Validity of a mailed epidemiological questionnaire and physical self-assessment in Parkinson's disease.
Identifieur interne : 005028 ( PubMed/Corpus ); précédent : 005027; suivant : 005029Validity of a mailed epidemiological questionnaire and physical self-assessment in Parkinson's disease.
Auteurs : L I Golbe ; J. PaeSource :
- Movement disorders : official journal of the Movement Disorder Society [ 0885-3185 ] ; 1988.
English descriptors
- KwdEn :
- MESH :
- geographic : New Jersey.
- diagnosis : Parkinson Disease.
- epidemiology : Parkinson Disease.
- etiology : Parkinson Disease.
- Aged, Environment, Female, Humans, Male, Middle Aged, Neurology, Questionnaires.
Abstract
The large-scale mail questionnaire is a useful tool in epidemiological investigation and will probably come into wider use in the search for an environmental cause of Parkinson's disease (PD). To determine the validity of mail questionnaires in patients with PD, we administered a 17-item questionnaire by in-person interview, as a standard, to 68 patients (and/or a relative when necessary) and compared the results with the same questionnaire mailed at least 1 month before or after the interview. Questions in three formats requested recall of the clinical course and past environmental factors. Each patient also completed a multiple-choice physical self-assessment (a modification of four items on the Columbia Scale) immediately before seeing the neurologist, who completed the same form after the examination. Percent of patients with zero discordance between mail and interview responses averaged 52% for the nine fill-in-a-year items, 53% for the three list-generation items. Kappa statistics for the five multiple-choice items, which each offered four choices, averaged 0.67 (range 0.40-0.89). Kappa for the physical examination items, each rated on a 0-3 scale, was finger-tap 0.12, gait 0.34, tremor 0.35, and chorea 0.20. Patients' ratings tended to be more severe than neurologists' ratings. We conclude that mail surveys in PD should either be avoided or rigorously pretested for validity.
DOI: 10.1002/mds.870030309
PubMed: 3193962
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pubmed:3193962Le document en format XML
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Pae</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="1988">1988</date><idno type="RBID">pubmed:3193962</idno><idno type="pmid">3193962</idno><idno type="doi">10.1002/mds.870030309</idno><idno type="wicri:Area/PubMed/Corpus">005028</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Validity of a mailed epidemiological questionnaire and physical self-assessment in Parkinson's disease.</title><author><name sortKey="Golbe, L I" sort="Golbe, L I" uniqKey="Golbe L" first="L I" last="Golbe">L I Golbe</name><affiliation><nlm:affiliation>Department of Neurology, UMDNJ-Robert Wood Johnson Medical School, New Brunswick 08903.</nlm:affiliation></affiliation></author><author><name sortKey="Pae, J" sort="Pae, J" uniqKey="Pae J" first="J" last="Pae">J. Pae</name></author></analytic><series><title level="j">Movement disorders : official journal of the Movement Disorder Society</title><idno type="ISSN">0885-3185</idno><imprint><date when="1988" type="published">1988</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Aged</term><term>Environment</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Neurology</term><term>New Jersey</term><term>Parkinson Disease (diagnosis)</term><term>Parkinson Disease (epidemiology)</term><term>Parkinson Disease (etiology)</term><term>Questionnaires</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>New Jersey</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" qualifier="etiology" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Aged</term><term>Environment</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Neurology</term><term>Questionnaires</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">The large-scale mail questionnaire is a useful tool in epidemiological investigation and will probably come into wider use in the search for an environmental cause of Parkinson's disease (PD). To determine the validity of mail questionnaires in patients with PD, we administered a 17-item questionnaire by in-person interview, as a standard, to 68 patients (and/or a relative when necessary) and compared the results with the same questionnaire mailed at least 1 month before or after the interview. Questions in three formats requested recall of the clinical course and past environmental factors. Each patient also completed a multiple-choice physical self-assessment (a modification of four items on the Columbia Scale) immediately before seeing the neurologist, who completed the same form after the examination. Percent of patients with zero discordance between mail and interview responses averaged 52% for the nine fill-in-a-year items, 53% for the three list-generation items. Kappa statistics for the five multiple-choice items, which each offered four choices, averaged 0.67 (range 0.40-0.89). Kappa for the physical examination items, each rated on a 0-3 scale, was finger-tap 0.12, gait 0.34, tremor 0.35, and chorea 0.20. Patients' ratings tended to be more severe than neurologists' ratings. We conclude that mail surveys in PD should either be avoided or rigorously pretested for validity.</div></front></TEI><pubmed><MedlineCitation Owner="NLM" Status="MEDLINE"><PMID Version="1">3193962</PMID><DateCreated><Year>1989</Year><Month>01</Month><Day>05</Day></DateCreated><DateCompleted><Year>1989</Year><Month>01</Month><Day>05</Day></DateCompleted><DateRevised><Year>2006</Year><Month>11</Month><Day>15</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Print">0885-3185</ISSN><JournalIssue CitedMedium="Print"><Volume>3</Volume><Issue>3</Issue><PubDate><Year>1988</Year></PubDate></JournalIssue><Title>Movement disorders : official journal of the Movement Disorder Society</Title><ISOAbbreviation>Mov. Disord.</ISOAbbreviation></Journal><ArticleTitle>Validity of a mailed epidemiological questionnaire and physical self-assessment in Parkinson's disease.</ArticleTitle><Pagination><MedlinePgn>245-54</MedlinePgn></Pagination><Abstract><AbstractText>The large-scale mail questionnaire is a useful tool in epidemiological investigation and will probably come into wider use in the search for an environmental cause of Parkinson's disease (PD). To determine the validity of mail questionnaires in patients with PD, we administered a 17-item questionnaire by in-person interview, as a standard, to 68 patients (and/or a relative when necessary) and compared the results with the same questionnaire mailed at least 1 month before or after the interview. Questions in three formats requested recall of the clinical course and past environmental factors. Each patient also completed a multiple-choice physical self-assessment (a modification of four items on the Columbia Scale) immediately before seeing the neurologist, who completed the same form after the examination. Percent of patients with zero discordance between mail and interview responses averaged 52% for the nine fill-in-a-year items, 53% for the three list-generation items. Kappa statistics for the five multiple-choice items, which each offered four choices, averaged 0.67 (range 0.40-0.89). Kappa for the physical examination items, each rated on a 0-3 scale, was finger-tap 0.12, gait 0.34, tremor 0.35, and chorea 0.20. Patients' ratings tended to be more severe than neurologists' ratings. 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