MovDisordV3, Main, Exploration, bibRecord, 002D50

Measuring health‐related quality of life in MSA: The MSA‐QoL

Identifieur interne : 002D50 ( Main/Exploration ); précédent : 002D49; suivant : 002D51

Measuring health‐related quality of life in MSA: The MSA‐QoL

Auteurs : Anette Schrag [Royaume-Uni] ; Caroline Selai [Royaume-Uni] ; Chris Mathias [Royaume-Uni] ; Philip Low [États-Unis] ; Jeremy Hobart [Royaume-Uni] ; Niall Brady [Royaume-Uni] ; Niall Patrick Quinn [Royaume-Uni]

Source :

Movement Disorders [ 0885-3185 ] ; 2007-12-15.

RBID : ISTEX:CA7D73FBEAA9D591B85A840BC0BD145CC9A7B991

Descripteurs français

Pascal (Inist)
- Atrophie multisystématisée, Pathologie du système nerveux, Qualité de vie, Validation.

English descriptors

KwdEn :
- Aged, Anxiety (psychology), Data Interpretation, Statistical, Depression (psychology), Female, Humans, Male, Middle Aged, Movement (physiology), Multiple System Atrophy (psychology), Multiple system atrophy, Nervous system diseases, Psychometrics, Quality of Life (psychology), Quality of life, Questionnaires, Reproducibility of Results, Validation, development, multiple system atrophy, quality of life, scale, validation.
MESH :
- physiology : Movement.
- psychology : Anxiety, Depression, Multiple System Atrophy, Quality of Life.
- Aged, Data Interpretation, Statistical, Female, Humans, Male, Middle Aged, Psychometrics, Questionnaires, Reproducibility of Results.

Abstract

The objective of this study was to develop a new patient‐reported outcome measure for patients with multiple system atrophy (MSA) and to test its psychometric properties. There were three stages. First, a pool of potential scale items was generated from in‐depth patient interviews. Second, these items were administered, in the form of a questionnaire, to a sample of people with MSA and traditional psychometric methods used to develop a rating scale satisfying standard criteria for reliability and validity. Third, the psychometric properties of the rating scale were examined in a second sample. In stage one, a pool of 105 items was generated from 20 patient interviews. In stage two, a scale with three subscales (motor, 14 items; nonmotor, 12 items; emotional/social functioning, 14 items), satisfying standard criteria for reliability and validity, was developed from the response data of 317 patients with MSA (response rate 71%). In stage three, the scale was examined in 286 people with MSA. Missing data were low, scores in both subscales were evenly distributed, and floor and ceiling effects were small. Reliability was high (Cronbach's alpha 0.83–0.93; test‐retest ICC 0.88–0.92). Validity was supported by the interscale correlations (r = 0.47–0.59), known group differences, and the magnitude and pattern of correlations with four other rating scales, disease severity, and disease duration. In conclusion, the patient‐rated MSA health‐related Quality of life scale (MSA‐QoL) may be a suitable patient‐reported scale for use in clinical trials and studies in MSA. © 2007 Movement Disorder Society

Url:

https://api.istex.fr/document/CA7D73FBEAA9D591B85A840BC0BD145CC9A7B991/fulltext/pdf

DOI: 10.1002/mds.21649

Affiliations:

Le document en format XML

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<front><div type="abstract" xml:lang="en">The objective of this study was to develop a new patient‐reported outcome measure for patients with multiple system atrophy (MSA) and to test its psychometric properties. There were three stages. First, a pool of potential scale items was generated from in‐depth patient interviews. Second, these items were administered, in the form of a questionnaire, to a sample of people with MSA and traditional psychometric methods used to develop a rating scale satisfying standard criteria for reliability and validity. Third, the psychometric properties of the rating scale were examined in a second sample. In stage one, a pool of 105 items was generated from 20 patient interviews. In stage two, a scale with three subscales (motor, 14 items; nonmotor, 12 items; emotional/social functioning, 14 items), satisfying standard criteria for reliability and validity, was developed from the response data of 317 patients with MSA (response rate 71%). In stage three, the scale was examined in 286 people with MSA. Missing data were low, scores in both subscales were evenly distributed, and floor and ceiling effects were small. Reliability was high (Cronbach's alpha 0.83–0.93; test‐retest ICC 0.88–0.92). Validity was supported by the interscale correlations (r = 0.47–0.59), known group differences, and the magnitude and pattern of correlations with four other rating scales, disease severity, and disease duration. In conclusion, the patient‐rated MSA health‐related Quality of life scale (MSA‐QoL) may be a suitable patient‐reported scale for use in clinical trials and studies in MSA. © 2007 Movement Disorder Society</div>
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Movement Disorders (revue)

Measuring health‐related quality of life in MSA: The MSA‐QoL

Measuring health‐related quality of life in MSA: The MSA‐QoL

Source :

Descripteurs français

English descriptors

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri

	Movement Disorders (revue)
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