Assessment of quality of life with the multiple system atrophy health-related quality of life scale.
Identifieur interne : 003839 ( Ncbi/Merge ); précédent : 003838; suivant : 003840Assessment of quality of life with the multiple system atrophy health-related quality of life scale.
Auteurs : Wassilios G. Meissner [France] ; Alexandra Foubert-Samier ; Sandrine Dupouy ; Angélique Gerdelat-Mas ; Rachel Debs ; Fabienne Marquant ; Valérie Cochen De Cock ; Olivier Rascol ; François Tison ; Anne Pavy-Le TraonSource :
- Movement disorders : official journal of the Movement Disorder Society [ 1531-8257 ] ; 2012.
English descriptors
- KwdEn :
- MESH :
- diagnosis : Multiple System Atrophy.
- psychology : Multiple System Atrophy.
- Aged, Disability Evaluation, Disease Progression, Female, Follow-Up Studies, Humans, Male, Middle Aged, Quality of Life, Questionnaires, Severity of Illness Index.
Abstract
Multiple system atrophy (MSA) has considerable effect on health-related quality of life (Hr-QoL). The aim of this study was to prospectively evaluate Hr-QoL by using the MSA health-related Quality of Life (MSA-QoL) scale.
DOI: 10.1002/mds.25174
PubMed: 23033055
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pubmed:23033055Le document en format XML
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<author><name sortKey="Meissner, Wassilios G" sort="Meissner, Wassilios G" uniqKey="Meissner W" first="Wassilios G" last="Meissner">Wassilios G. Meissner</name>
<affiliation wicri:level="1"><nlm:affiliation>Centre de Référence Atrophie Multisystématisée, CHU de Bordeaux, Pessac, France. wassilios.meissner@chu-bordeaux.fr</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Centre de Référence Atrophie Multisystématisée, CHU de Bordeaux, Pessac</wicri:regionArea>
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<author><name sortKey="Foubert Samier, Alexandra" sort="Foubert Samier, Alexandra" uniqKey="Foubert Samier A" first="Alexandra" last="Foubert-Samier">Alexandra Foubert-Samier</name>
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<author><name sortKey="Dupouy, Sandrine" sort="Dupouy, Sandrine" uniqKey="Dupouy S" first="Sandrine" last="Dupouy">Sandrine Dupouy</name>
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<author><name sortKey="Gerdelat Mas, Angelique" sort="Gerdelat Mas, Angelique" uniqKey="Gerdelat Mas A" first="Angélique" last="Gerdelat-Mas">Angélique Gerdelat-Mas</name>
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<author><name sortKey="Debs, Rachel" sort="Debs, Rachel" uniqKey="Debs R" first="Rachel" last="Debs">Rachel Debs</name>
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<author><name sortKey="Marquant, Fabienne" sort="Marquant, Fabienne" uniqKey="Marquant F" first="Fabienne" last="Marquant">Fabienne Marquant</name>
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<author><name sortKey="De Cock, Valerie Cochen" sort="De Cock, Valerie Cochen" uniqKey="De Cock V" first="Valérie Cochen" last="De Cock">Valérie Cochen De Cock</name>
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<author><name sortKey="Rascol, Olivier" sort="Rascol, Olivier" uniqKey="Rascol O" first="Olivier" last="Rascol">Olivier Rascol</name>
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<author><name sortKey="Pavy Le Traon, Anne" sort="Pavy Le Traon, Anne" uniqKey="Pavy Le Traon A" first="Anne" last="Pavy-Le Traon">Anne Pavy-Le Traon</name>
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<author><name sortKey="Foubert Samier, Alexandra" sort="Foubert Samier, Alexandra" uniqKey="Foubert Samier A" first="Alexandra" last="Foubert-Samier">Alexandra Foubert-Samier</name>
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<author><name sortKey="Dupouy, Sandrine" sort="Dupouy, Sandrine" uniqKey="Dupouy S" first="Sandrine" last="Dupouy">Sandrine Dupouy</name>
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<author><name sortKey="Gerdelat Mas, Angelique" sort="Gerdelat Mas, Angelique" uniqKey="Gerdelat Mas A" first="Angélique" last="Gerdelat-Mas">Angélique Gerdelat-Mas</name>
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<author><name sortKey="Debs, Rachel" sort="Debs, Rachel" uniqKey="Debs R" first="Rachel" last="Debs">Rachel Debs</name>
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<author><name sortKey="Marquant, Fabienne" sort="Marquant, Fabienne" uniqKey="Marquant F" first="Fabienne" last="Marquant">Fabienne Marquant</name>
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<author><name sortKey="De Cock, Valerie Cochen" sort="De Cock, Valerie Cochen" uniqKey="De Cock V" first="Valérie Cochen" last="De Cock">Valérie Cochen De Cock</name>
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<author><name sortKey="Rascol, Olivier" sort="Rascol, Olivier" uniqKey="Rascol O" first="Olivier" last="Rascol">Olivier Rascol</name>
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<author><name sortKey="Tison, Francois" sort="Tison, Francois" uniqKey="Tison F" first="François" last="Tison">François Tison</name>
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<author><name sortKey="Pavy Le Traon, Anne" sort="Pavy Le Traon, Anne" uniqKey="Pavy Le Traon A" first="Anne" last="Pavy-Le Traon">Anne Pavy-Le Traon</name>
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<series><title level="j">Movement disorders : official journal of the Movement Disorder Society</title>
<idno type="eISSN">1531-8257</idno>
<imprint><date when="2012" type="published">2012</date>
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<term>Disability Evaluation</term>
<term>Disease Progression</term>
<term>Female</term>
<term>Follow-Up Studies</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Multiple System Atrophy (diagnosis)</term>
<term>Multiple System Atrophy (psychology)</term>
<term>Quality of Life</term>
<term>Questionnaires</term>
<term>Severity of Illness Index</term>
</keywords>
<keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Multiple System Atrophy</term>
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<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Multiple System Atrophy</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Aged</term>
<term>Disability Evaluation</term>
<term>Disease Progression</term>
<term>Female</term>
<term>Follow-Up Studies</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Quality of Life</term>
<term>Questionnaires</term>
<term>Severity of Illness Index</term>
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<front><div type="abstract" xml:lang="en">Multiple system atrophy (MSA) has considerable effect on health-related quality of life (Hr-QoL). The aim of this study was to prospectively evaluate Hr-QoL by using the MSA health-related Quality of Life (MSA-QoL) scale.</div>
</front>
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<pubmed><MedlineCitation Owner="NLM" Status="MEDLINE"><PMID Version="1">23033055</PMID>
<DateCreated><Year>2012</Year>
<Month>10</Month>
<Day>19</Day>
</DateCreated>
<DateCompleted><Year>2013</Year>
<Month>04</Month>
<Day>18</Day>
</DateCompleted>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1531-8257</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>27</Volume>
<Issue>12</Issue>
<PubDate><Year>2012</Year>
<Month>Oct</Month>
</PubDate>
</JournalIssue>
<Title>Movement disorders : official journal of the Movement Disorder Society</Title>
<ISOAbbreviation>Mov. Disord.</ISOAbbreviation>
</Journal>
<ArticleTitle>Assessment of quality of life with the multiple system atrophy health-related quality of life scale.</ArticleTitle>
<Pagination><MedlinePgn>1574-7</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1002/mds.25174</ELocationID>
<Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Multiple system atrophy (MSA) has considerable effect on health-related quality of life (Hr-QoL). The aim of this study was to prospectively evaluate Hr-QoL by using the MSA health-related Quality of Life (MSA-QoL) scale.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Evaluation of 100 patients at baseline and after a mean follow-up of 11.5 months was performed. Assessment was made of potential associations with established markers of disease progression. Calculation was performed of sample-size estimates for various effect sizes.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">MSA-QoL scale scores were less responsive to change than Unified MSA Rating Scale (UMSARS) scores. Responsiveness was largely improved and reasonable sample-size estimates were obtained when limiting the analysis to items with significant change over time.</AbstractText>
<AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The UMSARS remains the "gold standard" for disease-modifying/neuroprotection trials. An MSA-QoL Change Scale, based on the most responsive items, may become a valuable tool.</AbstractText>
<CopyrightInformation>Copyright © 2012 Movement Disorder Society.</CopyrightInformation>
</Abstract>
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<ForeName>Wassilios G</ForeName>
<Initials>WG</Initials>
<AffiliationInfo><Affiliation>Centre de Référence Atrophie Multisystématisée, CHU de Bordeaux, Pessac, France. wassilios.meissner@chu-bordeaux.fr</Affiliation>
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<Author ValidYN="Y"><LastName>Dupouy</LastName>
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<Author ValidYN="Y"><LastName>Gerdelat-Mas</LastName>
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