Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.
Identifieur interne : 000585 ( Ncbi/Merge ); précédent : 000584; suivant : 000586Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.
Auteurs : V. Mcmanus [Irlande (pays)] ; S I Michelsen ; K. Parkinson ; A. Colver ; E. Beckung ; O. Pez ; B. CaravaleSource :
- Child: care, health and development [ 0305-1862 ] ; 2006.
English descriptors
- KwdEn :
- Adolescent, Attitude to Health, Cerebral Palsy (rehabilitation), Child, Child, Preschool, Environment, Environment Design, Europe, Focus Groups, Government, Health Education, Helping Behavior, Humans, Interpersonal Relations, Parents (psychology), Quality of Life (psychology), Social Environment, Social Support, Surveys and Questionnaires, Transportation.
- MESH :
- geographic : Europe.
- psychology : Parents, Quality of Life.
- rehabilitation : Cerebral Palsy.
- Adolescent, Attitude to Health, Child, Child, Preschool, Environment, Environment Design, Focus Groups, Government, Health Education, Helping Behavior, Humans, Interpersonal Relations, Social Environment, Social Support, Surveys and Questionnaires, Transportation.
Abstract
An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.
DOI: 10.1111/j.1365-2214.2006.00601.x
PubMed: 16441853
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pubmed:16441853Le document en format XML
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<author><name sortKey="Mcmanus, V" sort="Mcmanus, V" uniqKey="Mcmanus V" first="V" last="Mcmanus">V. Mcmanus</name>
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<term>Child, Preschool</term>
<term>Environment</term>
<term>Environment Design</term>
<term>Europe</term>
<term>Focus Groups</term>
<term>Government</term>
<term>Health Education</term>
<term>Helping Behavior</term>
<term>Humans</term>
<term>Interpersonal Relations</term>
<term>Parents (psychology)</term>
<term>Quality of Life (psychology)</term>
<term>Social Environment</term>
<term>Social Support</term>
<term>Surveys and Questionnaires</term>
<term>Transportation</term>
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<term>Quality of Life</term>
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<front><div type="abstract" xml:lang="en">An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</div>
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<Month>01</Month>
<Day>30</Day>
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<DateCompleted><Year>2006</Year>
<Month>06</Month>
<Day>09</Day>
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<Month>11</Month>
<Day>19</Day>
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<Issue>2</Issue>
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<Month>Mar</Month>
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<Title>Child: care, health and development</Title>
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<ArticleTitle>Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment.</ArticleTitle>
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<Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.</AbstractText>
<AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">To inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe.</AbstractText>
<AbstractText Label="DESIGN" NlmCategory="METHODS">A qualitative study using discussion groups.</AbstractText>
<AbstractText Label="PARTICIPANTS" NlmCategory="METHODS">Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">The four themes identified in the preliminary work done in England were strongly confirmed across Europe - namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.</AbstractText>
<AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.</AbstractText>
</Abstract>
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<AffiliationInfo><Affiliation>Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland. vmcmanus@enableireland.ie</Affiliation>
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<Author ValidYN="Y"><LastName>Michelsen</LastName>
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<Author ValidYN="Y"><LastName>Parkinson</LastName>
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<MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
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<name sortKey="Colver, A" sort="Colver, A" uniqKey="Colver A" first="A" last="Colver">A. Colver</name>
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<name sortKey="Parkinson, K" sort="Parkinson, K" uniqKey="Parkinson K" first="K" last="Parkinson">K. Parkinson</name>
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