Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity
Identifieur interne : 001C87 ( Istex/Corpus ); précédent : 001C86; suivant : 001C88Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity
Auteurs : Allison Fleming ; Karon F. Cook ; Naomi D. Nelson ; Eugene C. LaiSource :
- Movement Disorders [ 0885-3185 ] ; 2005-11.
English descriptors
Abstract
We evaluated patient–proxy agreement in a population of veterans with Parkinson's disease and compared levels of agreement by patient subgroups. Patient and caregiver pairs completed questionnaires composed of standard measures and additional demographic and activity questions. Participants completed the Center for Epidemiologic Studies Depression Scale (CES‐D), the PD Questionnaire 39 (PDQ‐39), and three questions regarding physical activity. Caregivers completed proxy forms of the PDQ‐39 and the physical activity questionnaire. The proxy forms asked caregivers to choose the answers that best described their “friend's/patient's situation.” The results of our comparison of patient and proxy reports of quality of life were consistent with findings in other diseases. On average, proxies rated patient disability higher and quality of life lower than did patients. However, our comparison of patient and proxy reports of frequency of exercise diverged from previously published work. Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society
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DOI: 10.1002/mds.20592
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ISTEX:80E802534A3F78F45FC8D756C188F047B12C8C28Le document en format XML
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Patient and caregiver pairs completed questionnaires composed of standard measures and additional demographic and activity questions. Participants completed the Center for Epidemiologic Studies Depression Scale (CES‐D), the PD Questionnaire 39 (PDQ‐39), and three questions regarding physical activity. Caregivers completed proxy forms of the PDQ‐39 and the physical activity questionnaire. The proxy forms asked caregivers to choose the answers that best described their “friend's/patient's situation.” The results of our comparison of patient and proxy reports of quality of life were consistent with findings in other diseases. On average, proxies rated patient disability higher and quality of life lower than did patients. However, our comparison of patient and proxy reports of frequency of exercise diverged from previously published work. Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society</div></front></TEI><istex><corpusName>wiley</corpusName><author><json:item><name>Allison Fleming BS</name><affiliations><json:string>Michael E. DeBakey Veterans Affairs Medical Center, Parkinson's Disease Research, Education Clinical Center, Houston, Texas, USA</json:string></affiliations></json:item><json:item><name>Karon F. Cook PhD</name><affiliations><json:string>Michael E. 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Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society</p></abstract><textClass xml:lang="en"><keywords scheme="keyword"><list><head>Keywords</head><item><term>Parkinson's disease</term></item><item><term>health‐related quality of life</term></item><item><term>proxy evaluation</term></item><item><term>PDQ‐39</term></item></list></keywords></textClass><textClass><keywords scheme="Journal Subject"><list><head>Article category</head><item><term>Research Article</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="2004-09-15">Received</change><change when="2005-02-14">Registration</change><change when="2005-11">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><original>false</original><mimetype>text/plain</mimetype><extension>txt</extension><uri>https://api.istex.fr/document/80E802534A3F78F45FC8D756C188F047B12C8C28/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="Wiley, elements deleted: body"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="yes"</istex:xmlDeclaration><istex:document><component version="2.0" type="serialArticle" xml:lang="en"><header><publicationMeta level="product"><publisherInfo><publisherName>Wiley Subscription Services, Inc., A Wiley Company</publisherName><publisherLoc>Hoboken</publisherLoc></publisherInfo><doi registered="yes">10.1002/(ISSN)1531-8257</doi><issn type="print">0885-3185</issn><issn type="electronic">1531-8257</issn><idGroup><id type="product" value="MDS"></id></idGroup><titleGroup><title type="main" xml:lang="en" sort="MOVEMENT DISORDERS">Movement Disorders</title><title type="subtitle">Official Journal of the Movement Disorder Society</title><title type="short">Mov. 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Patient and caregiver pairs completed questionnaires composed of standard measures and additional demographic and activity questions. Participants completed the Center for Epidemiologic Studies Depression Scale (CES‐D), the PD Questionnaire 39 (PDQ‐39), and three questions regarding physical activity. Caregivers completed proxy forms of the PDQ‐39 and the physical activity questionnaire. The proxy forms asked caregivers to choose the answers that best described their “friend's/patient's situation.” The results of our comparison of patient and proxy reports of quality of life were consistent with findings in other diseases. On average, proxies rated patient disability higher and quality of life lower than did patients. However, our comparison of patient and proxy reports of frequency of exercise diverged from previously published work. Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society</p></abstract></abstractGroup></contentMeta></header></component></istex:document></istex:metadataXml><!--Version 0.6 générée le 3-12-2015--><mods version="3.6"><titleInfo lang="en"><title>Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity</title></titleInfo><titleInfo type="abbreviated" lang="en"><title>Proxy Reports in Parkinson's Disease</title></titleInfo><titleInfo type="alternative" contentType="CDATA" lang="en"><title>Proxy reports in Parkinson's disease: Caregiver and patient self‐reports of quality of life and physical activity</title></titleInfo><name type="personal"><namePart type="given">Allison</namePart><namePart type="family">Fleming</namePart><namePart type="termsOfAddress">BS</namePart><affiliation>Michael E. 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DeBakey Veterans Affairs Medical Center, Parkinson's Disease Research, Education Clinical Center, Houston, Texas, USA</affiliation><affiliation>University of Washington, Department of Rehabilitation Medicine, Seattle, Washington, USA</affiliation><affiliation>Baylor College of Medicine, Department of Neurology, Houston, Texas, USA</affiliation><affiliation>Veteran's Affairs Measurement Excellence and Training Resource Information Center (METRIC), Houston, Texas, USA</affiliation><description>Correspondence: Houston VAMC 127‐PD, 801 Cortland St., Houston, TX 77007</description><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Naomi D.</namePart><namePart type="family">Nelson</namePart><namePart type="termsOfAddress">PhD</namePart><affiliation>Michael E. DeBakey Veterans Affairs Medical Center, Parkinson's Disease Research, Education Clinical Center, Houston, Texas, USA</affiliation><affiliation>Baylor College of Medicine, Department of Neurology, Houston, Texas, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Eugene C.</namePart><namePart type="family">Lai</namePart><namePart type="termsOfAddress">MD</namePart><affiliation>Michael E. DeBakey Veterans Affairs Medical Center, Parkinson's Disease Research, Education Clinical Center, Houston, Texas, USA</affiliation><affiliation>Baylor College of Medicine, Department of Neurology, Houston, Texas, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre authority="originalCategForm">article</genre><originInfo><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><place><placeTerm type="text">Hoboken</placeTerm></place><dateIssued encoding="w3cdtf">2005-11</dateIssued><dateCaptured encoding="w3cdtf">2004-09-15</dateCaptured><dateValid encoding="w3cdtf">2005-02-14</dateValid><copyrightDate encoding="w3cdtf">2005</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType><extent unit="figures">4</extent><extent unit="tables">5</extent><extent unit="references">20</extent><extent unit="words">3859</extent></physicalDescription><abstract lang="en">We evaluated patient–proxy agreement in a population of veterans with Parkinson's disease and compared levels of agreement by patient subgroups. Patient and caregiver pairs completed questionnaires composed of standard measures and additional demographic and activity questions. Participants completed the Center for Epidemiologic Studies Depression Scale (CES‐D), the PD Questionnaire 39 (PDQ‐39), and three questions regarding physical activity. Caregivers completed proxy forms of the PDQ‐39 and the physical activity questionnaire. The proxy forms asked caregivers to choose the answers that best described their “friend's/patient's situation.” The results of our comparison of patient and proxy reports of quality of life were consistent with findings in other diseases. On average, proxies rated patient disability higher and quality of life lower than did patients. However, our comparison of patient and proxy reports of frequency of exercise diverged from previously published work. Less agreement was observed between patient and proxy reports of physical activity, even though this is a more objective variable than are the domains measured by the PDQ‐39. Proxy reports may diverge appreciably from patient self‐reports. These differences should be considered in research design and clinical decision making. Alternative approaches to the measurement of patient relevant outcomes could supplement traditional, retrospective self‐reports. © 2005 Movement Disorder Society</abstract><note type="funding">Veterans Affairs funding that established six Parkinson's Disease Research, Education, and Clinical Centers (PADRECC) of Excellence nationwide, including the Houston PADRECC</note><subject lang="en"><genre>Keywords</genre><topic>Parkinson's disease</topic><topic>health‐related quality of life</topic><topic>proxy evaluation</topic><topic>PDQ‐39</topic></subject><relatedItem type="host"><titleInfo><title>Movement Disorders</title><subTitle>Official Journal of the Movement Disorder Society</subTitle></titleInfo><titleInfo type="abbreviated"><title>Mov. Disord.</title></titleInfo><subject><genre>article category</genre><topic>Research Article</topic></subject><identifier type="ISSN">0885-3185</identifier><identifier type="eISSN">1531-8257</identifier><identifier type="DOI">10.1002/(ISSN)1531-8257</identifier><identifier type="PublisherID">MDS</identifier><part><date>2005</date><detail type="volume"><caption>vol.</caption><number>20</number></detail><detail type="issue"><caption>no.</caption><number>11</number></detail><extent unit="pages"><start>1462</start><end>1468</end><total>7</total></extent></part></relatedItem><identifier type="istex">80E802534A3F78F45FC8D756C188F047B12C8C28</identifier><identifier type="DOI">10.1002/mds.20592</identifier><identifier type="ArticleID">MDS20592</identifier><accessCondition type="use and reproduction" contentType="copyright">Copyright © 2005 Movement Disorder Society</accessCondition><recordInfo><recordOrigin>Wiley Subscription Services, Inc., A Wiley Company</recordOrigin><recordContentSource>WILEY</recordContentSource></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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