A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic.
Identifieur interne : 003591 ( PubMed/Curation ); précédent : 003590; suivant : 003592A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic.
Auteurs : Bobbie Person [États-Unis] ; David Addiss ; L Kay Bartholomew ; Cecilia Meijer ; Victor Pou ; Guillermo Gonzálvez ; Bart Van Den BorneSource :
- Acta tropica [ 0001-706X ] ; 2007.
Descripteurs français
- KwdFr :
- Adulte, Adulte d'âge moyen, Animaux, Facteurs socioéconomiques, Femelle, Filariose lymphatique (), Filariose lymphatique (psychologie), Filariose lymphatique (économie), Filariose lymphatique (épidémiologie), Groupes focalisés (), Humains, Maladies endémiques, Qualité de vie, République dominicaine (épidémiologie), Santé des femmes, Sujet âgé.
- MESH :
- psychologie : Filariose lymphatique.
- économie : Filariose lymphatique.
- épidémiologie : Filariose lymphatique, République dominicaine.
- Adulte, Adulte d'âge moyen, Animaux, Facteurs socioéconomiques, Femelle, Filariose lymphatique, Groupes focalisés, Humains, Maladies endémiques, Qualité de vie, Santé des femmes, Sujet âgé.
- Wicri :
- geographic : République dominicaine.
English descriptors
- KwdEn :
- Adult, Aged, Animals, Dominican Republic (epidemiology), Elephantiasis, Filarial (complications), Elephantiasis, Filarial (economics), Elephantiasis, Filarial (epidemiology), Elephantiasis, Filarial (psychology), Endemic Diseases, Female, Focus Groups (methods), Humans, Middle Aged, Quality of Life, Socioeconomic Factors, Women's Health.
- MESH :
- geographic , epidemiology : Dominican Republic.
- complications : Elephantiasis, Filarial.
- economics : Elephantiasis, Filarial.
- epidemiology : Elephantiasis, Filarial.
- methods : Focus Groups.
- psychology : Elephantiasis, Filarial.
- Adult, Aged, Animals, Endemic Diseases, Female, Humans, Middle Aged, Quality of Life, Socioeconomic Factors, Women's Health.
Abstract
To date, few studies have addressed the sequelae of lymphatic filariasis, a mosquito-transmitted disease, on the quality of life of affected women in the Americas. In this qualitative study, we conducted 28 semi-structured interviews and 3 focus groups of women with lymphedema or elephantiasis of the leg living in filariasis-endemic areas of the Dominican Republic. Women in our study described a spectrum of consequences associated with their lymphedema but physical, functional, and psychological limitations were not always associated with severity of lymphedema. Data suggests that management frameworks need to be expanded to address women's explanatory models of illness, the cultural practices of seeking traditional healers for initial care, psychological distress, coping strategies unique to women, and the practice of self treating with antibiotics without medical supervision. Further research to better understand the depth and breadth of psychological states and coping strategies of women; the health seeking and self-management practices; and the strain on social support networks of women is needed in order to assist health program planners in establishing culturally tailored and gender-specific interventions for Dominican women.
DOI: 10.1016/j.actatropica.2007.05.010
PubMed: 17638614
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