Patient and caregiver quality of life in Huntington's disease
Identifieur interne : 002064 ( Istex/Corpus ); précédent : 002063; suivant : 002065Patient and caregiver quality of life in Huntington's disease
Auteurs : Rebecca E. Ready ; Melissa Mathews ; Anne Leserman ; Jane S. PaulsenSource :
- Movement Disorders [ 0885-3185 ] ; 2008-04-15.
English descriptors
Abstract
Little is known about subjective perceptions of quality of life (QOL) in Huntington's disease (HD). The current study determined correlates of patient and caregiver QOL and assessed change over time. Participants were 22 patient‐caregiver dyads, who rated QOL at baseline and 6 months later. Overall, patients' functional and cognitive impairment were significantly correlated with patient and caregiver QOL. Neuropsychiatric symptoms had differential impact on patient and caregiver QOL. Furthermore, when patients recalled their QOL about a previous time, their recall may have been negatively biased. Clinical implications of results are discussed. Future work is needed because subjective QOL is an important outcome measure in therapeutic trials. © 2008 Movement Disorder Society
Url:
DOI: 10.1002/mds.21920
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ISTEX:6E37707EAD71DABBB39B3D98A97DDBFA87CBCF45Le document en format XML
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Ready</name><affiliation><mods:affiliation>Department of Psychology, University of Massachusetts, Amherst, Massachusetts</mods:affiliation></affiliation></author><author><name sortKey="Mathews, Melissa" sort="Mathews, Melissa" uniqKey="Mathews M" first="Melissa" last="Mathews">Melissa Mathews</name><affiliation><mods:affiliation>Department of Psychology, University of Massachusetts, Amherst, Massachusetts</mods:affiliation></affiliation></author><author><name sortKey="Leserman, Anne" sort="Leserman, Anne" uniqKey="Leserman A" first="Anne" last="Leserman">Anne Leserman</name><affiliation><mods:affiliation>Department of Psychiatry, University of Iowa Hospital and Clinics, Iowa City, Iowa</mods:affiliation></affiliation></author><author><name sortKey="Paulsen, Jane S" sort="Paulsen, Jane S" uniqKey="Paulsen J" first="Jane S." last="Paulsen">Jane S. 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Ready PhD</name><affiliations><json:string>Department of Psychology, University of Massachusetts, Amherst, Massachusetts</json:string></affiliations></json:item><json:item><name>Melissa Mathews MA</name><affiliations><json:string>Department of Psychology, University of Massachusetts, Amherst, Massachusetts</json:string></affiliations></json:item><json:item><name>Anne Leserman MSW, LISW</name><affiliations><json:string>Department of Psychiatry, University of Iowa Hospital and Clinics, Iowa City, Iowa</json:string></affiliations></json:item><json:item><name>Jane S. 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