MovDisordV3, Main, Exploration, bibRecord, 002A54

Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain

Identifieur interne : 002A54 ( Main/Exploration ); précédent : 002A53; suivant : 002A55

Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain

Auteurs : Julio Lopez-Bastida [Espagne] ; Lilisbeth Perestelo-Perez [Espagne] ; Fernando Monton-Alvarez [Espagne] ; Pedro Serrano-Aguilar [Espagne]

Source :

Movement disorders [ 0885-3185 ] ; 2008.

RBID : Pascal:08-0133663

Descripteurs français

Pascal (Inist)
- Pathologie du système nerveux, Coût social, Qualité de vie, Homme, Ataxie cérébelleuse, Espagne.
Wicri :
- geographic : Espagne.
- topic : Coût social, Homme.

English descriptors

KwdEn :
- Cerebellar ataxia, Human, Nervous system diseases, Quality of life, Social cost, Spain.

Abstract

To determine the economic burden (direct and indirect costs), as well as health-related quality of life (HRQOL) in patients diagnosed with spinocerebellar ataxia (SCA) in Spain. A cross-sectional study was carried out on 84 patients with SCA from the Spanish Ataxia Federation (FEDAES) during 2004. A retrospective assessment of the use of resources was obtained through questionnaires filled out by the patients or the patient's caregivers. The approach used was the cost-of-illness study based on a societal perspective. To assess HRQOL in patients with SCA, they were asked to fill out the EQ-5D generic questionnaire. The mean annual cost per patient with SCA was E18,776. The most important categories of costs were informal care, early retirement (permanent disability), medications, and orthopaedic devises. The mean EQ-5D index score was 0.48 (0.38 for high and 0.58 for low severity patients) and the mean EQ-5D VAS score was 48 (43 for high and 52 for low severity patients). Considerations of the costs related to caregivers due to the patients' disabilities, as well as the high indirect costs resulting from permanent disabilities in patients with SCA, should become a priority for health authorities. Furthermore, the patients' quality of life, as determined by the EQ-5D questionnaire, was very low and substantially influenced by the degree of severity of SCA.

Affiliations:

Espagne

Links toward previous steps (curation, corpus...)

to stream PascalFrancis, to step Corpus: 001389
to stream PascalFrancis, to step Curation: 001930
to stream PascalFrancis, to step Checkpoint: 001094
to stream Main, to step Merge: 003702
to stream Main, to step Curation: 002A54

Le document en format XML

<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en" level="a">Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain</title>
<author><name sortKey="Lopez Bastida, Julio" sort="Lopez Bastida, Julio" uniqKey="Lopez Bastida J" first="Julio" last="Lopez-Bastida">Julio Lopez-Bastida</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Planning and Evaluation Service. Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>4 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Planning and Evaluation Service. Canary Islands Health Service</wicri:noRegion>
</affiliation>
<affiliation wicri:level="1"><inist:fA14 i1="02"><s1>University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Perestelo Perez, Lilisbeth" sort="Perestelo Perez, Lilisbeth" uniqKey="Perestelo Perez L" first="Lilisbeth" last="Perestelo-Perez">Lilisbeth Perestelo-Perez</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Planning and Evaluation Service. Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>4 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Planning and Evaluation Service. Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Monton Alvarez, Fernando" sort="Monton Alvarez, Fernando" uniqKey="Monton Alvarez F" first="Fernando" last="Monton-Alvarez">Fernando Monton-Alvarez</name>
<affiliation wicri:level="1"><inist:fA14 i1="03"><s1>Neurology Service, University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>3 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Neurology Service, University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Serrano Aguilar, Pedro" sort="Serrano Aguilar, Pedro" uniqKey="Serrano Aguilar P" first="Pedro" last="Serrano-Aguilar">Pedro Serrano-Aguilar</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Planning and Evaluation Service. Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>4 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Planning and Evaluation Service. Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">INIST</idno>
<idno type="inist">08-0133663</idno>
<date when="2008">2008</date>
<idno type="stanalyst">PASCAL 08-0133663 INIST</idno>
<idno type="RBID">Pascal:08-0133663</idno>
<idno type="wicri:Area/PascalFrancis/Corpus">001389</idno>
<idno type="wicri:Area/PascalFrancis/Curation">001930</idno>
<idno type="wicri:Area/PascalFrancis/Checkpoint">001094</idno>
<idno type="wicri:doubleKey">0885-3185:2008:Lopez Bastida J:social:economic:costs</idno>
<idno type="wicri:Area/Main/Merge">003702</idno>
<idno type="wicri:Area/Main/Curation">002A54</idno>
<idno type="wicri:Area/Main/Exploration">002A54</idno>
</publicationStmt>
<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a">Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain</title>
<author><name sortKey="Lopez Bastida, Julio" sort="Lopez Bastida, Julio" uniqKey="Lopez Bastida J" first="Julio" last="Lopez-Bastida">Julio Lopez-Bastida</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Planning and Evaluation Service. Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>4 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Planning and Evaluation Service. Canary Islands Health Service</wicri:noRegion>
</affiliation>
<affiliation wicri:level="1"><inist:fA14 i1="02"><s1>University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Perestelo Perez, Lilisbeth" sort="Perestelo Perez, Lilisbeth" uniqKey="Perestelo Perez L" first="Lilisbeth" last="Perestelo-Perez">Lilisbeth Perestelo-Perez</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Planning and Evaluation Service. Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>4 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Planning and Evaluation Service. Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Monton Alvarez, Fernando" sort="Monton Alvarez, Fernando" uniqKey="Monton Alvarez F" first="Fernando" last="Monton-Alvarez">Fernando Monton-Alvarez</name>
<affiliation wicri:level="1"><inist:fA14 i1="03"><s1>Neurology Service, University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>3 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Neurology Service, University Hospital Nuestra Sefiora de la Candelaria, Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Serrano Aguilar, Pedro" sort="Serrano Aguilar, Pedro" uniqKey="Serrano Aguilar P" first="Pedro" last="Serrano-Aguilar">Pedro Serrano-Aguilar</name>
<affiliation wicri:level="1"><inist:fA14 i1="01"><s1>Planning and Evaluation Service. Canary Islands Health Service</s1>
<s3>ESP</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>4 aut.</sZ>
</inist:fA14>
<country>Espagne</country>
<wicri:noRegion>Planning and Evaluation Service. Canary Islands Health Service</wicri:noRegion>
</affiliation>
</author>
</analytic>
<series><title level="j" type="main">Movement disorders</title>
<title level="j" type="abbreviated">Mov. disord.</title>
<idno type="ISSN">0885-3185</idno>
<imprint><date when="2008">2008</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
<seriesStmt><title level="j" type="main">Movement disorders</title>
<title level="j" type="abbreviated">Mov. disord.</title>
<idno type="ISSN">0885-3185</idno>
</seriesStmt>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Cerebellar ataxia</term>
<term>Human</term>
<term>Nervous system diseases</term>
<term>Quality of life</term>
<term>Social cost</term>
<term>Spain</term>
</keywords>
<keywords scheme="Pascal" xml:lang="fr"><term>Pathologie du   système nerveux</term>
<term>Coût social</term>
<term>Qualité de vie</term>
<term>Homme</term>
<term>Ataxie cérébelleuse</term>
<term>Espagne</term>
</keywords>
<keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Espagne</term>
</keywords>
<keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Coût social</term>
<term>Homme</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en">To determine the economic burden (direct and indirect costs), as well as health-related quality of life (HRQOL) in patients diagnosed with spinocerebellar ataxia (SCA) in Spain. A cross-sectional study was carried out on 84 patients with SCA from the Spanish Ataxia Federation (FEDAES) during 2004. A retrospective assessment of the use of resources was obtained through questionnaires filled out by the patients or the patient's caregivers. The approach used was the cost-of-illness study based on a societal perspective. To assess HRQOL in patients with SCA, they were asked to fill out the EQ-5D generic questionnaire. The mean annual cost per patient with SCA was E18,776. The most important categories of costs were informal care, early retirement (permanent disability), medications, and orthopaedic devises. The mean EQ-5D index score was 0.48 (0.38 for high and 0.58 for low severity patients) and the mean EQ-5D VAS score was 48 (43 for high and 52 for low severity patients). Considerations of the costs related to caregivers due to the patients' disabilities, as well as the high indirect costs resulting from permanent disabilities in patients with SCA, should become a priority for health authorities. Furthermore, the patients' quality of life, as determined by the EQ-5D questionnaire, was very low and substantially influenced by the degree of severity of SCA.</div>
</front>
</TEI>
<affiliations><list><country><li>Espagne</li>
</country>
</list>
<tree><country name="Espagne"><noRegion><name sortKey="Lopez Bastida, Julio" sort="Lopez Bastida, Julio" uniqKey="Lopez Bastida J" first="Julio" last="Lopez-Bastida">Julio Lopez-Bastida</name>
</noRegion>
<name sortKey="Lopez Bastida, Julio" sort="Lopez Bastida, Julio" uniqKey="Lopez Bastida J" first="Julio" last="Lopez-Bastida">Julio Lopez-Bastida</name>
<name sortKey="Monton Alvarez, Fernando" sort="Monton Alvarez, Fernando" uniqKey="Monton Alvarez F" first="Fernando" last="Monton-Alvarez">Fernando Monton-Alvarez</name>
<name sortKey="Perestelo Perez, Lilisbeth" sort="Perestelo Perez, Lilisbeth" uniqKey="Perestelo Perez L" first="Lilisbeth" last="Perestelo-Perez">Lilisbeth Perestelo-Perez</name>
<name sortKey="Serrano Aguilar, Pedro" sort="Serrano Aguilar, Pedro" uniqKey="Serrano Aguilar P" first="Pedro" last="Serrano-Aguilar">Pedro Serrano-Aguilar</name>
</country>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Wicri/Santé/explor/MovDisordV3/Data/Main/Exploration

HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 002A54 | SxmlIndent | more

HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 002A54 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Wicri/Santé
   |area=    MovDisordV3
   |flux=    Main
   |étape=   Exploration
   |type=    RBID
   |clé=     Pascal:08-0133663
   |texte=   Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain
}}

This area was generated with Dilib version V0.6.23.
Data generation: Sun Jul 3 12:29:32 2016. Site generation: Wed Feb 14 10:52:30 2024

	Movement Disorders (revue)
	Attention, ce site est en cours de développement ! Attention, site généré par des moyens informatiques à partir de corpus bruts. Les informations ne sont donc pas validées.

Movement Disorders (revue)

Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain

Social Economic Costs and Health-Related Quality of Life in Patients with Degenerative Cerebellar Ataxia in Spain

Source :

Descripteurs français

English descriptors

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri