A U.S. survey of patients with Parkinson's disease: satisfaction with medical care and support groups.
Identifieur interne : 002E53 ( Ncbi/Merge ); précédent : 002E52; suivant : 002E54A U.S. survey of patients with Parkinson's disease: satisfaction with medical care and support groups.
Auteurs : E Ray Dorsey [États-Unis] ; Tiffini S. Voss ; David R. Shprecher ; Lisa M. Deuel ; Christopher A. Beck ; Irenita F. Gardiner ; Margaret A. Coles ; Richard S. Burns ; Frederick J. Marshall ; Kevin M. BiglanSource :
- Movement disorders : official journal of the Movement Disorder Society [ 1531-8257 ] ; 2010.
Descripteurs français
- Wicri :
- geographic : États-Unis.
English descriptors
- KwdEn :
- Adult, Aged, Female, Health Surveys, Humans, Male, Middle Aged, Parkinson Disease (epidemiology), Parkinson Disease (psychology), Parkinson Disease (therapy), Patient Satisfaction, Quality of Health Care (statistics & numerical data), Questionnaires, Retrospective Studies, Self-Help Groups (statistics & numerical data), Treatment Outcome, United States (epidemiology).
- MESH :
- geographic , epidemiology : United States.
- epidemiology : Parkinson Disease.
- psychology : Parkinson Disease.
- statistics & numerical data : Quality of Health Care, Self-Help Groups.
- therapy : Parkinson Disease.
- Adult, Aged, Female, Health Surveys, Humans, Male, Middle Aged, Patient Satisfaction, Questionnaires, Retrospective Studies, Treatment Outcome.
Abstract
Relatively little is known about patient satisfaction with Parkinson's disease (PD) care and the use of support groups in the United States. We surveyed members of the Muhammad Ali Parkinson's Disease Registry to assess satisfaction with medical care and to evaluate support group use. Satisfaction was measured on a 5-point Likert scale, with high satisfaction defined as a four or five. We used multiple logistic regression to identify factors associated with high satisfaction and support group use. The response rate was 38% (726 of 1923). Most (57%) expressed high satisfaction with PD care. Individuals were most satisfied with the time their provider spent with them (61%) and PD education (56%) but least satisfied with prognostic information (35%) and information about non-drug interventions (28%). Patients seeing a PD specialist were three times more satisfied with their care than those seeing a general neurologist (OR = 3.00, 95% CI: 1.92-4.71; P < 0.0001). Support group use is common, and 61% of survey respondents had attended one at any point. Caucasian race (OR = 2.85, 95% CI: 1.45-5.61), PD duration (OR = 1.05 per year, CI: 1.01-1.10), and PD specialist care (OR = 1.80, CI: 1.16-2.77) were associated with greater support group attendance. Overall, 49% reported high satisfaction with their support group. The greatest concerns were specific needs not being addressed (15%) and insufficient expertise within the group (14%). Most individuals with Parkinson's disease expressed high levels of satisfaction, especially with specialist care. Specialty care and improved education, in the clinic or through support groups, may enhance satisfaction and health care quality.
DOI: 10.1002/mds.23160
PubMed: 20824736
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Voss</name></author><author><name sortKey="Shprecher, David R" sort="Shprecher, David R" uniqKey="Shprecher D" first="David R" last="Shprecher">David R. Shprecher</name></author><author><name sortKey="Deuel, Lisa M" sort="Deuel, Lisa M" uniqKey="Deuel L" first="Lisa M" last="Deuel">Lisa M. Deuel</name></author><author><name sortKey="Beck, Christopher A" sort="Beck, Christopher A" uniqKey="Beck C" first="Christopher A" last="Beck">Christopher A. Beck</name></author><author><name sortKey="Gardiner, Irenita F" sort="Gardiner, Irenita F" uniqKey="Gardiner I" first="Irenita F" last="Gardiner">Irenita F. Gardiner</name></author><author><name sortKey="Coles, Margaret A" sort="Coles, Margaret A" uniqKey="Coles M" first="Margaret A" last="Coles">Margaret A. Coles</name></author><author><name sortKey="Burns, Richard S" sort="Burns, Richard S" uniqKey="Burns R" first="Richard S" last="Burns">Richard S. 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Voss</name></author><author><name sortKey="Shprecher, David R" sort="Shprecher, David R" uniqKey="Shprecher D" first="David R" last="Shprecher">David R. Shprecher</name></author><author><name sortKey="Deuel, Lisa M" sort="Deuel, Lisa M" uniqKey="Deuel L" first="Lisa M" last="Deuel">Lisa M. Deuel</name></author><author><name sortKey="Beck, Christopher A" sort="Beck, Christopher A" uniqKey="Beck C" first="Christopher A" last="Beck">Christopher A. Beck</name></author><author><name sortKey="Gardiner, Irenita F" sort="Gardiner, Irenita F" uniqKey="Gardiner I" first="Irenita F" last="Gardiner">Irenita F. Gardiner</name></author><author><name sortKey="Coles, Margaret A" sort="Coles, Margaret A" uniqKey="Coles M" first="Margaret A" last="Coles">Margaret A. Coles</name></author><author><name sortKey="Burns, Richard S" sort="Burns, Richard S" uniqKey="Burns R" first="Richard S" last="Burns">Richard S. Burns</name></author><author><name sortKey="Marshall, Frederick J" sort="Marshall, Frederick J" uniqKey="Marshall F" first="Frederick J" last="Marshall">Frederick J. Marshall</name></author><author><name sortKey="Biglan, Kevin M" sort="Biglan, Kevin M" uniqKey="Biglan K" first="Kevin M" last="Biglan">Kevin M. Biglan</name></author></analytic><series><title level="j">Movement disorders : official journal of the Movement Disorder Society</title><idno type="eISSN">1531-8257</idno><imprint><date when="2010" type="published">2010</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Female</term><term>Health Surveys</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Parkinson Disease (epidemiology)</term><term>Parkinson Disease (psychology)</term><term>Parkinson Disease (therapy)</term><term>Patient Satisfaction</term><term>Quality of Health Care (statistics & numerical data)</term><term>Questionnaires</term><term>Retrospective Studies</term><term>Self-Help Groups (statistics & numerical data)</term><term>Treatment Outcome</term><term>United States (epidemiology)</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>United States</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>Quality of Health Care</term><term>Self-Help Groups</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Female</term><term>Health Surveys</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Patient Satisfaction</term><term>Questionnaires</term><term>Retrospective Studies</term><term>Treatment Outcome</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>États-Unis</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Relatively little is known about patient satisfaction with Parkinson's disease (PD) care and the use of support groups in the United States. We surveyed members of the Muhammad Ali Parkinson's Disease Registry to assess satisfaction with medical care and to evaluate support group use. Satisfaction was measured on a 5-point Likert scale, with high satisfaction defined as a four or five. We used multiple logistic regression to identify factors associated with high satisfaction and support group use. The response rate was 38% (726 of 1923). Most (57%) expressed high satisfaction with PD care. Individuals were most satisfied with the time their provider spent with them (61%) and PD education (56%) but least satisfied with prognostic information (35%) and information about non-drug interventions (28%). Patients seeing a PD specialist were three times more satisfied with their care than those seeing a general neurologist (OR = 3.00, 95% CI: 1.92-4.71; P < 0.0001). Support group use is common, and 61% of survey respondents had attended one at any point. Caucasian race (OR = 2.85, 95% CI: 1.45-5.61), PD duration (OR = 1.05 per year, CI: 1.01-1.10), and PD specialist care (OR = 1.80, CI: 1.16-2.77) were associated with greater support group attendance. Overall, 49% reported high satisfaction with their support group. The greatest concerns were specific needs not being addressed (15%) and insufficient expertise within the group (14%). Most individuals with Parkinson's disease expressed high levels of satisfaction, especially with specialist care. Specialty care and improved education, in the clinic or through support groups, may enhance satisfaction and health care quality.</div></front></TEI><pubmed><MedlineCitation Owner="NLM" Status="MEDLINE"><PMID Version="1">20824736</PMID><DateCreated><Year>2010</Year><Month>10</Month><Day>08</Day></DateCreated><DateCompleted><Year>2011</Year><Month>01</Month><Day>26</Day></DateCompleted><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1531-8257</ISSN><JournalIssue CitedMedium="Internet"><Volume>25</Volume><Issue>13</Issue><PubDate><Year>2010</Year><Month>Oct</Month><Day>15</Day></PubDate></JournalIssue><Title>Movement disorders : official journal of the Movement Disorder Society</Title><ISOAbbreviation>Mov. Disord.</ISOAbbreviation></Journal><ArticleTitle>A U.S. survey of patients with Parkinson's disease: satisfaction with medical care and support groups.</ArticleTitle><Pagination><MedlinePgn>2128-35</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1002/mds.23160</ELocationID><Abstract><AbstractText>Relatively little is known about patient satisfaction with Parkinson's disease (PD) care and the use of support groups in the United States. We surveyed members of the Muhammad Ali Parkinson's Disease Registry to assess satisfaction with medical care and to evaluate support group use. Satisfaction was measured on a 5-point Likert scale, with high satisfaction defined as a four or five. We used multiple logistic regression to identify factors associated with high satisfaction and support group use. The response rate was 38% (726 of 1923). Most (57%) expressed high satisfaction with PD care. Individuals were most satisfied with the time their provider spent with them (61%) and PD education (56%) but least satisfied with prognostic information (35%) and information about non-drug interventions (28%). Patients seeing a PD specialist were three times more satisfied with their care than those seeing a general neurologist (OR = 3.00, 95% CI: 1.92-4.71; P < 0.0001). Support group use is common, and 61% of survey respondents had attended one at any point. Caucasian race (OR = 2.85, 95% CI: 1.45-5.61), PD duration (OR = 1.05 per year, CI: 1.01-1.10), and PD specialist care (OR = 1.80, CI: 1.16-2.77) were associated with greater support group attendance. Overall, 49% reported high satisfaction with their support group. The greatest concerns were specific needs not being addressed (15%) and insufficient expertise within the group (14%). Most individuals with Parkinson's disease expressed high levels of satisfaction, especially with specialist care. Specialty care and improved education, in the clinic or through support groups, may enhance satisfaction and health care quality.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Dorsey</LastName><ForeName>E Ray</ForeName><Initials>ER</Initials><AffiliationInfo><Affiliation>Department of Neurology, University of Rochester Medical Center, Rochester, New York 14620, USA. ray.dorsey@ctcc.rochester.edu</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Voss</LastName><ForeName>Tiffini S</ForeName><Initials>TS</Initials></Author><Author ValidYN="Y"><LastName>Shprecher</LastName><ForeName>David R</ForeName><Initials>DR</Initials></Author><Author ValidYN="Y"><LastName>Deuel</LastName><ForeName>Lisa M</ForeName><Initials>LM</Initials></Author><Author ValidYN="Y"><LastName>Beck</LastName><ForeName>Christopher A</ForeName><Initials>CA</Initials></Author><Author ValidYN="Y"><LastName>Gardiner</LastName><ForeName>Irenita F</ForeName><Initials>IF</Initials></Author><Author ValidYN="Y"><LastName>Coles</LastName><ForeName>Margaret A</ForeName><Initials>MA</Initials></Author><Author ValidYN="Y"><LastName>Burns</LastName><ForeName>Richard S</ForeName><Initials>RS</Initials></Author><Author ValidYN="Y"><LastName>Marshall</LastName><ForeName>Frederick J</ForeName><Initials>FJ</Initials></Author><Author ValidYN="Y"><LastName>Biglan</LastName><ForeName>Kevin M</ForeName><Initials>KM</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Mov Disord</MedlineTA><NlmUniqueID>8610688</NlmUniqueID><ISSNLinking>0885-3185</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName MajorTopicYN="N" UI="D000328">Adult</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D000368">Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D005260">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D006306">Health Surveys</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D006801">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008297">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D008875">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D010300">Parkinson Disease</DescriptorName><QualifierName MajorTopicYN="N" UI="Q000453">epidemiology</QualifierName><QualifierName MajorTopicYN="Y" UI="Q000523">psychology</QualifierName><QualifierName MajorTopicYN="Y" UI="Q000628">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="Y" UI="D017060">Patient Satisfaction</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D011787">Quality of Health Care</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000706">statistics & numerical data</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D011795">Questionnaires</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D012189">Retrospective Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D012657">Self-Help Groups</DescriptorName><QualifierName MajorTopicYN="Y" UI="Q000706">statistics & numerical data</QualifierName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" UI="D016896">Treatment Outcome</DescriptorName></MeshHeading><MeshHeading><DescriptorName MajorTopicYN="N" Type="Geographic" UI="D014481">United States</DescriptorName><QualifierName MajorTopicYN="N" UI="Q000453">epidemiology</QualifierName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2010</Year><Month>9</Month><Day>9</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2010</Year><Month>9</Month><Day>9</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2011</Year><Month>1</Month><Day>28</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="doi">10.1002/mds.23160</ArticleId><ArticleId IdType="pubmed">20824736</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>États-Unis</li></country></list><tree><noCountry><name sortKey="Beck, Christopher A" sort="Beck, Christopher A" uniqKey="Beck C" first="Christopher A" last="Beck">Christopher A. Beck</name><name sortKey="Biglan, Kevin M" sort="Biglan, Kevin M" uniqKey="Biglan K" first="Kevin M" last="Biglan">Kevin M. Biglan</name><name sortKey="Burns, Richard S" sort="Burns, Richard S" uniqKey="Burns R" first="Richard S" last="Burns">Richard S. Burns</name><name sortKey="Coles, Margaret A" sort="Coles, Margaret A" uniqKey="Coles M" first="Margaret A" last="Coles">Margaret A. Coles</name><name sortKey="Deuel, Lisa M" sort="Deuel, Lisa M" uniqKey="Deuel L" first="Lisa M" last="Deuel">Lisa M. Deuel</name><name sortKey="Gardiner, Irenita F" sort="Gardiner, Irenita F" uniqKey="Gardiner I" first="Irenita F" last="Gardiner">Irenita F. Gardiner</name><name sortKey="Marshall, Frederick J" sort="Marshall, Frederick J" uniqKey="Marshall F" first="Frederick J" last="Marshall">Frederick J. Marshall</name><name sortKey="Shprecher, David R" sort="Shprecher, David R" uniqKey="Shprecher D" first="David R" last="Shprecher">David R. Shprecher</name><name sortKey="Voss, Tiffini S" sort="Voss, Tiffini S" uniqKey="Voss T" first="Tiffini S" last="Voss">Tiffini S. Voss</name></noCountry><country name="États-Unis"><noRegion><name sortKey="Dorsey, E Ray" sort="Dorsey, E Ray" uniqKey="Dorsey E" first="E Ray" last="Dorsey">E Ray Dorsey</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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