><ISSNLinking>0305-1862</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="ErratumIn"><RefSource>Child Care Health Dev. 2006 May;32(3):393</RefSource></CommentsCorrections></CommentsCorrectionsList><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D001294" MajorTopicYN="N">Attitude to Health</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002547" MajorTopicYN="N">Cerebral Palsy</DescriptorName><QualifierName UI="Q000534" MajorTopicYN="Y">rehabilitation</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002675" MajorTopicYN="N">Child, Preschool</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D004777" MajorTopicYN="Y">Environment</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D004779" MajorTopicYN="N">Environment Design</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005060" MajorTopicYN="N" Type="Geographic">Europe</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D017144" MajorTopicYN="N">Focus Groups</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006076" MajorTopicYN="N">Government</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006266" MajorTopicYN="N">Health Education</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006379" MajorTopicYN="N">Helping Behavior</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007398" MajorTopicYN="N">Interpersonal Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010290" MajorTopicYN="N">Parents</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D011788" MajorTopicYN="N">Quality of Life</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D012931" MajorTopicYN="N">Social Environment</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012944" MajorTopicYN="N">Social Support</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D014186" MajorTopicYN="N">Transportation</DescriptorName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2006</Year><Month>1</Month><Day>31</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2006</Year><Month>6</Month><Day>10</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2006</Year><Month>1</Month><Day>31</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">16441853</ArticleId><ArticleId IdType="pii">CCH601</ArticleId><ArticleId IdType="doi">10.1111/j.1365-2214.2006.00601.x</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Irlande (pays)</li></country></list><tree><noCountry><name sortKey="Beckung, E" sort="Beckung, E" uniqKey="Beckung E" first="E" last="Beckung">E. Beckung</name><name sortKey="Caravale, B" sort="Caravale, B" uniqKey="Caravale B" first="B" last="Caravale">B. Caravale</name><name sortKey="Colver, A" sort="Colver, A" uniqKey="Colver A" first="A" last="Colver">A. Colver</name><name sortKey="Michelsen, S I" sort="Michelsen, S I" uniqKey="Michelsen S" first="S I" last="Michelsen">S I Michelsen</name><name sortKey="Parkinson, K" sort="Parkinson, K" uniqKey="Parkinson K" first="K" last="Parkinson">K. Parkinson</name><name sortKey="Pez, O" sort="Pez, O" uniqKey="Pez O" first="O" last="Pez">O. Pez</name></noCountry><country name="Irlande (pays)"><noRegion><name sortKey="Mcmanus, V" sort="Mcmanus, V" uniqKey="Mcmanus V" first="V" last="Mcmanus">V. Mcmanus</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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