The Huntington's Disease Dysphagia Scale.
Identifieur interne : 004007 ( Ncbi/Merge ); précédent : 004006; suivant : 004008The Huntington's Disease Dysphagia Scale.
Auteurs : Anne-Wil Heemskerk [Pays-Bas] ; Berit M. Verbist ; Johan Marinus ; Bas Heijnen ; Elisabeth V. Sjögren ; Raymund A C. RoosSource :
- Movement disorders : official journal of the Movement Disorder Society [ 1531-8257 ] ; 2014.
English descriptors
- KwdEn :
- Adult, Aged, Caregivers (psychology), Deglutition Disorders (diagnosis), Deglutition Disorders (etiology), Female, Humans, Huntington Disease (complications), Huntington Disease (psychology), Male, Middle Aged, Psychometrics, Questionnaires, Reproducibility of Results, Severity of Illness Index, Statistics, Nonparametric.
- MESH :
- complications : Huntington Disease.
- diagnosis : Deglutition Disorders.
- etiology : Deglutition Disorders.
- psychology : Caregivers, Huntington Disease.
- Adult, Aged, Female, Humans, Male, Middle Aged, Psychometrics, Questionnaires, Reproducibility of Results, Severity of Illness Index, Statistics, Nonparametric.
Abstract
Little is known about the swallowing disturbances of patients with Huntington's disease; therefore, we developed the Huntington's Disease Dysphagia Scale.
DOI: 10.1002/mds.25922
PubMed: 24862624
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">The Huntington's Disease Dysphagia Scale.</title><author><name sortKey="Heemskerk, Anne Wil" sort="Heemskerk, Anne Wil" uniqKey="Heemskerk A" first="Anne-Wil" last="Heemskerk">Anne-Wil Heemskerk</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; Huntingtoncentre Topaz Overduin, Katwijk, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Department of Neurology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; Huntingtoncentre Topaz Overduin, Katwijk</wicri:regionArea><wicri:noRegion>Katwijk</wicri:noRegion></affiliation></author><author><name sortKey="Verbist, Berit M" sort="Verbist, Berit M" uniqKey="Verbist B" first="Berit M" last="Verbist">Berit M. Verbist</name></author><author><name sortKey="Marinus, Johan" sort="Marinus, Johan" uniqKey="Marinus J" first="Johan" last="Marinus">Johan Marinus</name></author><author><name sortKey="Heijnen, Bas" sort="Heijnen, Bas" uniqKey="Heijnen B" first="Bas" last="Heijnen">Bas Heijnen</name></author><author><name sortKey="Sjogren, Elisabeth V" sort="Sjogren, Elisabeth V" uniqKey="Sjogren E" first="Elisabeth V" last="Sjögren">Elisabeth V. Sjögren</name></author><author><name sortKey="Roos, Raymund A C" sort="Roos, Raymund A C" uniqKey="Roos R" first="Raymund A C" last="Roos">Raymund A C. Roos</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2014">2014</date><idno type="RBID">pubmed:24862624</idno><idno type="pmid">24862624</idno><idno type="doi">10.1002/mds.25922</idno><idno type="wicri:Area/PubMed/Corpus">000492</idno><idno type="wicri:Area/PubMed/Curation">000492</idno><idno type="wicri:Area/PubMed/Checkpoint">000402</idno><idno type="wicri:Area/Ncbi/Merge">004007</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">The Huntington's Disease Dysphagia Scale.</title><author><name sortKey="Heemskerk, Anne Wil" sort="Heemskerk, Anne Wil" uniqKey="Heemskerk A" first="Anne-Wil" last="Heemskerk">Anne-Wil Heemskerk</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; Huntingtoncentre Topaz Overduin, Katwijk, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Department of Neurology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; Huntingtoncentre Topaz Overduin, Katwijk</wicri:regionArea><wicri:noRegion>Katwijk</wicri:noRegion></affiliation></author><author><name sortKey="Verbist, Berit M" sort="Verbist, Berit M" uniqKey="Verbist B" first="Berit M" last="Verbist">Berit M. Verbist</name></author><author><name sortKey="Marinus, Johan" sort="Marinus, Johan" uniqKey="Marinus J" first="Johan" last="Marinus">Johan Marinus</name></author><author><name sortKey="Heijnen, Bas" sort="Heijnen, Bas" uniqKey="Heijnen B" first="Bas" last="Heijnen">Bas Heijnen</name></author><author><name sortKey="Sjogren, Elisabeth V" sort="Sjogren, Elisabeth V" uniqKey="Sjogren E" first="Elisabeth V" last="Sjögren">Elisabeth V. Sjögren</name></author><author><name sortKey="Roos, Raymund A C" sort="Roos, Raymund A C" uniqKey="Roos R" first="Raymund A C" last="Roos">Raymund A C. Roos</name></author></analytic><series><title level="j">Movement disorders : official journal of the Movement Disorder Society</title><idno type="eISSN">1531-8257</idno><imprint><date when="2014" type="published">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Caregivers (psychology)</term><term>Deglutition Disorders (diagnosis)</term><term>Deglutition Disorders (etiology)</term><term>Female</term><term>Humans</term><term>Huntington Disease (complications)</term><term>Huntington Disease (psychology)</term><term>Male</term><term>Middle Aged</term><term>Psychometrics</term><term>Questionnaires</term><term>Reproducibility of Results</term><term>Severity of Illness Index</term><term>Statistics, Nonparametric</term></keywords><keywords scheme="MESH" qualifier="complications" xml:lang="en"><term>Huntington Disease</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Deglutition Disorders</term></keywords><keywords scheme="MESH" qualifier="etiology" xml:lang="en"><term>Deglutition Disorders</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Caregivers</term><term>Huntington Disease</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Psychometrics</term><term>Questionnaires</term><term>Reproducibility of Results</term><term>Severity of Illness Index</term><term>Statistics, Nonparametric</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Little is known about the swallowing disturbances of patients with Huntington's disease; therefore, we developed the Huntington's Disease Dysphagia Scale.</div></front></TEI><pubmed><MedlineCitation Owner="NLM" Status="MEDLINE"><PMID Version="1">24862624</PMID><DateCreated><Year>2014</Year><Month>09</Month><Day>11</Day></DateCreated><DateCompleted><Year>2015</Year><Month>05</Month><Day>14</Day></DateCompleted><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1531-8257</ISSN><JournalIssue CitedMedium="Internet"><Volume>29</Volume><Issue>10</Issue><PubDate><Year>2014</Year><Month>Sep</Month></PubDate></JournalIssue><Title>Movement disorders : official journal of the Movement Disorder Society</Title><ISOAbbreviation>Mov. Disord.</ISOAbbreviation></Journal><ArticleTitle>The Huntington's Disease Dysphagia Scale.</ArticleTitle><Pagination><MedlinePgn>1312-6</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1002/mds.25922</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Little is known about the swallowing disturbances of patients with Huntington's disease; therefore, we developed the Huntington's Disease Dysphagia Scale.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">The scale was developed in four stages: (1) item generation, (2) comprehension testing, (3) evaluation of reliability, (4) item reduction and validity testing. The questionnaire was presented twice to 50 Huntington's disease patients and their caregivers. The Kruskal-Wallis test was used to evaluate whether the severity of swallowing difficulties increased with advancing disease. Pearson's correlation coefficient was used to examine the construct validity with the Swallowing Disturbance Questionnaire.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The final version contained 11 items with five response options and exhibited a Cronbach's alpha coefficient of 0.728. The severity of swallowing difficulties was significantly higher in more advanced Huntington's disease. The correlation with the Swallowing Disturbance Questionnaire was 0.734.</AbstractText><AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">We developed a valid and reliable 11-item scale to measure the severity of dysphagia in Huntington's disease.</AbstractText><CopyrightInformation>© 2014 International Parkinson and Movement Disorder Society.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Heemskerk</LastName><ForeName>Anne-Wil</ForeName><Initials>AW</Initials><AffiliationInfo><Affiliation>Department of Neurology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; Huntingtoncentre Topaz Overduin, Katwijk, the Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Verbist</LastName><ForeName>Berit M</ForeName><Initials>BM</Initials></Author><Author ValidYN="Y"><LastName>Marinus</LastName><ForeName>Johan</ForeName><Initials>J</Initials></Author><Author ValidYN="Y"><LastName>Heijnen</LastName><ForeName>Bas</ForeName><Initials>B</Initials></Author><Author ValidYN="Y"><LastName>Sjögren</LastName><ForeName>Elisabeth V</ForeName><Initials>EV</Initials></Author><Author ValidYN="Y"><LastName>Roos</LastName><ForeName>Raymund A C</ForeName><Initials>RA</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2014</Year><Month>05</Month><Day>23</Day></ArticleDate></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Mov Disord</MedlineTA><NlmUniqueID>8610688</NlmUniqueID><ISSNLinking>0885-3185</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName MajorTopicYN="N" UI="D000328">Adult</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D000368">Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D017028">Caregivers</DescriptorName><QualifierName MajorTopicYN="N" UI="Q000523">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D003680">Deglutition Disorders</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000175">diagnosis</QualifierName><QualifierName MajorTopicYN="Y" UI="Q000209">etiology</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D005260">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D006801">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D006816">Huntington Disease</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000150">complications</QualifierName><QualifierName MajorTopicYN="N" UI="Q000523">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008297">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008875">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D011594">Psychometrics</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D011795">Questionnaires</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D015203">Reproducibility of Results</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="Y" UI="D012720">Severity of Illness Index</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D018709">Statistics, Nonparametric</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Huntington's disease</Keyword><Keyword MajorTopicYN="N">dysphagia</Keyword><Keyword MajorTopicYN="N">measurement</Keyword><Keyword MajorTopicYN="N">scale</Keyword><Keyword MajorTopicYN="N">swallowing</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2013</Year><Month>12</Month><Day>30</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2014</Year><Month>4</Month><Day>15</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2014</Year><Month>4</Month><Day>27</Day></PubMedPubDate><PubMedPubDate PubStatus="aheadofprint"><Year>2014</Year><Month>5</Month><Day>23</Day></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2014</Year><Month>5</Month><Day>28</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2014</Year><Month>5</Month><Day>28</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2015</Year><Month>5</Month><Day>15</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">24862624</ArticleId><ArticleId IdType="doi">10.1002/mds.25922</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Pays-Bas</li></country></list><tree><noCountry><name sortKey="Heijnen, Bas" sort="Heijnen, Bas" uniqKey="Heijnen B" first="Bas" last="Heijnen">Bas Heijnen</name><name sortKey="Marinus, Johan" sort="Marinus, Johan" uniqKey="Marinus J" first="Johan" last="Marinus">Johan Marinus</name><name sortKey="Roos, Raymund A C" sort="Roos, Raymund A C" uniqKey="Roos R" first="Raymund A C" last="Roos">Raymund A C. Roos</name><name sortKey="Sjogren, Elisabeth V" sort="Sjogren, Elisabeth V" uniqKey="Sjogren E" first="Elisabeth V" last="Sjögren">Elisabeth V. Sjögren</name><name sortKey="Verbist, Berit M" sort="Verbist, Berit M" uniqKey="Verbist B" first="Berit M" last="Verbist">Berit M. Verbist</name></noCountry><country name="Pays-Bas"><noRegion><name sortKey="Heemskerk, Anne Wil" sort="Heemskerk, Anne Wil" uniqKey="Heemskerk A" first="Anne-Wil" last="Heemskerk">Anne-Wil Heemskerk</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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