Narrating narcolepsy--centering a side effect.
Identifieur interne : 000730 ( PubMed/Curation ); précédent : 000729; suivant : 000731Narrating narcolepsy--centering a side effect.
Auteurs : Britta Lundgren [Suède]Source :
- Medical anthropology [ 1545-5882 ] ; 2015.
Descripteurs français
- KwdFr :
- MESH :
- effets indésirables : Vaccination de masse, Vaccins antigrippaux.
- étiologie : Narcolepsie.
- Adolescent, Anthropologie médicale, Cataplexie, Enfant, Femelle, Grippe humaine, Humains, Mâle, Narration, Sous-type H1N1 du virus de la grippe A, Suède.
- Wicri :
- geographic : Suède.
English descriptors
- KwdEn :
- MESH :
- chemical , adverse effects : Influenza Vaccines.
- geographic : Sweden.
- adverse effects : Mass Vaccination.
- etiology : Narcolepsy.
- Adolescent, Anthropology, Medical, Cataplexy, Child, Female, Humans, Influenza A Virus, H1N1 Subtype, Influenza, Human, Male, Narration.
Abstract
The mass-vaccination with Pandemrix was the most important preventive measure in Sweden during the A(H1N1) influenza pandemic of 2009-2010, and covered 60% of the population. From 2010, an increased incidence of the neurological disease narcolepsy was reported, and an association with Pandemrix was affirmed for more than 200 children and young adults. The parental experience of this side effect provided a starting point for a collectively shaped critical narrative to be acted out in public, but also personalized narratives of continual learning about the disease and its consequences. This didactic functionality resulted in active meaning-making practices about how to handle the aftermath--using dark humor, cognitive tricks, and making themselves and their children's bodies both objects and subjects of knowledge. Using material from interviews with parents, this mixing of knowledge work and political work, and the potential for reflective consciousness, is discussed.
DOI: 10.1080/01459740.2014.962694
PubMed: 25457625
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pubmed:25457625Le document en format XML
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<front><div type="abstract" xml:lang="en">The mass-vaccination with Pandemrix was the most important preventive measure in Sweden during the A(H1N1) influenza pandemic of 2009-2010, and covered 60% of the population. From 2010, an increased incidence of the neurological disease narcolepsy was reported, and an association with Pandemrix was affirmed for more than 200 children and young adults. The parental experience of this side effect provided a starting point for a collectively shaped critical narrative to be acted out in public, but also personalized narratives of continual learning about the disease and its consequences. This didactic functionality resulted in active meaning-making practices about how to handle the aftermath--using dark humor, cognitive tricks, and making themselves and their children's bodies both objects and subjects of knowledge. Using material from interviews with parents, this mixing of knowledge work and political work, and the potential for reflective consciousness, is discussed.</div>
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