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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">The Global COVID‐19 Observatory and Resource Center for Childhood Cancer: A response for the pediatric oncology community by SIOP and St. Jude Global</title><author><name sortKey="Moreira, Daniel C" sort="Moreira, Daniel C" uniqKey="Moreira D" first="Daniel C." last="Moreira">Daniel C. Moreira</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Sniderman, Elizabeth" sort="Sniderman, Elizabeth" uniqKey="Sniderman E" first="Elizabeth" last="Sniderman">Elizabeth Sniderman</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Mukkada, Sheena" sort="Mukkada, Sheena" uniqKey="Mukkada S" first="Sheena" last="Mukkada">Sheena Mukkada</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Chantada, Guillermo" sort="Chantada, Guillermo" uniqKey="Chantada G" first="Guillermo" last="Chantada">Guillermo Chantada</name><affiliation><nlm:aff id="pbc28962-aff-0002"></nlm:aff></affiliation><affiliation><nlm:aff id="pbc28962-aff-0003"></nlm:aff></affiliation></author><author><name sortKey="Bhakta, Nickhill" sort="Bhakta, Nickhill" uniqKey="Bhakta N" first="Nickhill" last="Bhakta">Nickhill Bhakta</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Foster, Whitney" sort="Foster, Whitney" uniqKey="Foster W" first="Whitney" last="Foster">Whitney Foster</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Avula, Meghana" sort="Avula, Meghana" uniqKey="Avula M" first="Meghana" last="Avula">Meghana Avula</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Homsi, Maysam R" sort="Homsi, Maysam R" uniqKey="Homsi M" first="Maysam R." last="Homsi">Maysam R. Homsi</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Faughnan, Lane" sort="Faughnan, Lane" uniqKey="Faughnan L" first="Lane" last="Faughnan">Lane Faughnan</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Happ, Brooke" sort="Happ, Brooke" uniqKey="Happ B" first="Brooke" last="Happ">Brooke Happ</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Andujar, Allyson" sort="Andujar, Allyson" uniqKey="Andujar A" first="Allyson" last="Andujar">Allyson Andujar</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Sonnenfelt, Jason" sort="Sonnenfelt, Jason" uniqKey="Sonnenfelt J" first="Jason" last="Sonnenfelt">Jason Sonnenfelt</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Dalvi, Rashmi" sort="Dalvi, Rashmi" uniqKey="Dalvi R" first="Rashmi" last="Dalvi">Rashmi Dalvi</name><affiliation><nlm:aff id="pbc28962-aff-0004"></nlm:aff></affiliation></author><author><name sortKey="Frazier, A Lindsay" sort="Frazier, A Lindsay" uniqKey="Frazier A" first="A. Lindsay" last="Frazier">A. Lindsay Frazier</name><affiliation><nlm:aff id="pbc28962-aff-0005"></nlm:aff></affiliation></author><author><name sortKey="Hessissen, Laila" sort="Hessissen, Laila" uniqKey="Hessissen L" first="Laila" last="Hessissen">Laila Hessissen</name><affiliation><nlm:aff id="pbc28962-aff-0006"></nlm:aff></affiliation></author><author><name sortKey="Kearns, Pamela R" sort="Kearns, Pamela R" uniqKey="Kearns P" first="Pamela R." last="Kearns">Pamela R. Kearns</name><affiliation><nlm:aff id="pbc28962-aff-0007"></nlm:aff></affiliation></author><author><name sortKey="Luna Ineman, Sandra" sort="Luna Ineman, Sandra" uniqKey="Luna Ineman S" first="Sandra" last="Luna-Fineman">Sandra Luna-Fineman</name><affiliation><nlm:aff id="pbc28962-aff-0008"></nlm:aff></affiliation></author><author><name sortKey="Moreno, Arturo" sort="Moreno, Arturo" uniqKey="Moreno A" first="Arturo" last="Moreno">Arturo Moreno</name><affiliation><nlm:aff id="pbc28962-aff-0009"></nlm:aff></affiliation></author><author><name sortKey="Saghir Khan, Muhammad" sort="Saghir Khan, Muhammad" uniqKey="Saghir Khan M" first="Muhammad" last="Saghir Khan">Muhammad Saghir Khan</name><affiliation><nlm:aff id="pbc28962-aff-0010"></nlm:aff></affiliation></author><author><name sortKey="Sullivan, Michael" sort="Sullivan, Michael" uniqKey="Sullivan M" first="Michael" last="Sullivan">Michael Sullivan</name><affiliation><nlm:aff id="pbc28962-aff-0011"></nlm:aff></affiliation></author><author><name sortKey="Devidas, Meenakshi" sort="Devidas, Meenakshi" uniqKey="Devidas M" first="Meenakshi" last="Devidas">Meenakshi Devidas</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Santana, Victor" sort="Santana, Victor" uniqKey="Santana V" first="Victor" last="Santana">Victor Santana</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Caniza, Miguela" sort="Caniza, Miguela" uniqKey="Caniza M" first="Miguela" last="Caniza">Miguela Caniza</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Pritchard Ones, Kathy" sort="Pritchard Ones, Kathy" uniqKey="Pritchard Ones K" first="Kathy" last="Pritchard-Jones">Kathy Pritchard-Jones</name><affiliation><nlm:aff id="pbc28962-aff-0012"></nlm:aff></affiliation></author><author><name sortKey="Rodriguez Alindo, Carlos" sort="Rodriguez Alindo, Carlos" uniqKey="Rodriguez Alindo C" first="Carlos" last="Rodriguez-Galindo">Carlos Rodriguez-Galindo</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">33629507</idno><idno type="pmc">7994967</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7994967</idno><idno type="RBID">PMC:7994967</idno><idno type="doi">10.1002/pbc.28962</idno><date when="2021">2021</date><idno type="wicri:Area/Pmc/Corpus">000106</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000106</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">The Global COVID‐19 Observatory and Resource Center for Childhood Cancer: A response for the pediatric oncology community by SIOP and St. Jude Global</title><author><name sortKey="Moreira, Daniel C" sort="Moreira, Daniel C" uniqKey="Moreira D" first="Daniel C." last="Moreira">Daniel C. Moreira</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Sniderman, Elizabeth" sort="Sniderman, Elizabeth" uniqKey="Sniderman E" first="Elizabeth" last="Sniderman">Elizabeth Sniderman</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Mukkada, Sheena" sort="Mukkada, Sheena" uniqKey="Mukkada S" first="Sheena" last="Mukkada">Sheena Mukkada</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Chantada, Guillermo" sort="Chantada, Guillermo" uniqKey="Chantada G" first="Guillermo" last="Chantada">Guillermo Chantada</name><affiliation><nlm:aff id="pbc28962-aff-0002"></nlm:aff></affiliation><affiliation><nlm:aff id="pbc28962-aff-0003"></nlm:aff></affiliation></author><author><name sortKey="Bhakta, Nickhill" sort="Bhakta, Nickhill" uniqKey="Bhakta N" first="Nickhill" last="Bhakta">Nickhill Bhakta</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Foster, Whitney" sort="Foster, Whitney" uniqKey="Foster W" first="Whitney" last="Foster">Whitney Foster</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Avula, Meghana" sort="Avula, Meghana" uniqKey="Avula M" first="Meghana" last="Avula">Meghana Avula</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Homsi, Maysam R" sort="Homsi, Maysam R" uniqKey="Homsi M" first="Maysam R." last="Homsi">Maysam R. Homsi</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Faughnan, Lane" sort="Faughnan, Lane" uniqKey="Faughnan L" first="Lane" last="Faughnan">Lane Faughnan</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Happ, Brooke" sort="Happ, Brooke" uniqKey="Happ B" first="Brooke" last="Happ">Brooke Happ</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Andujar, Allyson" sort="Andujar, Allyson" uniqKey="Andujar A" first="Allyson" last="Andujar">Allyson Andujar</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Sonnenfelt, Jason" sort="Sonnenfelt, Jason" uniqKey="Sonnenfelt J" first="Jason" last="Sonnenfelt">Jason Sonnenfelt</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Dalvi, Rashmi" sort="Dalvi, Rashmi" uniqKey="Dalvi R" first="Rashmi" last="Dalvi">Rashmi Dalvi</name><affiliation><nlm:aff id="pbc28962-aff-0004"></nlm:aff></affiliation></author><author><name sortKey="Frazier, A Lindsay" sort="Frazier, A Lindsay" uniqKey="Frazier A" first="A. Lindsay" last="Frazier">A. Lindsay Frazier</name><affiliation><nlm:aff id="pbc28962-aff-0005"></nlm:aff></affiliation></author><author><name sortKey="Hessissen, Laila" sort="Hessissen, Laila" uniqKey="Hessissen L" first="Laila" last="Hessissen">Laila Hessissen</name><affiliation><nlm:aff id="pbc28962-aff-0006"></nlm:aff></affiliation></author><author><name sortKey="Kearns, Pamela R" sort="Kearns, Pamela R" uniqKey="Kearns P" first="Pamela R." last="Kearns">Pamela R. Kearns</name><affiliation><nlm:aff id="pbc28962-aff-0007"></nlm:aff></affiliation></author><author><name sortKey="Luna Ineman, Sandra" sort="Luna Ineman, Sandra" uniqKey="Luna Ineman S" first="Sandra" last="Luna-Fineman">Sandra Luna-Fineman</name><affiliation><nlm:aff id="pbc28962-aff-0008"></nlm:aff></affiliation></author><author><name sortKey="Moreno, Arturo" sort="Moreno, Arturo" uniqKey="Moreno A" first="Arturo" last="Moreno">Arturo Moreno</name><affiliation><nlm:aff id="pbc28962-aff-0009"></nlm:aff></affiliation></author><author><name sortKey="Saghir Khan, Muhammad" sort="Saghir Khan, Muhammad" uniqKey="Saghir Khan M" first="Muhammad" last="Saghir Khan">Muhammad Saghir Khan</name><affiliation><nlm:aff id="pbc28962-aff-0010"></nlm:aff></affiliation></author><author><name sortKey="Sullivan, Michael" sort="Sullivan, Michael" uniqKey="Sullivan M" first="Michael" last="Sullivan">Michael Sullivan</name><affiliation><nlm:aff id="pbc28962-aff-0011"></nlm:aff></affiliation></author><author><name sortKey="Devidas, Meenakshi" sort="Devidas, Meenakshi" uniqKey="Devidas M" first="Meenakshi" last="Devidas">Meenakshi Devidas</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Santana, Victor" sort="Santana, Victor" uniqKey="Santana V" first="Victor" last="Santana">Victor Santana</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Caniza, Miguela" sort="Caniza, Miguela" uniqKey="Caniza M" first="Miguela" last="Caniza">Miguela Caniza</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author><author><name sortKey="Pritchard Ones, Kathy" sort="Pritchard Ones, Kathy" uniqKey="Pritchard Ones K" first="Kathy" last="Pritchard-Jones">Kathy Pritchard-Jones</name><affiliation><nlm:aff id="pbc28962-aff-0012"></nlm:aff></affiliation></author><author><name sortKey="Rodriguez Alindo, Carlos" sort="Rodriguez Alindo, Carlos" uniqKey="Rodriguez Alindo C" first="Carlos" last="Rodriguez-Galindo">Carlos Rodriguez-Galindo</name><affiliation><nlm:aff id="pbc28962-aff-0001"></nlm:aff></affiliation></author></analytic><series><title level="j">Pediatric Blood & Cancer</title><idno type="ISSN">1545-5009</idno><idno type="eISSN">1545-5017</idno><imprint><date when="2021">2021</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><title>Abstract</title><p>The COVID‐19 pandemic quickly led to an abundance of publications and recommendations, despite a paucity of information on how COVID‐19 affects children with cancer. This created a dire need for a trusted resource with curated information and a space for the pediatric oncology community to share experiences. The Global COVID‐19 Observatory and Resource Center for Childhood Cancer was developed, launched, and maintained by the International Society of Pediatric Oncology and St. Jude Children's Research Hospital. The three components (Resource Library, Global Registry, and Collaboration Space) complement each other, establishing a mechanism to generate and transfer knowledge rapidly throughout the community.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct></listBibl></div1></back></TEI><pmc article-type="brief-report"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Pediatr Blood Cancer</journal-id><journal-id journal-id-type="iso-abbrev">Pediatr Blood Cancer</journal-id><journal-id journal-id-type="doi">10.1002/(ISSN)1545-5017</journal-id><journal-id journal-id-type="publisher-id">PBC</journal-id><journal-title-group><journal-title>Pediatric Blood & Cancer</journal-title></journal-title-group><issn pub-type="ppub">1545-5009</issn><issn pub-type="epub">1545-5017</issn><publisher><publisher-name>John Wiley and Sons Inc.</publisher-name><publisher-loc>Hoboken</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">33629507</article-id><article-id pub-id-type="pmc">7994967</article-id><article-id pub-id-type="doi">10.1002/pbc.28962</article-id><article-id pub-id-type="publisher-id">PBC28962</article-id><article-categories><subj-group subj-group-type="overline"><subject>Global Oncology: Brief Report</subject></subj-group><subj-group subj-group-type="heading"><subject>Global Oncology: Brief Reports</subject></subj-group></article-categories><title-group><article-title>The Global COVID‐19 Observatory and Resource Center for Childhood Cancer: A response for the pediatric oncology community by SIOP and St. Jude Global</article-title><alt-title alt-title-type="left-running-head">MOREIRA et al.</alt-title></title-group><contrib-group><contrib id="pbc28962-cr-0001" contrib-type="author" corresp="yes"><name><surname>Moreira</surname><given-names>Daniel C.</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0003-4082-156X</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref><address><email>daniel.moreira@stjude.org</email></address></contrib><contrib id="pbc28962-cr-0002" contrib-type="author"><name><surname>Sniderman</surname><given-names>Elizabeth</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0003" contrib-type="author"><name><surname>Mukkada</surname><given-names>Sheena</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0001-5435-3707</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0004" contrib-type="author"><name><surname>Chantada</surname><given-names>Guillermo</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0002-9375-9336</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0002"><sup>2</sup></xref><xref ref-type="aff" rid="pbc28962-aff-0003"><sup>3</sup></xref></contrib><contrib id="pbc28962-cr-0005" contrib-type="author"><name><surname>Bhakta</surname><given-names>Nickhill</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0006" contrib-type="author"><name><surname>Foster</surname><given-names>Whitney</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0007" contrib-type="author"><name><surname>Avula</surname><given-names>Meghana</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0008" contrib-type="author"><name><surname>Homsi</surname><given-names>Maysam R.</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0002-0665-246X</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0009" contrib-type="author"><name><surname>Faughnan</surname><given-names>Lane</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0010" contrib-type="author"><name><surname>Happ</surname><given-names>Brooke</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0011" contrib-type="author"><name><surname>Andujar</surname><given-names>Allyson</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0012" contrib-type="author"><name><surname>Sonnenfelt</surname><given-names>Jason</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0013" contrib-type="author"><name><surname>Dalvi</surname><given-names>Rashmi</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0004"><sup>4</sup></xref></contrib><contrib id="pbc28962-cr-0014" contrib-type="author"><name><surname>Frazier</surname><given-names>A. Lindsay</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0003-4748-8552</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0005"><sup>5</sup></xref></contrib><contrib id="pbc28962-cr-0015" contrib-type="author"><name><surname>Hessissen</surname><given-names>Laila</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0002-3322-273X</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0006"><sup>6</sup></xref></contrib><contrib id="pbc28962-cr-0016" contrib-type="author"><name><surname>Kearns</surname><given-names>Pamela R.</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0007"><sup>7</sup></xref></contrib><contrib id="pbc28962-cr-0017" contrib-type="author"><name><surname>Luna‐Fineman</surname><given-names>Sandra</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0003-0713-7651</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0008"><sup>8</sup></xref></contrib><contrib id="pbc28962-cr-0018" contrib-type="author"><name><surname>Moreno</surname><given-names>Arturo</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0009"><sup>9</sup></xref><xref ref-type="author-notes" rid="pbc28962-note-0001"><sup>*</sup></xref></contrib><contrib id="pbc28962-cr-0019" contrib-type="author"><name><surname>Saghir Khan</surname><given-names>Muhammad</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0003-4213-275X</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0010"><sup>10</sup></xref></contrib><contrib id="pbc28962-cr-0020" contrib-type="author"><name><surname>Sullivan</surname><given-names>Michael</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0002-8606-5889</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0011"><sup>11</sup></xref></contrib><contrib id="pbc28962-cr-0021" contrib-type="author"><name><surname>Devidas</surname><given-names>Meenakshi</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0022" contrib-type="author"><name><surname>Santana</surname><given-names>Victor</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0023" contrib-type="author"><name><surname>Caniza</surname><given-names>Miguela</given-names></name><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib><contrib id="pbc28962-cr-0024" contrib-type="author"><name><surname>Pritchard‐Jones</surname><given-names>Kathy</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0002-2384-9475</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0012"><sup>12</sup></xref></contrib><contrib id="pbc28962-cr-0025" contrib-type="author"><name><surname>Rodriguez‐Galindo</surname><given-names>Carlos</given-names></name><contrib-id contrib-id-type="orcid" authenticated="false">https://orcid.org/0000-0002-2360-8946</contrib-id><xref ref-type="aff" rid="pbc28962-aff-0001"><sup>1</sup></xref></contrib></contrib-group><aff id="pbc28962-aff-0001"><label><sup>1</sup></label><named-content content-type="organisation-division">Department of Global Pediatric Medicine</named-content><institution>St. Jude Children's Research Hospital</institution><city>Memphis</city><named-content content-type="country-part">Tennessee</named-content><country country="US">USA</country></aff><aff id="pbc28962-aff-0002"><label><sup>2</sup></label><institution>Fundacion Perez Scremini‐Hospital Pereira Rossell</institution><city>Montevideo</city><country country="UY">Uruguay</country></aff><aff id="pbc28962-aff-0003"><label><sup>3</sup></label><institution>Hospital Sant Joan de Déu</institution><city>Barcelona</city><country country="ES">Spain</country></aff><aff id="pbc28962-aff-0004"><label><sup>4</sup></label><institution>Bombay Hospital Institute of Medical Sciences and SRCC Children's Hospital</institution><city>Mumbai</city><country country="IN">India</country></aff><aff id="pbc28962-aff-0005"><label><sup>5</sup></label><institution>Dana‐Farber/Boston Children's Hospital Cancer and Blood Disorders Center</institution><city>Boston</city><named-content content-type="country-part">Massachusetts</named-content><country country="US">USA</country></aff><aff id="pbc28962-aff-0006"><label><sup>6</sup></label><institution>Mohammed V University</institution><city>Rabat</city><country country="MA">Morocco</country></aff><aff id="pbc28962-aff-0007"><label><sup>7</sup></label><named-content content-type="organisation-division">NIHR Birmingham Biomedical Research Centre</named-content><institution>Institute of Cancer and Genomic Sciences and Birmingham Children's Hospital</institution><city>Birmingham</city><country country="GB">UK</country></aff><aff id="pbc28962-aff-0008"><label><sup>8</sup></label><named-content content-type="organisation-division">Children's Hospital Colorado</named-content><institution>University of Colorado</institution><city>Aurora</city><named-content content-type="country-part">Colorado</named-content><country country="US">USA</country></aff><aff id="pbc28962-aff-0009"><label><sup>9</sup></label><institution>Hospital Universitario de Puebla</institution><city>Puebla</city><country country="MX">Mexico</country></aff><aff id="pbc28962-aff-0010"><label><sup>10</sup></label><named-content content-type="organisation-division">Tawam Hospital</named-content><institution>Al Ain Abu Dhabi</institution><city>Abu Dhabi</city><country country="AE">United Arab Emirates</country></aff><aff id="pbc28962-aff-0011"><label><sup>11</sup></label><institution>University of Melbourne and Royal Children's Hospital</institution><city>Melbourne</city><country country="AU">Australia</country></aff><aff id="pbc28962-aff-0012"><label><sup>12</sup></label><institution>University College London Great Ormond Street Institute of Child Health</institution><city>London</city><country country="GB">UK</country></aff><author-notes><corresp id="correspondenceTo"><label>*</label><bold>Correspondence</bold><break></break>Daniel C. Moreira, Department of Global Pediatric Medicine, St. Jude Children's Research Hospital, Memphis, TN, USA.<break></break>Email: <email>daniel.moreira@stjude.org</email><break></break></corresp><fn id="pbc28962-note-0001"><label>*</label><p>Deceased.</p></fn></author-notes><pub-date pub-type="epub"><day>24</day><month>2</month><year>2021</year></pub-date><pub-date pub-type="ppub"><month>5</month><year>2021</year></pub-date><volume>68</volume><issue>5</issue><issue-id pub-id-type="doi">10.1002/pbc.v68.5</issue-id><elocation-id>e28962</elocation-id><history><date date-type="rev-recd"><day>01</day><month>2</month><year>2021</year></date><date date-type="received"><day>22</day><month>12</month><year>2020</year></date><date date-type="accepted"><day>02</day><month>2</month><year>2021</year></date></history><permissions><pmc-comment>© 2021 Wiley Periodicals LLC</pmc-comment>
<copyright-statement content-type="article-copyright">© 2021 Wiley Periodicals LLC</copyright-statement><license><license-p>This article is being made freely available through PubMed Central as part of the COVID-19 public health emergency response. It can be used for unrestricted research re-use and analysis in any form or by any means with acknowledgement of the original source, for the duration of the public health emergency.</license-p></license></permissions><self-uri content-type="pdf" xlink:href="file:PBC-68-e28962.pdf"></self-uri><abstract><title>Abstract</title><p>The COVID‐19 pandemic quickly led to an abundance of publications and recommendations, despite a paucity of information on how COVID‐19 affects children with cancer. This created a dire need for a trusted resource with curated information and a space for the pediatric oncology community to share experiences. The Global COVID‐19 Observatory and Resource Center for Childhood Cancer was developed, launched, and maintained by the International Society of Pediatric Oncology and St. Jude Children's Research Hospital. The three components (Resource Library, Global Registry, and Collaboration Space) complement each other, establishing a mechanism to generate and transfer knowledge rapidly throughout the community.</p></abstract><kwd-group kwd-group-type="author-generated"><kwd id="pbc28962-kwd-0001">collaboration</kwd><kwd id="pbc28962-kwd-0002">COVID‐19</kwd><kwd id="pbc28962-kwd-0003">knowledge transfer</kwd><kwd id="pbc28962-kwd-0004">pediatric oncology</kwd></kwd-group><counts><fig-count count="2"></fig-count><table-count count="0"></table-count><page-count count="5"></page-count><word-count count="2165"></word-count></counts><custom-meta-group><custom-meta><meta-name>source-schema-version-number</meta-name><meta-value>2.0</meta-value></custom-meta><custom-meta><meta-name>cover-date</meta-name><meta-value>May 2021</meta-value></custom-meta><custom-meta><meta-name>details-of-publishers-convertor</meta-name><meta-value>Converter:WILEY_ML3GV2_TO_JATSPMC version:5.9.9 mode:remove_FC converted:26.03.2021</meta-value></custom-meta></custom-meta-group></article-meta><notes><p content-type="self-citation"><mixed-citation publication-type="journal" id="pbc28962-cit-0018"><string-name><surname>Moreira</surname><given-names>DC</given-names></string-name>, <string-name><surname>Sniderman</surname><given-names>E</given-names></string-name>, <string-name><surname>Mukkada</surname><given-names>S</given-names></string-name>, et al. <article-title>The Global COVID‐19 Observatory and Resource Center for Childhood Cancer: A response for the pediatric oncology community by SIOP and St. Jude Global</article-title>. <source xml:lang="en">Pediatr Blood Cancer</source>. <year>2021</year>;<volume>68</volume>:<elocation-id>e28962</elocation-id>. <pub-id pub-id-type="doi">10.1002/pbc.28962</pub-id><pub-id pub-id-type="pmid">33629507</pub-id></mixed-citation></p><fn-group><fn id="pbc28962-note-0001a"><p>[Correction added on 04 March 2021 after online publication: The author name Lane Faughan should be corrected as Lane Faughnan (n added)]</p></fn></fn-group></notes></front><body><def-list list-content="abbreviations" id="pbc28962-lp-0001"><title>Abbreviations</title><def-item><term>GCORCCC</term><def><p>The Global COVID‐19 Observatory and Resource Center for Childhood Cancer</p></def></def-item><def-item><term>SIOP</term><def><p>International Society of Pediatric Oncology</p></def></def-item><def-item><term>SJCRH</term><def><p>St. Jude Children's Research Hospital.</p></def></def-item></def-list><sec id="pbc28962-sec-0010"><label>1</label><title>INTRODUCTION</title><p>After rapidly spreading across the globe, COVID‐19 officially became a pandemic on March 11, 2020.<xref rid="pbc28962-bib-0001" ref-type="ref"><sup>1</sup></xref> Initial reports suggested that patients with comorbidities were at higher risk, causing concern that children with cancer were at risk of developing severe infection.<xref rid="pbc28962-bib-0002" ref-type="ref"><sup>2</sup></xref> Furthermore, measures to mitigate the spread of the virus, such as delaying medical procedures and travel restrictions, were anticipated to disturb the continuity of pediatric cancer care.<xref rid="pbc28962-bib-0003" ref-type="ref"><sup>3</sup></xref> It was also anticipated that the effects of the pandemic on health systems would amplify existing obstacles to caring for children with cancer.<xref rid="pbc28962-bib-0003" ref-type="ref"><sup>3</sup></xref></p><p>Since the beginning of the pandemic, a deluge of information regarding disease characteristics and possible management strategies was disseminated. This infodemic, an overabundance of information during an epidemic,<xref rid="pbc28962-bib-0004" ref-type="ref"><sup>4</sup></xref> has posed challenges never encountered before and was an early concern.<xref rid="pbc28962-bib-0005" ref-type="ref"><sup>5</sup></xref> The rapid spread of information and misinformation, potentiated by social media platforms, presented a public health challenge, confusing and overwhelming healthcare professionals and lay public alike.</p><p>In response to the need for a trusted resource with curated, reliable information and a platform to share experiences for the pediatric oncology community, the International Society of Pediatric Oncology (SIOP) and St. Jude Children's Research Hospital (SJCRH) created the Global COVID‐19 Observatory and Resource Center for Childhood Cancer (GCORCCC). The GCORCCC was launched as an open‐access website (covid19childhoodcancer.org) on April 15, 2020.</p></sec><sec id="pbc28962-sec-0020"><label>2</label><title>GENERAL OVERVIEW OF THE RESOURCE CENTER</title><p>The GCORCCC comprises three main elements: Resource Library, Global Registry, and Collaboration Space, outlined below. As of October 20, 2020, the GCORCCC has 64,980 page views by 32,295 unique users from 164 countries (Figure <xref rid="pbc28962-fig-0001" ref-type="fig">1</xref>). Additionally, to address questions related to pediatric cancer care during the pandemic in a live and interactive way, a series of webinars entitled <italic>COVID Conversations</italic> have been hosted. To date, 11 sessions directed at various aspects of cancer care and disciplines, including pediatric oncologists, nurses, surgeons, radiation oncologists, nongovernmental organizations, parents, and survivors, have been held. Regionally focused sessions were also held for Northern Italy and Spain, India and Pakistan, Latin America, and Africa. On average, the webinars have been attended by 337 people from 70 countries.</p><fig fig-type="FIGURE" xml:lang="en" id="pbc28962-fig-0001" orientation="portrait" position="float"><label>FIGURE 1</label><caption><p>Global COVID‐19 Observatory and Resource Center for Childhood Cancer usage</p><p>Individuals from more than 160 countries from across the world accessed the GORCCC</p></caption><graphic id="nlm-graphic-1" xlink:href="PBC-68-e28962-g001"></graphic></fig><sec id="pbc28962-sec-0030"><label>2.1</label><title>Resource library</title><p>The Resource Library contains updated curated peer‐reviewed manuscripts, guidance documents, and links relevant to the multidisciplinary care of children with cancer during COVID‐19.<xref rid="pbc28962-bib-0006" ref-type="ref"><sup>6</sup></xref> Publications are reviewed and assessed for relevance weekly for inclusion.<xref rid="pbc28962-bib-0007" ref-type="ref"><sup>7</sup></xref> We prioritize the dissemination of accurate data and quickly identify and address misinformation or conflicting reports. Only peer‐reviewed articles are included, as unvetted scientific information, such as preprints, were identified as a risk for misinformation for providers.<xref rid="pbc28962-bib-0008" ref-type="ref"><sup>8</sup></xref>, <xref rid="pbc28962-bib-0010" ref-type="ref"><sup>10</sup></xref></p><p>The sections of the Resource Library are as follows: COVID‐19 and Pediatric Oncology, General COVID‐19 Information, Treatment, Prevention, For Healthcare Providers, and For Patients and Families. Each section provides a collection of publications, guidance documents, recorded webinars, and relevant links.</p><p>To address the needs of healthcare professionals during this unprecedented time, resources focusing on leadership, self‐care, and resiliency are also included in the Resource Library. Additionally, a subsection specifically aimed at nurses, with literature and guidance documents, was developed. The <italic>Pediatric Oncology Nursing during COVID‐19 Fact Sheet</italic> summarizes the most relevant guidance for caring for children with cancer and is available in six languages as a quick bedside reference. Finally, a section with resources for patients and families aids bedside providers in educating and navigating patients and families toward trusted, accurate sources of information.</p></sec><sec id="pbc28962-sec-0040"><label>2.2</label><title>Registry</title><p>At the beginning of the pandemic, the natural history of COVID‐19 in children and adolescents with cancer was unknown. To gain an accurate picture of the burden of COVID‐19 among this patient population, we developed the Global COVID‐19 Registry. Healthcare providers worldwide were invited to voluntarily report any patient (under 19 years of age) with a malignancy or history of hematopoietic stem cell transplant at the time of a laboratory‐confirmed SARS‐CoV‐2 infection. The Registry was approved by the SJCRH Institutional Review Board.</p><p>As of December21, 2020, 1228 cases from 46 countries have been reported. Using aggregate data, we created an interactive data visualization dashboard to provide updates in a dynamic format (Figure <xref rid="pbc28962-fig-0002" ref-type="fig">2</xref>). The data visualization allows providers to filter cases by variables such as underlying diagnosis, cancer treatment, and COVID‐19 outcomes.</p><fig fig-type="FIGURE" xml:lang="en" id="pbc28962-fig-0002" orientation="portrait" position="float"><label>FIGURE 2</label><caption><p>Screenshot of the visualization dashboard of the Global COVID‐19 Registry</p><p>An interactive visualization was created to illustrate cases included in the Registry. Patients from 46 countries have been submitted (size of circle is proportional to patient number)</p></caption><graphic id="nlm-graphic-3" xlink:href="PBC-68-e28962-g002"></graphic></fig></sec><sec id="pbc28962-sec-0050"><label>2.3</label><title>Collaboration space</title><p>Creating an opportunity to bring the global community of healthcare professionals together is an essential component of the GCORCCC. The Collaboration Space provides a forum for healthcare professionals to interact and share their experiences and questions about caring for children with cancer during the COVID‐19 pandemic. The Collaboration Space has language translation capabilities, making it accessible to a large number of providers globally. Here, users are also able to access content, such as videos, blog posts, and live events.</p><p>Through sharing experiences, providers can support and learn from each other. <italic>From the Frontlines</italic> is a blog series published to highlight unique accounts of childhood cancer providers navigating COVID‐19 around the world. To date, the blog features stories from 24 providers in 19 countries. These providers discuss the challenges their teams have faced and innovative solutions they have employed to continue to treat children with cancer during the pandemic. Currently, there are 1300 total active users registered in the Collaboration Space who have connected and interacted over 36,000 times with content elements.</p></sec></sec><sec id="pbc28962-sec-0060"><label>3</label><title>DISCUSSION</title><p>A rapidly evolving pandemic poses many challenges in caring for children with cancer. The GCORCCC established a mechanism to generate and transfer knowledge for the pediatric oncology community during a global pandemic and infodemic. Through its various elements, users can access relevant information to help them adapt and respond to the rapidly shifting situation.</p><p>Academic institutions and professional societies should play central roles in the accurate and timely dissemination of information. For professionals caring for children with cancer, the sharing of experiences from regions that were affected early in the pandemic was essential for formulating the initial responses to the evolving pandemic.<xref rid="pbc28962-bib-0011" ref-type="ref"><sup>11</sup></xref>, <xref rid="pbc28962-bib-0012" ref-type="ref"><sup>12</sup></xref>, <xref rid="pbc28962-bib-0013" ref-type="ref"><sup>13</sup></xref>In addition, guidance for the management of COVID‐19 for different patient populations was generated by government agencies and professional societies with remarkable speed.<xref rid="pbc28962-bib-0014" ref-type="ref"><sup>14</sup></xref>, <xref rid="pbc28962-bib-0015" ref-type="ref"><sup>15</sup></xref>, <xref rid="pbc28962-bib-0016" ref-type="ref"><sup>16</sup></xref>Importantly, information sufficiency has been linked to less stress and worry amongst health care professionals.<xref rid="pbc28962-bib-0017" ref-type="ref"><sup>17</sup></xref> For this reason, a resource like the GCORCCC can support individuals to decrease burn out and improve resilience. This effort brought colleagues together and facilitated a sense of community in these trying times, in an innovative approach to addressing global challenges in pediatric cancer care. Many organizations attempted to compile listing of resources that are relevant to their specific populations, but few of them also sought to create knowledge about COVID‐19 in their populations to add to the evidence‐based literature.</p></sec><sec id="pbc28962-sec-0070"><label>4</label><title>CONCLUSION</title><p>At a time of exceptionally high stakes for children with cancer, the multi‐stakeholder collaboration that led to the GCORCCC represents a framework for global cooperative efforts in the future. SIOP and SJCRH formed a partnership aimed at disseminating the GCORCCC widely and rapidly throughout the global network, leveraging the strengths of both organizations. This platform shows that novel, dynamic information resources can help provide guidance to frontline providers across the globe, facilitating the rapid sharing and adoption of new information in highly dynamic situations. The collaborations built through this rapid multidisciplinary implementation and global dissemination process provide a foundation upon which the global community can collectively build to ultimately improve outcomes for all children with cancer everywhere.</p><p>In memoriam: This manuscript is dedicated to Dr. Arturo Moreno, past president of SLAOP/SIOP Latin America, a tireless advocate for children with cancer in Mexico, Latin America, and the world.</p></sec><sec sec-type="COI-statement" id="pbc28962-sec-0080"><title>CONFLICT OF INTEREST</title><p>The authors declare that there is no conflict of interest.</p></sec></body><back><ref-list id="pbc28962-bibl-0001"><title>REFERENCES</title><ref id="pbc28962-bib-0001"><label>1</label><mixed-citation publication-type="miscellaneous" id="pbc28962-cit-0001">WHO. <collab collab-type="authors">WHO Director‐General's opening remarks at the media briefing on COVID‐19, 11 March 2020</collab>. <year>2020</year>. <ext-link ext-link-type="uri" xlink:href="https://www.who.int/dg/speeches/detail/who-director-general-s-opening-remarks-at-the-media-briefing-on-covid-19-11-march-2020">https://www.who.int/dg/speeches/detail/who-director-general-s-opening-remarks-at-the-media-briefing-on-covid-19-11-march-2020</ext-link>. 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